Anna Samson (they/she)
@disabilitywithanna.bsky.social
🏳️🌈🇵🇰🇨🇦
🗣️ chronic illness and mental health awareness
♿️ AS | FM | PMDD | dermatillomania | & more
✍🏽 writer and editor
🏥 patient research partner
🗣️ chronic illness and mental health awareness
♿️ AS | FM | PMDD | dermatillomania | & more
✍🏽 writer and editor
🏥 patient research partner
Reposted by Anna Samson (they/she)
My heart goes out to Americans tonight. A lot of people depend on their medical insurance to stay alive. Especially disabled people. I worry about you all.
July 4, 2025 at 3:20 AM
My heart goes out to Americans tonight. A lot of people depend on their medical insurance to stay alive. Especially disabled people. I worry about you all.
Stroke Awareness Month
June is Stroke Awareness Month in Canada. Late last year, my dad had a stroke. His face was drooping, he had weakness in his arms (more so the right arm), and couldn’t speak. Specifically, he had a basal ganglia ischemic stroke. It must’ve happened in his sleep and by the…
June is Stroke Awareness Month in Canada. Late last year, my dad had a stroke. His face was drooping, he had weakness in his arms (more so the right arm), and couldn’t speak. Specifically, he had a basal ganglia ischemic stroke. It must’ve happened in his sleep and by the…
Stroke Awareness Month
June is Stroke Awareness Month in Canada. Late last year, my dad had a stroke. His face was drooping, he had weakness in his arms (more so the right arm), and couldn’t speak. Specifically, he had a basal ganglia ischemic stroke. It must’ve happened in his sleep and by the time he got to the hospital, the 6 hour window for interventions had already passed.
disabilitywithanna.wordpress.com
June 27, 2025 at 10:06 PM
Stroke Awareness Month
June is Stroke Awareness Month in Canada. Late last year, my dad had a stroke. His face was drooping, he had weakness in his arms (more so the right arm), and couldn’t speak. Specifically, he had a basal ganglia ischemic stroke. It must’ve happened in his sleep and by the…
June is Stroke Awareness Month in Canada. Late last year, my dad had a stroke. His face was drooping, he had weakness in his arms (more so the right arm), and couldn’t speak. Specifically, he had a basal ganglia ischemic stroke. It must’ve happened in his sleep and by the…
Reposted by Anna Samson (they/she)
🎗️ Save the Date!
🗓️ May 20 | 🕛 12 PM ET
Join FAC’s expert round table on building strength + resilience with fibromyalgia 💜
Hear from a physio, psychologist & physiatrist.
📌 Sign up: bit.ly/FAC-Round-Ta...
#fibromyalgia #resilience #RoundTableTalks
🗓️ May 20 | 🕛 12 PM ET
Join FAC’s expert round table on building strength + resilience with fibromyalgia 💜
Hear from a physio, psychologist & physiatrist.
📌 Sign up: bit.ly/FAC-Round-Ta...
#fibromyalgia #resilience #RoundTableTalks
April 9, 2025 at 11:12 PM
🎗️ Save the Date!
🗓️ May 20 | 🕛 12 PM ET
Join FAC’s expert round table on building strength + resilience with fibromyalgia 💜
Hear from a physio, psychologist & physiatrist.
📌 Sign up: bit.ly/FAC-Round-Ta...
#fibromyalgia #resilience #RoundTableTalks
🗓️ May 20 | 🕛 12 PM ET
Join FAC’s expert round table on building strength + resilience with fibromyalgia 💜
Hear from a physio, psychologist & physiatrist.
📌 Sign up: bit.ly/FAC-Round-Ta...
#fibromyalgia #resilience #RoundTableTalks
Being back at home always means being ridiculed for being covid conscious, being told the pandemic is over and covid is endemic like the flu, and generally made to feel like those around me do not care that I am immunocompromised
April 10, 2025 at 2:11 PM
Being back at home always means being ridiculed for being covid conscious, being told the pandemic is over and covid is endemic like the flu, and generally made to feel like those around me do not care that I am immunocompromised
Reposted by Anna Samson (they/she)
To #PatientEngagement in research teams: Creating a safe space starts with where you're meeting - hospital meeting rooms may not be the best. If you're worried about the cost of other meeting rooms, consider the library or a community centre, or even meeting at a coffee shop, a park, or online.
April 4, 2025 at 12:56 PM
To #PatientEngagement in research teams: Creating a safe space starts with where you're meeting - hospital meeting rooms may not be the best. If you're worried about the cost of other meeting rooms, consider the library or a community centre, or even meeting at a coffee shop, a park, or online.
Reposted by Anna Samson (they/she)
"Have you tried Cymbalta / Duloxetine for fibromyalgia, and what was your experience with its effectiveness and side effects?"
