Niko Suvisto
@nikosuvisto.com
Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Pinned
Niko Suvisto
@nikosuvisto.com
· 19d
Niko Suvisto
I’m Niko Suvisto, a photographer from Lahti, Finland. I document my life as someone who is 99% bedbound with severe ME/CFS.
nikosuvisto.com
I have made myself a website! To showcase my photography portfolio, which so far consists of my most meaningful ongoing project, “Enduring: Life with Severe ME/CFS”. The site also features my short biography. I kept the pages simple. 1/5
nikosuvisto.com
#MECFS #pwME #Photography
nikosuvisto.com
#MECFS #pwME #Photography
Reposted by Niko Suvisto
Näin opetetaan lääkäreitä kaasuvalottamaan potilaita sairauksista, joiden biologisista mekanismeista on runsaasti näyttöä. Ja "biopsykososiaalisuudesta" (tarkoittaa toiminnallista häiriötä eli psykosomaattista oireilua) taas ei ole mitään uskottavaa tutkimusta.
www.laakarilehti.fi/tieteessa/ka...
www.laakarilehti.fi/tieteessa/ka...
December 7, 2025 at 4:31 PM
Näin opetetaan lääkäreitä kaasuvalottamaan potilaita sairauksista, joiden biologisista mekanismeista on runsaasti näyttöä. Ja "biopsykososiaalisuudesta" (tarkoittaa toiminnallista häiriötä eli psykosomaattista oireilua) taas ei ole mitään uskottavaa tutkimusta.
www.laakarilehti.fi/tieteessa/ka...
www.laakarilehti.fi/tieteessa/ka...
Reposted by Niko Suvisto
Selling some bikes and gear - DM me if need anything (Bristol)
10 speed road/gravel, posh drivetrain, wheels, carbon forks, Berthoud saddle
10 speed fast tourer, really posh 700c rim wheels, triple Ultegra, 631 Claud Butler Dalesman frame
Medium sized 853 disc brake Rock Lobster, complete
10 speed road/gravel, posh drivetrain, wheels, carbon forks, Berthoud saddle
10 speed fast tourer, really posh 700c rim wheels, triple Ultegra, 631 Claud Butler Dalesman frame
Medium sized 853 disc brake Rock Lobster, complete
December 6, 2025 at 3:56 PM
Selling some bikes and gear - DM me if need anything (Bristol)
10 speed road/gravel, posh drivetrain, wheels, carbon forks, Berthoud saddle
10 speed fast tourer, really posh 700c rim wheels, triple Ultegra, 631 Claud Butler Dalesman frame
Medium sized 853 disc brake Rock Lobster, complete
10 speed road/gravel, posh drivetrain, wheels, carbon forks, Berthoud saddle
10 speed fast tourer, really posh 700c rim wheels, triple Ultegra, 631 Claud Butler Dalesman frame
Medium sized 853 disc brake Rock Lobster, complete
Reposted by Niko Suvisto
Saw something the other day asking why we can’t promote women as role models for young men. Such a good point!
My main male influence growing up was an appalling role model.
My mum and sisters were and are amazing role-models for me, as were many female teachers, academics, colleagues & friends.
My main male influence growing up was an appalling role model.
My mum and sisters were and are amazing role-models for me, as were many female teachers, academics, colleagues & friends.
December 6, 2025 at 3:35 PM
Saw something the other day asking why we can’t promote women as role models for young men. Such a good point!
My main male influence growing up was an appalling role model.
My mum and sisters were and are amazing role-models for me, as were many female teachers, academics, colleagues & friends.
My main male influence growing up was an appalling role model.
My mum and sisters were and are amazing role-models for me, as were many female teachers, academics, colleagues & friends.
