CT Rare Advocate
40 following
LightNews LightNews
HD Reach
HD Reach
@hdreach.bsky.social
Immunoglobulin National Society
Immunoglobulin National Society
@ignsorg.bsky.social
The LAM Foundation
The LAM Foundation
@thelamfoundation.bsky.social
Microbes.Info
Microbes.Info
@microbesinfo.bsky.social
Children's Brain Tumor Network
Children's Brain Tumor Network
@wearecbtn.bsky.social
Team Telomere
Team Telomere
@teamtelomere.bsky.social
JWMDRC Patient Registries
JWMDRC Patient Registries
@jwmdrc-registries.bsky.social
Disability Daily Podcast
Disability Daily Podcast
@disabilitydaily.bsky.social
British Society for Immunology
British Society for Immunology
@britsocimm.bsky.social
aaaaiorg.bsky.social
aaaaiorg.bsky.social
@aaaaiorg.bsky.social
Angioedema News
Angioedema News
@angioedemanews.bsky.social
RASopathies Network
RASopathies Network
@rasnet.bsky.social
Simon Stones
Simon Stones
@simonrstones.bsky.social
hughjb.bsky.social
hughjb.bsky.social
@hughjb.bsky.social
djdonovan8.bsky.social
djdonovan8.bsky.social
@djdonovan8.bsky.social
RAREvolution
RAREvolution
@rarevolution.bsky.social
TRIDENT Preclinical Trials
TRIDENT Preclinical Trials
@tridentpct.bsky.social
Barack Obama
Barack Obama
@barackobama.bsky.social
The Zebra Alliance Community
The Zebra Alliance Community
@thezebraalliance.bsky.social
Alltrna
Alltrna
@alltrna.bsky.social
Rare Genomics Institute
Rare Genomics Institute
@raregenomics.bsky.social
Gluten-Free Foodee
Gluten-Free Foodee
@gluten-freefoodee.bsky.social
autumnwaves.bsky.social
autumnwaves.bsky.social
@autumnwaves.bsky.social
EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe
@eurordis.bsky.social
RARE Revolution insider®
RARE Revolution insider®
@rarerevinsider.bsky.social
Rare Disease Research Network_RDRN
Rare Disease Research Network_RDRN
@rd-rn.bsky.social
Medics for Rare Disease
Medics for Rare Disease
@medicsforrare.bsky.social
ERDERA
ERDERA
@erdera.bsky.social
Stichting TAPS Support
Stichting TAPS Support
@tapssupport.bsky.social
bioRxivpreprint
bioRxivpreprint
@biorxivpreprint.bsky.social
Abby
Abby
@abbyhae.bsky.social
Buffer
Buffer
@buffer.com
Representative Eleni Kavros DeGraw
Representative Eleni Kavros DeGraw
@repkavrosdegraw.bsky.social
The Jackson Laboratory
The Jackson Laboratory
@jacksonlab.bsky.social
National Organization for Rare Disorders (NORD)
National Organization for Rare Disorders (NORD)
@nordrare.bsky.social
Cambridge Rare Disease Network
Cambridge Rare Disease Network
@camrare.bsky.social
Rare Diseases International (RDI)
Rare Diseases International (RDI)
@rarediseasesint.bsky.social
Alison
Alison
@rarezebramom.bsky.social
Bluesky
Bluesky
@bsky.app