Beth Steckler
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purplemamabear.bsky.social
Beth Steckler
@purplemamabear.bsky.social
Patient advocate, advocate for healthcare reform, wife/mom of those w #rarediseases, rare disease legislative advocate, interested in systems, sociology, psychology. Enjoy hiking & kayaking. Love 💕 people, books, traveling & laughing.
January 11, 2025 at 11:36 PM
Adore this
January 11, 2025 at 8:28 PM
January 11, 2025 at 12:22 PM
Reposted by Beth Steckler
Happy to report that the @asanews.bsky.social Disability in Society Section has a BlueSky account!

@asadisability.bsky.social

Thanks to @jessical-2022.bsky.social for setting this up!!

Follow us!!
bsky.app
January 6, 2025 at 5:39 PM
January 10, 2025 at 1:09 AM
Critical for patients and caregivers to know this regarding EMRs.
I feel like people should be more aware that documentation in their “medical record,” no matter how new or expensive an EMR or how hard their clinician tries, has been designed for insurance billing instead of for a legible record of a person’s medical needs, and how often that impedes patient care
January 8, 2025 at 2:30 AM
My world 🌎
January 7, 2025 at 2:30 PM
Reposted by Beth Steckler
SOCIAL SECURITY IS OUR MONEY! IT WILL ALWAYS BE. WE PAID FOR IT. I SUBSIST ON IT AS DO MILLIONS, FOR US IT IS OUR ONLY SOURCE OF INCOME. SENIORS PEOPLE W/DISABILITIES/VETERANS & PEOPLE WHO RECEIVE SURVIVORS BENEFITS. WE WILL FIGHT TOOTH & NAIL FOR THIS PROGRAM!

(Thank you @socialsecurityworks.org )
January 6, 2025 at 5:34 PM
We have made it officially & my daughter now permanently resides in the next state over so she can access quality and compassionate medical care.

People with complex health should not have to move out of their state that their family and friends are in order to access appropriate care and 1
January 5, 2025 at 8:03 PM
Who’s attending #RareDiseaseWeek in DC this February?

Excited to attend!
a blue and red circle with the words we come together for rare disease
ALT: a blue and red circle with the words we come together for rare disease
media.tenor.com
January 5, 2025 at 7:54 PM
Absolutely 💯 me
January 5, 2025 at 7:50 PM
Makes me laugh every time I see it. My son rolls his eyes but……. resemblance, no?
January 5, 2025 at 5:37 PM
January 5, 2025 at 5:36 PM
Reposted by Beth Steckler
Down with *UnitedWealthCare* Up with Universal Health Care. 💙
December 27, 2024 at 4:15 PM
Reposted by Beth Steckler
December 29, 2024 at 12:23 AM
Reposted by Beth Steckler
December 29, 2024 at 12:26 AM
Reposted by Beth Steckler
Instead of manifest destiny, maybe try manifesting decent healthcare.
December 29, 2024 at 12:44 AM
Whooping Cough 😷
December 29, 2024 at 2:31 AM
Reposted by Beth Steckler
Thank YOU President Biden & VP Harris for this. Everyone on Medicare will benefit, this is such an overlooked accomplishment for those of us who have multiple & costly medications. Remember this serves Seniors/Survivors/People With Disabilities & Veterans! AMAZING.🙏💜

www.nbcnews.com/health/healt...
Medicare's $2,000 prescription drug cap expected to bring major relief to cancer patients
The new price cap, part of the Inflation Reduction Act, will apply to all prescription drugs covered by Medicare.
www.nbcnews.com
December 28, 2024 at 8:10 PM
Reposted by Beth Steckler
We MUST stay united and EMBRACE 2025 TOGETHER! Never give up. Onward!💜🔥
December 28, 2024 at 6:23 PM
Reposted by Beth Steckler
🔥NEVER FORGET: Senators Lindsey Graham, Ron Johnson, Mike Lee and Rand Paul have wanted for over a decade to RAISE the age of qualifying for Social Security to 70.

🔥This = CUTTING Social Security by 21%!

🔥Social Security is OUR money!

🔥We are being ROBBED & RAIDED! We paid for EVERY single penny!
December 28, 2024 at 5:07 PM
Reposted by Beth Steckler
Reposted by Beth Steckler
💭 Inequalities in oral health: estimating the longitudinal economic burden of #dental caries by deprivation status in six countries

bmcpublichealth.biomedcentral.com/articles/10....

#PatientExperience #LivedExperience #PatientEngagement
#CommunityEngagement #Health
#Research
#MedSky
December 29, 2024 at 1:31 AM
December 29, 2024 at 12:23 AM
Be nice to win mega millions…… no more medical debt would be so sweet.
December 27, 2024 at 11:14 PM