EHDN News
@ehdn-news.bsky.social
European Huntington's Disease Network newsletter. Editor: Catherine Deeprose. Views are my own and RTs are not endorsements. Email: newsletter@ehdn.org
Pinned
The 56th issue of EHDN News is now online: ehdn.org/wp-content/u...
Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!
Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!
The 56th issue of EHDN News is now online: ehdn.org/wp-content/u...
Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!
Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!
November 1, 2025 at 10:57 AM
The 56th issue of EHDN News is now online: ehdn.org/wp-content/u...
Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!
Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!
Reposted by EHDN News
🌟 HD clinical fellowship programme is open 🌟
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
October 1, 2025 at 9:59 AM
🌟 HD clinical fellowship programme is open 🌟
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓.
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Welcome! You are invited to join a webinar: EHDN Platform meeting in collaboration with HDYO and EHA - uniQure topline results: Unpacking the outcomes so far. After registering, you will receive a con...
We would like to invite you to our upcoming EHDN Platform Meeting in collaboration with HDYO and EHA. UniQure topline results: unpacking the outcome so far.
The Platform Meeting will take place on Tu...
lnkd.in
October 27, 2025 at 7:02 PM
EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓.
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Exciting opportunity at EHDN for a Clinical Research Associate/Language Area Coordinator –
Netherlands and Flanders
part-time: 60-80%
Find out more here: ehdn.org/about-ehdn/c...
Netherlands and Flanders
part-time: 60-80%
Find out more here: ehdn.org/about-ehdn/c...
Career Opportunities – European Huntington's Disease Network
ehdn.org
October 13, 2025 at 9:18 AM
Exciting opportunity at EHDN for a Clinical Research Associate/Language Area Coordinator –
Netherlands and Flanders
part-time: 60-80%
Find out more here: ehdn.org/about-ehdn/c...
Netherlands and Flanders
part-time: 60-80%
Find out more here: ehdn.org/about-ehdn/c...
🌟 HD clinical fellowship programme is open 🌟
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
October 1, 2025 at 9:59 AM
🌟 HD clinical fellowship programme is open 🌟
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
Reposted by EHDN News
Apply for BBSRC New Investigator funding. Up to £2m FEC over 5 years to support newly appointed lecturers and fellows leading their first major research project.
www.dementiaresearcher.nihr.ac.uk/funding/bbsr...
www.dementiaresearcher.nihr.ac.uk/funding/bbsr...
BBSRC New Investigator Award - DEMENTIA RESEARCHER
Apply for BBSRC New Investigator funding. Up to £2m FEC over 5 years to support newly appointed lecturers and fellows leading their first major research project
www.dementiaresearcher.nihr.ac.uk
September 30, 2025 at 9:40 AM
Apply for BBSRC New Investigator funding. Up to £2m FEC over 5 years to support newly appointed lecturers and fellows leading their first major research project.
www.dementiaresearcher.nihr.ac.uk/funding/bbsr...
www.dementiaresearcher.nihr.ac.uk/funding/bbsr...
*Statement from EHDN Chairs on uniQure’s Topline Results*
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
Statement from EHDN Chairs on uniQure’s Topline Results – European Huntington's Disease Network
ehdn.org
September 30, 2025 at 9:33 AM
*Statement from EHDN Chairs on uniQure’s Topline Results*
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
Reposted by EHDN News
Excited to tell you that the paperback edition of #SophieFromRomania with a new chapter about our second year with her is coming on September 11. And @waterstones.bsky.social has a special offer- 25% off on preorders 28-31 July
July 28, 2025 at 8:28 AM
Excited to tell you that the paperback edition of #SophieFromRomania with a new chapter about our second year with her is coming on September 11. And @waterstones.bsky.social has a special offer- 25% off on preorders 28-31 July
With the #huntingtonsdisease community, we are thrilled to hear uniQure's exciting topline results for their Phase 1/2 study of AMT-130: uniqure.gcs-web.com/node/12261/pdf
For information on all ongoing and completed EHDN-endorsed studies click here: ehdn.org/previous-ong...
For information on all ongoing and completed EHDN-endorsed studies click here: ehdn.org/previous-ong...
Research & Publications – European Huntington's Disease Network
ehdn.org
September 24, 2025 at 4:09 PM
With the #huntingtonsdisease community, we are thrilled to hear uniQure's exciting topline results for their Phase 1/2 study of AMT-130: uniqure.gcs-web.com/node/12261/pdf
For information on all ongoing and completed EHDN-endorsed studies click here: ehdn.org/previous-ong...
For information on all ongoing and completed EHDN-endorsed studies click here: ehdn.org/previous-ong...
