Dr. Shannon
@crshannon.bsky.social
Psychologist, speaker, & consultant | Empowering families & advancing change| Blended expertise in multiculturalism, trauma, divorce, multi-system Chronic Complex Diseases & mental health #NothingAboutUsWithoutUs
The holidays can amplify a sense of longing or feelings of grief. It’s okay to feel the weight of it or to find small comforts.
However you’re spending today, please know that you’re not alone.
Wishing you gentleness and a few unexpected moments of ease.
However you’re spending today, please know that you’re not alone.
Wishing you gentleness and a few unexpected moments of ease.
December 25, 2025 at 9:58 PM
The holidays can amplify a sense of longing or feelings of grief. It’s okay to feel the weight of it or to find small comforts.
However you’re spending today, please know that you’re not alone.
Wishing you gentleness and a few unexpected moments of ease.
However you’re spending today, please know that you’re not alone.
Wishing you gentleness and a few unexpected moments of ease.
Mothering with chronic illness means loving through limits & redefining strength daily. Today, I’m thinking of the moms parenting from bed, grieving their motherhood journey, or finding adaptive ways to nurture. We see you. You’re powerful — even when you feel anything but.
Happy Mother’s Day!
Happy Mother’s Day!
May 11, 2025 at 2:28 PM
Mothering with chronic illness means loving through limits & redefining strength daily. Today, I’m thinking of the moms parenting from bed, grieving their motherhood journey, or finding adaptive ways to nurture. We see you. You’re powerful — even when you feel anything but.
Happy Mother’s Day!
Happy Mother’s Day!
Reposted by Dr. Shannon
Reposted by Dr. Shannon
New recipe goes out in the SPRING newsletter on Thursday!
March 18, 2025 at 1:02 AM
New recipe goes out in the SPRING newsletter on Thursday!
Reposted by Dr. Shannon
NIH is seeking YOUR feedback on its NIH Strategic Plan for Disability Health Research FY26-30.
Responses due by March 12, 2025.
Respond here: bit.ly/4ivpSiP
#MECFS #LongCovid #DisabilityJustice #DisabilityTwitter
Responses due by March 12, 2025.
Respond here: bit.ly/4ivpSiP
#MECFS #LongCovid #DisabilityJustice #DisabilityTwitter
NOT-OD-25-038: Request for Information (RFI): Inviting Feedback on the Framework for the NIH Strategic Plan for Disability Health Research FY26-FY30
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Request for Information (RFI): Inviting Feedback on the Framework for the NIH Strategic Plan for Disability Health Rese...
bit.ly
March 7, 2025 at 7:50 PM
NIH is seeking YOUR feedback on its NIH Strategic Plan for Disability Health Research FY26-30.
Responses due by March 12, 2025.
Respond here: bit.ly/4ivpSiP
#MECFS #LongCovid #DisabilityJustice #DisabilityTwitter
Responses due by March 12, 2025.
Respond here: bit.ly/4ivpSiP
#MECFS #LongCovid #DisabilityJustice #DisabilityTwitter
Reposted by Dr. Shannon
Random #NEISvoid tip!
I can’t handwrite notes anymore which makes me so sad, but postable.com has some cute cards you can add a message to, and the lettering so much looks like real handwriting that several people thought I’d written the cards myself :)
Also rn code MAILBOX knocks off 25%
I can’t handwrite notes anymore which makes me so sad, but postable.com has some cute cards you can add a message to, and the lettering so much looks like real handwriting that several people thought I’d written the cards myself :)
Also rn code MAILBOX knocks off 25%
Really Nice Cards Mailed For You
Real designer greeting cards and invitations, all printed, addressed and mailed for you.
postable.com
March 5, 2025 at 11:26 PM
Random #NEISvoid tip!