Today is Finland’s Independence Day. I usually post my photograph of our flag, but this time I want to talk about something else. Some of you know that I’ve participated in a class-action complaint against the state of Finland. 1/10
#MECFS #pwME #Photography #Finland
#MECFS #pwME #Photography #Finland
December 6, 2025 at 12:21 PM
Today is Finland’s Independence Day. I usually post my photograph of our flag, but this time I want to talk about something else. Some of you know that I’ve participated in a class-action complaint against the state of Finland. 1/10
#MECFS #pwME #Photography #Finland
#MECFS #pwME #Photography #Finland
I have some exciting news! Two weeks ago, on the 16th of November, my partner and I got engaged! 1/8
November 30, 2025 at 12:26 PM
I have some exciting news! Two weeks ago, on the 16th of November, my partner and I got engaged! 1/8
Reposted by Niko Suvisto
💙 ONLY 4 DAYS LEFT of Triple Giving November! Donate now for a 3x match: ow.ly/6vpR50XztJr
ICYMI: In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS. Watch the interview 👉 ow.ly/U4cg50XztJq
ICYMI: In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS. Watch the interview 👉 ow.ly/U4cg50XztJq
November 29, 2025 at 4:32 PM
💙 ONLY 4 DAYS LEFT of Triple Giving November! Donate now for a 3x match: ow.ly/6vpR50XztJr
ICYMI: In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS. Watch the interview 👉 ow.ly/U4cg50XztJq
ICYMI: In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS. Watch the interview 👉 ow.ly/U4cg50XztJq
Reposted by Niko Suvisto
ME/CFS made me unemployable, given its impacts.
So I started a business, ran it for 10+ years. I Worked flexibly and part time, took time off when had to - many weeks/months.
As a result, I have no pension, as I was always in survival mode health-wise and financially within the business.
So I started a business, ran it for 10+ years. I Worked flexibly and part time, took time off when had to - many weeks/months.
As a result, I have no pension, as I was always in survival mode health-wise and financially within the business.
November 28, 2025 at 12:56 PM
ME/CFS made me unemployable, given its impacts.
So I started a business, ran it for 10+ years. I Worked flexibly and part time, took time off when had to - many weeks/months.
As a result, I have no pension, as I was always in survival mode health-wise and financially within the business.
So I started a business, ran it for 10+ years. I Worked flexibly and part time, took time off when had to - many weeks/months.
As a result, I have no pension, as I was always in survival mode health-wise and financially within the business.
Reposted by Niko Suvisto
Photo from a while ago: Ho Chi Minh City, Vietnam
"For the future of our children" (I think). I'd love to know what this scene is about.
#Photography
"For the future of our children" (I think). I'd love to know what this scene is about.
#Photography
November 26, 2025 at 11:21 AM
Photo from a while ago: Ho Chi Minh City, Vietnam
"For the future of our children" (I think). I'd love to know what this scene is about.
#Photography
"For the future of our children" (I think). I'd love to know what this scene is about.
#Photography
Reposted by Niko Suvisto
Quest Prints are online now!
Thanks to everyone who nabbed some prints so far!
edwardthompson.co.uk/Print-Sales-1
The sales will go into further Questing and eventually I'll have enough to make my next photo book!
Thanks to everyone who nabbed some prints so far!
edwardthompson.co.uk/Print-Sales-1
The sales will go into further Questing and eventually I'll have enough to make my next photo book!
November 25, 2025 at 11:34 AM
Quest Prints are online now!
Thanks to everyone who nabbed some prints so far!
edwardthompson.co.uk/Print-Sales-1
The sales will go into further Questing and eventually I'll have enough to make my next photo book!
Thanks to everyone who nabbed some prints so far!
edwardthompson.co.uk/Print-Sales-1
The sales will go into further Questing and eventually I'll have enough to make my next photo book!
Reposted by Niko Suvisto
⏳There’s only ONE WEEK LEFT to triple your impact. Every dollar you donate to OMF will be TRIPLED—up to $1 million—through December 2, 2025!
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
November 25, 2025 at 7:19 PM
⏳There’s only ONE WEEK LEFT to triple your impact. Every dollar you donate to OMF will be TRIPLED—up to $1 million—through December 2, 2025!
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
Reposted by Niko Suvisto
I got a digital letter from the welfare office three minutes ago and my heart rate went up and the adrenaline surge made me shake.
I’m pretty sure going through a welfare battle over time has given me a form of PTSD.
I’m pretty sure going through a welfare battle over time has given me a form of PTSD.
