Ali 🤠
@kaijuketchup.bsky.social
🌈 space cowboy in london 🤠
🎥Film enthusiast
🥄e | ND | 🏳️⚧️🧍♂️| they/them
My profile on Letterboxd https://boxd.it/5vkyb
If you want to and have the means to assist : https://www.amazon.co.uk/hz/wishlist/ls/2TND3NGW2LTKX?ref_=wl_share
🎥Film enthusiast
🥄e | ND | 🏳️⚧️🧍♂️| they/them
My profile on Letterboxd https://boxd.it/5vkyb
If you want to and have the means to assist : https://www.amazon.co.uk/hz/wishlist/ls/2TND3NGW2LTKX?ref_=wl_share
Reposted by Ali 🤠
Imagine being very sick, but like, forever. Now imagine still having to do everything you do now. Welcome to chronic illness.
March 31, 2025 at 12:14 PM
Imagine being very sick, but like, forever. Now imagine still having to do everything you do now. Welcome to chronic illness.
Reposted by Ali 🤠
Feels like it’s been one of those days for years
March 20, 2025 at 7:06 PM
Feels like it’s been one of those days for years
Reposted by Ali 🤠
MCAS - When You’re Allergic to Everything and Nothing All at Once
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
When You're Allergic to Everything and Nothing... That's MCAS
An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.
www.disabledginger.com
December 7, 2024 at 3:29 AM
MCAS - When You’re Allergic to Everything and Nothing All at Once
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
being chronically ill should make you immune to the normies illnesses wtf is thisssssssss aaaaaaaaaaaaa 😖
December 8, 2024 at 5:45 PM
being chronically ill should make you immune to the normies illnesses wtf is thisssssssss aaaaaaaaaaaaa 😖
Reposted by Ali 🤠
"Your T cells will protect you against viral infections"
Your T cells are exhausted and making poor decisions.
Your T cells are exhausted and making poor decisions.
December 3, 2024 at 3:54 PM
"Your T cells will protect you against viral infections"
Your T cells are exhausted and making poor decisions.
Your T cells are exhausted and making poor decisions.
It's so cute that she loves to sleep on my legs but it does hurt after a while, but I dare not move 😭 curse the sensitive touch pains, i will allow suffering for her cuteness
#ME/CFS #fibromyalgia #chronicillness
#ME/CFS #fibromyalgia #chronicillness
![tuxedo cat curled up on an orange fleece on top of legs under a duvet. A christmas movie [your Christmas or mine] is playing on a TV in the background. Cozy bedroom image.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:ra6pl72s6snseyjg2xejmxx7/bafkreidf2a53yx3rnz5krqdlnhheatipdhrhfva5kmo65kjzqrygwlsxbi@jpeg)
December 6, 2024 at 12:19 AM
It's so cute that she loves to sleep on my legs but it does hurt after a while, but I dare not move 😭 curse the sensitive touch pains, i will allow suffering for her cuteness
#ME/CFS #fibromyalgia #chronicillness
#ME/CFS #fibromyalgia #chronicillness
Reposted by Ali 🤠
"NOPE refashions the Western as a genre that tells a story of American erasure by its survivors. Jordan Peele pays tribute to the forgotten subject of Eadweard Muybridge’s iconic print by reimagining a bespoke legacy: the rider receives not only a name and a backstory—he also gets a future."
Towards the Afropastoral: What Nope Says About the Black Western
Jordan Peele's 'Nope' refashions the Western as a genre that tells a story of American erasure by its survivors.
buff.ly
December 5, 2024 at 12:00 AM
"NOPE refashions the Western as a genre that tells a story of American erasure by its survivors. Jordan Peele pays tribute to the forgotten subject of Eadweard Muybridge’s iconic print by reimagining a bespoke legacy: the rider receives not only a name and a backstory—he also gets a future."
