Beth Steckler
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purplemamabear.bsky.social
Beth Steckler
@purplemamabear.bsky.social
Patient advocate, advocate for healthcare reform, wife/mom of those w #rarediseases, rare disease legislative advocate, interested in systems, sociology, psychology. Enjoy hiking & kayaking. Love 💕 people, books, traveling & laughing.
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January 8, 2025 at 2:35 AM
Not all Americans!!!! Some of us are mortified and terrified.
January 8, 2025 at 2:33 AM
Gorgeous
January 6, 2025 at 12:55 PM
also almost died twice due to the hospital not reaching out to her specialists. Young people can have chronic pain & complex health issues. This is hard enough but the medical trauma often endured is brutal. 3
January 5, 2025 at 8:03 PM
ensure they will not die due to lack of quality & collaborative care. Also, financially cost for her is lower even though I am basically been paying a second mortgage. No patient with insurance & Medicare should be paying minimum of $25,000 out of pocket for medication. It’s been insane. She has 2
January 5, 2025 at 8:03 PM
God forbid if she went into MH.
December 29, 2024 at 2:35 AM
When was this?
December 29, 2024 at 2:34 AM