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ladyseed.bsky.social
@ladyseed.bsky.social
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ladyseed.bsky.social
Comment on the proposal by August 29th www.federalregister.gov/documents/20...
Have an ostomy or love someone who does? Submit grassroots feedback through UOAA www.ostomy.org/take-action/
#ostomy #CMS #heathcare #medicare
I don't talk much about what I do. Generally people are uncomfortable when I say I'm a wound and ostomy nurse. A few are grossed out. But sometimes, I talk to someone who's had an ostomy, or cares about someone with an ostomy. They get it. When you have ostomy supplies that fit and function as they're supposed to, you can live a “normal” life. People with ostomies can and do work full-time, go out to eat, swim, have sex, have kids, work out, everything one might imagine a person could do. One of my co-workers is living proof of this. That's the point of an ostomy—to give a patient another chance of living their life. When you don't have supplies that fit, you feel like your body has betrayed you. You had this surgery to save your life, but if this is the life you get, what was the point? You're changing your pouch every day, sometimes multiple times a day. You have stool or urine leaking out from under your pouch and getting on your skin and clothes. Your skin is red and raw and it burns, and cleaning hurts more, and your pouch won't stay on because of the weeping skin. Maybe you are desperate so you go to the ER for help, but no one there knows much about ostomies. Maybe you don't have access to an ostomy nurse, or it will be days or weeks until you can get seen by one to help you out. You wake up in the middle of the night and your bag has exploded all over you, your bed, and your partner. You feel like you’re trapped in your house and your body. This is NOT what you signed up for. The great thing is, that's not how life has to be with an ostomy. Pouches, adhesives, and customization have gotten to the point where people with ostomies can have their life be their focus, not their stomas. Here’s why I want you to care about this, besides, like basic human compassion: CMS has proposed a change to the way ostomy supplies are classified, placing them under a competitive bid system, where patients would be forced to only use a single supplier, or be forced to pay for their needed ostomy supplies out of pocket. Lemme give you some stats on this: Approximately 725,000-1,000,000 people in the USA have an ostomy (somewhere between 1/500 and 1/340 Americans) Out of pocket ostomy supplies can be anywhere from $120 to $300+ per month, depending on a patient’s needs (it's usually cheaper to buy on Amazon than through a medical supply store when buying out of pocket) Currently Medicare covers ~80% of ostomy supplies for members, and with a prescription they can get access to the exact products they need
August 6, 2025 at 1:15 PM
ladyseed.bsky.social
@joeyroyale.bsky.social This is probably the best GM advice I've ever come across.
For the Ref [GM]: Consider successes as what the Host [Player] *wants*. If a Host fails a roll, consider what the story *needs* to maintain engagement and excitement.
August 3, 2025 at 3:36 AM
Reposted
writnelson.bsky.social
WE AREN’T COWARDS

SO OUR CO-OP KAIJU HORROR COOKING GAME HAS A CHANTING SYSTEM
March 28, 2025 at 2:12 AM
ladyseed.bsky.social
Anabelle, The Strange, by Nathan Ballingrud

"One of the bullets had carved a runnel through his head, above his left eye, exposing his brain to the air. That house of mysteries, that garden of dreams, just a spilling pile of riven, bloody meat."
Cover art for The Strange by Nathan Ballingrud featuring an astronaut with a skull face and a glowing green eye socket looming over a red sand landscape while a cloud of moths flies around them
March 11, 2025 at 2:56 AM
ladyseed.bsky.social
Peaches, The Ballad of Perilous Graves, by @alexjennings.bsky.social

"We have to do what we can do. We have to. Think about all the people who can't, the people who get in their own way, or who don't get the chances we get."
Cover of the book The Ballad of Perilous Graves by Alex Jennings depicting a piano shaped like a gravestone with skeletal hands playing the keys.
March 3, 2025 at 12:59 AM
ladyseed.bsky.social
@dvcgames.bsky.social Got Signal in the mail today and played through first two aliens, really clever game (apologies I did not get a picture of all my weird shapes trying to get the Signal 😅). Any chance y'all have representation at GAMA so I can tell my flgs peeps there to check your stuff out?
February 25, 2025 at 3:43 AM
Reposted
strangescaffold.bsky.social
What's that sound?

Is that... polka? Unsettling and 𝘥𝘦𝘦𝘱𝘭𝘺 compelling polka?

That's the sound of the Steam Next Fest Demo for our upcoming 𝗠𝗔𝗧𝗖𝗛𝗥𝗢𝗜𝗗𝗩𝗔𝗡𝗜𝗔 Creepy Redneck Dinosaur Mansion 3 being LIVE now!

Play & wishlist here:
store.steampowered.com/app/2116510/...
February 24, 2025 at 6:01 PM
ladyseed.bsky.social
@tanukigames.bsky.social I ran HIC Tapestry a couple of weeks ago, my friends wondered if this will be available for purchase? (A bit of our tapestry with revisionist history 😅)
February 22, 2025 at 5:19 PM