Helen Goss
@helen-goss.bsky.social
COO & Scotland @longcovidkids
❤️🔥Parent/carer #LongCovidKids
🤘🏼Advocate #LongCovid
😻x5
🪐Space nerd
🌪️Chronically persistent force of nature
❤️🔥Parent/carer #LongCovidKids
🤘🏼Advocate #LongCovid
😻x5
🪐Space nerd
🌪️Chronically persistent force of nature
Pinned
Helen Goss
@helen-goss.bsky.social
· Nov 14
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
www.thecourier.co.uk
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Reposted by Helen Goss
Thx @helen-goss.bsky.social
for sharing this very vulnerable & utterly exhausting reality of being a caregiver while battling your own health issues & the incompetence of the healthcare system (and others):
helenmmgoss.substack.com/p/long-covid...
@coopspeak.bsky.social @theresisters.bsky.social
for sharing this very vulnerable & utterly exhausting reality of being a caregiver while battling your own health issues & the incompetence of the healthcare system (and others):
helenmmgoss.substack.com/p/long-covid...
@coopspeak.bsky.social @theresisters.bsky.social
Long Covid Carer Burnout, But Make It Bureaucratic!
If I had a pound for every time a system failed us, I could fund all long covid research and cure it immediately.
helenmmgoss.substack.com
June 21, 2025 at 7:07 PM
Thx @helen-goss.bsky.social
for sharing this very vulnerable & utterly exhausting reality of being a caregiver while battling your own health issues & the incompetence of the healthcare system (and others):
helenmmgoss.substack.com/p/long-covid...
@coopspeak.bsky.social @theresisters.bsky.social
for sharing this very vulnerable & utterly exhausting reality of being a caregiver while battling your own health issues & the incompetence of the healthcare system (and others):
helenmmgoss.substack.com/p/long-covid...
@coopspeak.bsky.social @theresisters.bsky.social
@georgemonbiot.bsky.social definitely worth a read. Quite the scandal North of the wall 🏴🙏🏼
Dear @georgemonbiot.bsky.social,
With your new found interest in #MECFS, I was wondering if you'd be interested in a very common comorbid condition called #POTS. Here in Scotland, non-experts made POTS guidelines that had high potential for harm, outlined here:
dontbelievehype.co.uk/covid-%26-va...
With your new found interest in #MECFS, I was wondering if you'd be interested in a very common comorbid condition called #POTS. Here in Scotland, non-experts made POTS guidelines that had high potential for harm, outlined here:
dontbelievehype.co.uk/covid-%26-va...
January 6, 2025 at 8:34 PM
@georgemonbiot.bsky.social definitely worth a read. Quite the scandal North of the wall 🏴🙏🏼
Reposted by Helen Goss
Outstanding piece on Long Covid in the UK. Since we know vaccination reduces the risk of developing Long Covid, the UK government really should be massively widening access to vaccines.
www.telegraph.co.uk/global-healt...
www.telegraph.co.uk/global-healt...
Four years on from the pandemic and long Covid’s inequalities have only worsened
Fatigue, cognitive difficulties, and breathlessness are still a daily reality for many. It is particularly acute in poorer communities
www.telegraph.co.uk
November 28, 2024 at 11:03 AM
Outstanding piece on Long Covid in the UK. Since we know vaccination reduces the risk of developing Long Covid, the UK government really should be massively widening access to vaccines.
www.telegraph.co.uk/global-healt...
www.telegraph.co.uk/global-healt...
Reposted by Helen Goss
this was the beginning of my slides on how and why we provide off label therapies to the most severe patients with #longcovid
before providing my filled one, would love to know
- what you do
- what you would like to do
- as patients, what would you like to receive
before providing my filled one, would love to know
- what you do
- what you would like to do
- as patients, what would you like to receive
November 21, 2024 at 12:07 PM
this was the beginning of my slides on how and why we provide off label therapies to the most severe patients with #longcovid
before providing my filled one, would love to know
- what you do
- what you would like to do
- as patients, what would you like to receive
before providing my filled one, would love to know
- what you do
- what you would like to do
- as patients, what would you like to receive
Reposted by Helen Goss
"Prof @putrinolab.bsky.social , Mount Sinai, believes that there are at least 10 different plausible explanations for why people develop #PEM, ranging from sleep disruption to hormonal impairments & inflammation of the lining of blood vessels"
www.bbc.com/future/artic...
