It’s our #ThereForME ambassador @binitakane.bsky.social - a dr with a special interest in LC/ME, & a champion for patient voice.

“A special shout out to children & young people with Long Covid / ME this Christmas. You are so brave & lots of us are fighting for you.”

@longcovidkids.bsky.social

Here's a letter to The BMJ seeking a correction in the review of Long Covid interventions. They based their recommendation for rehabilitation on another BMJ study that had already been corrected.
virology.ws/2024/12/09/t...

Working in the Long Covid/ME space in the UK is a lonely place.
As I reflect in taxi home on the last 48 hrs, I don’t regret a single moment. I genuinely believe that the group of people I was with yesterday can change the world for kids with these illnesses. There’s power in global collaboration.

After an article by the chairman of the ME Association I’ve drafted a letter. You can add your name to the bottom or DM me l'll add it. I've written it from patients but if you're a carer, ally or health professional, just note after your name eg (Carer for pwME etc)
docs.google.com/document/d/1...