December 4, 2024 at 11:25 AM
highlight of going to parents was coming back with a delightful array of pain meds to add to the gp-doesn't-believe-me stash
#ME/CFS #Chronicillness #invisibledisabilities #disability
#ME/CFS #Chronicillness #invisibledisabilities #disability
December 4, 2024 at 1:58 AM
highlight of going to parents was coming back with a delightful array of pain meds to add to the gp-doesn't-believe-me stash
#ME/CFS #Chronicillness #invisibledisabilities #disability
#ME/CFS #Chronicillness #invisibledisabilities #disability
I don't think they've made the jump to Bluesky yet but another great read from abolitionistfutures. The Gov want us dead already, slowly starving, freezing and making us wait for essential healthcare; don't help make it any easier.
#chronicillness #ME/CFS #EDS #invisibleillness #disability
#chronicillness #ME/CFS #EDS #invisibleillness #disability
Why Abolitionists must resist the assisted dying bill — Abolitionist Futures
Why Abolitionists must resist the assisted dying bill.
abolitionistfutures.com
November 26, 2024 at 3:45 PM
I don't think they've made the jump to Bluesky yet but another great read from abolitionistfutures. The Gov want us dead already, slowly starving, freezing and making us wait for essential healthcare; don't help make it any easier.
#chronicillness #ME/CFS #EDS #invisibleillness #disability
#chronicillness #ME/CFS #EDS #invisibleillness #disability
Reposted by Ali 🤠
The Substance is such a brilliant movie. Filled to the brim with blood and gore, but the scariest scene is when Demi Moore can’t get herself to go on a date because of crippling self-doubt.
November 21, 2024 at 10:29 PM
The Substance is such a brilliant movie. Filled to the brim with blood and gore, but the scariest scene is when Demi Moore can’t get herself to go on a date because of crippling self-doubt.
Reposted by Ali 🤠
despite the world becoming scary i still have a perhaps niave but unwaivering belief that a better world is possible
November 21, 2024 at 6:22 AM
despite the world becoming scary i still have a perhaps niave but unwaivering belief that a better world is possible
Reposted by Ali 🤠
every boxing movie is basically about this transformation
November 21, 2024 at 3:30 AM
every boxing movie is basically about this transformation
Reposted by Ali 🤠
#DisabilityTax
“The reality is that it is expensive to be disabled. Research shows that disabled people need at least 28% more income, at least $17,690, to achieve a standard of living similar to that of non-disabled people.”
www.theguardian.com/wellness/202...
A cutting board costs me $75 – it might cost you $10. What to know about the ‘disability tax’
Research shows disabled people need at least 28% more income than non-disabled people for a similar living standard
www.theguardian.com
November 19, 2024 at 5:07 AM
#DisabilityTax
“The reality is that it is expensive to be disabled. Research shows that disabled people need at least 28% more income, at least $17,690, to achieve a standard of living similar to that of non-disabled people.”
www.theguardian.com/wellness/202...
Reposted by Ali 🤠
My kryptonite is waking up
November 19, 2024 at 7:24 PM
My kryptonite is waking up
PIP cancelled on me for a second time 😞
I've been unable to work since Jan and reliant entirely on my partner and friends to stay alive this long. Definitely not money this side of Christmas. Why does the gov want me dead so bad 😭
#ME/CFS #invisibleillness #chronicpain
I've been unable to work since Jan and reliant entirely on my partner and friends to stay alive this long. Definitely not money this side of Christmas. Why does the gov want me dead so bad 😭
#ME/CFS #invisibleillness #chronicpain
November 19, 2024 at 12:44 PM
PIP cancelled on me for a second time 😞
I've been unable to work since Jan and reliant entirely on my partner and friends to stay alive this long. Definitely not money this side of Christmas. Why does the gov want me dead so bad 😭
#ME/CFS #invisibleillness #chronicpain
I've been unable to work since Jan and reliant entirely on my partner and friends to stay alive this long. Definitely not money this side of Christmas. Why does the gov want me dead so bad 😭
#ME/CFS #invisibleillness #chronicpain
the pain, exhaustion and hyperactive brain induced insomnia is so bad at the moment; I feel like I'm full of ants but unable to move and my pillow and mattress feels like concrete causing further back and neck pain 😭 fml
sleeping hacks welcome 😭
#ME/CFS #invisibleillness #chronicillness #ADHD
sleeping hacks welcome 😭
#ME/CFS #invisibleillness #chronicillness #ADHD
November 19, 2024 at 3:36 AM
the pain, exhaustion and hyperactive brain induced insomnia is so bad at the moment; I feel like I'm full of ants but unable to move and my pillow and mattress feels like concrete causing further back and neck pain 😭 fml
sleeping hacks welcome 😭
#ME/CFS #invisibleillness #chronicillness #ADHD
sleeping hacks welcome 😭
#ME/CFS #invisibleillness #chronicillness #ADHD
without downloading a new photo, where are you mentally rn?
