Different ways that HDClarity samples can be used in HD research:
October 15, 2025 at 2:07 PM
Different ways that HDClarity samples can be used in HD research:
Following on from last weeks exciting news, please visit this link for more information on the AMT-130 gene therapy trial, which was found to slow disease progression in Huntington's disease by 75% eur01.safelinks.protection.outlook.com?url=https%3A...
Huntington's disease successfully treated for first time | BBC News
Huntington's disease has been successfully treated for the first time, say doctors. The disease runs through families, relentlessly kills brain cells and resembles a combination of dementia, Parkinson's and motor neurone disease. The new treatment is a type of gene therapy given during 12 to 18 hours of delicate brain surgery. An emotional research team became tearful as they described how data shows the disease was slowed by 75% in patients. Subscribe here: http://bit.ly/1rbfUog For more news, analysis and features visit: www.bbc.com/news #HuntingtonsDisease #Health #BBCNews
eur01.safelinks.protection.outlook.com
October 2, 2025 at 9:41 AM
Following on from last weeks exciting news, please visit this link for more information on the AMT-130 gene therapy trial, which was found to slow disease progression in Huntington's disease by 75% eur01.safelinks.protection.outlook.com?url=https%3A...
A major milestone was reached yesterday in neurodegenerative medicine, advancing hope for those affected by Huntington’s disease🧵
Huntington's disease successfully treated for first time
One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.
eur01.safelinks.protection.outlook.com
September 25, 2025 at 9:49 AM
A major milestone was reached yesterday in neurodegenerative medicine, advancing hope for those affected by Huntington’s disease🧵
Exciting updates on the HDClarity study 🧵
September 23, 2025 at 4:01 PM
Exciting updates on the HDClarity study 🧵
HDClarity samples: storage, distribution and utility 🧵
September 12, 2025 at 9:38 AM
HDClarity samples: storage, distribution and utility 🧵
Meet the team and recruitment success- HDClarity North York General Hospital site 🧵
Left to right: Clare Gibbons – Research Manager, Dr. Phillippe Rizek – Neurologist and PI, Rebecca Searles – Research Coordinator
Left to right: Clare Gibbons – Research Manager, Dr. Phillippe Rizek – Neurologist and PI, Rebecca Searles – Research Coordinator
August 28, 2025 at 12:24 PM
Meet the team and recruitment success- HDClarity North York General Hospital site 🧵
Left to right: Clare Gibbons – Research Manager, Dr. Phillippe Rizek – Neurologist and PI, Rebecca Searles – Research Coordinator
Left to right: Clare Gibbons – Research Manager, Dr. Phillippe Rizek – Neurologist and PI, Rebecca Searles – Research Coordinator
Meet the team- HDClarity Hospital de la Santa Creu i Sant Pau site 🧵
August 19, 2025 at 12:06 PM
Meet the team- HDClarity Hospital de la Santa Creu i Sant Pau site 🧵
CSF quality – what is it, why does it matter, how do we ensure it, and how it is checked? 🧵 #Huntingtonsdisease #HDClarity
August 6, 2025 at 2:07 PM
CSF quality – what is it, why does it matter, how do we ensure it, and how it is checked? 🧵 #Huntingtonsdisease #HDClarity
Repeat Sampling – what is it, when is it done, and why is it useful 🧵 #HDClarity #Huntingtonsdisease
July 30, 2025 at 2:10 PM
Repeat Sampling – what is it, when is it done, and why is it useful 🧵 #HDClarity #Huntingtonsdisease
Upcoming Huntington’s Disease meetings🧵
#Huntingtonsdisease
In mid-October 2025, the next HDClinical Research Congress will take place, in Nashville USA.
The Congress will be being hosted jointly by CHDI and the Huntington Study Group (HSG).
#Huntingtonsdisease
In mid-October 2025, the next HDClinical Research Congress will take place, in Nashville USA.
The Congress will be being hosted jointly by CHDI and the Huntington Study Group (HSG).
July 23, 2025 at 2:32 PM
Upcoming Huntington’s Disease meetings🧵
#Huntingtonsdisease
In mid-October 2025, the next HDClinical Research Congress will take place, in Nashville USA.
The Congress will be being hosted jointly by CHDI and the Huntington Study Group (HSG).
#Huntingtonsdisease
In mid-October 2025, the next HDClinical Research Congress will take place, in Nashville USA.
The Congress will be being hosted jointly by CHDI and the Huntington Study Group (HSG).
