Ray Dehghan-Paz
@cleanliving.bsky.social
🏳️⚧️non-binary. Toxic Mold injury caused my severe #mecfs #mcs. I need My MD’s “cure”: detached medically clean housing. Abuse survivor-PTSD. Cover pic is Uncle Daniel Sayad: USA WW2 Purple Heart Veteran (see news). Chicago, Illinois USA.
Pinned
Ray Dehghan-Paz
@cleanliving.bsky.social
· Jul 19
I have sent mainstream & Indy media all critical info. on my ME-CFS illness & my family abandonment because i’m non-binary. No major media has agreed 2 do a story.
If I can afford treatment, I can help so many people. My life may well depend on whether mainstream media does a story on me soon.
If I can afford treatment, I can help so many people. My life may well depend on whether mainstream media does a story on me soon.
Reposted by Ray Dehghan-Paz
Alice Wong, a writer and activist who was born with muscular dystrophy and who fought relentlessly for equal rights and access for people with disabilities, died on Friday. She was 51. nyti.ms/4r9WqEr
November 15, 2025 at 9:33 PM
Alice Wong, a writer and activist who was born with muscular dystrophy and who fought relentlessly for equal rights and access for people with disabilities, died on Friday. She was 51. nyti.ms/4r9WqEr
Reposted by Ray Dehghan-Paz
my UN-SERIES zine texts on life with very severe ME/CFS are live. I'm bedridden & didn't meet my Oct goal. now need Nov's $500 for basics. if my writing resonates, please help.
read: moriende.com/category/the-un-series/
support: ko-fi.com/moriende
paypal: paypal.me/belzomalsh
CA/ven: kookysnell
read: moriende.com/category/the-un-series/
support: ko-fi.com/moriende
paypal: paypal.me/belzomalsh
CA/ven: kookysnell
![a webpage titled "THE UN-SERIES." four blue boxes are displayed in a grid.
top left box:
header: "THE UN-SERIES."
title: "UNBELIEVED (zine text 3)"
byline: "kookysnell / September 13, 2025."
text: "a documentation of harm. a refusal to disappear. I am so very tired. I don't want to have to fight […]"
top middle box:
header: "THE UN-SERIES."
title: "UNSUPPORTED (zine text 2)"
byline: "kookysnell / September 13, 2025."
text: "I'd do anything to be able to move through the day like it's nothing. I miss choosing what to do [...]"
top right box:
header: "THE UN-SERIES."
title: "KEY TERMS FOR THE UN-SERIES"
byline: "kookysnell / September 11, 2025."
text: "this page explains the terms and abbreviations used throughout the UN-SERIES. it's here so you can follow along without getting [...]"
bottom left box:
header: "THE UN-SERIES."
title: "UNSEEN (zine text 1)"
byline: "kookysnell / September 11, 2025."
text: "it's 2025. I'm still masking. I'm still tracking surges that I worry will never end. I'm bedridden with long COVID, which for me has meant MCAS, POTS, and ME/CFS, and people are out there choosing [...]"](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:bdl3pfajlkmcv6by25b34mrw/bafkreicgz6rjvxb76v2pj3fiuiljgdulvzgoa2lymztsqtqskxnyimwqaq@jpeg)
November 2, 2025 at 6:44 PM
my UN-SERIES zine texts on life with very severe ME/CFS are live. I'm bedridden & didn't meet my Oct goal. now need Nov's $500 for basics. if my writing resonates, please help.
read: moriende.com/category/the-un-series/
support: ko-fi.com/moriende
paypal: paypal.me/belzomalsh
CA/ven: kookysnell
read: moriende.com/category/the-un-series/
support: ko-fi.com/moriende
paypal: paypal.me/belzomalsh
CA/ven: kookysnell
Reposted by Ray Dehghan-Paz
everything feels so scammy.
November 14, 2025 at 6:45 PM
everything feels so scammy.
Reposted by Ray Dehghan-Paz
My takeaway from every new Epstein revelation is that some powerful people victimized many powerless young women, many more knew, some actively enabled it--and we're still being told that MeToo and accountability for sexual violence have gone too far
November 12, 2025 at 5:05 PM
My takeaway from every new Epstein revelation is that some powerful people victimized many powerless young women, many more knew, some actively enabled it--and we're still being told that MeToo and accountability for sexual violence have gone too far
This is my Uncle Daniel Sayad, United States Army Purple Heart Veteran, World War Two. In this picture he is being honored by the Chicago Cubs. There are news stories about him. Happy Veterans Day.
November 12, 2025 at 8:33 PM
This is my Uncle Daniel Sayad, United States Army Purple Heart Veteran, World War Two. In this picture he is being honored by the Chicago Cubs. There are news stories about him. Happy Veterans Day.
Reposted by Ray Dehghan-Paz
But mounting evidence shows #LongCOVID is very real and serious. Studies confirm it reduces quality of life to levels seen in illnesses such as #ME/CFS, stroke, rheumatoid arthritis and Parkinson’s disease.