Applications for the EHDN & MDS-ES Fellowship Programme '26 open on 1 Oct. Selected fellows will spend 6 weeks in a European multi-disciplinary HD clinic. Priority will be given to applicants from underserved regions with regard to HD care or with specific HD training needs: ehdn.org/hd-clinician...
fellowship programme – European Huntington's Disease Network
ehdn.org
September 24, 2025 at 8:06 AM
Applications for the EHDN & MDS-ES Fellowship Programme '26 open on 1 Oct. Selected fellows will spend 6 weeks in a European multi-disciplinary HD clinic. Priority will be given to applicants from underserved regions with regard to HD care or with specific HD training needs: ehdn.org/hd-clinician...
EHDN's Lesley Jones Seed Fund is now open for applications. Find out more here: ehdn.org/hd-clinician...
Lesley Jones Seed Fund Program Applications – European Huntington's Disease Network
ehdn.org
September 11, 2025 at 4:23 PM
EHDN's Lesley Jones Seed Fund is now open for applications. Find out more here: ehdn.org/hd-clinician...
Reposted by EHDN News
Webinar: Could DNA repair hold the key to treating Huntingtons disease?🧬
Join UK DRI Group Leaders Profs Sarah Tabrizi & Gabriel Balmus as they dig into the latest discoveries and therapeutic breakthroughs from the field
🗓️ Mon 29 Sep 🕓 4-5pm (BST)
Register free 👉 www.ukdri.ac.uk/events/rethi...
Join UK DRI Group Leaders Profs Sarah Tabrizi & Gabriel Balmus as they dig into the latest discoveries and therapeutic breakthroughs from the field
🗓️ Mon 29 Sep 🕓 4-5pm (BST)
Register free 👉 www.ukdri.ac.uk/events/rethi...
Rethinking neurodegeneration: Could DNA repair hold the key to treating Huntington's disease?
With Prof Sarah Tabrizi & Prof Prof Gabriel Balmus
www.ukdri.ac.uk
September 10, 2025 at 4:41 PM
Webinar: Could DNA repair hold the key to treating Huntingtons disease?🧬
Join UK DRI Group Leaders Profs Sarah Tabrizi & Gabriel Balmus as they dig into the latest discoveries and therapeutic breakthroughs from the field
🗓️ Mon 29 Sep 🕓 4-5pm (BST)
Register free 👉 www.ukdri.ac.uk/events/rethi...
Join UK DRI Group Leaders Profs Sarah Tabrizi & Gabriel Balmus as they dig into the latest discoveries and therapeutic breakthroughs from the field
🗓️ Mon 29 Sep 🕓 4-5pm (BST)
Register free 👉 www.ukdri.ac.uk/events/rethi...
Reposted by EHDN News
❓Where does Alzheimer’s begin?
Find out how Dr Marc Busche’s team (UK DRI at UCL) have been using specialised techniques to examine cells deep in the brain, to unlock valuable information as to the earliest stages of Alzheimer’s disease.
Find out how Dr Marc Busche’s team (UK DRI at UCL) have been using specialised techniques to examine cells deep in the brain, to unlock valuable information as to the earliest stages of Alzheimer’s disease.
September 11, 2025 at 4:17 PM
❓Where does Alzheimer’s begin?
Find out how Dr Marc Busche’s team (UK DRI at UCL) have been using specialised techniques to examine cells deep in the brain, to unlock valuable information as to the earliest stages of Alzheimer’s disease.
Find out how Dr Marc Busche’s team (UK DRI at UCL) have been using specialised techniques to examine cells deep in the brain, to unlock valuable information as to the earliest stages of Alzheimer’s disease.
Reposted by EHDN News
Apply now for a Churchill Fellowship @churchillfship.bsky.social : a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK.
www.dementiaresearcher.nihr.ac.uk/funding/chur...
www.dementiaresearcher.nihr.ac.uk/funding/chur...
Churchill Fellowship - DEMENTIA RESEARCHER
Apply now for a Churchill Fellowship: a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK.
www.dementiaresearcher.nihr.ac.uk
September 2, 2025 at 11:29 AM
Apply now for a Churchill Fellowship @churchillfship.bsky.social : a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK.
www.dementiaresearcher.nihr.ac.uk/funding/chur...
www.dementiaresearcher.nihr.ac.uk/funding/chur...