#LongCovid #LongCovidKids
www.bbc.com/future/artic...
#LongCovid #LongCovidKids
Long Fatigue: The exhaustion that lingers after an infection
Before long Covid there was post-viral fatigue – a mysterious set of illnesses caused by other infections. Now scientists are starting to unravel its secrets.
www.bbc.com
November 20, 2024 at 5:54 PM
"Prof @putrinolab.bsky.social , Mount Sinai, believes that there are at least 10 different plausible explanations for why people develop #PEM, ranging from sleep disruption to hormonal impairments & inflammation of the lining of blood vessels"
www.bbc.com/future/artic...
#LongCovid #LongCovidKids
www.bbc.com/future/artic...
#LongCovid #LongCovidKids
Reposted by Helen Goss
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
1/
1/
November 20, 2024 at 11:27 AM
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
1/
1/
Reposted by Helen Goss
A really excellent article on post viral fatigue, though I see 2 errors:
1. There is no uncertainty that SARS-CoV-2 causes mircoclots.
2. "pacing" is defined as = graded exercise therapy. Its not, & confusing them is harmful.
#ME #CFS #MECFS #IACC #LongCovid #LongLyme
www.bbc.com/future/artic...
1. There is no uncertainty that SARS-CoV-2 causes mircoclots.
2. "pacing" is defined as = graded exercise therapy. Its not, & confusing them is harmful.
#ME #CFS #MECFS #IACC #LongCovid #LongLyme
www.bbc.com/future/artic...
Long Fatigue: The exhaustion that lingers after an infection
Before long Covid there was post-viral fatigue – a mysterious set of illnesses caused by other infections. Now scientists are starting to unravel its secrets.
www.bbc.com
November 21, 2024 at 12:36 AM
A really excellent article on post viral fatigue, though I see 2 errors:
1. There is no uncertainty that SARS-CoV-2 causes mircoclots.
2. "pacing" is defined as = graded exercise therapy. Its not, & confusing them is harmful.
#ME #CFS #MECFS #IACC #LongCovid #LongLyme
www.bbc.com/future/artic...
1. There is no uncertainty that SARS-CoV-2 causes mircoclots.
2. "pacing" is defined as = graded exercise therapy. Its not, & confusing them is harmful.
#ME #CFS #MECFS #IACC #LongCovid #LongLyme
www.bbc.com/future/artic...
Best thing about Scottish winter is seeing the gritter map back in action!
traffic.gov.scot/gritter-tracker
No one can be annoyed at being stuck behind "You're a Blizzard, Harry" or "Spready Mercury" 😂
Gritter names: google.com/amp/s/www.huff…#scotlandn#wintere#snowo#uksnowow
traffic.gov.scot/gritter-tracker
No one can be annoyed at being stuck behind "You're a Blizzard, Harry" or "Spready Mercury" 😂
Gritter names: google.com/amp/s/www.huff…#scotlandn#wintere#snowo#uksnowow
November 21, 2024 at 1:08 AM
Best thing about Scottish winter is seeing the gritter map back in action!
traffic.gov.scot/gritter-tracker
No one can be annoyed at being stuck behind "You're a Blizzard, Harry" or "Spready Mercury" 😂
Gritter names: google.com/amp/s/www.huff…#scotlandn#wintere#snowo#uksnowow
traffic.gov.scot/gritter-tracker
No one can be annoyed at being stuck behind "You're a Blizzard, Harry" or "Spready Mercury" 😂
Gritter names: google.com/amp/s/www.huff…#scotlandn#wintere#snowo#uksnowow
Reposted by Helen Goss
The EM images of microclots from @resiapretorius.bsky.social group are something else.
