Simon Stones
@simonrstones.bsky.social
🏳️🌈 he/him • Global Patient Engagement Leader & Medical Communications Specialist • EULAR PARE Committee Chair • ✈️ • 🎭 • 📸
Reposted by Simon Stones
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
July 24, 2025 at 5:50 PM
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!
June 27, 2025 at 2:50 PM
The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!
Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology
June 27, 2025 at 2:47 PM
Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology
Reposted by Simon Stones
You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
June 21, 2025 at 6:24 PM
You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
Collect stamps on your Brain Health Bingo card for a chance to win a prize!
#BrainHealthMission #ean2025 #Neurology @EANeurology
Reposted by Simon Stones
🙌Thank you for attending the #EULAR2025 Congress!
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
June 17, 2025 at 11:19 AM
🙌Thank you for attending the #EULAR2025 Congress!
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
We hope you had a memorable experience!
📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k
✈️We Look forward to seeing you at #EULAR2026 in London!
#EULAR #EULAR2025 #Rheumatology
Reposted by Simon Stones
🦋Impossible to summarise all #EULAR2025 has meant for us.
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
June 17, 2025 at 3:38 PM
🦋Impossible to summarise all #EULAR2025 has meant for us.
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.
From this energy & passion come projects like #LupusGPT
🙏 Thanks to all who make all this possible
Best picture of the entire Congress 🤣 #eular2025
June 14, 2025 at 12:11 PM
Best picture of the entire Congress 🤣 #eular2025
Reposted by Simon Stones
💥 The 3 “Move Together” sessions were a great success at #EULAR2025!
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
June 14, 2025 at 11:57 AM
💥 The 3 “Move Together” sessions were a great success at #EULAR2025!
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social
Reposted by Simon Stones
#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social
June 14, 2025 at 11:53 AM
#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social
Reposted by Simon Stones
😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
June 14, 2025 at 12:06 PM
😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
Reposted by Simon Stones
Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
June 14, 2025 at 11:40 AM
Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025
June 14, 2025 at 11:29 AM
Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025
Reposted by Simon Stones
"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org
June 14, 2025 at 11:08 AM
"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org
Some nice recommendations and useful toolkit to help young people with RMDs to navigate the workplace! Find out more here: arthritispatient.ca/en/arthritis... #eular2025
June 14, 2025 at 10:51 AM
Some nice recommendations and useful toolkit to help young people with RMDs to navigate the workplace! Find out more here: arthritispatient.ca/en/arthritis... #eular2025
Natasha Trehan @capa-aca.bsky.social highlights the worries young people have about getting into employment with an RMD #eular2025
June 14, 2025 at 10:49 AM
Natasha Trehan @capa-aca.bsky.social highlights the worries young people have about getting into employment with an RMD #eular2025
Young people with RMDs find it difficult to access school accommodations - they want the education system to make it easier for them to get the support they need - something @raiiseuk.bsky.social takes seriously #eular2025
June 14, 2025 at 10:47 AM
Young people with RMDs find it difficult to access school accommodations - they want the education system to make it easier for them to get the support they need - something @raiiseuk.bsky.social takes seriously #eular2025
Having an RMD can disrupt financial planning, increase debt risk, and cause uncertainty about retirement #eular2025
June 14, 2025 at 10:35 AM
Having an RMD can disrupt financial planning, increase debt risk, and cause uncertainty about retirement #eular2025
The cost of living with an RMD is often hidden beneath the surface #eular2025
June 14, 2025 at 10:33 AM
The cost of living with an RMD is often hidden beneath the surface #eular2025
Important research from Arthritis Ireland - arthritis costs an average of €3500 per person per year, when thinking about all the additional needs due to an RMD diagnosis #eular2025
June 14, 2025 at 10:28 AM
Important research from Arthritis Ireland - arthritis costs an average of €3500 per person per year, when thinking about all the additional needs due to an RMD diagnosis #eular2025
We need to be thinking of early adopters, early/late majority, and laggards when it comes to digital health technology, AND those who are off bounds and require alternative methods of engagement #eular2025
June 14, 2025 at 8:10 AM
We need to be thinking of early adopters, early/late majority, and laggards when it comes to digital health technology, AND those who are off bounds and require alternative methods of engagement #eular2025
We have a great opportunity here to influence organisational health literacy, leveraging the expertise of patient organisations to inform and guide healthcare systems to make healthcare more accessible #eular2025
June 14, 2025 at 7:54 AM
We have a great opportunity here to influence organisational health literacy, leveraging the expertise of patient organisations to inform and guide healthcare systems to make healthcare more accessible #eular2025
The health literacy dilemma - the disconnect between risk factors and development of disease is evident #eular2025
June 14, 2025 at 7:50 AM
The health literacy dilemma - the disconnect between risk factors and development of disease is evident #eular2025
We really need to get better at proactive strategies to prevent disease / worsening symptoms within this ‘window of opportunity’ #eular2025
June 14, 2025 at 7:47 AM
We really need to get better at proactive strategies to prevent disease / worsening symptoms within this ‘window of opportunity’ #eular2025