Simon Stones
@simonrstones.bsky.social
🏳️🌈 he/him • Global Patient Engagement Leader & Medical Communications Specialist • EULAR PARE Committee Chair • ✈️ • 🎭 • 📸
Our incredible @eular.org International PARE Working Group! Uniting the voices of the global patient community with RMDs beyond Europe. #pare2025
November 20, 2025 at 8:56 AM
Our incredible @eular.org International PARE Working Group! Uniting the voices of the global patient community with RMDs beyond Europe. #pare2025
Opportunities like this week are critical for bringing together patient organisation CEOs to learn, listen, and grow together! #pare2025 @eular.org
November 20, 2025 at 7:48 AM
Opportunities like this week are critical for bringing together patient organisation CEOs to learn, listen, and grow together! #pare2025 @eular.org
Our wonderful @eular.org PARE Committee and Young PARE Working Group! Proud to know and work with everyone. 💙 #pare2025
November 20, 2025 at 6:42 AM
Our wonderful @eular.org PARE Committee and Young PARE Working Group! Proud to know and work with everyone. 💙 #pare2025
Wrapping up and summarising our key reflections on managing multiple priorities as volunteers - be kind to yourself, and clear with boundaries #pare2025
November 20, 2025 at 6:35 AM
Wrapping up and summarising our key reflections on managing multiple priorities as volunteers - be kind to yourself, and clear with boundaries #pare2025
We must not underestimate the importance of stepping back and reflecting, which is why our @eular.org PARE training programme is so critical for our volunteers. So much self-reflection taking place! #pare2025
November 20, 2025 at 6:31 AM
We must not underestimate the importance of stepping back and reflecting, which is why our @eular.org PARE training programme is so critical for our volunteers. So much self-reflection taking place! #pare2025
We see the importance of investing in all members of our @eular.org PARE community, which is why our annual training programme is vital so no volunteer is left behind! #pare2025
November 19, 2025 at 8:06 AM
We see the importance of investing in all members of our @eular.org PARE community, which is why our annual training programme is vital so no volunteer is left behind! #pare2025
Stay tuned across platforms this week for updates from @eular.org #pare2025!
November 19, 2025 at 7:41 AM
Stay tuned across platforms this week for updates from @eular.org #pare2025!
Reposted by Simon Stones
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
July 24, 2025 at 5:50 PM
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!
June 27, 2025 at 2:50 PM
The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!
Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology
June 27, 2025 at 2:47 PM
Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology
Reposted by Simon Stones
You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
June 21, 2025 at 6:24 PM
You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
Reposted by Simon Stones
🙌Thank you for attending the #EULAR2025 Congress!
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
June 17, 2025 at 11:19 AM
🙌Thank you for attending the #EULAR2025 Congress!
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
Reposted by Simon Stones
🦋Impossible to summarise all #EULAR2025 has meant for us.
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
June 17, 2025 at 3:38 PM
🦋Impossible to summarise all #EULAR2025 has meant for us.
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
Best picture of the entire Congress 🤣 #eular2025
June 14, 2025 at 12:11 PM
Best picture of the entire Congress 🤣 #eular2025
Reposted by Simon Stones
💥 The 3 “Move Together” sessions were a great success at #EULAR2025!
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
June 14, 2025 at 11:57 AM
💥 The 3 “Move Together” sessions were a great success at #EULAR2025!
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
Reposted by Simon Stones
#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social
June 14, 2025 at 11:53 AM
#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social
Reposted by Simon Stones
😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
June 14, 2025 at 12:06 PM
😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
Reposted by Simon Stones
Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
June 14, 2025 at 11:40 AM
Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025
June 14, 2025 at 11:29 AM
Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025
Reposted by Simon Stones
"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org
June 14, 2025 at 11:08 AM
"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org
Some nice recommendations and useful toolkit to help young people with RMDs to navigate the workplace! Find out more here: arthritispatient.ca/en/arthritis... #eular2025
June 14, 2025 at 10:51 AM
Some nice recommendations and useful toolkit to help young people with RMDs to navigate the workplace! Find out more here: arthritispatient.ca/en/arthritis... #eular2025