November 15, 2024 at 9:06 AM
The EM images of microclots from @resiapretorius.bsky.social group are something else.
Reposted by Helen Goss
Working in the Long Covid/ME space in the UK is a lonely place.
As I reflect in taxi home on the last 48 hrs, I don’t regret a single moment. I genuinely believe that the group of people I was with yesterday can change the world for kids with these illnesses. There’s power in global collaboration.
As I reflect in taxi home on the last 48 hrs, I don’t regret a single moment. I genuinely believe that the group of people I was with yesterday can change the world for kids with these illnesses. There’s power in global collaboration.
November 16, 2024 at 6:08 PM
Working in the Long Covid/ME space in the UK is a lonely place.
As I reflect in taxi home on the last 48 hrs, I don’t regret a single moment. I genuinely believe that the group of people I was with yesterday can change the world for kids with these illnesses. There’s power in global collaboration.
As I reflect in taxi home on the last 48 hrs, I don’t regret a single moment. I genuinely believe that the group of people I was with yesterday can change the world for kids with these illnesses. There’s power in global collaboration.
November 17, 2024 at 10:16 PM
This was not on my Christmas list.
#H5N1
#H5N1
The preliminary sequence from the H5N1 human case in British Columbia has been posted and it is not good news. The virus potentially has a quasispecies at HA residue 226 (H3 numbering). This is bad news because we know that mutations at residue 226 can increase binding to human receptors. 1/
November 17, 2024 at 1:38 AM
This was not on my Christmas list.
#H5N1
#H5N1
Reposted by Helen Goss
First Bluesky Post!! 🤩
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
November 15, 2024 at 10:09 AM
First Bluesky Post!! 🤩
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
So proud of @sammiemc.bsky.social flying the LCK flag 🥹 Well done and thank you for the monumental effort 👏🏼🎉👏🏼
#LongCovidKids #LongCovid
#LongCovidKids #LongCovid
This afternoon @sammiemc.bsky.social from @longcovidkids.bsky.social got a deserved standing ovation from the audience after delivering an emotional but impactful presentation highlighting the impact that #longcovid has on children and their families.
Inspirational!!
Inspirational!!
November 15, 2024 at 10:51 PM
So proud of @sammiemc.bsky.social flying the LCK flag 🥹 Well done and thank you for the monumental effort 👏🏼🎉👏🏼
#LongCovidKids #LongCovid
#LongCovidKids #LongCovid
A catch up thread on the UK Covid Inquiry as relates to #LongCovid & #LongCovidKids in Scotland.
Yesterday, Caroline Lamb, NHS Scotland and Director General of Health and Social Care gave testimony.
Thread...
1. Scottish Government funding £2.5m for Long Covid (no paed research)
Yesterday, Caroline Lamb, NHS Scotland and Director General of Health and Social Care gave testimony.
Thread...
1. Scottish Government funding £2.5m for Long Covid (no paed research)
November 15, 2024 at 1:30 PM
A catch up thread on the UK Covid Inquiry as relates to #LongCovid & #LongCovidKids in Scotland.
Yesterday, Caroline Lamb, NHS Scotland and Director General of Health and Social Care gave testimony.
Thread...
1. Scottish Government funding £2.5m for Long Covid (no paed research)
Yesterday, Caroline Lamb, NHS Scotland and Director General of Health and Social Care gave testimony.
Thread...
1. Scottish Government funding £2.5m for Long Covid (no paed research)
Reposted by Helen Goss
“The evidence suggests the more times you get Covid, the higher the chance there is of you getting long Covid.” @drclairetaylor.bsky.social
The number of adults in the UK with #longCovid was estimated to be around 2 million in 2022.
But in 2024, there was a rise of 300,000, with long Covid.
The number of adults in the UK with #longCovid was estimated to be around 2 million in 2022.
But in 2024, there was a rise of 300,000, with long Covid.
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
www.thecourier.co.uk
November 14, 2024 at 6:54 PM
“The evidence suggests the more times you get Covid, the higher the chance there is of you getting long Covid.” @drclairetaylor.bsky.social
The number of adults in the UK with #longCovid was estimated to be around 2 million in 2022.
