Noek
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queerandloathing.bsky.social
Noek
@queerandloathing.bsky.social
Severe M.E./LC having creature in a room somewhere in the Netherlands
They/them
Ready to Return to the Woods. And to my art and writing.
Reposted by Noek
The problem with the vast majority of conversations about transness on any broad scale is it’s just making up a guy—like it’s not about actual individual trans people with lives and needs, it’s about the specter of Transness™ dredging up the anxieties of cisheteronormativity.
March 23, 2025 at 8:50 PM
Reposted by Noek
Please, if you’re #Dutch sign this petition to get the #Netherlands to stop using #GET as a treatment for #ME. We know it doesn’t work, it nearly killed me and cost me 8 long years of my life #bedridden. It didn’t have to be this hard. RIP ages 28-36. tinyurl.com/ystekut2
Wij Zeggen Voorgoed NEE tegen GET en CGT - Petitie24.nl
tinyurl.com
March 12, 2025 at 1:28 PM
Reposted by Noek
In need of some rest.

Last Saturday, I drank an alcohol-free beer, listened to music, and sat upright (in my hospital bed) for about 30 minutes. And now, because of that, I have PEM (post-exertional malaise, a hallmark symptom of ME/CFS). 1/8

#pwME #MECFS #SelfDocumentary #Photography
April 7, 2025 at 3:11 PM
Reposted by Noek
Both adults and children are good at pretending, but it's only adults who will pretend they don't know a place is haunted, that they haven't sped their steps to leave it. Children know the haunting and celebrate it. – Dario & Janet Tóth, 'Clockless Hours Revisited', Ransom & Waterhouse, 1982
April 3, 2025 at 2:44 PM
Reposted by Noek
Ngl I don't really buy into not pursuing transition related things to preempt government crackdowns and discrimination. Usually just feels like doing their job for them, denying yourself before they can deny you. However X markers on IDs? You couldn't pay me
January 17, 2025 at 6:29 PM
Reposted by Noek
The Guardian has spent a year with Darren - one of about 2 million people living with Covid in England and Scotland.

Watch it in 7 minutes.

V. important from my video colleagues.

www.theguardian.com/society/vide...
‘The pandemic isn’t over’: my year of long Covid – video
Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...
www.theguardian.com
January 15, 2025 at 10:49 AM
Watch this!!! Thanks Anil for making this <3
January 15, 2025 at 2:59 PM
Taking DXM for PEM feels like an angel is pissing on my brain stem and nervous system, bless me
January 15, 2025 at 2:58 PM
I was gonna go the funny route but forgot I had this saved
January 14, 2025 at 6:51 PM
Reposted by Noek
I know we’re amidst the holidays and times are tight for everyone but I’m still in disability appeal limbo and need help with bills. I’m @ bimbotheory on Venmo and PayPal and anything goes a long way 💞
December 27, 2024 at 8:45 PM
Reposted by Noek
I'm not exaggerating when I say we have no care.

We have less access to care than healthy people because we aren't well enough to access A&E and hospitals can be dangerous for us.

There are no specialist treatment centres, no consultants, nothing.
Swedish ME Association RME chairperson Jenny Lundgren has written an opinion piece for Altinget about severe consequences from the lack of care of ME patients.She asks for a national center of knowledge, specialist care, more research,more education & a patient register for ME

#MEcfs #PwME #CFS
1/
January 12, 2025 at 4:04 PM
Reposted by Noek
Urgent callout for local support (individual/group/mutual aid orgs) from ME allies in *Manitoba, Canada* - please repost. TW DV ⬇️
January 14, 2025 at 11:19 AM
What’s a good resource to send people who JUST developed long covid? Realistic but not overwhelming.
January 8, 2025 at 12:47 PM
Heeft iemand in NL of BE ketotifen over?
December 27, 2024 at 4:03 PM
##MEcomorbidity : #MCAS treatment requires money and privilege. If you try to seek support for that online, you’re mostly met with redundant repetition of “well, it’s the only way.” We need a harm reduction mindset and DIY community structures for meds + money
December 2, 2024 at 3:36 PM
Reposted by Noek
Let’s remember that social media -even with all its drama- is the lesser hell for some people who come here to escape bigger dramas in their real lives. Do your little bit to make this place welcoming of the tired and the bruised ☀️
November 23, 2024 at 7:17 AM
Google is broken and chatGPT destroys the earth so the only option left is communicating with lingering spirits and ghosts
November 22, 2024 at 9:02 PM
I never really used twitter but thought I’d join the fun
November 22, 2024 at 8:13 PM