Melody
@melodyb77905028.bsky.social
Advocate for ocular melanoma patients in Ireland. Ocular melanoma is a rare eye cancer. Admin for OcuMelIrl Facebook group. Follower of world politics. I support Ukraine.
Reposted by Melody
Hope on the horizon: iOnctura expands its Phase II roginolisib trial into the US, enrolling patients with metastatic uveal melanoma.
Read more 👉 https://wp-ionctura-2025.s3.eu-west-2.amazonaws.com/media/2025/09/iOnctura-clinical-trial-update-09.09.25.pdf
Read more 👉 https://wp-ionctura-2025.s3.eu-west-2.amazonaws.com/media/2025/09/iOnctura-clinical-trial-update-09.09.25.pdf
September 19, 2025 at 6:03 PM
Hope on the horizon: iOnctura expands its Phase II roginolisib trial into the US, enrolling patients with metastatic uveal melanoma.
Read more 👉 https://wp-ionctura-2025.s3.eu-west-2.amazonaws.com/media/2025/09/iOnctura-clinical-trial-update-09.09.25.pdf
Read more 👉 https://wp-ionctura-2025.s3.eu-west-2.amazonaws.com/media/2025/09/iOnctura-clinical-trial-update-09.09.25.pdf
Reposted by Melody
👁️ August is #NationalEyeExamMonth!
Eye exams catch hidden issues early—including ocular melanoma. Don’t wait for symptoms!
🗓️ Schedule your comprehensive exam today.
#ACureInSight #EyeHealth #ProtectYourVision #OcularMelanomaAwareness
Eye exams catch hidden issues early—including ocular melanoma. Don’t wait for symptoms!
🗓️ Schedule your comprehensive exam today.
#ACureInSight #EyeHealth #ProtectYourVision #OcularMelanomaAwareness
August 11, 2025 at 2:02 PM
👁️ August is #NationalEyeExamMonth!
Eye exams catch hidden issues early—including ocular melanoma. Don’t wait for symptoms!
🗓️ Schedule your comprehensive exam today.
#ACureInSight #EyeHealth #ProtectYourVision #OcularMelanomaAwareness
Eye exams catch hidden issues early—including ocular melanoma. Don’t wait for symptoms!
🗓️ Schedule your comprehensive exam today.
#ACureInSight #EyeHealth #ProtectYourVision #OcularMelanomaAwareness
Reposted by Melody
Care delayed is care denied. Cancer patients simply cannot afford to wait. Timely access to scans for both diagnosis & disease and treatment monitoring is detrimental to outcomes.
Action is desperately needed.
#UnitedCancerVoicesIE #CancerCareCrisis
Action is desperately needed.
#UnitedCancerVoicesIE #CancerCareCrisis
July 10, 2025 at 10:27 PM
Care delayed is care denied. Cancer patients simply cannot afford to wait. Timely access to scans for both diagnosis & disease and treatment monitoring is detrimental to outcomes.
Action is desperately needed.
#UnitedCancerVoicesIE #CancerCareCrisis
Action is desperately needed.
#UnitedCancerVoicesIE #CancerCareCrisis
Reposted by Melody
Some really shocking findings about delays in cancer care despite all the progress, from Irish Cancer Society looking at HSE data #speirghorm
www.irishexaminer.com/news/arid-41...
www.irishexaminer.com/news/arid-41...
Delays in cancer treatment are 'causing avoidable deaths', Irish Cancer Society warns
It also warned of major disparity in wait times for different regions across the country
www.irishexaminer.com
July 9, 2025 at 8:56 AM
Some really shocking findings about delays in cancer care despite all the progress, from Irish Cancer Society looking at HSE data #speirghorm
www.irishexaminer.com/news/arid-41...
www.irishexaminer.com/news/arid-41...
Reposted by Melody
We welcome @hselive.bsky.social approval of Enhurtu for HR2-low MBC.
Cancer patients in Ireland have waited 2.5 years to access this EMA approved drug. Reform of our drugs reimbursement system is needed to deliver timely and fair access for all patients.
