Connect with ME!
connectwithmecfs.bsky.social
Connect with ME!
@connectwithmecfs.bsky.social
Hi I'm Megan! This space is dedicated to building community for those with me/cfs through online accessible spaces

Linktr.ee/connect_with_mecfs
Over the Garden Wall Stream Pt. 2
If you have the capacity, please join us for part 2! #myalgicencephalomyelitis #mecfscommunity
#mecfs #cfs #longcovid
November 12, 2025 at 2:30 PM
Join us for a Halloween party!! Add our Google Calendar in my link in bio to get reminders and the streaming link will be in event details. Or click "movie streaming link" at the start time! #mecfs #cfsme #cfs
October 29, 2025 at 2:21 PM
Do you have ME/CFS?

Are you looking to build community and friendships?

If so, I'm glad you found my page! I'm looking to create online accessible
community for those living with this isolating condition 💜

#mecfs #myalgicencephalomyelitis #cfsme #cfs
October 20, 2025 at 1:43 PM
ME/CFS Community:

Movie Night: ParaNorman
Join us Wednesday, Oct 22nd at 2 PM ET for a screening of ParaNorman! 👻💚

Chat or watch quietly, come and go as you need. Add the Google cal from link below for event details or click streaming link at time:

Linktr.ee/connect_with_mecfs

#mecfs #cfs
October 20, 2025 at 1:39 PM
I’ll be joining the DREDF Disability Community Briefing: What You Can Do to Stop the Attack on Section 504. Anyone else?

Today, Feb 12th 12:30 ET

Signup link: dredf-org.zoom.us/webinar/regi...

Read more about protecting 504 here: dredf.org/protect-504/

#504 #protect504 #disabilityrights
Welcome! You are invited to join a webinar: Disability Community Briefing: What You Can Do to Stop the Attack on Section 504. After registering, you will receive a confirmation email about joining the...
In September 2024, a group of 17 states filed a lawsuit against the U.S. government called Texas v. Becerra. The lawsuit asks the court to get rid of Section 504 and its regulations. Section 504 is a ...
dredf-org.zoom.us
February 12, 2025 at 3:06 PM
Reposted by Connect with ME!
💕 'How to help someone with #longcovid'
A handy video to share to help those around #pwLC
February 3, 2025 at 11:58 AM
Reposted by Connect with ME!
Martin Luther King Jr day is a time to celebrate and honor the legacy of Civil Rights leader Martin Luther King Jr. It is the only federal holiday designated as a national day of service to encourage all Americans to volunteer and improve their communities.

#pwME #MLK #MLKday #MECFS #longCovid
January 20, 2025 at 7:07 PM
Reposted by Connect with ME!
Again, the World Health Organization is the single most important global entity in preventing, tracking and controlling outbreaks, epidemics and pandemics and is especially important as climate change and deforestation allow pathogens to mutate, become more infectious and spread to new regions
January 21, 2025 at 2:21 AM
New ME/CFS Research (Published 2025) Findings!

This highlights the urgent need for greater awareness, funding, and support for those with Long COVID and ME/CFS.

Full study: link.springer.com/article/10.1007/s11606-024-09290-9

#MECFS #LongCOVID
January 15, 2025 at 5:51 PM
Reposted by Connect with ME!
The silence around Long Covid is deafening because speaking up requires

- Fighting waves of misinformation to understand your condition
- Accepting an incurable illness as your new reality
- Risking relationships, income & facing stigma, all for little hope of support.

Most simply suffer quietly.
January 8, 2025 at 12:27 PM
Reposted by Connect with ME!
Northwestern Medicine: “New research finds COVID-19 vaccination prior to infection does not affect the neurological symptoms of long COVID”

news.nm.org/new-research...
New research finds COVID-19 vaccination prior to infection does not affect the neurological symptoms of long COVID
First-of-its-kind study from Northwestern Medicine also looked at the quality of life and cognitive function in COVID long-haulers who were vaccinated
news.nm.org
January 8, 2025 at 12:56 AM