EDSisSUCHaMESS
@edsissuchamess.bsky.social
Former professor, #hEDS sufferer, and Oxford comma user.
Please support me at coff.ee/EDSisSUCHaMESS
Please support me at coff.ee/EDSisSUCHaMESS
Pinned
“When health is absent, wisdom cannot reveal itself, art cannot become manifest, strength cannot be exerted, wealth is useless, and reason is powerless.”
-Herophilos
-Herophilos
So after overdoing it yesterday, I ended up with a massive migraine and worse than usual dysautonomia.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
November 25, 2025 at 12:36 AM
So after overdoing it yesterday, I ended up with a massive migraine and worse than usual dysautonomia.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
🧵 Here I sit, listening to the voices of my “family” swirling around me. As usual, nobody had bothered to set a place setting for me, even though I had just cooked most of the food they were now enjoying without me.
November 24, 2025 at 2:48 AM
🧵 Here I sit, listening to the voices of my “family” swirling around me. As usual, nobody had bothered to set a place setting for me, even though I had just cooked most of the food they were now enjoying without me.
My Grandma does Thanksgiving the Sunday before and I got tasked with the turkey, stuffing, and gravy.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
November 23, 2025 at 8:16 PM
My Grandma does Thanksgiving the Sunday before and I got tasked with the turkey, stuffing, and gravy.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
I hate asking for help, but rent is due next week and I don’t have enough to cover it.
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
Camille
Former professor, #hEDS sufferer, and Oxford comma user.
I applied for disability in November 2024 and have been denied once. They are currently reviewing my appeal, which will take who knows how lon
coff.ee
November 22, 2025 at 7:06 PM
I hate asking for help, but rent is due next week and I don’t have enough to cover it.
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
Amazing how AOC is able to coherently answer a question about a topic she hadn’t yet had a chance to research.
Maybe she can give some tips to Speaker Johnson.
Maybe she can give some tips to Speaker Johnson.
AOC to @pabloreports.bsky.social : A swastika is one of the clearest symbols of hatred in all of humanity… to remove that designation… indicates a possible collaboration with those very elements, which I think is genuinely frightening to any American.
November 21, 2025 at 8:02 PM
Amazing how AOC is able to coherently answer a question about a topic she hadn’t yet had a chance to research.
Maybe she can give some tips to Speaker Johnson.
Maybe she can give some tips to Speaker Johnson.
I feel like this is a good time to post Isaac Asimov:
“Violence is the last refuge of the incompetent.”
“Violence is the last refuge of the incompetent.”
November 21, 2025 at 3:14 AM
I feel like this is a good time to post Isaac Asimov:
“Violence is the last refuge of the incompetent.”
“Violence is the last refuge of the incompetent.”
Our senior kitty Freya is so adorable. As soon as she wakes up from a nap, she has to immediately go and eat.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
November 21, 2025 at 1:54 AM
Our senior kitty Freya is so adorable. As soon as she wakes up from a nap, she has to immediately go and eat.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
Rain and cold here today, plus I had to leave the house to go to a doctor’s appointment.
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
November 21, 2025 at 1:12 AM
Rain and cold here today, plus I had to leave the house to go to a doctor’s appointment.
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
Those of us with chronic illness are already being punished:
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
Markwayne Mullin: "Reward people for being healthy. Think about this. Healthcare is the only industry that you're not rewarded for taking care of your responsibility. If you think about homeowners insurance, if you're within 500 feet of a fire hydrant, your insurance goes down."
November 19, 2025 at 10:02 PM
Those of us with chronic illness are already being punished:
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
We need to institute recall elections for the Presidency.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
November 19, 2025 at 3:58 AM
We need to institute recall elections for the Presidency.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
Seriously body, please chill the fuck out for a day or two.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
November 18, 2025 at 10:42 PM
Seriously body, please chill the fuck out for a day or two.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
First of all, he’s only saying this because the DOJ will say they can’t release files pertaining to an active investigation.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
Trump: "House Republicans should vote to release the Epstein files, because we have nothing to hide."
November 17, 2025 at 4:09 AM
First of all, he’s only saying this because the DOJ will say they can’t release files pertaining to an active investigation.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
I’m feeling very sorry for myself today.
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
November 16, 2025 at 10:37 PM
I’m feeling very sorry for myself today.
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
Once again, a Democrat whines about how things should be instead of meeting the needs of the moment by dealing with what is actually happening.
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
Tim Kaine: "It would be political malpractice of the highest order for the House to not take up a bipartisan bill coming out of the Senate."
November 16, 2025 at 6:39 PM
Once again, a Democrat whines about how things should be instead of meeting the needs of the moment by dealing with what is actually happening.
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
This is NOT okay. This is NOT how you talk to people. And this is definitely NOT how the government should be talking to its citizens.
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3
Official U.S. Government account refers to its citizens as "imbecilic morons".
November 15, 2025 at 4:25 AM
This is NOT okay. This is NOT how you talk to people. And this is definitely NOT how the government should be talking to its citizens.
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3
I know everyone is struggling right now and the holidays are coming up. But my disability application is still pending and I don’t have enough money for rent next month.