#UnitedCancerVoicesIE
Cancer patients in Ireland have waited 2.5 years to access this EMA approved drug. Reform of our drugs reimbursement system is needed to deliver timely and fair access for all patients.
#UnitedCancerVoicesIE
July 3, 2025 at 7:45 PM
We welcome @hselive.bsky.social approval of Enhurtu for HR2-low MBC.
Cancer patients in Ireland have waited 2.5 years to access this EMA approved drug. Reform of our drugs reimbursement system is needed to deliver timely and fair access for all patients.
#UnitedCancerVoicesIE
Cancer patients in Ireland have waited 2.5 years to access this EMA approved drug. Reform of our drugs reimbursement system is needed to deliver timely and fair access for all patients.
#UnitedCancerVoicesIE
Reposted by Melody
Please take a moment to read UCAN response to comments attributed to Prof Michael Barry NCPE. We as patients & advocates are deeply concerned about this discrediting of oncologist who are calling for drug reimbursement in a system that's badly failing patients.
www.ucanireland.ie/the-art-of-d...
www.ucanireland.ie/the-art-of-d...
July 1, 2025 at 2:32 PM
Please take a moment to read UCAN response to comments attributed to Prof Michael Barry NCPE. We as patients & advocates are deeply concerned about this discrediting of oncologist who are calling for drug reimbursement in a system that's badly failing patients.
www.ucanireland.ie/the-art-of-d...
www.ucanireland.ie/the-art-of-d...
Reposted by Melody
Reposted by Melody
Reposted by Melody
Every person facing a cancer diagnosis deserves timely access to the best standards of care and novel treatments. Ireland is failing here, we are almost bottom of the table in comparison to our European counterparts. Change MUST happen. Patients simply don't have time to wait #UnitedCancerVoicesIE
June 7, 2025 at 12:22 PM
Every person facing a cancer diagnosis deserves timely access to the best standards of care and novel treatments. Ireland is failing here, we are almost bottom of the table in comparison to our European counterparts. Change MUST happen. Patients simply don't have time to wait #UnitedCancerVoicesIE
Reposted by Melody
My usual excitement around the treatment advancements showcased at ASCO and similar is slowly being replaced by utter sadness that growing numbers of cancer patients in Ireland won't benefit due to growing inequalities in access. Where you live and ability to pay should never decide your faith 😞
Every person facing a cancer diagnosis deserves timely access to the best standards of care and novel treatments. Ireland is failing here, we are almost bottom of the table in comparison to our European counterparts. Change MUST happen. Patients simply don't have time to wait #UnitedCancerVoicesIE
June 7, 2025 at 12:29 PM
My usual excitement around the treatment advancements showcased at ASCO and similar is slowly being replaced by utter sadness that growing numbers of cancer patients in Ireland won't benefit due to growing inequalities in access. Where you live and ability to pay should never decide your faith 😞
Reposted by Melody
☀️🕶️ SUNSCREEN FOR YOUR EYES?!
Yes, you read that right.
⠀
Most people know to lather up their skin with SPF...
🧴 But your eyes need protection too!
⠀
👁️🗨️ UV exposure is a risk factor for eye cancers, including rare but serious types like ocular melanoma (OM).
Yes, you read that right.
⠀
Most people know to lather up their skin with SPF...
🧴 But your eyes need protection too!
⠀
👁️🗨️ UV exposure is a risk factor for eye cancers, including rare but serious types like ocular melanoma (OM).
May 12, 2025 at 11:02 AM
☀️🕶️ SUNSCREEN FOR YOUR EYES?!
Yes, you read that right.
⠀
Most people know to lather up their skin with SPF...
🧴 But your eyes need protection too!
⠀
👁️🗨️ UV exposure is a risk factor for eye cancers, including rare but serious types like ocular melanoma (OM).
Yes, you read that right.
⠀
Most people know to lather up their skin with SPF...
🧴 But your eyes need protection too!
