Rakeline
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rakeline.bsky.social
Rakeline
@rakeline.bsky.social
Samfunnsengasjert, love to read, Ce que je suis suffit 🌱
Reposted by Rakeline
Da er webinaret om prognoser for ME-syke tilgjengelig på YouTube! Litt tekniske problemer på de første slidsene, men det går seg til!
youtu.be/m9Ccy3HjLQQ?...
Hva kan registerdata fortelle oss om prognoser og tilfriskning ved G93.3 diagnose?
YouTube video by Norges Myalgisk Encefalopati Forening
youtu.be
November 26, 2024 at 9:31 PM
Reposted by Rakeline
Lovely to see that my new study with Jing Liu was included among the top 2024 ME publications (out of 300 studies) considered to "provide valuable data that bring us closer to understanding the illness."

mecfsskeptic.com/2024-looking...
2024: looking back on a year of ME/CFS research - ME/CFS Skeptic
As 2024 comes to a close, it is time to review the most interesting studiesContinue reading2024: looking back on a year of ME/CFS research
mecfsskeptic.com
December 29, 2024 at 7:49 PM
Reposted by Rakeline
Petition: Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark

”Doctors have told Line that if she does not get out of bed during the next 2 weeks, she will be forcibly committed to a psychiatric hospital.”

www.change.org/p/prevent-fo...
Sign the Petition
Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark
www.change.org
January 20, 2025 at 1:53 PM
Reposted by Rakeline
Pasientrettigheter under angrep. Regjeringen ønsker å svekke rettighetene våre igjen. Frist for å sende inn høringssvar er 6. januar 2025.
melivet.com/2024/12/27/p...
Pasientrettigheter under angrep
Regjeringen ønsker å svekke rettighetene våre igjen. Frist for å sende inn høringssvar er 6. januar 2025. I fjor foreslo regjeringen å stramme inn på våre innsynsrettigheter, jfr. Offentleglova. Et…
melivet.com
December 27, 2024 at 5:29 PM
Reposted by Rakeline
– De fleste oppdaterte fagfolk har for lengst lagt Lightning Process på hyllen. De som fortsatt holder fast ved denne metoden, har ofte personlige eller finansielle interesser. ... svarer @kunstjonas.bsky.social
www.tv2.no/sport/vinter...
Emilie (27) var dødssyk: - Senga begynte å gro inn i huden
Legene kunne ikke gjøre mer og foreldrene fikk beskjed om at deres datter kanskje ikke ville overleve. Emilie Kalkenberg forstår ennå ikke helt hvordan hun ble frisk.
www.tv2.no
December 14, 2024 at 3:39 PM
Reposted by Rakeline
For en gangs skyld, en stand up komiker som faktisk lager god humor ut av ME:

(videosnutt på under 2 minutter)
ME/CFS and Doctors
YouTube video by Comedian Doug Ouimette
www.youtube.com
December 13, 2024 at 9:20 PM
I morgen er det premierekveld for mitt eldste barnebarn på scenen i Nøtteknekkeren:
www.tivoli.dk/program/teat...
Nøddeknækkeren 2024. Den klassiske ballet vender tilbage.
Tivoli er stolt af at kunne præsentere denne opsætning af den klassiske juleballet Nøddeknækkeren for 6. gang. Dronning Margrethe er den kyndige hånd bag forestillingens scenografi og kostumer og Tivo...
www.tivoli.dk
November 29, 2024 at 8:45 PM
Reposted by Rakeline
World will be ‘unable to cope’ with volume of plastic waste in 10 years, warns expert
World will be ‘unable to cope’ with volume of plastic waste in 10 years, warns expert
Countries must curb production now and tackle plastic’s full life cycle, says Norwegian minister Anne Beathe Tvinnereim ahead of key UN talks this week The world will be “unable to cope” with the sheer volume of plastic waste a decade from now unless…
www.theguardian.com
November 24, 2024 at 9:03 AM
Reposted by Rakeline
En direct, guerre en Ukraine : les soldats nord-coréens stationnés en Russie combattront bientôt les forces ukrainiennes, selon le Pentagone
En direct, guerre en Ukraine : les soldats nord-coréens stationnés en Russie combattront bientôt les forces ukrainiennes, selon le Pentagone
Selon Kiev, Moscou a rassemblé quelque 50 000 soldats, dont plusieurs milliers de Nord-Coréens, pour reprendre le contrôle des zones de la région de Koursk occupées par l’armée ukrainienne. Par ailleurs, après le tir sur Dnipro, Vladimir Poutine a déclaré…
www.lemonde.fr
November 23, 2024 at 10:35 AM
Reposted by Rakeline
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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November 20, 2024 at 11:27 AM
Early this morning in Hørsholm ❄️🌞
November 21, 2024 at 9:23 AM
Reposted by Rakeline
💡Assessing Neuroinflammatory Involvement in ME/CFS via MRI and PET 💡

Dr. Bergquist is conducting a study using novel #MRI and #PET imaging techniques to help understand what is happening in the #CNS through non-invasive methods.

Watch this interview 👉 www.omf.ngo/neuroinflamm...

#pwME #MECFS
Assessing Neuroinflammatory Involvement in ME/CFS via MRI and PET: Interview with Dr. Bergquist - Open Medicine Foundation
Watch an interview with Dr. Bergquist as he shares insights on a study that will use non-invasive imaging to help understand what’s going on in the CNS.
www.omf.ngo
November 19, 2024 at 5:44 PM
Reposted by Rakeline
#MEAction is sending an urgent letter to NIH Director Dr. Monica Bertagnolli, urging the NIH to fund the ME/CFS Research Roadmap.

If you are in the US, sign onto the letter here: win.newmode.net/fundmeroadmap

All other countries, sign here: airtable.com/appls0UcwWjm...

#FundMERoadmap #pwME
October 16, 2024 at 5:38 PM