November 19, 2024 at 2:27 AM
without downloading a new photo, where are you mentally rn?
Reposted by Ali 🤠
10AM me: "Ok I'll quickly check notifications, mustn't spend long online because it always causes PEM and RSI pain."
11:37AM me: "Oh look, my hands hurt, my brain hurts."
Yet I want to connect, help, learn, support. ME + RSI are a shite combo.
11:37AM me: "Oh look, my hands hurt, my brain hurts."
Yet I want to connect, help, learn, support. ME + RSI are a shite combo.
November 18, 2024 at 11:39 AM
10AM me: "Ok I'll quickly check notifications, mustn't spend long online because it always causes PEM and RSI pain."
11:37AM me: "Oh look, my hands hurt, my brain hurts."
Yet I want to connect, help, learn, support. ME + RSI are a shite combo.
11:37AM me: "Oh look, my hands hurt, my brain hurts."
Yet I want to connect, help, learn, support. ME + RSI are a shite combo.
it's not irrationality produced by a chemically unbalanced brain, just my reality. I've been depressed and anxious since I was 12 (late diagnosed #ADHD woi) but this is now just realism. If I were to list off all my issues I think it would honestly be at the bottom. Circs are sad, I'm not. #ME/CFS
“Contrary to popular misconception, anxiety and depression are the least often affected areas in persons with #MECFS who are most impacted by their inability to perform usual activities.”
We’re not afraid. We’re not anxious.
We physically can’t do the things we want to.
We’re not afraid. We’re not anxious.
We physically can’t do the things we want to.
#MyalgicEncephalomyelitis / #ChronicFatigueSyndrome: Impact on Quality of Life (QoL) of Persons with ME/CFS
From the AMMES November 2024 Newsletter
www.mdpi.com/1648-9144/60...
"Data were analysed from 876 participants from 26 countries"
#MEcfs #CFS #PwME
From the AMMES November 2024 Newsletter
www.mdpi.com/1648-9144/60...
"Data were analysed from 876 participants from 26 countries"
#MEcfs #CFS #PwME
November 18, 2024 at 12:29 AM
November 17, 2024 at 11:57 PM
codeine can go fuck itself honestly it doesn't even work right istg 😭
Rick And Morty I Cant Take It Anymore I Just Want To Die GIF
Alt: Rick And Morty I Cant Take It Anymore I Just Want To Die GIF
media.tenor.com
November 17, 2024 at 3:36 AM
codeine can go fuck itself honestly it doesn't even work right istg 😭
really hope all this mass following pays off 🙇♂️
hello new friends
interests/looking for:
- film (esp. horror, sci-fi, space western)
- kaiju/monsterverse
- stand up comedy
- graphic novels
- fashion
- fellow spoonies
- social sciences (queer, feminist and abolitionist perspectives)
hello new friends
interests/looking for:
- film (esp. horror, sci-fi, space western)
- kaiju/monsterverse
- stand up comedy
- graphic novels
- fashion
- fellow spoonies
- social sciences (queer, feminist and abolitionist perspectives)
November 17, 2024 at 2:23 AM
really hope all this mass following pays off 🙇♂️
hello new friends
interests/looking for:
- film (esp. horror, sci-fi, space western)
- kaiju/monsterverse
- stand up comedy
- graphic novels
- fashion
- fellow spoonies
- social sciences (queer, feminist and abolitionist perspectives)
hello new friends
interests/looking for:
- film (esp. horror, sci-fi, space western)
- kaiju/monsterverse
- stand up comedy
- graphic novels
- fashion
- fellow spoonies
- social sciences (queer, feminist and abolitionist perspectives)