⠀
👁️🗨️ UV exposure is a risk factor for eye cancers, including rare but serious types like ocular melanoma (OM).
Reposted by Melody
Reposted by Melody
Ty for sharing !!
May 7, 2025 at 8:40 PM
Ty for sharing !!
Reposted by Melody
Plez get yrly dilated eye exams. Mine was found during a routine exam ,3wks later my right eye was gone. I’ve been a one eyed bandit now for 7yrs, it’s not fun altho I laugh at myself a lot 🤷🏻♀️
Only 6inamillion a yr are dx with it, it’s a rare cancer
Wear sunglasses
Only 6inamillion a yr are dx with it, it’s a rare cancer
Wear sunglasses
May 7, 2025 at 1:54 PM
Plez get yrly dilated eye exams. Mine was found during a routine exam ,3wks later my right eye was gone. I’ve been a one eyed bandit now for 7yrs, it’s not fun altho I laugh at myself a lot 🤷🏻♀️
Only 6inamillion a yr are dx with it, it’s a rare cancer
Wear sunglasses
Only 6inamillion a yr are dx with it, it’s a rare cancer
Wear sunglasses
Reposted by Melody
So proud of our @ucanireland.bsky.social Chair @miriamstaunton.bsky.social speaking to @fergalbowers.bsky.social @news.rte.ie keeping the spotlight on the key issue of disparities in accessing new EMA approved cancer medicines experienced by cancer patients in Ireland 👏
#UnitedCancerVoices
#UnitedCancerVoices
UCAN Chair @miriamstaunton.bsky.social speaks to @fergalbowers.bsky.social @news.rte.ie about the impact of Irelands far below par reimbursement of EMA approved cancer drugs & complete lack of early access schemes on patients. #UnitedCancerVoicesIE
www.rte.ie/news/health/...
www.rte.ie/news/health/...
Patients will die waiting for cancer treatment - advocate
An advocate for cancer patients has said that patients will "die waiting" for cancer treatments in Ireland after a study showed Ireland has the lowest availability for new cancer medicines in Western ...
www.rte.ie
May 7, 2025 at 5:42 PM
So proud of our @ucanireland.bsky.social Chair @miriamstaunton.bsky.social speaking to @fergalbowers.bsky.social @news.rte.ie keeping the spotlight on the key issue of disparities in accessing new EMA approved cancer medicines experienced by cancer patients in Ireland 👏
#UnitedCancerVoices
#UnitedCancerVoices
Reposted by Melody
UCAN Chair @miriamstaunton.bsky.social speaks to @fergalbowers.bsky.social @news.rte.ie about the impact of Irelands far below par reimbursement of EMA approved cancer drugs & complete lack of early access schemes on patients. #UnitedCancerVoicesIE
www.rte.ie/news/health/...
www.rte.ie/news/health/...
Patients will die waiting for cancer treatment - advocate
An advocate for cancer patients has said that patients will "die waiting" for cancer treatments in Ireland after a study showed Ireland has the lowest availability for new cancer medicines in Western ...
www.rte.ie
May 7, 2025 at 5:25 PM
UCAN Chair @miriamstaunton.bsky.social speaks to @fergalbowers.bsky.social @news.rte.ie about the impact of Irelands far below par reimbursement of EMA approved cancer drugs & complete lack of early access schemes on patients. #UnitedCancerVoicesIE
www.rte.ie/news/health/...
www.rte.ie/news/health/...
Reposted by Melody
Ophthopedia Update: Surveillance Screening Protocols for Low-Risk Uveal Melanoma May Need Revision: Surveillance screening every 3 to 6 months may not be necessary for patients with low-risk uveal melanoma, as metastasis rates appear to be low and survival rates high in this… #Ophthalmology #News
Surveillance Screening Protocols for Low-Risk Uveal Melanoma May Need Revision
Surveillance screening every 3 to 6 months may not be necessary for patients with low-risk uveal melanoma, as metastasis rates appear to be low and survival rates high in this population.
dlvr.it
May 1, 2025 at 2:09 PM
Ophthopedia Update: Surveillance Screening Protocols for Low-Risk Uveal Melanoma May Need Revision: Surveillance screening every 3 to 6 months may not be necessary for patients with low-risk uveal melanoma, as metastasis rates appear to be low and survival rates high in this… #Ophthalmology #News
Reposted by Melody
Reposted by Melody
How do patients in Irelands public health system fair out in comparison to our European counterparts when it comes to timely access to best new cancer treatments? 🧐
It's not good news.