November 24, 2025 at 10:31 AM
I got a digital letter from the welfare office three minutes ago and my heart rate went up and the adrenaline surge made me shake.
I’m pretty sure going through a welfare battle over time has given me a form of PTSD.
I’m pretty sure going through a welfare battle over time has given me a form of PTSD.
Reposted by Niko Suvisto
“Genetics pioneer Ron Davis says he’s hopeful that revelations from his and other scientists’ research on myalgic encephalomyelitis, or ME/CFS, will move treatments beyond trial-and-error solutions that manage symptoms to instead address the root cause.”
👉 ow.ly/igzM50XwzH2.
👉 ow.ly/igzM50XwzH2.
November 24, 2025 at 3:53 PM
“Genetics pioneer Ron Davis says he’s hopeful that revelations from his and other scientists’ research on myalgic encephalomyelitis, or ME/CFS, will move treatments beyond trial-and-error solutions that manage symptoms to instead address the root cause.”
👉 ow.ly/igzM50XwzH2.
👉 ow.ly/igzM50XwzH2.
Reposted by Niko Suvisto
#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
Questionnaire | page 1
www.soscisurvey.de
November 22, 2025 at 8:36 AM
#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
Reposted by Niko Suvisto
The first feature-length documentary on ME/CFS & #LongCOVID, “What Doesn’t Kill You…” is crowd-funding.
I believe video and in particular documentaries can be a powerful way to get messages across & am impressed so far so have donated for a second time
www.youtube.com/watch?v=y1rS...
#MEcfs
1/
I believe video and in particular documentaries can be a powerful way to get messages across & am impressed so far so have donated for a second time
www.youtube.com/watch?v=y1rS...
#MEcfs
1/
The First Feature-Length Documentary on ME/CFS and Long COVID (Now Crowdfunding)
YouTube video by What Doesn't Kill You
www.youtube.com
November 22, 2025 at 12:01 AM
The first feature-length documentary on ME/CFS & #LongCOVID, “What Doesn’t Kill You…” is crowd-funding.
I believe video and in particular documentaries can be a powerful way to get messages across & am impressed so far so have donated for a second time
www.youtube.com/watch?v=y1rS...
#MEcfs
1/
I believe video and in particular documentaries can be a powerful way to get messages across & am impressed so far so have donated for a second time
www.youtube.com/watch?v=y1rS...
#MEcfs
1/
Reposted by Niko Suvisto
I tried to make a cool reel to promote the coming photo print sale... it didn't land at all! ha!
I think maaaybe I used too much Excalibur footage.
But come on, you can never have enough Excalibur!
(such a shame the lead actor playing Arthur was so crap!)
youtube.com/shorts/xZQ5w...
I think maaaybe I used too much Excalibur footage.
But come on, you can never have enough Excalibur!
(such a shame the lead actor playing Arthur was so crap!)
youtube.com/shorts/xZQ5w...
A Photo Quest Begins.... PRINT DROP 25/11/25
YouTube video by Pictures On My Mind
youtube.com
November 21, 2025 at 5:17 PM
I tried to make a cool reel to promote the coming photo print sale... it didn't land at all! ha!
I think maaaybe I used too much Excalibur footage.
But come on, you can never have enough Excalibur!
(such a shame the lead actor playing Arthur was so crap!)
youtube.com/shorts/xZQ5w...
I think maaaybe I used too much Excalibur footage.
But come on, you can never have enough Excalibur!
(such a shame the lead actor playing Arthur was so crap!)
youtube.com/shorts/xZQ5w...
Reposted by Niko Suvisto
Small explanation : #MECFS is a severe immune damaging disease.
Your body is - in severe cases like Niko's - unable to fight off the smallest of disease, and only heals slowly if at all.
Alas, while medically researched and therapies existing, MECFS care is unavailable in public health.
Your body is - in severe cases like Niko's - unable to fight off the smallest of disease, and only heals slowly if at all.
Alas, while medically researched and therapies existing, MECFS care is unavailable in public health.