I can’t handwrite notes anymore which makes me so sad, but postable.com has some cute cards you can add a message to, and the lettering so much looks like real handwriting that several people thought I’d written the cards myself :)
Also rn code MAILBOX knocks off 25%
I can’t handwrite notes anymore which makes me so sad, but postable.com has some cute cards you can add a message to, and the lettering so much looks like real handwriting that several people thought I’d written the cards myself :)
Also rn code MAILBOX knocks off 25%
Living with chronic pain is overwhelming. One strategy for finding comfort is incorporating small, soothing sensations. Running your fingers over soft fabrics, sipping warm tea, or wrapping yourself tight in cozy blankets can help remind your body that it also gets to feel good too!
March 2, 2025 at 11:39 PM
Living with chronic pain is overwhelming. One strategy for finding comfort is incorporating small, soothing sensations. Running your fingers over soft fabrics, sipping warm tea, or wrapping yourself tight in cozy blankets can help remind your body that it also gets to feel good too!
It’s #WelcomeWednesday! Welcome to new friends and familiar faces. I’m looking forward to getting to know you. Please introduce yourself in the comments! I’m so glad you’re here! 🌼
February 26, 2025 at 6:47 PM
It’s #WelcomeWednesday! Welcome to new friends and familiar faces. I’m looking forward to getting to know you. Please introduce yourself in the comments! I’m so glad you’re here! 🌼
In day-to-day life, the Social Model of Disability looks like. “No, unfortunately we can’t email you the document to sign. You have to come in person. Also, if you don’t come at XYZ time on XYZ you’re less likely to be approved.”
February 25, 2025 at 2:56 PM
In day-to-day life, the Social Model of Disability looks like. “No, unfortunately we can’t email you the document to sign. You have to come in person. Also, if you don’t come at XYZ time on XYZ you’re less likely to be approved.”
Reposted by Dr. Shannon
Gentle reminder that #MEAction will host a virtual town hall tomorrow Tuesday, February 25th at 2pm PST/5pm EST to discuss the impact of recent executive orders and other policy discussions that could affect the ME community. Register here: us06web.zoom.us/webinar/regi...
#pwME #MECFS #longCovid
#pwME #MECFS #longCovid
February 24, 2025 at 10:50 PM
Gentle reminder that #MEAction will host a virtual town hall tomorrow Tuesday, February 25th at 2pm PST/5pm EST to discuss the impact of recent executive orders and other policy discussions that could affect the ME community. Register here: us06web.zoom.us/webinar/regi...
#pwME #MECFS #longCovid
#pwME #MECFS #longCovid
Reposted by Dr. Shannon
👩⚕️CDC and Disability Rights 🦼
Before we talk more about disability, we need to address the history of eugenics, ableism and racism that haunts US public health work.
Before we talk more about disability, we need to address the history of eugenics, ableism and racism that haunts US public health work.
February 23, 2025 at 10:58 PM
👩⚕️CDC and Disability Rights 🦼
Before we talk more about disability, we need to address the history of eugenics, ableism and racism that haunts US public health work.
Before we talk more about disability, we need to address the history of eugenics, ableism and racism that haunts US public health work.
Medicaid is a lifeline for people w/chronic illness & disabilities. It’s more than health insurance—it provides relief for families, funds wheelchairs, in-home care, transportation to/from appointments, long-term care & more. Protect Medicaid funding—call your reps today: 5calls.org/issue/protec...
Protect Medicaid Funding ⭑ 5 Calls
Medicaid is a health insurance program serving 72 million low-income and disabled Americans that is jointly funded and administered by …
5calls.org
February 22, 2025 at 6:55 PM
Medicaid is a lifeline for people w/chronic illness & disabilities. It’s more than health insurance—it provides relief for families, funds wheelchairs, in-home care, transportation to/from appointments, long-term care & more. Protect Medicaid funding—call your reps today: 5calls.org/issue/protec...
It’s Wednesday!! I am so excited to welcome new members to our growing community. I’m building a community that supports people with chronic illness & their families. Please introduce yourself in the comments — I’m so glad you’re here! #WelcomeWednesday
February 19, 2025 at 7:19 PM
It’s Wednesday!! I am so excited to welcome new members to our growing community. I’m building a community that supports people with chronic illness & their families. Please introduce yourself in the comments — I’m so glad you’re here! #WelcomeWednesday
Chronic illness brings loss — often tremendous. The work you love, friendships, the ability to be spontaneous — it’s painful. But you are not alone. You still have so much to offer. Be gentle with yourself; don’t let internalized ableism judge you as you grieve. Self-compassion is a strength too!