Self-Reported Disablement in People Living With Long COVID and ME/CFS:
Self-Reported Disablement in People Living With Long COVID and ME/CFS:
archive.md
August 25, 2025 at 3:07 PM
But mounting evidence shows #LongCOVID is very real and serious. Studies confirm it reduces quality of life to levels seen in illnesses such as #ME/CFS, stroke, rheumatoid arthritis and Parkinson’s disease.
Self-Reported Disablement in People Living With Long COVID and ME/CFS:
Self-Reported Disablement in People Living With Long COVID and ME/CFS:
Reposted by Ray Dehghan-Paz
Please sign and share 💙🫂
Again a hospital refuses TVP (tube feeding) to a severely ill MEcfs patiënt, this time it is in the Netherlands where Sanne (38 yr) fears for her life. #gastroparese #MEcfs
petities.nl/petitions/ge...
Again a hospital refuses TVP (tube feeding) to a severely ill MEcfs patiënt, this time it is in the Netherlands where Sanne (38 yr) fears for her life. #gastroparese #MEcfs
petities.nl/petitions/ge...
Geef ME-patiënten gepersonaliseerde zorg
Academische ziekenhuizen weigeren noodzakelijke zorg of mee te werken aan een passend behandel plan voor ME patiënten en dat leidt tot verschrikkelijk leed soms zelfs de dood. Help mee aan de erkennin...
petities.nl
August 15, 2025 at 4:13 PM
Please sign and share 💙🫂
Again a hospital refuses TVP (tube feeding) to a severely ill MEcfs patiënt, this time it is in the Netherlands where Sanne (38 yr) fears for her life. #gastroparese #MEcfs
petities.nl/petitions/ge...
Again a hospital refuses TVP (tube feeding) to a severely ill MEcfs patiënt, this time it is in the Netherlands where Sanne (38 yr) fears for her life. #gastroparese #MEcfs
petities.nl/petitions/ge...
Reposted by Ray Dehghan-Paz
Reposted by Ray Dehghan-Paz
This is just deeply depressing: women who spoke up during #MeToo often found their lives upended, as powerful men used defamation suits to target them, e.g. Roy Moore is still suing many of his accusers.
What Happened to the Women of #MeToo? www.newyorker.com/magazine/202...
What Happened to the Women of #MeToo? www.newyorker.com/magazine/202...
What Happened to the Women of #MeToo?
Tina Johnson accused Roy Moore of sexual assault. Then the world moved on, and left her behind.
www.newyorker.com
August 8, 2025 at 12:25 AM
This is just deeply depressing: women who spoke up during #MeToo often found their lives upended, as powerful men used defamation suits to target them, e.g. Roy Moore is still suing many of his accusers.
What Happened to the Women of #MeToo? www.newyorker.com/magazine/202...
What Happened to the Women of #MeToo? www.newyorker.com/magazine/202...
My MD physician believes that my life is in imminent and great danger because of a severe and permanent toxic mold injury.
To help me, this GoFundMe is officially organized by my beautiful fiance Shelly.
I would be most grateful if you donated to, shared & asked folks to retweet this GoFundMe.
To help me, this GoFundMe is officially organized by my beautiful fiance Shelly.
I would be most grateful if you donated to, shared & asked folks to retweet this GoFundMe.
Donate to Please save life of mold-injured fiancé with severe ME-CFS, organized by Shelly Carns
Thank you very much for taking the time to read this GoFundMe.… Shelly Carns needs your support for Please save life of mold-injured fiancé with severe ME-CFS
www.gofundme.com
July 18, 2025 at 1:48 AM
My MD physician believes that my life is in imminent and great danger because of a severe and permanent toxic mold injury.
To help me, this GoFundMe is officially organized by my beautiful fiance Shelly.
I would be most grateful if you donated to, shared & asked folks to retweet this GoFundMe.
To help me, this GoFundMe is officially organized by my beautiful fiance Shelly.
I would be most grateful if you donated to, shared & asked folks to retweet this GoFundMe.
Reposted by Ray Dehghan-Paz
At 92, Willie Nelson was moved to tears after an eight-minute standing ovation at the 2025 Outlaw Music Festival in Phoenix. Thousands chanted “Forever Willie,” honoring the legendary singer with a powerful outpouring of love and gratitude.
#BlueCrew #ProudBlue #BlueCircleFamily 💙💙
#BlueCrew #ProudBlue #BlueCircleFamily 💙💙
June 20, 2025 at 10:17 AM
At 92, Willie Nelson was moved to tears after an eight-minute standing ovation at the 2025 Outlaw Music Festival in Phoenix. Thousands chanted “Forever Willie,” honoring the legendary singer with a powerful outpouring of love and gratitude.
#BlueCrew #ProudBlue #BlueCircleFamily 💙💙
#BlueCrew #ProudBlue #BlueCircleFamily 💙💙
Happy Juneteenth!
