Lila Guterman
@lguterman.bsky.social
Science journalist with long covid. Former staff at Science Magazine, Science News, C&EN, Chronicle of Higher Education. Now full-time patient.
Reposted by Lila Guterman
A science agency wants to stop knowing which ideas are true and which ones aren’t.
🚨 NIH sent out another data call, this time for projects "related to any form of censorship at all or directing people to believe one idea over another related to health outcomes… e,g., any contracts to promote COVID vaccine uptake," I'm told.
These data calls have recently preceded terminations.
These data calls have recently preceded terminations.
March 26, 2025 at 6:27 PM
A science agency wants to stop knowing which ideas are true and which ones aren’t.
Reposted by Lila Guterman
About 17 MILLION Americans have Long Covid. At least 50% of these meet criteria for ME/CFS. Does your government care? Does Trump give a damn? Does that joke RFK even know what these two disabling diseases are?
This is another example of their murderous intent.
www.statnews.com/2025/03/19/m...
This is another example of their murderous intent.
www.statnews.com/2025/03/19/m...
ME/CFS research program shuts down at Columbia after Trump cuts
ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.
www.statnews.com
March 19, 2025 at 6:40 PM
About 17 MILLION Americans have Long Covid. At least 50% of these meet criteria for ME/CFS. Does your government care? Does Trump give a damn? Does that joke RFK even know what these two disabling diseases are?
This is another example of their murderous intent.
www.statnews.com/2025/03/19/m...
This is another example of their murderous intent.
www.statnews.com/2025/03/19/m...
I did this. It took less than 5 minutes. Please send a letter! We have no time to waste with so many people suffering.
Urge President Biden to take executive action on #LongCOVID before leaving office!
Learn more & send a letter ⬇️
actionnetwork.org/letters/dema...
Learn more & send a letter ⬇️
actionnetwork.org/letters/dema...
Demand President Biden Take Executive Action on Long COVID Before Leaving Office
In April 2022, the Biden Administration issued a memorandum directing federal agencies to examine the long-term effects of COVID-19, including Long COVID, to advance research, improve care, and suppor...
actionnetwork.org
December 4, 2024 at 9:51 PM
I did this. It took less than 5 minutes. Please send a letter! We have no time to waste with so many people suffering.
Reposted by Lila Guterman
#LongCovid is often a financial disaster. But if you have dollars to spare, here are great orgs I’m donating to:
@thesicktimes.bsky.social - the-sick-times.fundjournalism.org/donate/
@patientled.bsky.social - patientresearchcovid19.com/donate/
@openmedf.bsky.social - www.omf.ngo?form=donatenow
@thesicktimes.bsky.social - the-sick-times.fundjournalism.org/donate/
@patientled.bsky.social - patientresearchcovid19.com/donate/
@openmedf.bsky.social - www.omf.ngo?form=donatenow
December 4, 2024 at 9:04 PM
#LongCovid is often a financial disaster. But if you have dollars to spare, here are great orgs I’m donating to:
@thesicktimes.bsky.social - the-sick-times.fundjournalism.org/donate/
@patientled.bsky.social - patientresearchcovid19.com/donate/
@openmedf.bsky.social - www.omf.ngo?form=donatenow
@thesicktimes.bsky.social - the-sick-times.fundjournalism.org/donate/
@patientled.bsky.social - patientresearchcovid19.com/donate/
@openmedf.bsky.social - www.omf.ngo?form=donatenow
Reposted by Lila Guterman
Almost a third of preteens, teens with long COVID still not recovered at 2 years, study shows
Those who reported COVID reinfections during the study period had the most symptoms through 24 months.
www.cidrap.umn.edu/c...
Those who reported COVID reinfections during the study period had the most symptoms through 24 months.
www.cidrap.umn.edu/c...
December 4, 2024 at 9:27 PM
Almost a third of preteens, teens with long COVID still not recovered at 2 years, study shows
Those who reported COVID reinfections during the study period had the most symptoms through 24 months.
www.cidrap.umn.edu/c...
Those who reported COVID reinfections during the study period had the most symptoms through 24 months.
www.cidrap.umn.edu/c...
Reposted by Lila Guterman
"I think people don’t understand that. You’re asking, “Hey, would you mind protecting my life?” When someone’s like, “Oh God, what a pain in the ass,” experiences like that make you reticent to ask in the future." Excellent article about living with #LongCovid or, indeed, being #CovidAware at all.
“As able-bodied person, you trust your doctor is going to steer ship if something pops up. if I were to wait for them & not be proactive, my health would have continued to decline”
Excellent article by Matt McGorry about stigma of Long Covid, difficulty getting care & learning from disabled people
Excellent article by Matt McGorry about stigma of Long Covid, difficulty getting care & learning from disabled people
‘I was in denial about it’: actor Matt McGorry on having long Covid
Orange Is the New Black and How to Get Away With Murder star speaks about the disease and another way of looking at health
www.theguardian.com
December 3, 2024 at 12:02 PM
"I think people don’t understand that. You’re asking, “Hey, would you mind protecting my life?” When someone’s like, “Oh God, what a pain in the ass,” experiences like that make you reticent to ask in the future." Excellent article about living with #LongCovid or, indeed, being #CovidAware at all.
