Ishbel Fraser
@ishbelfraser.bsky.social
Life in limbo for 17 years due to the #GreatestMEdicalScandal
We ain't half missing you over on X today @sunsopeningband.bsky.social
It seems a certain 'expert' has taken full advantage of your absence and has thrown a 💣 pw ME/PEM being the targets. It's been wild!
It seems a certain 'expert' has taken full advantage of your absence and has thrown a 💣 pw ME/PEM being the targets. It's been wild!
November 16, 2024 at 9:55 PM
We ain't half missing you over on X today @sunsopeningband.bsky.social
It seems a certain 'expert' has taken full advantage of your absence and has thrown a 💣 pw ME/PEM being the targets. It's been wild!
It seems a certain 'expert' has taken full advantage of your absence and has thrown a 💣 pw ME/PEM being the targets. It's been wild!
Reposted by Ishbel Fraser
Non of the #ME charities have a presence on here. Action 4ME’s decision 👇 shows just how out of touch the ME orgs are with the needs and wishes of most #pwME
We need them to rapidly point out misinformation and promote quality research. Social media is where we are and where we need support!
We need them to rapidly point out misinformation and promote quality research. Social media is where we are and where we need support!
November 15, 2024 at 12:06 PM
Reposted by Ishbel Fraser
I saw a patient last week with ME who in 2023 was told by the MECFS service to ‘get back to the gym’. She did 20 minutes, collapsed and hasn’t walked since. The advice is still out there, still wrong and the harm is real.
Cochrane is stubbornly refusing to withdraw the 2019 review recommending exercise therapy for ME/CFS despite being supplied with ample evidence that it doesn't work and causes harm for #pwME with post exertional malaise.
Please sign the petition:
chng.it/zTZ7vX9Czd
Please sign the petition:
chng.it/zTZ7vX9Czd
Can you spare a minute to help this campaign?
Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review
chng.it
November 11, 2024 at 9:25 AM
I saw a patient last week with ME who in 2023 was told by the MECFS service to ‘get back to the gym’. She did 20 minutes, collapsed and hasn’t walked since. The advice is still out there, still wrong and the harm is real.
Reposted by Ishbel Fraser
Cochrane is stubbornly refusing to withdraw the 2019 review recommending exercise therapy for ME/CFS despite being supplied with ample evidence that it doesn't work and causes harm for #pwME with post exertional malaise.
Please sign the petition:
chng.it/zTZ7vX9Czd
Please sign the petition:
chng.it/zTZ7vX9Czd
Can you spare a minute to help this campaign?
Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review
chng.it
November 10, 2024 at 10:35 AM
Cochrane is stubbornly refusing to withdraw the 2019 review recommending exercise therapy for ME/CFS despite being supplied with ample evidence that it doesn't work and causes harm for #pwME with post exertional malaise.
Please sign the petition:
chng.it/zTZ7vX9Czd
Please sign the petition:
chng.it/zTZ7vX9Czd