Check out Fibromyalgia Association Canada - FAC's Fact sheet at fibrocanada.ca/.../fact-she...
#FAC #education #cymbalta #Duloxetine
Check out Fibromyalgia Association Canada - FAC's Fact sheet at fibrocanada.ca/.../fact-she...
#FAC #education #cymbalta #Duloxetine
April 2, 2025 at 7:28 PM
"Have you tried Cymbalta / Duloxetine for fibromyalgia, and what was your experience with its effectiveness and side effects?"
Check out Fibromyalgia Association Canada - FAC's Fact sheet at fibrocanada.ca/.../fact-she...
#FAC #education #cymbalta #Duloxetine
Check out Fibromyalgia Association Canada - FAC's Fact sheet at fibrocanada.ca/.../fact-she...
#FAC #education #cymbalta #Duloxetine
Spoke on a panel about patient engagement with CIHR’s Institute of Musculoskeletal Health and Arthritis and am so grateful they made masks mandatory for the in-person event.
As an immunocompromised person, I have never felt so safe at an in-person event before.
As an immunocompromised person, I have never felt so safe at an in-person event before.
April 3, 2025 at 6:35 PM
Spoke on a panel about patient engagement with CIHR’s Institute of Musculoskeletal Health and Arthritis and am so grateful they made masks mandatory for the in-person event.
As an immunocompromised person, I have never felt so safe at an in-person event before.
As an immunocompromised person, I have never felt so safe at an in-person event before.
Reposted by Anna Samson (they/she)
Making the case for clear language. Anna Samson @disabilitywithanna.bsky.social and I co-presented at a virtual symposium on the importance of clear/plain language. Our key points are beautifully summarised in this graphic recording by visual alchemist Candace Ramjohn.
March 24, 2025 at 6:52 PM
Making the case for clear language. Anna Samson @disabilitywithanna.bsky.social and I co-presented at a virtual symposium on the importance of clear/plain language. Our key points are beautifully summarised in this graphic recording by visual alchemist Candace Ramjohn.
Reposted by Anna Samson (they/she)
I am presenting at an Open Science event on March 21st & would like to get the patient community involved & influencing how I present the patient perspective. If you have 5 minutes, please consider completing this survey to share your feedback: docs.google.com/forms/d/e/1F... Many thanks!
Open Science: What do patients or people with lived experience think?
My name is Laurie Proulx and I have lived with a chronic condition for most of my life. For the last 15 years, I have been active as a patient partner in research. On March 21, 2025, I am presenting t...
docs.google.com
March 13, 2025 at 3:08 PM
I am presenting at an Open Science event on March 21st & would like to get the patient community involved & influencing how I present the patient perspective. If you have 5 minutes, please consider completing this survey to share your feedback: docs.google.com/forms/d/e/1F... Many thanks!
Reposted by Anna Samson (they/she)
Reposted by Anna Samson (they/she)
Again, libraries are stepping up.
Free N95 masks at all #LAPL locations while supplies last.
Also: emergency information and resources.
lapl.org/be-ready?fbc...
Free N95 masks at all #LAPL locations while supplies last.
Also: emergency information and resources.
lapl.org/be-ready?fbc...
Emergency Information and Resources | Los Angeles Public Library
English | Español | Русский
2025 Wind and Fire Emergency
The library is open.
lapl.org
January 14, 2025 at 12:21 AM
Again, libraries are stepping up.
Free N95 masks at all #LAPL locations while supplies last.
Also: emergency information and resources.
lapl.org/be-ready?fbc...
Free N95 masks at all #LAPL locations while supplies last.
Also: emergency information and resources.
lapl.org/be-ready?fbc...
Reposted by Anna Samson (they/she)
Unsolicited writing advice, #17171617:
Don't just write. Read books. Watch films. Look at paintings and sculpture. Play games. Go to plays. Listen to music. Think about how these things make you feel.
Making art is a two-way stream. To make art, you have to consume art.
Don't just write. Read books. Watch films. Look at paintings and sculpture. Play games. Go to plays. Listen to music. Think about how these things make you feel.
Making art is a two-way stream. To make art, you have to consume art.
January 13, 2025 at 4:40 PM
Unsolicited writing advice, #17171617:
Don't just write. Read books. Watch films. Look at paintings and sculpture. Play games. Go to plays. Listen to music. Think about how these things make you feel.
Making art is a two-way stream. To make art, you have to consume art.
Don't just write. Read books. Watch films. Look at paintings and sculpture. Play games. Go to plays. Listen to music. Think about how these things make you feel.
Making art is a two-way stream. To make art, you have to consume art.
The captioning on Crave consistently sucks.
As someone with some sort of auditory processing issue, I struggle to know what people are saying and have to concentrate hard and still miss a lot or misunderstand things.