Reposted by Lila Guterman
If RFK Jr. really stands for confirmation as the Secretary of Health and Human Services (HEALTH and HUMAN SERVICES) we should march on the Capitol (metaphorically) with tetanus-tipped pitchforks to prevent him from taking us back a hundred years in health time. slate.com/technology/2...
There Are Three Main Reasons You Are Alive Right Now. RFK Jr. Is Fighting Tooth and Nail Against One of Them.
Things could get really bad.
slate.com
November 21, 2024 at 12:30 PM
If RFK Jr. really stands for confirmation as the Secretary of Health and Human Services (HEALTH and HUMAN SERVICES) we should march on the Capitol (metaphorically) with tetanus-tipped pitchforks to prevent him from taking us back a hundred years in health time. slate.com/technology/2...
Reposted by Lila Guterman
Please call for this one, guys, this is a horrific turn.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
Advocacy alert ‼️ New Canadian draft recommendations for Long Covid are out, & they include concerning guidance to EXERCISE to prevent Long Covid, & to use CBT as a treatment.
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
November 21, 2024 at 2:17 PM
Please call for this one, guys, this is a horrific turn.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
Reposted by Lila Guterman
You do not need to be Canadian to tell this survey exactly how insulting so many of these suggestions are. 🤬 #LongCovid
Check out Canada's Long Covid draft suggestions by doing this survey. It's a whole lot of diet, exercise, and CBT, and not much in the way of actual tests or effective interventions. You can comment on each question!! #LongCovid #Covid-19 www.research.net/r/CAN-PCCRec...
CAN-PCC Recommendations Public Comment Survey - November 2024
Take this survey powered by surveymonkey.com. Create your own surveys for free.
www.research.net
November 21, 2024 at 2:14 PM
You do not need to be Canadian to tell this survey exactly how insulting so many of these suggestions are. 🤬 #LongCovid
Reposted by Lila Guterman
It takes until the *tenth paragraph* in this piece to introduce the phrase “thousands of children may die”
RFK Jr. wants to tackle chronic disease. Despite controversial views on vaccines, his focus on healthy food and taking on special interests may find broad support — and face political headwinds.
RFK Jr. wants to 'Make America Healthy Again.' He could face a lot of pushback
RFK Jr. wants to tackle chronic disease. Despite controversial views on vaccines, his focus on healthy food and taking on special interests may find broad support — and face political headwinds.
www.npr.org
November 15, 2024 at 8:22 PM
It takes until the *tenth paragraph* in this piece to introduce the phrase “thousands of children may die”
Laura did such good work at SciAm. It's a huge loss for the magazine.
I’ve decided to leave Scientific American after an exciting 4.5 years as editor in chief. I’m going to take some time to think about what comes next (and go birdwatching), but for now I’d like to share a very small sample of the work I’ve been so proud to support (thread)
November 15, 2024 at 2:25 AM
Laura did such good work at SciAm. It's a huge loss for the magazine.
Reposted by Lila Guterman
There is no joy so big as the joy that folks with long covid and ME/CFS, and the allies who are truly and deeply in this with us, will feel when we find proper treatments for these illnesses. When we find ways of preventing these illnesses.
That joy will be bigger than the Sun.
That joy will be bigger than the Sun.
July 8, 2023 at 6:59 PM
There is no joy so big as the joy that folks with long covid and ME/CFS, and the allies who are truly and deeply in this with us, will feel when we find proper treatments for these illnesses. When we find ways of preventing these illnesses.
That joy will be bigger than the Sun.
That joy will be bigger than the Sun.
Reposted by Lila Guterman
I’m starting a new chapter in my career this summer. I’m now working as a freelance science editor. If you need help editing news/feature stories or science communication projects, please contact me: mmtorrice.com.
July 6, 2023 at 5:40 PM
I’m starting a new chapter in my career this summer. I’m now working as a freelance science editor. If you need help editing news/feature stories or science communication projects, please contact me: mmtorrice.com.
Reposted by Lila Guterman
Heads up science writers! The National Association of Science Writers is launching a series of webinars offering career support. Free to all interested professionals and students. Please share!
https://www.nasw.org/article/nasw-science-writers-sciwriroundtable-2023-new-virtual-events-series
https://www.nasw.org/article/nasw-science-writers-sciwriroundtable-2023-new-virtual-events-series
www.nasw.org
May 10, 2023 at 3:43 PM
Heads up science writers! The National Association of Science Writers is launching a series of webinars offering career support. Free to all interested professionals and students. Please share!
https://www.nasw.org/article/nasw-science-writers-sciwriroundtable-2023-new-virtual-events-series
https://www.nasw.org/article/nasw-science-writers-sciwriroundtable-2023-new-virtual-events-series