Jo Dainow
joda.bsky.social
Jo Dainow
@joda.bsky.social
Trustee at Long Covid Support longcovid.org
#LongCovid #TreatLongCovid
Happy when in nature. Mason Bee Guardian.
Reposted by Jo Dainow
🎄🎁 If you’re shopping online, why not raise funds for our charity & help us continue vital work - it costs you nothing!!

Easy Fundraising partners with 8,000+ brands who donate part of what you spend to a cause of your choice.

➡️ Take a look: www.easyfundraising.org.uk/causes/longc...

#LongCovid
December 10, 2024 at 10:41 AM
Reposted by Jo Dainow
📣 We are proud to be selected as the Secretariat for the APPG on #LongCovid. We take with us the voices from the Long Covid community, ensuring focus remains on Long Covid & what is needed to progress Prevention, Awareness, Support & Treatment of this life altering illness.
I’m beyond thrilled to be elected Chair of the All-Party Parliamentary Group for Long Covid. I’m deeply inspired by the incredible work of @longcovidsupport.bsky.social and delighted they will be serving as the Secretariat.
I look forward to the exciting work ahead! Read my full statement here:
December 10, 2024 at 4:01 PM
Reposted by Jo Dainow
Looking forward to this one! Dr Dempsey is a leading authority on MCAS.
Join us 7pm GMT on Wednesday evening ⬇️
📣 Fireside Chat: Lessons from the US #2:
Mast Cell Activation Syndrome with Dr. Tania Dempsey

🗓 Wednesday 11 December at 7pm UK GMT

The Long COVID Clinic's Fireside Chats with Dr. Binita Kane and Helen Oakleigh continue.

Link here: www.youtube.com/live/i4M30VW...

#mastcell #mcas
December 7, 2024 at 11:23 AM
Reposted by Jo Dainow
“Globally, accepted estimates have suggested between 65m & 200m people have #LongCovid… between 19.5m & 60m people face years of impairment”

Let’s compare with recent global figures from the WHO:

🟠 Dementia: 55m+
🟠 Rheumatoid arthritis: 18m
🟠 Parkinson’s disease: 8.5m+
🟠 MS: 1.8m+

#CureLongCovid
November 15, 2024 at 6:39 AM
Reposted by Jo Dainow
We continue to raise #LongCovidAwareness across various social media platforms - Take a look! ⬇️

#LongCovid

linktr.ee/longcovidsup...
November 15, 2024 at 3:08 PM
Reposted by Jo Dainow
New from Danny Altmann & me in BMJ on Long Covid: where we are, where we should be (loads more trials for treatments!) and where we should have been (factoring in Long Covid from the very start of the pandemic).

www.bmj.com/content/383/...
Long covid: where are we, what does it say about our pandemic response, and where next?
The UK Office for National Statistics (ONS) Infection Survey was the best estimate that we had on the number of people experiencing long covid. When it ended in March 2023, there were an estimated 1.7...
www.bmj.com
December 19, 2023 at 11:16 PM
Reposted by Jo Dainow
🚨From the World Health Organization:

“For health workers and health facilities, WHO advises:

-Universal masking in health facilities”

#LongCovid
#LongCovidRuinsLives
#ItCouldHappenToYou

worldhealthorganizationdepartmentofcommunications.cmail20.com/t/d-e-vkkjyu...
NEW: COVID19 variant of interest JN.1 with update for health workers
worldhealthorganizationdepartmentofcommunications.cmail20.com
December 20, 2023 at 7:40 AM
Reposted by Jo Dainow
📣Join the movement!

Write to your MP to urge them to support our campaign calling for a 5-step road map for #LongCovid.

Let them know why their support matters!!

➡️ Letter template: www.longcovidgroups.org/it-could-hap...

#LongCovidAwareness
December 15, 2023 at 6:10 PM
Reposted by Jo Dainow
Just goes to show that anyone can get #LongCovid, even the most fit out of all of us.
Thank you @oonaghcousins.bsky.social for being a fantastic advocate!
📣Our amazing Ambassador Oonagh Cousins on BBC5Live:
“I was a professional athlete selected for the Olympics. Caught Covid, developed into serious #LongCovid. For months life revolved around trying to get through basic daily tasks. After 3yrs I decided to retire”
➡️Link: www.bbc.co.uk/sounds/play/...
December 10, 2023 at 9:41 PM
Reposted by Jo Dainow
Long Covid Support Advisor Dr Ziyad Al-Aly talked last week in Melbourne about #LongCovid:

“It affects nearly every organ system, the kidneys, and the heart, and the brain, and can lead to diabetes, and blood clotting disorders… they deserve treatment yesterday”

www1.racgp.org.au/newsgp/clini...
December 11, 2023 at 8:14 AM
Reposted by Jo Dainow
🚨At #covidinquiryuk PM Rishi Sunak apologises:

“I wanted to start by saying how deeply sorry I am to all those who lost loved ones and also all those who suffered in the various ways as a result of the actions were taken”

We’re still suffering lad, it’s not over!!

