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pandamama2024.bsky.social
Panda Mama
@pandamama2024.bsky.social
Parent raising awareness of #PANDAS #PANS. #BrainInflammation in #children triggered by virus /infection. #NoMoreLostChildren #ChangeIsComing
#MentalHealth symptoms can be triggered by physical health, like infections or viruses. Children are our world of course but also our future generation. Let's do all we can to help them. #MPs please attend #appg 30th April. #ChildHealth
April 28, 2025 at 10:17 PM
#APPG #Westminster 🗓️ 30th April #MPs please consider attending, guidelines are imminent and
children in your constituency need representation.
#NoMoreLostChildren #Pans #Pandas @teamlabouruk.bsky.social @conservatives.bsky.social @sdlp.bsky.social @sdlpwomen.bsky.social @uuponline.bsky.social
April 28, 2025 at 10:02 PM
So grateful for @panspandasuk.bsky.social who are leading the way on awareness & support for #PansPandasHour children & families. Thank you to all involved at Thursday's workshop. #ChoosePaediatrics #NeuroSky #EduSky #MedSky #CYP #RCPCH25 #ChildHealth #ChildRights
March 26, 2025 at 6:26 PM
@panspandasuk.bsky.social have a workshop at the upcoming #RCPCH25 conference. Incredible opportunity to learn more about these devastating conditions in children. #ChildHealth #paediatrics #neurology #Immunology
March 25, 2025 at 1:17 PM
#EDAW2025 #RestrictedEating or food aversion is a major symptom of #ImmuneMediated #Pans #Pandas #Inflammation triggered by infections viruses such as #strep #covid #mycoplasma #flu could be responsible. Children may find these symptoms difficult to articulate so #BeMyVoice #NoMoreLostChildren
March 1, 2025 at 6:56 PM
Good morning 🌞
We are still talking about our children.
#Pans #Pandas #Infection #Virus #ChildHealth #BehaviourChange #Parenting #GutBrain
January 20, 2025 at 11:37 AM
January 15, 2025 at 9:41 PM
13 hours left for all donations to be doubled #BigGive, please donate a small amount and be part of change for our children.
December 9, 2024 at 10:53 PM
Almost at the 15k. These funds and conferences will raise so much awareness for these devastating conditions in children so that #medics and #parents can recognise them early, leading to the best outcome for the child. #Misdiagnosis and dismissal is far too common. #ChildHealth pls keep sharing.
December 9, 2024 at 10:21 AM
#BigGive #Charity #DonationsDoubled #Christmas #Pans #Pandas #BetterTogether @panspandasuk.bsky.social plan to hold a virtual and in-person conference over the next 2 years. They need some help to raise funds to host these. Awareness & support from these conferences will mean everything!
December 8, 2024 at 12:15 AM
#WorldChildrensDay
Every child does deserve the best chance of a healthy future. But what about when they develop #Pandas (recognized by #WHO) but #NHS #HSE refuse to help and your child gets sent to #MentalHealth services for symptoms triggered by #strep sometimes I have no words.
November 20, 2024 at 11:32 AM
Thank you to all #MPs #Families #Professionals who gathered yesterday for the drop in event #Westminster for #PansPandasUK Charity. Thank you to those who have committed to joining the #APPG so far, we hope others will come forward also to represent their constituents. Our children need a voice.
November 20, 2024 at 11:05 AM
Best of luck to all involved at today's drop-in event at Westminster. An excellent platform for families & professionals to highlight & raise awareness of #Pans #Pandas in children. Devastating symptoms triggered by #infection/#virus that changes a child abruptly. Guidelines are essential.
November 19, 2024 at 9:20 AM
#Pans #Pandas #PansPandasHour #WorldChildrensDay is Wed 20th Nov. So if #ChildHealth #ChildRights #ChildEducation #YouthMentalHealth is important to you then make sure your #MP is aware of the drop in event tomorrow #Westminster Tues 19th 1230pm. Please retweet to help us help our children.
November 18, 2024 at 9:00 PM
Hi Tony 👋 can you please retweet so we can get as many MPs attending tomorrow as possible. #Pans #Pandas Thanks a mil.
November 18, 2024 at 12:50 PM
Please consider attending the drop in event for #Pans #Pandas on Tues 19th Nov. 12.30pm with Wendy Chamberlain. Children suffering from devastating symptoms triggered by infection or virus but little awareness or medical help. We really need awareness and guidelines.
November 17, 2024 at 10:40 PM
#PansPandasHour #Pans #Pandas #APPG #strep
A child doesn't go from this 👇>> to this👇 + #camhs for no reason.
November 15, 2024 at 7:22 PM
Hello Layla, could I ask you to consider attending the drop in event for #Pans #Pandas on Tues 19th Nov with Wendy Chamberlain. This will be an important step in pushing for guidelines and awareness to recognise these devastating conditions early so children can receive speedy medical care.
November 15, 2024 at 11:50 AM
Sarah can you please consider attending the drop in event with Wendy Chamberlain on Tues 19th Nov for #Pans #Pandas and hear how these devastating conditions can impact families. We need to build momentum to agree guidelines so our children will not be misdiagnosed.
November 15, 2024 at 11:46 AM
Good luck with this Chris. Would you please consider attending drop in event with Wendy Chamberlain on Tues 19th Nov in Westminster. Regarding #Pans #Pandas in children. Encourage your colleagues also to attend, such an important momentum to push for guidelines.
November 15, 2024 at 11:44 AM
If you are a #parent you will immediately recognise an abrupt change in your child. That natural gut instinct kicks in and boy is it a powerful tool that is usually never wrong. Get that 2nd medical opinion if need be. We did, we still are haunted by our journey. #Pans #Pandas #NoMoreLostChildren
October 25, 2024 at 9:09 PM
October 25, 2024 at 9:03 PM