The 6th RNA Metabolism in Neurological Disease Conference: San Diego, March 29-31, 2026. This conference will bring together basic, clinical, and industry scientists to discuss the roles of perturbed RNA metabolism in neurological diseases. Abstract deadline: October 31, 2025: bit.ly/RNAMetabolism
RNA Metabolism in Neurological Disease Conference
RNA Metabolism in Neurological Disease Conference
bit.ly
September 2, 2025 at 12:06 PM
The 6th RNA Metabolism in Neurological Disease Conference: San Diego, March 29-31, 2026. This conference will bring together basic, clinical, and industry scientists to discuss the roles of perturbed RNA metabolism in neurological diseases. Abstract deadline: October 31, 2025: bit.ly/RNAMetabolism
Date for your Diary!
www.elsevier.com/en-gb/events...
www.elsevier.com/en-gb/events...
RNA Metabolism in Neurological Disease Conference
RNA Metabolism in Neurological Disease Conference
www.elsevier.com
September 2, 2025 at 12:00 PM
Date for your Diary!
www.elsevier.com/en-gb/events...
www.elsevier.com/en-gb/events...
The MDS-PAS & EHDN Online Course takes place 15 & 22 August. This free course is in Spanish and aims to enhance understanding of HD through a multidisciplinary lens, focusing on current challenges and emerging perspectives.
Click here for more info: education.movementdisorders.org/Detail/973/S...
Click here for more info: education.movementdisorders.org/Detail/973/S...
Serie de Cursos Conjuntos en Línea MDS-PAS y EHDN: Manejo Multidisciplinario de la Enfermedad de Huntington - OverView
Serie de Cursos Conjuntos en Línea MDS-PAS y EHDN: Manejo Multidisciplinario de la Enfermedad de Huntington: Retos actuales y perspectivas futuras esta serie en línea de cuatro partes tiene como objet...
education.movementdisorders.org
July 28, 2025 at 9:56 AM
The MDS-PAS & EHDN Online Course takes place 15 & 22 August. This free course is in Spanish and aims to enhance understanding of HD through a multidisciplinary lens, focusing on current challenges and emerging perspectives.
Click here for more info: education.movementdisorders.org/Detail/973/S...
Click here for more info: education.movementdisorders.org/Detail/973/S...
Recruitment updates for the first half of 2025! 🧵 #HDClarity #Huntingtonsdisease
July 17, 2025 at 10:19 AM
Please re-share - we're building our profile on BlueSky and would appreciate help in sharing updates and news in #huntingtonsdisease #research and #care
Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
July 10, 2025 at 8:57 AM
Please re-share - we're building our profile on BlueSky and would appreciate help in sharing updates and news in #huntingtonsdisease #research and #care
Reposted by EHDN News
Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
July 1, 2025 at 8:37 AM
Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
The Jacques and Gloria Gossweiler Foundation invites applications for its Neurology Research Grant. The grant supports high-quality research on non-pharmacological treatments for symptoms of Parkinson’s disease & other movement disorders. For more information: www.jggf.ch/en/neurology...
Neurology
www.jggf.ch
July 3, 2025 at 9:51 AM
The Jacques and Gloria Gossweiler Foundation invites applications for its Neurology Research Grant. The grant supports high-quality research on non-pharmacological treatments for symptoms of Parkinson’s disease & other movement disorders. For more information: www.jggf.ch/en/neurology...
Listen to our latest podcast! www.youtube.com/watch?v=fEg4...
The HEATED (Huntington’s Equal Access to Effective Drugs) Task Force - EHDN Newletter #1
YouTube video by European Huntington's Disease Network
www.youtube.com
July 1, 2025 at 8:45 AM
Listen to our latest podcast! www.youtube.com/watch?v=fEg4...
Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
July 1, 2025 at 8:37 AM
Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
MDS-PAS & EHDN Joint Online Course Series: Multidisciplinary Management of Huntington's Disease: 15 & 22 August, 2025.
This free four-part online series covers comprehensive and multidisciplinary management of HD: education.movementdisorders.org/Detail/973/S...
This free four-part online series covers comprehensive and multidisciplinary management of HD: education.movementdisorders.org/Detail/973/S...
Serie de Cursos Conjuntos en Línea MDS-PAS y EHDN: Manejo Multidisciplinario de la Enfermedad de Huntington - OverView
Serie de Cursos Conjuntos en Línea MDS-PAS y EHDN: Manejo Multidisciplinario de la Enfermedad de Huntington: Retos actuales y perspectivas futuras esta serie en línea de cuatro partes tiene como objet...
education.movementdisorders.org
May 27, 2025 at 11:12 AM
MDS-PAS & EHDN Joint Online Course Series: Multidisciplinary Management of Huntington's Disease: 15 & 22 August, 2025.
This free four-part online series covers comprehensive and multidisciplinary management of HD: education.movementdisorders.org/Detail/973/S...
This free four-part online series covers comprehensive and multidisciplinary management of HD: education.movementdisorders.org/Detail/973/S...