February 17, 2025 at 6:40 PM
Chronic illness brings loss — often tremendous. The work you love, friendships, the ability to be spontaneous — it’s painful. But you are not alone. You still have so much to offer. Be gentle with yourself; don’t let internalized ableism judge you as you grieve. Self-compassion is a strength too!
Reposted by Dr. Shannon
Living with disabilities is a masterclass in how to handle gaslighting
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
February 6, 2025 at 4:45 AM
Living with disabilities is a masterclass in how to handle gaslighting
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
Not sure how to talk about chronic illness with young kids? Check out Just Ask by Sonia Sotomayor. It encourages curiosity, celebrates differences in how minds and bodies work, and invites discussion about things like medicine, mobility aids, and dietary needs. youtu.be/q4sGcaA6bFk?...
JUST ASK by Sonia Sotomayor Read Aloud
YouTube video by Imaginary Pages
youtu.be
February 15, 2025 at 5:01 PM
Not sure how to talk about chronic illness with young kids? Check out Just Ask by Sonia Sotomayor. It encourages curiosity, celebrates differences in how minds and bodies work, and invites discussion about things like medicine, mobility aids, and dietary needs. youtu.be/q4sGcaA6bFk?...
🦓 Dear Fellow Zebras,
Buckley & Cox are seeking input about your experience with the EDS classification system.
Results may be shared at the 2025 International Scientific Symposium —Pathways to Progress: A Decade of Insights and Innovations in EDS and HSD.
Survey open until 2/20. bit.ly/EDSvoices
Buckley & Cox are seeking input about your experience with the EDS classification system.
Results may be shared at the 2025 International Scientific Symposium —Pathways to Progress: A Decade of Insights and Innovations in EDS and HSD.
Survey open until 2/20. bit.ly/EDSvoices
EDS/HSD Reclassification: Patient Needs Survey
This anonymous survey is designed to ask the patient community what their experience has been with the EDS classification system and diagnostic criterion models and as well as their needs and expectat...
bit.ly
February 13, 2025 at 5:45 PM
🦓 Dear Fellow Zebras,
Buckley & Cox are seeking input about your experience with the EDS classification system.
Results may be shared at the 2025 International Scientific Symposium —Pathways to Progress: A Decade of Insights and Innovations in EDS and HSD.
Survey open until 2/20. bit.ly/EDSvoices
Buckley & Cox are seeking input about your experience with the EDS classification system.
Results may be shared at the 2025 International Scientific Symposium —Pathways to Progress: A Decade of Insights and Innovations in EDS and HSD.
Survey open until 2/20. bit.ly/EDSvoices
Reposted by Dr. Shannon
Throughout #BlackHistoryMonth AMWA is sharing history facts about Black Women in Medicine, starting with Rebecca Lee Crumpler! The first Black Woman to earn an MD in 1864. https://vist.ly/3mubzpc
February 6, 2025 at 6:25 PM
Throughout #BlackHistoryMonth AMWA is sharing history facts about Black Women in Medicine, starting with Rebecca Lee Crumpler! The first Black Woman to earn an MD in 1864. https://vist.ly/3mubzpc
It’s Welcome Wednesday! Welcome to all who are new here. I’m looking forward to getting to know you more. Please feel encouraged to introduce yourself in the comments! I’m so glad you’re here! 🎉
February 12, 2025 at 5:03 PM
It’s Welcome Wednesday! Welcome to all who are new here. I’m looking forward to getting to know you more. Please feel encouraged to introduce yourself in the comments! I’m so glad you’re here! 🎉
Coping with identity loss due to chronic illness is hard. Grieve what’s changed, but also notice what still feels like you. Maybe it’s a scent, a song, a small ritual. Identity isn’t just what you do—it’s who you are. Finding new ways to express yourself can help bridge the loss. What’s helped you?
