Millie Wiley
@milliewiley.bsky.social
Targeted Youth Worker at Cornwall Council . MA Graduate . Autistic . Cellist .
Reposted by Millie Wiley
The autistic guide to waving exuberantly without accidentally Sieg Heiling. From @thedailytism.bsky.social:
thedailytism.com/the-autistic... #autism #autistic #neurodiversity
thedailytism.com/the-autistic... #autism #autistic #neurodiversity
The autistic guide to waving exuberantly without accidentally Sieg Heiling
We’ve all done it. Who hasn’t been innocently hanging out at the inauguration of a man dubbed by people in his own party as the next Hitler and accidentally performed a Nazi salute that could only be ...
thedailytism.com
January 21, 2025 at 4:47 PM
The autistic guide to waving exuberantly without accidentally Sieg Heiling. From @thedailytism.bsky.social:
thedailytism.com/the-autistic... #autism #autistic #neurodiversity
thedailytism.com/the-autistic... #autism #autistic #neurodiversity
"for once it wasn't my blackness being likened to an ape, it was my autism"
www.bps.org.uk/psychologist...
www.bps.org.uk/psychologist...
www.bps.org.uk
January 11, 2025 at 6:41 PM
"for once it wasn't my blackness being likened to an ape, it was my autism"
www.bps.org.uk/psychologist...
www.bps.org.uk/psychologist...
Having a job that allows me to wear what I want makes ALL of the difference #actuallyautistic
December 30, 2024 at 3:07 PM
Having a job that allows me to wear what I want makes ALL of the difference #actuallyautistic
Reposted by Millie Wiley
Secondary effects of dialectical behaviour therapy on social functioning, quality of life, and autism traits in autistic adults with suicidality
journals.sagepub.com...
journals.sagepub.com...
December 23, 2024 at 11:00 AM
Secondary effects of dialectical behaviour therapy on social functioning, quality of life, and autism traits in autistic adults with suicidality
journals.sagepub.com...
journals.sagepub.com...
Reposted by Millie Wiley
Systemic ableism looks like calling someone “inspirational” for overcoming barriers
…and then doing literally nothing to mitigate aforementioned barriers once learning about them.
…and then doing literally nothing to mitigate aforementioned barriers once learning about them.
May 19, 2024 at 1:28 PM
Systemic ableism looks like calling someone “inspirational” for overcoming barriers
…and then doing literally nothing to mitigate aforementioned barriers once learning about them.
…and then doing literally nothing to mitigate aforementioned barriers once learning about them.
Reposted by Millie Wiley
THIS 👏🏻 WHOLE 👏🏻 THREAD 👏🏻
The myth began in 1998
A man named Andrew Wakefield published a paper in the UK medical journal called the Lancet falsely claiming a link between the MMR vaccine and autism
Researchers were unable to reproduce the findings and in 2004 an investigation by reporter Brian Deer identified..
🪡🧵
A man named Andrew Wakefield published a paper in the UK medical journal called the Lancet falsely claiming a link between the MMR vaccine and autism
Researchers were unable to reproduce the findings and in 2004 an investigation by reporter Brian Deer identified..
🪡🧵
📣 LOUDER for the media outlets in the back!!!
Editors take note because I'm tired of these ridiculous headlines:
Vaccines as a cause of Autism has been *disproven*.
By *numerous* studies.
This is not an "unfounded" theory.
This is "Many of us checked, actually, & it isn't fucking vaccines". 🫠
Editors take note because I'm tired of these ridiculous headlines:
Vaccines as a cause of Autism has been *disproven*.
By *numerous* studies.
This is not an "unfounded" theory.
This is "Many of us checked, actually, & it isn't fucking vaccines". 🫠
December 20, 2024 at 3:24 PM
THIS 👏🏻 WHOLE 👏🏻 THREAD 👏🏻
Reposted by Millie Wiley
I think that tensions between autism researchers and the Autistic community may exist, and there ARE things researchers can do about that.
Collaborations between Autistic researchers and our broader community WILL overcome this problem.
We are beginning to be represented.
#NothingAboutUsWithoutUs
Collaborations between Autistic researchers and our broader community WILL overcome this problem.
We are beginning to be represented.