Recruitment updates for the first half of 2025! 🧵 #HDClarity #Huntingtonsdisease
July 16, 2025 at 1:54 PM
Recruitment updates for the first half of 2025! 🧵 #HDClarity #Huntingtonsdisease
Clinical trials in HD 🧵
There are currently many exciting clinical trials underway with an aim of preventing or slowing down the progression of Huntington's disease #Huntingtonsdisease #HDClarity
There are currently many exciting clinical trials underway with an aim of preventing or slowing down the progression of Huntington's disease #Huntingtonsdisease #HDClarity
July 9, 2025 at 12:56 PM
Clinical trials in HD 🧵
There are currently many exciting clinical trials underway with an aim of preventing or slowing down the progression of Huntington's disease #Huntingtonsdisease #HDClarity
There are currently many exciting clinical trials underway with an aim of preventing or slowing down the progression of Huntington's disease #Huntingtonsdisease #HDClarity
Publications & Presentations powered by HDClarity 🧵 #Huntingtonsdisease #HDClarity
Samples from the HDClarity study are widely used in publications and presentations surrounding Huntington’s disease.
Samples from the HDClarity study are widely used in publications and presentations surrounding Huntington’s disease.
July 2, 2025 at 2:05 PM
Publications & Presentations powered by HDClarity 🧵 #Huntingtonsdisease #HDClarity
Samples from the HDClarity study are widely used in publications and presentations surrounding Huntington’s disease.
Samples from the HDClarity study are widely used in publications and presentations surrounding Huntington’s disease.
How to participate in HDClarity?🧵
To take part, individuals must first already be enrolled in, or be recruited into, the Enroll-HD study. This study collects natural history data in HD individuals and controls, and this data is linked with the biosamples collected during HDClarity participation.
To take part, individuals must first already be enrolled in, or be recruited into, the Enroll-HD study. This study collects natural history data in HD individuals and controls, and this data is linked with the biosamples collected during HDClarity participation.
June 25, 2025 at 12:45 PM
How to participate in HDClarity?🧵
To take part, individuals must first already be enrolled in, or be recruited into, the Enroll-HD study. This study collects natural history data in HD individuals and controls, and this data is linked with the biosamples collected during HDClarity participation.
To take part, individuals must first already be enrolled in, or be recruited into, the Enroll-HD study. This study collects natural history data in HD individuals and controls, and this data is linked with the biosamples collected during HDClarity participation.
What are common side effects of having a lumbar puncture and how we reduce the chances of these occurring in the HDClarity study? 🧵 #Huntingtonsdisease #HDClarity
June 18, 2025 at 2:34 PM
What are common side effects of having a lumbar puncture and how we reduce the chances of these occurring in the HDClarity study? 🧵 #Huntingtonsdisease #HDClarity
How does HDClarity work - and what is a lumbar puncture? 🧵 #Huntingtonsdisease #HDClarity
June 11, 2025 at 1:52 PM
How does HDClarity work - and what is a lumbar puncture? 🧵 #Huntingtonsdisease #HDClarity
Exciting news regarding new study sites for the HDClarity study 🧵 #HuntingtonsDisease
June 4, 2025 at 1:09 PM
Exciting news regarding new study sites for the HDClarity study 🧵 #HuntingtonsDisease
What is cerebrospinal fluid (CSF) and why is it so valuable for #HuntingtonsDisease research? 🧵
May 22, 2025 at 1:07 PM
What is cerebrospinal fluid (CSF) and why is it so valuable for #HuntingtonsDisease research? 🧵
Exciting updates for the HDClarity study 🧵
We have some exciting updates on the progression of the HDClarity study #HuntingtonsDisease #HDClarityStudy
We have some exciting updates on the progression of the HDClarity study #HuntingtonsDisease #HDClarityStudy
May 15, 2025 at 1:23 PM
Exciting updates for the HDClarity study 🧵
We have some exciting updates on the progression of the HDClarity study #HuntingtonsDisease #HDClarityStudy
We have some exciting updates on the progression of the HDClarity study #HuntingtonsDisease #HDClarityStudy
What is HDClarity?🧵
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
May 7, 2025 at 12:39 PM
What is HDClarity?🧵
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
What is HDClarity?🧵
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
May 7, 2025 at 12:38 PM
What is HDClarity?🧵
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease
Welcome to the new HDClarity Blue Sky account! We will be posting weekly updates and further information about our study #HuntingtonsDisease #HDClaritystudy
April 9, 2025 at 2:45 PM
Welcome to the new HDClarity Blue Sky account! We will be posting weekly updates and further information about our study #HuntingtonsDisease #HDClaritystudy