The below posts are fromy husband @rarectadvocate.bsky.social - he's a pretty cool guy who posts info about a different rare disease a day. The below posts are about Specific Antibody Deficiency aka. SAD and how they relate to us .

If your child has a rare disease and attends a public school in the US, they are entitled to district support through a #504 plan or an #IEP. Ensure they receive the education they deserve.

You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness

His High School career started out with 2 days in school, followed by over 100 at home. He finally started back for 1 period a day 2 weeks ago, and still hasn't made it back every day.

You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness

Today's Rare Disease of the Day (RDoD) hits close to home. My son was diagnosed with #SAD - Specific Antibody Deficiency in 2024. Like many rare diseases, it was a long road to getting a diagnosis.

You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness

Specific Antibody Deficiency (#SAD) is a primary immunodeficiency where individuals have normal antibody levels but can't produce specific antibodies, causing frequent respiratory infections.

Learn more: primaryimmune.org

You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness

8 days until Rare Disease Day 2025 ! I challenge everyone to find one person they know who has a rare disease and ask them about it. Their challenges, their joys and everything else in between - go !

How many people do you know ?