#NothingAboutUsWithoutUs
Tensions build between autism researchers and the autistic community – why do you think this is?
patienttalk.org/tensions-bui...
patienttalk.org/tensions-bui...
December 20, 2024 at 2:43 PM
I think that tensions between autism researchers and the Autistic community may exist, and there ARE things researchers can do about that.
Collaborations between Autistic researchers and our broader community WILL overcome this problem.
We are beginning to be represented.
#NothingAboutUsWithoutUs
Collaborations between Autistic researchers and our broader community WILL overcome this problem.
We are beginning to be represented.
#NothingAboutUsWithoutUs
Reposted by Millie Wiley
Researchers interviewed 18 Autistic adults and found 5 themes:
volatile career journey
need for ongoing career support
impact (+ / - ) of social interactions
the important role of the organization
catastrophic impacts of poor experiences
our professional trauma varies but we all seem to have it.
volatile career journey
need for ongoing career support
impact (+ / - ) of social interactions
the important role of the organization
catastrophic impacts of poor experiences
our professional trauma varies but we all seem to have it.
December 20, 2024 at 3:10 PM
Researchers interviewed 18 Autistic adults and found 5 themes:
volatile career journey
need for ongoing career support
impact (+ / - ) of social interactions
the important role of the organization
catastrophic impacts of poor experiences
our professional trauma varies but we all seem to have it.
volatile career journey
need for ongoing career support
impact (+ / - ) of social interactions
the important role of the organization
catastrophic impacts of poor experiences
our professional trauma varies but we all seem to have it.
85% in my MA dissertation and a distinction overall in my MA #actuallyautistic
December 20, 2024 at 8:07 AM
85% in my MA dissertation and a distinction overall in my MA #actuallyautistic
Reposted by Millie Wiley
I'd like to re-brand "infodumping"
sounds messy, overwhelming, & non-consensual
I'd like to propose: Big Talk
The opposite of small talk!
Long-form conversation w/ a primary speaker talking about an area of intense interest with one or more other participants who contribute conservatively
sounds messy, overwhelming, & non-consensual
I'd like to propose: Big Talk
The opposite of small talk!
Long-form conversation w/ a primary speaker talking about an area of intense interest with one or more other participants who contribute conservatively
December 14, 2024 at 5:16 PM
I'd like to re-brand "infodumping"
sounds messy, overwhelming, & non-consensual
I'd like to propose: Big Talk
The opposite of small talk!
Long-form conversation w/ a primary speaker talking about an area of intense interest with one or more other participants who contribute conservatively
sounds messy, overwhelming, & non-consensual
I'd like to propose: Big Talk
The opposite of small talk!
Long-form conversation w/ a primary speaker talking about an area of intense interest with one or more other participants who contribute conservatively
Reposted by Millie Wiley
I’ve yet to see a social prescriber (long waiting list) but I’ll send my GP practice a copy of this encouraging #autism research.
It suggests that accessible, inclusive #SocialPrescribing in primary care could support the well-being of autistic patients.
#AutRes
www.tandfonline.com/doi/full/10....
It suggests that accessible, inclusive #SocialPrescribing in primary care could support the well-being of autistic patients.
#AutRes
www.tandfonline.com/doi/full/10....
Autistic adults’ experiences of managing wellbeing and implications for social prescribing
Autistic people demonstrate poor outcomes on objective measures of wellbeing, yet research centring lived experience provides a more nuanced picture. There is growing support for person-centred, ho...
www.tandfonline.com
December 6, 2024 at 7:18 AM
I’ve yet to see a social prescriber (long waiting list) but I’ll send my GP practice a copy of this encouraging #autism research.
It suggests that accessible, inclusive #SocialPrescribing in primary care could support the well-being of autistic patients.
#AutRes
www.tandfonline.com/doi/full/10....
It suggests that accessible, inclusive #SocialPrescribing in primary care could support the well-being of autistic patients.
#AutRes
www.tandfonline.com/doi/full/10....