I have made myself a website! To showcase my photography portfolio, which so far consists of my most meaningful ongoing project, “Enduring: Life with Severe ME/CFS”. The site also features my short biography. I kept the pages simple. 1/5
nikosuvisto.com
#MECFS #pwME #Photography
nikosuvisto.com
#MECFS #pwME #Photography
Niko Suvisto
I’m Niko Suvisto, a photographer from Lahti, Finland. I document my life as someone who is 99% bedbound with severe ME/CFS.
nikosuvisto.com
November 21, 2025 at 9:37 AM
Small explanation : #MECFS is a severe immune damaging disease.
Your body is - in severe cases like Niko's - unable to fight off the smallest of disease, and only heals slowly if at all.
Alas, while medically researched and therapies existing, MECFS care is unavailable in public health.
Your body is - in severe cases like Niko's - unable to fight off the smallest of disease, and only heals slowly if at all.
Alas, while medically researched and therapies existing, MECFS care is unavailable in public health.
I have made myself a website! To showcase my photography portfolio, which so far consists of my most meaningful ongoing project, “Enduring: Life with Severe ME/CFS”. The site also features my short biography. I kept the pages simple. 1/5
nikosuvisto.com
#MECFS #pwME #Photography
nikosuvisto.com
#MECFS #pwME #Photography
Niko Suvisto
I’m Niko Suvisto, a photographer from Lahti, Finland. I document my life as someone who is 99% bedbound with severe ME/CFS.
nikosuvisto.com
November 18, 2025 at 6:40 PM
I have made myself a website! To showcase my photography portfolio, which so far consists of my most meaningful ongoing project, “Enduring: Life with Severe ME/CFS”. The site also features my short biography. I kept the pages simple. 1/5
nikosuvisto.com
#MECFS #pwME #Photography
nikosuvisto.com
#MECFS #pwME #Photography
Reposted by Niko Suvisto
For £15 you could help change the life of a child by giving them shelter, food and an education.
You even get a beautiful print in return.
Please consider supporting if you can 🙏
circa35mm.com/art-store/p/...
You even get a beautiful print in return.
Please consider supporting if you can 🙏
circa35mm.com/art-store/p/...
November 15, 2025 at 8:42 AM
For £15 you could help change the life of a child by giving them shelter, food and an education.
You even get a beautiful print in return.
Please consider supporting if you can 🙏
circa35mm.com/art-store/p/...
You even get a beautiful print in return.
Please consider supporting if you can 🙏
circa35mm.com/art-store/p/...
Every morning, I wait in the darkness for my mother to open my room’s door so that we can start the daily routines.
#MECFS #SevereME #pwME #Photography #SelfDocumentary
#MECFS #SevereME #pwME #Photography #SelfDocumentary
November 15, 2025 at 1:19 PM
Every morning, I wait in the darkness for my mother to open my room’s door so that we can start the daily routines.
#MECFS #SevereME #pwME #Photography #SelfDocumentary
#MECFS #SevereME #pwME #Photography #SelfDocumentary
Reposted by Niko Suvisto
Q&A on the Photography & Collaboration Arts Collective (PCAC) blog with photographer Jeremy Jeffs @jeremy-jeffs.bsky.social, diagnosed with ME in 1987, discussing his powerful project photographing people living with the illness.
www.pcac.ngo/blog/jeremy-...
www.pcac.ngo/blog/jeremy-...
November 13, 2025 at 8:19 AM
Q&A on the Photography & Collaboration Arts Collective (PCAC) blog with photographer Jeremy Jeffs @jeremy-jeffs.bsky.social, diagnosed with ME in 1987, discussing his powerful project photographing people living with the illness.
www.pcac.ngo/blog/jeremy-...
www.pcac.ngo/blog/jeremy-...
Reposted by Niko Suvisto
Gingseng, for ME/CFS or Long Covid
I got on well with this in tea form, as it didn't impact sleep iirc. No side effects. Others also report it helps with fog and capacity, a little. Any is welcome.
Any experiences to share?
Cheers, burp.
#Gingseng #MECFS #LongCovid
I got on well with this in tea form, as it didn't impact sleep iirc. No side effects. Others also report it helps with fog and capacity, a little. Any is welcome.
Any experiences to share?
Cheers, burp.