February 11, 2025 at 3:00 PM
Coping with identity loss due to chronic illness is hard. Grieve what’s changed, but also notice what still feels like you. Maybe it’s a scent, a song, a small ritual. Identity isn’t just what you do—it’s who you are. Finding new ways to express yourself can help bridge the loss. What’s helped you?
Dismissed. Disbelieved. Misdiagnosed.
This Time article by Jamie Ducharme highlights a reality MECFS and Long COVID patients know well: lack of tests and visible symptoms leads to dismissal. Doctors and psychologists must collaborate so patients are supported and believed.
time.com/7206080/long...
This Time article by Jamie Ducharme highlights a reality MECFS and Long COVID patients know well: lack of tests and visible symptoms leads to dismissal. Doctors and psychologists must collaborate so patients are supported and believed.
time.com/7206080/long...
Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards
The chronic illnesses that make doctors doubt their patients often start after what “should” be a short-lived sickness—like COVID-19.
time.com
February 8, 2025 at 11:20 PM
Dismissed. Disbelieved. Misdiagnosed.
This Time article by Jamie Ducharme highlights a reality MECFS and Long COVID patients know well: lack of tests and visible symptoms leads to dismissal. Doctors and psychologists must collaborate so patients are supported and believed.
time.com/7206080/long...
This Time article by Jamie Ducharme highlights a reality MECFS and Long COVID patients know well: lack of tests and visible symptoms leads to dismissal. Doctors and psychologists must collaborate so patients are supported and believed.
time.com/7206080/long...
Reposted by Dr. Shannon
Please participate my fellow Canadians! @ninjazz636.bsky.social
We’re looking for long Covid stories that we can feature in a creative way - and we’d love to feature yours. If you’re comfortable sharing, you can submit your story at covidsociety.ca/long-covid-s... (Note: We can share your story anonymously, if you prefer.). 2/2
Tell Us Your Long Covid Story - Canadian Covid Society
covidsociety.ca
February 7, 2025 at 11:13 PM
Please participate my fellow Canadians! @ninjazz636.bsky.social
Reposted by Dr. Shannon
How many Americans rely on Medicaid or CHIP in *your* Congressional District? PLEASE SHARE THIS EVERYWHERE. ABSOLUTELY CRUCIAL INFORMATION. CHARLES GABA IS AMAZING!
🚨 How many Americans rely on Medicaid or CHIP in *your* Congressional District? #HandsOffOurMedicaid
#Alabama: 952,000 (19% of total pop)
#Alaska: 250,000 (34% of total pop)
#Arizona: 1.96 million (26% of total pop)
#Arkansas: 821,000 (27% of total pop)
acasignups.net/25/01/29/how...
#Alabama: 952,000 (19% of total pop)
#Alaska: 250,000 (34% of total pop)
#Arizona: 1.96 million (26% of total pop)
#Arkansas: 821,000 (27% of total pop)
acasignups.net/25/01/29/how...
February 8, 2025 at 12:39 AM
How many Americans rely on Medicaid or CHIP in *your* Congressional District? PLEASE SHARE THIS EVERYWHERE. ABSOLUTELY CRUCIAL INFORMATION. CHARLES GABA IS AMAZING!
Happy Welcome Wednesday! I’m excited to welcome new followers—please introduce yourself in the comments! I’d love to get to know you more and I’m so glad you’re here! 🥳
February 5, 2025 at 9:23 PM
Happy Welcome Wednesday! I’m excited to welcome new followers—please introduce yourself in the comments! I’d love to get to know you more and I’m so glad you’re here! 🥳
One of my favorite strategies for conserving energy is using smart devices to turn lights on & off. There are lots of options, including voice control or using an app on your phone. Small changes like this can make a big difference! What are your go-to energy-saving strategies?
February 5, 2025 at 12:13 AM
One of my favorite strategies for conserving energy is using smart devices to turn lights on & off. There are lots of options, including voice control or using an app on your phone. Small changes like this can make a big difference! What are your go-to energy-saving strategies?