Reposted by Millie Wiley
"researchers at all stages of their careers reported experiencing considerable challenges in incorporating meaningful participatory research practices within their work." (H. Pickard et al., 2022). Interactive bibliography here 👇 autidacts.org/en/pg-ref/1199
#AutRes #ParticipativeResearch
#AutRes #ParticipativeResearch
Participatory autism research: Early career and established researchers' views and experiences
Learn more
autidacts.org
December 7, 2024 at 5:17 PM
"researchers at all stages of their careers reported experiencing considerable challenges in incorporating meaningful participatory research practices within their work." (H. Pickard et al., 2022). Interactive bibliography here 👇 autidacts.org/en/pg-ref/1199
#AutRes #ParticipativeResearch
#AutRes #ParticipativeResearch
Reposted by Millie Wiley
✨"The main cause of autism is autistic parents having autistic children"✨
By @annmemmott.bsky.social (many times, yet still not enough)
One of the best & most accurate quotes I've heard
Pls share this obvious, yet much needed statement where needed
#Autism
#AutRes
#Autistic
#OccupationalTherapy
By @annmemmott.bsky.social (many times, yet still not enough)
One of the best & most accurate quotes I've heard
Pls share this obvious, yet much needed statement where needed
#Autism
#AutRes
#Autistic
#OccupationalTherapy
Dear researchers doing this stuff. Please check whether your cohort is autistic.
The main cause of autism is autistic parents having autistic children.
I know this goes against everything your ancient Professors are telling you to write in your papers, but try. Just try.
Thank you.
The main cause of autism is autistic parents having autistic children.
I know this goes against everything your ancient Professors are telling you to write in your papers, but try. Just try.
Thank you.
December 10, 2024 at 9:39 AM
✨"The main cause of autism is autistic parents having autistic children"✨
By @annmemmott.bsky.social (many times, yet still not enough)
One of the best & most accurate quotes I've heard
Pls share this obvious, yet much needed statement where needed
#Autism
#AutRes
#Autistic
#OccupationalTherapy
By @annmemmott.bsky.social (many times, yet still not enough)
One of the best & most accurate quotes I've heard
Pls share this obvious, yet much needed statement where needed
#Autism
#AutRes
#Autistic
#OccupationalTherapy
Reposted by Millie Wiley
December 9, 2024 at 10:06 PM
Reposted by Millie Wiley
#CRAEresearchSummaries
Career progression for autistic people: A scoping review
crae.ioe.ac.uk/caree...
#AutRes
Career progression for autistic people: A scoping review
crae.ioe.ac.uk/caree...
#AutRes
December 12, 2024 at 1:19 PM
#CRAEresearchSummaries
Career progression for autistic people: A scoping review
crae.ioe.ac.uk/caree...
#AutRes
Career progression for autistic people: A scoping review
crae.ioe.ac.uk/caree...
#AutRes
Reposted by Millie Wiley
Okay, wait... Has anyone come across a paper investigating supposed causes of autism that *did* control for likely autistic parents, or even mention this as a limitation?
#AutRes
#AutRes
It's so embarrassing how many papers on supposed "causes" of autism fail to control for whether parents are autistic.
In today's research on autism, reading all the papers that claim that IVF may 'cause' autistic people. Can't find even one team that ask whether one or both parents is autistic.
Factors for infertility typically include age (e.g. autistic people may marry later) or/
Factors for infertility typically include age (e.g. autistic people may marry later) or/
December 10, 2024 at 6:57 PM
Okay, wait... Has anyone come across a paper investigating supposed causes of autism that *did* control for likely autistic parents, or even mention this as a limitation?
#AutRes
#AutRes
Reposted by Millie Wiley
I work in academic medicine on the research side. Not a researcher. Sadly, there isn't much research on these conditions in adult autistic populations. For instance, I found one publication documenting the prevalence of sleep challenges in autistic adults, none on what to do about them.
December 12, 2024 at 8:26 AM
I work in academic medicine on the research side. Not a researcher. Sadly, there isn't much research on these conditions in adult autistic populations. For instance, I found one publication documenting the prevalence of sleep challenges in autistic adults, none on what to do about them.
Reposted by Millie Wiley
Quick Guide to Autistic Meltdowns
& other resources from Sonny Jane Wise, the "Lived Experience Educator" and author of The Neurodivergent Friendly Workbook of DBT Skills
www.livedexperienceeducator.com/resources
(Sonny, are you here?)
& other resources from Sonny Jane Wise, the "Lived Experience Educator" and author of The Neurodivergent Friendly Workbook of DBT Skills
www.livedexperienceeducator.com/resources
(Sonny, are you here?)