But in 2024, there was a rise of 300,000, with long Covid.
The number of adults in the UK with #longCovid was estimated to be around 2 million in 2022.
But in 2024, there was a rise of 300,000, with long Covid.
Reposted by Helen Goss
I can personally confirm Dr Taylor is amazing! Wish we could clone her or put her in charge of NHS ME/LC/PoTS care.
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
www.thecourier.co.uk
November 14, 2024 at 7:44 PM
I can personally confirm Dr Taylor is amazing! Wish we could clone her or put her in charge of NHS ME/LC/PoTS care.
November 14, 2024 at 6:42 PM
Reposted by Helen Goss
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
www.thecourier.co.uk
November 14, 2024 at 10:42 AM
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Reposted by Helen Goss
Reply to the post you want to save with the 📌 emoji and follow this feed: bsky.app/profile/did:...
All of your "pinned" posts will be saved there 😊
All of your "pinned" posts will be saved there 😊
November 10, 2024 at 5:58 PM
Reply to the post you want to save with the 📌 emoji and follow this feed: bsky.app/profile/did:...
All of your "pinned" posts will be saved there 😊
All of your "pinned" posts will be saved there 😊
Reposted by Helen Goss
More covid infections = more long covid
" ... the more times you get Covid, the higher the chance there is of you getting long Covid ... the number of adults in the UK with long Covid was estimated to be around 2 million in 2022 ... in 2024, there was a rise of 300,000, with long Covid."
😰😰😰
" ... the more times you get Covid, the higher the chance there is of you getting long Covid ... the number of adults in the UK with long Covid was estimated to be around 2 million in 2022 ... in 2024, there was a rise of 300,000, with long Covid."
😰😰😰
November 14, 2024 at 11:09 AM
More covid infections = more long covid
" ... the more times you get Covid, the higher the chance there is of you getting long Covid ... the number of adults in the UK with long Covid was estimated to be around 2 million in 2022 ... in 2024, there was a rise of 300,000, with long Covid."
😰😰😰
" ... the more times you get Covid, the higher the chance there is of you getting long Covid ... the number of adults in the UK with long Covid was estimated to be around 2 million in 2022 ... in 2024, there was a rise of 300,000, with long Covid."
😰😰😰
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
www.thecourier.co.uk
November 14, 2024 at 10:42 AM
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care.
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
www.thecourier.co.uk/fp/lifestyle...
Meet the Perthshire GP long Covid sufferers turn to when no one else can help…
@drclairetaylor.bsky.social
#longcovid #longcovidkids
Just realised that on the desktop version of Bluesky, it looks just like twitter 😐 makes it much easier to switch!
Have some northern lights from earlier this year, because, why not.
Have some northern lights from earlier this year, because, why not.
November 13, 2024 at 9:12 PM
Just realised that on the desktop version of Bluesky, it looks just like twitter 😐 makes it much easier to switch!
Have some northern lights from earlier this year, because, why not.
Have some northern lights from earlier this year, because, why not.
Reposted by Helen Goss
If you attending the international conference in #Rome this week come say Hi 👋.
Our founder and CEO will be there and is looking forward to connecting.
#LongCovidKids #LongCovid
#LongSky
Our founder and CEO will be there and is looking forward to connecting.
#LongCovidKids #LongCovid
#LongSky
I was honoured to be asked to present at the conference this week and join leading experts driving change & awareness for paediatric #LongCovid 🌍🦸🏻♀️🦸🏽🦸♂️🦸🏾♀️
#Pacing started Sunday ready for the trip…l’m excited.
#LongCovidKids
#Pacing started Sunday ready for the trip…l’m excited.
#LongCovidKids
November 12, 2024 at 7:15 AM
If you attending the international conference in #Rome this week come say Hi 👋.
Our founder and CEO will be there and is looking forward to connecting.
#LongCovidKids #LongCovid
#LongSky
Our founder and CEO will be there and is looking forward to connecting.
#LongCovidKids #LongCovid
#LongSky