#Gingseng #MECFS #LongCovid
November 8, 2025 at 12:38 PM
Gingseng, for ME/CFS or Long Covid
I got on well with this in tea form, as it didn't impact sleep iirc. No side effects. Others also report it helps with fog and capacity, a little. Any is welcome.
Any experiences to share?
Cheers, burp.
#Gingseng #MECFS #LongCovid
I got on well with this in tea form, as it didn't impact sleep iirc. No side effects. Others also report it helps with fog and capacity, a little. Any is welcome.
Any experiences to share?
Cheers, burp.
#Gingseng #MECFS #LongCovid
Reposted by Niko Suvisto
2nd donation ✅
David Tuller DrPH has shown he has a:
-good skill set for this type of work
-good knowledge base from following the field closely for many years
-an appetite as it can be very draining
Proponents of exercise/psychologicalisation/etc are still around
#MEcfs #LongCovid #CFS #PwME
David Tuller DrPH has shown he has a:
-good skill set for this type of work
-good knowledge base from following the field closely for many years
-an appetite as it can be very draining
Proponents of exercise/psychologicalisation/etc are still around
#MEcfs #LongCovid #CFS #PwME
Please Help David Tuller @davetuller1.bsky.social , Our Champion!
crowdfund.berkeley.edu/project/47768
From the October 2025 AMMES Newsletter
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
crowdfund.berkeley.edu/project/47768
From the October 2025 AMMES Newsletter
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
November 5, 2025 at 8:42 PM
2nd donation ✅
David Tuller DrPH has shown he has a:
-good skill set for this type of work
-good knowledge base from following the field closely for many years
-an appetite as it can be very draining
Proponents of exercise/psychologicalisation/etc are still around
#MEcfs #LongCovid #CFS #PwME
David Tuller DrPH has shown he has a:
-good skill set for this type of work
-good knowledge base from following the field closely for many years
-an appetite as it can be very draining
Proponents of exercise/psychologicalisation/etc are still around
#MEcfs #LongCovid #CFS #PwME
Reposted by Niko Suvisto
Hello everyone. This is M. (Nevra's partner) I would really appreciate it if you could share the post about volunteers that Devi made for Nevra. It is the previous post on this page.
Thank you so much!💙
#severeme #VerySevereME
Thank you so much!💙
#severeme #VerySevereME
November 5, 2025 at 1:34 AM
Hello everyone. This is M. (Nevra's partner) I would really appreciate it if you could share the post about volunteers that Devi made for Nevra. It is the previous post on this page.
Thank you so much!💙
#severeme #VerySevereME
Thank you so much!💙
#severeme #VerySevereME
Reposted by Niko Suvisto
November 4, 2025 at 7:14 PM
Reposted by Niko Suvisto
Links to donat/share:
gofundme.com/f/save-nevra
PayPal.com/paypalme/SaveLizNevra
Every share, donation, and act of support
matters. Let's fight to keep Nevra alive!
#MutualAid #pwME #SevereME #DisabilityJustice #Fundraiser
#SevereMECFS #SevereME #VerySevereME #DomesticViolence
gofundme.com/f/save-nevra
PayPal.com/paypalme/SaveLizNevra
Every share, donation, and act of support
matters. Let's fight to keep Nevra alive!
#MutualAid #pwME #SevereME #DisabilityJustice #Fundraiser
#SevereMECFS #SevereME #VerySevereME #DomesticViolence
October 30, 2025 at 4:09 AM
Links to donat/share:
gofundme.com/f/save-nevra
PayPal.com/paypalme/SaveLizNevra
Every share, donation, and act of support
matters. Let's fight to keep Nevra alive!
#MutualAid #pwME #SevereME #DisabilityJustice #Fundraiser
#SevereMECFS #SevereME #VerySevereME #DomesticViolence
gofundme.com/f/save-nevra
PayPal.com/paypalme/SaveLizNevra
Every share, donation, and act of support
matters. Let's fight to keep Nevra alive!
#MutualAid #pwME #SevereME #DisabilityJustice #Fundraiser
#SevereMECFS #SevereME #VerySevereME #DomesticViolence