Panda Mama
banner
pandamama2024.bsky.social
Panda Mama
@pandamama2024.bsky.social
Parent raising awareness of #PANDAS #PANS. #BrainInflammation in #children triggered by virus /infection. #NoMoreLostChildren #ChangeIsComing
Reposted by Panda Mama
Join me tomorrow for World PANS PANDAS Awareness Day in memory of Alex Manfull.💚

The day is marked by efforts like the #LightUp4PANS campaign, where landmarks are lit in green.

📍Memorial Bridge, Portsmouth NH

For more info: thealexmanfullfund.org
October 8, 2025 at 2:49 PM
Reposted by Panda Mama
Council has proclaimed October 9, 2025, to mark World PANS PANDAS Awareness Day at the request of Inflamed Brain Alliance (IBA). The Archie Browning Sports Centre and the Esquimalt Adventure Park will be lit in green to help raise visibility for these neuroinflammatory conditions.
#LightUp4PANS
October 9, 2025 at 10:00 PM
Reposted by Panda Mama
#PANDAS: An #inflammatory or #autoimmune syndrome that is poorly understood: we need urgent #research, clinical pathways, education & multidisiplinry collaboration.
Who is leading? Where is the funding?
#PANS #immunology #MedSky #PaedSky #PedSky
🧪
sunlightlater.substack.com/p/one-year-o...
One Year On: Our PANDAS Journey
What happens when your child vanishes into an illness no one believes in.
sunlightlater.substack.com
October 13, 2025 at 8:51 AM
Reposted by Panda Mama
Infections can cause the development of psychiatric & physical symptoms & #SEND in young people. Tina Coope – @panspandasuk.bsky.social – discusses #PANS & #PANDAS & the implications of these conditions for #teaching & pastoral care in #schools https://buff.ly/3EhuBG3 #wellbeing
PANS and PANDAS: Supporting affected pupils - SecEd
PANS and PANDAS infections can cause the development of psychiatric and physical symptoms in children and young people
buff.ly
February 7, 2025 at 1:37 PM
Reposted by Panda Mama
#AIFA si illumina di verde per la Giornata Mondiale PANS/PANDAS 2025 e aderisce alla campagna globale #LightUp4PANS
📌 Obiettivo: sensibilizzare su due sindromi neuropsichiatriche pediatriche ancora poco conosciute, ma molto impattanti, legate
al disturbo ossessivo compulsivo.
💚 Unisciti a noi
October 9, 2025 at 8:27 AM
Reposted by Panda Mama
Today is PANS/PANDAS Awareness Day — a condition my daughter has been suffering from for the past three years.

My daughter, wrote a poem about living with PANS/PANDAS. It breaks my heart, but I’m also incredibly proud of her strength and courage in sharing it.

#PANSPANDASawareness #LightUp4PANS
October 9, 2025 at 10:57 AM
Reposted by Panda Mama
🌟New blog

Tina from @panspandasuk.bsky.social writes for us on PANS PANDAS Awareness Day (today!)

Reflecting on some of the nuances of these conditions, the progress made and the steps still needed.

Read here: edpsy.org.uk/blog/2025/pa...

#edpsychs #PANS #PANDAS
October 9, 2025 at 2:37 PM
Reposted by Panda Mama
Find out more about how to support young people with PANS/PANDAS
panspandasuk.org
Check out new resources about PANS/PANDAS and Neurodivergence:
panspandasuk.org/neurodiverge...
and
autisticrealms.com/navigating-p...
October 14, 2025 at 11:00 AM
Reposted by Panda Mama
Join our informative webinar for parents and carers to learn what to expect during the EHC assessment process in the context of PANS or PANDAS

Led by experienced SEN Solicitor Eleanor Wright, in collaboration with SOS!SEN

🔗 Register: panspandasuk.org/wp-content/uploads/2025/05/webinar-guide-1.pdf
May 29, 2025 at 12:41 PM
Reposted by Panda Mama
Current Education reforms could negatively impact children and young people with PANS and PANDAS.

Find out what PANS PANDAS UK are doing to ensure our voices are heard: panspandasuk.org/post/protecting-vulnerable-voices
May 22, 2025 at 10:27 AM
Reposted by Panda Mama
Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education.

PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat
May 19, 2025 at 1:42 PM
Reposted by Panda Mama
Join the @nicecomms.bsky.social Prioritisation board to share your crucial perspective on topics that affect parents, carers and families affected by ill health: www.nice.org.uk/get-involved...
May 28, 2025 at 7:41 AM
Reposted by Panda Mama
PANS, PANDAS and Parliament!

Since 2020, PANS PANDAS UK and our fantastic community have continually driven political awareness about PANS and PANDAS. Learn more about our parliamentary engagement:

panspandasuk.org/post/our-work-in-parliament
Our Work in Parliament  - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: Our Work in Parliament
panspandasuk.org
May 28, 2025 at 7:49 AM
Reposted by Panda Mama
Our next teacher training session is on the 11th of June.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation
May 28, 2025 at 7:58 AM
Reposted by Panda Mama
@parentcarerassembly.scot has published a report on "Additional Support for Learning".

You can read the full report here:
www.panspandasuk.org/post/scottish-assembly-report/
Scottish Assembly Report - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: Scottish Assembly Report
www.panspandasuk.org
May 29, 2025 at 3:41 PM
Reposted by Panda Mama
Did you know that PANS and PANDAS are medical conditions that affect children or young people in school?

A summary guide for health professionals is available to download: panspandasuk.org/wp-content/uploads/2024/05/A-guide-for-Health-Professionals-Education-and-PANS-PANDAS-DIGITAL-VERSION.pdf
June 2, 2025 at 2:39 PM
Reposted by Panda Mama
Calling all paediatric dentistry professionals!

PANS PANDAS UK are speaking at the @bspduk summer event, June 6th.

events.teams.microsoft.com/event/129271...
June 3, 2025 at 8:17 AM
Reposted by Panda Mama
Help your family to reconnect following a flare of PANS or PANDAS symptoms.

Vicky Queralt, Clinical Psychologist, suggests a variety of strategies to support everyone affected: panspandasuk.org/wp-content/uploads/2025/05/Reconnecting-2.pdf
June 5, 2025 at 10:15 AM
Reposted by Panda Mama
Two weeks until the next teacher training session on 19th May

See all our upcoming events here: panspandasuk.org/events
May 5, 2025 at 4:13 PM
Reposted by Panda Mama
Did you know that Twinkl offers a wide range of educational resources on PANS and PANDAS?

A big thank you to them for making these valuable materials available.

www.twinkl.co.uk/resource/pans-pandas-information-and-cpd-pack-t-s-1643108429
www.twinkl.co.uk
May 6, 2025 at 8:53 AM
Reposted by Panda Mama
One Week to Go

Our next teacher training session is on 19 May.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation
May 12, 2025 at 8:16 AM
Reposted by Panda Mama
If you've ever felt this way, our Youth Advisory Board is the space for you.

Speak out and be heard today: panspandasuk.org/youth-adviso...
May 12, 2025 at 8:39 AM
Reposted by Panda Mama
The absence of UK clinical guidelines for PANS and PANDAS hinders access to prompt, accurate assessment, diagnosis and treatment and creates a postcode lottery for patients: panspandasuk.org/post/work-continues-apace-on-development-of-clinical-guidelines
May 2, 2025 at 1:52 PM