I really don’t want to be homeless. Please, if you can spare anything, support me at coff.ee/EDSisSUCHaMESS
I really don’t want to be homeless. Please, if you can spare anything, support me at coff.ee/EDSisSUCHaMESS
Camille
Former professor, #hEDS sufferer, and Oxford comma user.
I applied for disability in November 2024 and have been denied once. They are currently reviewing my appeal, which will take who knows how lon
coff.ee
November 14, 2025 at 7:57 PM
I know everyone is struggling right now and the holidays are coming up. But my disability application is still pending and I don’t have enough money for rent next month.
I really don’t want to be homeless. Please, if you can spare anything, support me at coff.ee/EDSisSUCHaMESS
I really don’t want to be homeless. Please, if you can spare anything, support me at coff.ee/EDSisSUCHaMESS
I simultaneously love rain and also hate what it does to my body.
November 14, 2025 at 7:45 PM
I simultaneously love rain and also hate what it does to my body.
So remember when The Economist published a special report titled “The American economy, the envy of the world”?
Yeah, that was under Biden.
Yeah, that was under Biden.
HANNITY: When do we really see the engine of the economy start to take off?
JD VANCE: Some of it is going to take a long time because we inherited a disaster
JD VANCE: Some of it is going to take a long time because we inherited a disaster
November 14, 2025 at 5:35 AM
So remember when The Economist published a special report titled “The American economy, the envy of the world”?
Yeah, that was under Biden.
Yeah, that was under Biden.
One of the most frustrating things about having #hEDS is that whenever the pain gets worse, the rest of my symptoms seem to worsen as well.
So besides what feels like multiple heated ice picks being used on different parts of my body, I also get the joy of worsened brain fog, vertigo, & gut issues.
So besides what feels like multiple heated ice picks being used on different parts of my body, I also get the joy of worsened brain fog, vertigo, & gut issues.
November 13, 2025 at 9:22 PM
One of the most frustrating things about having #hEDS is that whenever the pain gets worse, the rest of my symptoms seem to worsen as well.
So besides what feels like multiple heated ice picks being used on different parts of my body, I also get the joy of worsened brain fog, vertigo, & gut issues.
So besides what feels like multiple heated ice picks being used on different parts of my body, I also get the joy of worsened brain fog, vertigo, & gut issues.
I’m getting really sick and tired of the mainstream media interviewing members of the Trump administration and then letting them lie repeatedly with barely any pushback.
Your job is to report the truth, not platform a bunch of of pathological liars.
Your job is to report the truth, not platform a bunch of of pathological liars.
November 13, 2025 at 9:02 PM
I’m getting really sick and tired of the mainstream media interviewing members of the Trump administration and then letting them lie repeatedly with barely any pushback.
Your job is to report the truth, not platform a bunch of of pathological liars.
Your job is to report the truth, not platform a bunch of of pathological liars.
I was just casually re-reading the Declaration of Independence and came across a paragraph in the list of bad things King George had done and one of them was to reduce immigration into America.
That’s right, the Founding Fathers declared sovereignty because they wanted MORE immigrants.
(🧵 1/2)
That’s right, the Founding Fathers declared sovereignty because they wanted MORE immigrants.
(🧵 1/2)
November 13, 2025 at 12:53 AM
I was just casually re-reading the Declaration of Independence and came across a paragraph in the list of bad things King George had done and one of them was to reduce immigration into America.
That’s right, the Founding Fathers declared sovereignty because they wanted MORE immigrants.
(🧵 1/2)
That’s right, the Founding Fathers declared sovereignty because they wanted MORE immigrants.
(🧵 1/2)
Another great piece by Civitas.
“Twenty veterans will die by suicide today. Tomorrow, twenty more. While Trump argues about what to call the holiday, the crisis line that might have saved them is understaffed.”
open.substack.com/pub/civitasc...
“Twenty veterans will die by suicide today. Tomorrow, twenty more. While Trump argues about what to call the holiday, the crisis line that might have saved them is understaffed.”
open.substack.com/pub/civitasc...
The Problem with Victory
How Trump’s Veterans Day Obsession Reveals His True Priorities
open.substack.com
November 12, 2025 at 11:04 PM
Another great piece by Civitas.
“Twenty veterans will die by suicide today. Tomorrow, twenty more. While Trump argues about what to call the holiday, the crisis line that might have saved them is understaffed.”
open.substack.com/pub/civitasc...
“Twenty veterans will die by suicide today. Tomorrow, twenty more. While Trump argues about what to call the holiday, the crisis line that might have saved them is understaffed.”
open.substack.com/pub/civitasc...
Saw my pain management doctor today for trigger point injections. A rain cell is also heading for LA for the rest of the week, so pain has been especially terrible lately.
Please excuse me while I scream into a pillow for a few hours.
Please excuse me while I scream into a pillow for a few hours.
November 12, 2025 at 10:53 PM
Saw my pain management doctor today for trigger point injections. A rain cell is also heading for LA for the rest of the week, so pain has been especially terrible lately.
Please excuse me while I scream into a pillow for a few hours.
Please excuse me while I scream into a pillow for a few hours.