#LongCovid
#ItCouldHappenToYou
December 11, 2023 at 11:02 AM
Reposted by Jo Dainow
🚨More from the UK Covid Inquiry - Sunak is asked about #LongCovid:

Q. Do you recall at what time Long Covid presented itself on the Exchequer’s horizon?

A. I don’t specifically. I recall in the May plan having a conversation with the CMO about consideration of other health impacts.

May! May!!
December 11, 2023 at 1:04 PM
Reposted by Jo Dainow
📣 We’re back at the #CovidInquiryUK today!

🔴 Fund 🟠 Research 🔵 Treat
#LongCovid!

There is currently NO CURE!!

1.9m of us in the UK are experiencing vastly debilitating effects, including our future workforce of 62,000 children!

@RishiSunak
#ItCouldHappenToYou
December 11, 2023 at 1:30 PM
Reposted by Jo Dainow
💚 At #CovidInquiryUK the #LongCovidGroups push for answers, along with our fantastic legal team!

Thank you to all attending in person & working away behind the scenes (including on social media! 😉) ❤️

Exhausted we may be but we will not stop!

#LongCovid
#ItCouldHappenToYou
December 11, 2023 at 2:52 PM
Reposted by Jo Dainow
1/2 ♥️ Another busy day at the #CovidInquiry, we are all shattered!

Closing statement for the #LongCovidGroups due later this week. We will come together again & will continue to push for:

🔴 Dedicated research funding

🔵 Treatment trials

🟢 #LongCovid awareness campaigns
December 11, 2023 at 7:34 PM
Reposted by Jo Dainow
📣Our amazing Ambassador Oonagh Cousins on BBC5Live:
“I was a professional athlete selected for the Olympics. Caught Covid, developed into serious #LongCovid. For months life revolved around trying to get through basic daily tasks. After 3yrs I decided to retire”
➡️Link: www.bbc.co.uk/sounds/play/...
December 10, 2023 at 7:13 PM
Reposted by Jo Dainow
🚨📩Today’s the day we hand-deliver our letter to No.10!

We need:

♦️Dedicated research funding

♦️Treatment trials

♦️Public #LongCovid awareness campaigns

Help us reach 3000 signatures!

➡️ ✍️Sign here: bit.ly/46Hjjn1

#LongCovidGroups
#ItCouldHappenToYou
Urgent Investment for Long Covid: Call to Action for Prime Minister...
Our collective appeal is centred around the urgent need for a clear road map on targeted investment in biomedical and health research. We propose a comprehensive 5-step strategy that...
bit.ly
December 6, 2023 at 6:47 AM
Reposted by Jo Dainow
📣As Former PM Boris Johnson gives evidence at the UK Covid Inquiry:

Our Founding Trustee Natalie Rogers gives a statement on behalf of the #LongCovidGroups:

“Evidence heard confirmed #LongCovid has been Sidelined, Disbelieved and Ignored”

@longcovidkids.bsky.social
@longcovidsos.bsky.social
December 6, 2023 at 12:17 PM
Reposted by Jo Dainow
📣 At UK Covid Inquiry our Ambassador Oonagh Cousins is interviewed with @sammiemc.bsky.social (@longcovidkids.bsky.social) by BBC News on Boris Johnson:

“Looking after the health of the Nation is the primary responsibility of our Leaders & he continuously put his ego & self-interest ahead of that”
December 6, 2023 at 12:46 PM
Reposted by Jo Dainow
📣🚨 Let us know if you #SpotTheVan!!

Our #LongCovidGroups’ digi-van is in central London raising public awareness on #LongCovid.

🤳Take a photo if you see it and tag us!

#ItCouldHappenToYou
#covidinquiryUK
@longcovidkids.bsky.social @longcovidsos.bsky.social
December 6, 2023 at 2:27 PM
Reposted by Jo Dainow
📣🚨***DELIVERED!!!***🚨
The #LongCovidGroups’s letter has been delivered to No. 10 Downing Street!!!

We will keep pushing for:

♦️ Dedicated research funding

♦️ Treatment trials

♦️ Public #LongCovid awareness campaigns

➡️ Read more: you.38degrees.org.uk/petitions/ur...
December 6, 2023 at 3:44 PM
Reposted by Jo Dainow
💚 Wow, what a day!💙
We are shattered but Boris Johnson is back at #covidinquiryUK tomorrow and we will not stop until there is appropriate care, research and support for #LongCovid!
Here are a few photos of today, with fantastic charities/organisations working together.
December 6, 2023 at 9:24 PM
Reposted by Jo Dainow
💚 At #covidinquiryUK today - this photo says it all.

#LongCovid
#ItCouldHappenToYou
#ResearchLongCovid
December 7, 2023 at 1:29 PM
Reposted by Jo Dainow
💚Another exhausting day with the #covidinquiryUK but again the #LongCovidGroups and other organisations make a stand!
A few photos from today…

#LongCovid
#ItCouldHappenToYou
#BorisTheLiar
@longcovidkids.bsky.social
@longcovidsos.bsky.social
December 7, 2023 at 9:14 PM
Reposted by Jo Dainow
We've arrived on Bluesky! Please bear with us while we get up and running on here.
If you have suggestions on who to follow on here from the Long Covid and wider chronic illness communities please let us know!
October 16, 2023 at 10:11 AM