When watching TV, captions help with this problem
As someone with some sort of auditory processing issue, I struggle to know what people are saying and have to concentrate hard and still miss a lot or misunderstand things.
When watching TV, captions help with this problem
January 12, 2025 at 8:52 PM
The captioning on Crave consistently sucks.
As someone with some sort of auditory processing issue, I struggle to know what people are saying and have to concentrate hard and still miss a lot or misunderstand things.
When watching TV, captions help with this problem
As someone with some sort of auditory processing issue, I struggle to know what people are saying and have to concentrate hard and still miss a lot or misunderstand things.
When watching TV, captions help with this problem
Interested individuals can fill out this online form: answer.rand.org/TakeSurvey.a... and selected participants will be contacted.
If you have any questions, contact Dr. Alene Toulany or a team member at qualityindicators.transition@sickkids.ca or call 416-813-7654 ext. 415528.
If you have any questions, contact Dr. Alene Toulany or a team member at qualityindicators.transition@sickkids.ca or call 416-813-7654 ext. 415528.
January 3, 2025 at 11:35 PM
Interested individuals can fill out this online form: answer.rand.org/TakeSurvey.a... and selected participants will be contacted.
If you have any questions, contact Dr. Alene Toulany or a team member at qualityindicators.transition@sickkids.ca or call 416-813-7654 ext. 415528.
If you have any questions, contact Dr. Alene Toulany or a team member at qualityindicators.transition@sickkids.ca or call 416-813-7654 ext. 415528.
Reposted by Anna Samson (they/she)
Reposted by Anna Samson (they/she)
I am disabled by my body. I am not only disabled by society. Even if we fixed all of the societal ableism, my body would still disable me, and I think sometimes disability activism forgets this part.
December 21, 2024 at 8:44 PM
I am disabled by my body. I am not only disabled by society. Even if we fixed all of the societal ableism, my body would still disable me, and I think sometimes disability activism forgets this part.
THIS! It does define me and that’s okay. It absolutely shapes every aspect of my life.
December 20, 2024 at 7:25 AM
THIS! It does define me and that’s okay. It absolutely shapes every aspect of my life.
Reposted by Anna Samson (they/she)
we have gotten way too comfortable not seeing disabled people. so much so that we don't know how to feel when we do see them. I want you non-disabled folks to think about how you might feel when you don't get seen anymore either.
December 16, 2024 at 4:44 PM
we have gotten way too comfortable not seeing disabled people. so much so that we don't know how to feel when we do see them. I want you non-disabled folks to think about how you might feel when you don't get seen anymore either.
Reposted by Anna Samson (they/she)
🌟 Calling all youth with disabilities and/or chronic conditions! 🌟
Join the FER-Youth Course and learn how to collaborate effectively with researchers in health research. 🧠🤝 This exciting opportunity empowers you to make your voice heard, share your experiences, and help shape /1
Join the FER-Youth Course and learn how to collaborate effectively with researchers in health research. 🧠🤝 This exciting opportunity empowers you to make your voice heard, share your experiences, and help shape /1
December 11, 2024 at 5:03 PM
🌟 Calling all youth with disabilities and/or chronic conditions! 🌟
Join the FER-Youth Course and learn how to collaborate effectively with researchers in health research. 🧠🤝 This exciting opportunity empowers you to make your voice heard, share your experiences, and help shape /1
Join the FER-Youth Course and learn how to collaborate effectively with researchers in health research. 🧠🤝 This exciting opportunity empowers you to make your voice heard, share your experiences, and help shape /1
Reposted by Anna Samson (they/she)
Reposted by Anna Samson (they/she)
This is your reminder to get a library card. They have so many services and basically all of them are free.
November 25, 2024 at 11:00 PM
This is your reminder to get a library card. They have so many services and basically all of them are free.
Reposted by Anna Samson (they/she)
You’re not violating a reading rule if you opt not to finish a book that's not resonating with you. Life is finite and we thus have a finite number of books to read. Reading shouldn’t be a chore. You needn’t feel guilty for ensuring that your time reading is spent reading things that you love.
November 27, 2024 at 3:32 AM
You’re not violating a reading rule if you opt not to finish a book that's not resonating with you. Life is finite and we thus have a finite number of books to read. Reading shouldn’t be a chore. You needn’t feel guilty for ensuring that your time reading is spent reading things that you love.
My skin picking has been worse since my father’s passing. It’s wild how much stress affects dermatillomania
November 27, 2024 at 2:26 AM
My skin picking has been worse since my father’s passing. It’s wild how much stress affects dermatillomania
Reposted by Anna Samson (they/she)
At the end of the day, don’t we all just want a bookshelf with a rolling ladder?
November 26, 2024 at 5:52 PM
At the end of the day, don’t we all just want a bookshelf with a rolling ladder?