December 14, 2024 at 2:57 AM
Quick Guide to Autistic Meltdowns
& other resources from Sonny Jane Wise, the "Lived Experience Educator" and author of The Neurodivergent Friendly Workbook of DBT Skills
www.livedexperienceeducator.com/resources
(Sonny, are you here?)
& other resources from Sonny Jane Wise, the "Lived Experience Educator" and author of The Neurodivergent Friendly Workbook of DBT Skills
www.livedexperienceeducator.com/resources
(Sonny, are you here?)
Reposted by Millie Wiley
If you’re going to report on anything about autism, you should know why quoting Autism Speaks and not a single autistic person deeply undermines your journalistic integrity
December 13, 2024 at 8:35 PM
If you’re going to report on anything about autism, you should know why quoting Autism Speaks and not a single autistic person deeply undermines your journalistic integrity
Reposted by Millie Wiley
📢 We are recruiting autistic and ADHD participants (see attached poster for details). Can be diagnosed or awaiting assessment.
For this study AuDHDers are excluded, as we're looking at people with autism OR ADHD, but AuDHD research will follow soon
Sharing appreciated!
For this study AuDHDers are excluded, as we're looking at people with autism OR ADHD, but AuDHD research will follow soon
Sharing appreciated!
December 13, 2024 at 6:32 PM
📢 We are recruiting autistic and ADHD participants (see attached poster for details). Can be diagnosed or awaiting assessment.
For this study AuDHDers are excluded, as we're looking at people with autism OR ADHD, but AuDHD research will follow soon
Sharing appreciated!
For this study AuDHDers are excluded, as we're looking at people with autism OR ADHD, but AuDHD research will follow soon
Sharing appreciated!
Reposted by Millie Wiley
A great day in the company of this beauty.
🌈🎓
***
A large trans flag lay on several tables in a grey office. The flag is adorned with artwork squares from the Trans Aware Cancer Care project.
It's perfect. Sad. Beautiful. Strong. Powerful.
🌈🎓
***
A large trans flag lay on several tables in a grey office. The flag is adorned with artwork squares from the Trans Aware Cancer Care project.
It's perfect. Sad. Beautiful. Strong. Powerful.
December 13, 2024 at 8:19 PM
A great day in the company of this beauty.
🌈🎓
***
A large trans flag lay on several tables in a grey office. The flag is adorned with artwork squares from the Trans Aware Cancer Care project.
It's perfect. Sad. Beautiful. Strong. Powerful.
🌈🎓
***
A large trans flag lay on several tables in a grey office. The flag is adorned with artwork squares from the Trans Aware Cancer Care project.
It's perfect. Sad. Beautiful. Strong. Powerful.
Reposted by Millie Wiley
Negative stories about autistic people are very tiring.
This is what about a million dots looks like. One of them is red.
It represents about a million autistic people, where just one does something unusual.
How helpful is it to say, "Oh no, they might all do that!"
Perspective is important, eh?
This is what about a million dots looks like. One of them is red.
It represents about a million autistic people, where just one does something unusual.
How helpful is it to say, "Oh no, they might all do that!"
Perspective is important, eh?
December 13, 2024 at 7:45 PM
Negative stories about autistic people are very tiring.
This is what about a million dots looks like. One of them is red.
It represents about a million autistic people, where just one does something unusual.
How helpful is it to say, "Oh no, they might all do that!"
Perspective is important, eh?
This is what about a million dots looks like. One of them is red.
It represents about a million autistic people, where just one does something unusual.
How helpful is it to say, "Oh no, they might all do that!"
Perspective is important, eh?
Reposted by Millie Wiley
Autistic proverb
When the flavour is not worth the texture
When the flavour is not worth the texture
August 20, 2024 at 12:19 PM
Autistic proverb
When the flavour is not worth the texture
When the flavour is not worth the texture
Reposted by Millie Wiley
Community involvement in PhD students’ autism research projects: Challenges and opportunities
journals.sagepub.com...
journals.sagepub.com...
December 11, 2024 at 3:00 PM
Community involvement in PhD students’ autism research projects: Challenges and opportunities
journals.sagepub.com...
journals.sagepub.com...