It's shameful.
People are dying waiting.
#EUPatientsRightsDay
#CancerDrugDisparities #UnitedCancerVoicesIE
It's not good news.
It's shameful.
People are dying waiting.
#EUPatientsRightsDay
#CancerDrugDisparities #UnitedCancerVoicesIE
April 18, 2025 at 8:35 PM
How do patients in Irelands public health system fair out in comparison to our European counterparts when it comes to timely access to best new cancer treatments? 🧐
It's not good news.
It's shameful.
People are dying waiting.
#EUPatientsRightsDay
#CancerDrugDisparities #UnitedCancerVoicesIE
It's not good news.
It's shameful.
People are dying waiting.
#EUPatientsRightsDay
#CancerDrugDisparities #UnitedCancerVoicesIE
Reposted by Melody
You've no idea what this man has been through in the last few weeks alone yet he has not stopped advocating for timely equitable access to best treatments for all cancer patients. I'm so proud of and humbled by our @ucanireland.bsky.social member James Hastings ❤️👏 #UnitedCancerVoicesIE
James is calling for patients in Ireland to have access to the same standard of care and lifesaving cancer drugs that are readily available to our European counterparts. He's fighting for himself & for every person who will face cancer. Let's all fight for each other 💪❤️
#UnitedCancerVoicesIE
#UnitedCancerVoicesIE
April 18, 2025 at 9:03 PM
You've no idea what this man has been through in the last few weeks alone yet he has not stopped advocating for timely equitable access to best treatments for all cancer patients. I'm so proud of and humbled by our @ucanireland.bsky.social member James Hastings ❤️👏 #UnitedCancerVoicesIE
Reposted by Melody
Please take a moment to listen to UCAN Co-Chair James Hastings. His powerful message is relevant to ALL people in Ireland
We are advocating for every patient in Ireland to have the same timely access to best standards of care and new treatments as our European counterparts.
fb.watch/z3jYSY2YfP/
We are advocating for every patient in Ireland to have the same timely access to best standards of care and new treatments as our European counterparts.
fb.watch/z3jYSY2YfP/
April 19, 2025 at 3:38 PM
Please take a moment to listen to UCAN Co-Chair James Hastings. His powerful message is relevant to ALL people in Ireland
We are advocating for every patient in Ireland to have the same timely access to best standards of care and new treatments as our European counterparts.
fb.watch/z3jYSY2YfP/
We are advocating for every patient in Ireland to have the same timely access to best standards of care and new treatments as our European counterparts.
fb.watch/z3jYSY2YfP/
Reposted by Melody
We are in the process of setting up our website ucanireland.ie where you can keep up to date on our organisations activities as we work towards timely access to best cancer treatments for all patients in 🇮🇪 The site will be available soon! #UnitedCancerVoicesIE
UCAN Ireland
Site will be available soon. Thank you for your patience.
Email: info@ucanireland.ie
ucanireland.ie
April 16, 2025 at 8:50 AM
We are in the process of setting up our website ucanireland.ie where you can keep up to date on our organisations activities as we work towards timely access to best cancer treatments for all patients in 🇮🇪 The site will be available soon! #UnitedCancerVoicesIE
Reposted by Melody
HSE National Clinical Guideline: Active surveillance for patients with prostate cancer lynchsyndromeireland.com/home-2/blog/
Lynch Syndrome Ireland
lynchsyndromeireland.com
April 16, 2025 at 9:13 AM
HSE National Clinical Guideline: Active surveillance for patients with prostate cancer lynchsyndromeireland.com/home-2/blog/