🤩

Not my husband's tribe, at least from what I have found out, but there are so many different cultures that get folded together under the one label/category it's very possible!

I keep this article around to share when I have people try to tell me that it's mostly just middle aged white women who get MECFS/LC:

www.palabranahj.org/archive/what...

Yes!!!

I try to connect the people I know with resources when I can, but I'm just one low-energy person, so I can't do as much as I wish I could.

As much as it has impacted me, I know I am privileged to get even the limited care I do have access to, as well as the ed to do my own research.

That’s Signal. You are describing private Signal group chats

I think it would have made a huge difference if I could have spoke to the relevant people in person (since I know some of their staff via family and social connections who could have vouched for me) but I just didn't have the energy to leave the house then.

I've run into that issue when trying to connect ME Action and my husband's Tribe's medical center. They just didn't understand how serious and under recognized ME/CFS & LC are.

I also am very aware of trying to not be the white lady trying to push myself into others' spaces.

A big test for Bluesky mods of course will come when a right wing politician or media figure posts death threats.