June 19, 2025 at 8:32 PM
Happy Juneteenth!
We Iranian Americans are among the most patriotic Americans. Many of us have served or are serving in our American country’s armed forces. My Iranian-American great uncle is a U.S. Army Purple Heart Veteran. We love America dearly.
June 18, 2025 at 3:13 AM
We Iranian Americans are among the most patriotic Americans. Many of us have served or are serving in our American country’s armed forces. My Iranian-American great uncle is a U.S. Army Purple Heart Veteran. We love America dearly.
Reposted by Ray Dehghan-Paz
Dwayne Wade makes a public speech about his beautiful daughter Zaya Wade, a trans model.
His poignant words will make you understand how a parent loves their child.
This unconditional love is so powerful and beautiful.
My eyes are wet. 🥹
His poignant words will make you understand how a parent loves their child.
This unconditional love is so powerful and beautiful.
My eyes are wet. 🥹
June 16, 2025 at 1:42 PM
Dwayne Wade makes a public speech about his beautiful daughter Zaya Wade, a trans model.
His poignant words will make you understand how a parent loves their child.
This unconditional love is so powerful and beautiful.
My eyes are wet. 🥹
His poignant words will make you understand how a parent loves their child.
This unconditional love is so powerful and beautiful.
My eyes are wet. 🥹
I strongly condemn the assassination of Minnesota’s elected leaders. Terrorism has no place in our country.
June 14, 2025 at 4:53 PM
I strongly condemn the assassination of Minnesota’s elected leaders. Terrorism has no place in our country.
Reposted by Ray Dehghan-Paz
Today we honor those who, in service to something bigger than themselves, stepped up and made the ultimate sacrifice. Amid the petty grievances and selfishness we see every day, it’s a sobering reminder of what humans can be. Wishing each a safe, reflective, grateful, and humble Memorial Day.
May 26, 2025 at 5:27 PM
Today we honor those who, in service to something bigger than themselves, stepped up and made the ultimate sacrifice. Amid the petty grievances and selfishness we see every day, it’s a sobering reminder of what humans can be. Wishing each a safe, reflective, grateful, and humble Memorial Day.
Reposted by Ray Dehghan-Paz
The #DefendersOfDemocracy welcomes everyone in joining us to remember our fallen heroes.
To The Brave Men and Women We Have Lost
You Are Forever In Our Hearts and Minds
Your Service and Sacrifice Will Never Be Forgotten
Freedom Isn’t Free
To The Brave Men and Women We Have Lost
You Are Forever In Our Hearts and Minds
Your Service and Sacrifice Will Never Be Forgotten
Freedom Isn’t Free
May 26, 2025 at 5:56 PM
The #DefendersOfDemocracy welcomes everyone in joining us to remember our fallen heroes.
To The Brave Men and Women We Have Lost
You Are Forever In Our Hearts and Minds
Your Service and Sacrifice Will Never Be Forgotten
Freedom Isn’t Free
To The Brave Men and Women We Have Lost
You Are Forever In Our Hearts and Minds
Your Service and Sacrifice Will Never Be Forgotten
Freedom Isn’t Free
Reposted by Ray Dehghan-Paz
Instead of simply wishing people well this Memorial Day, here are five concrete policies that will protect servicemembers abroad and on the home front:
May 26, 2025 at 6:08 PM
Instead of simply wishing people well this Memorial Day, here are five concrete policies that will protect servicemembers abroad and on the home front:
Let us remember this Memorial Day.
May 26, 2025 at 8:06 PM
Let us remember this Memorial Day.
Reposted by Ray Dehghan-Paz
Sarah Milgrim was so much more than someone about to be engaged. She served on the civil society team at the Embassy of Israel, dedicating her life and career to building bridges. (1/2)
May 22, 2025 at 12:22 PM
Sarah Milgrim was so much more than someone about to be engaged. She served on the civil society team at the Embassy of Israel, dedicating her life and career to building bridges. (1/2)
Reposted by Ray Dehghan-Paz
Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C. yesterday. #MillionsMissing.
Read more from @mileswgriffis.bsky.social at The Sick Times: thesicktimes.org/2025/05/12/m...
Read more from @mileswgriffis.bsky.social at The Sick Times: thesicktimes.org/2025/05/12/m...
May 13, 2025 at 3:36 PM
Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C. yesterday. #MillionsMissing.
Read more from @mileswgriffis.bsky.social at The Sick Times: thesicktimes.org/2025/05/12/m...
Read more from @mileswgriffis.bsky.social at The Sick Times: thesicktimes.org/2025/05/12/m...
Reposted by Ray Dehghan-Paz
The fight to protect Medicaid is getting dire
MAGA Republicans already planned to strip healthcare from millions of Americans-cutting the program by $715 billion
But that wasn’t good enough for ultra conservatives
So now they’re looking to cut even more
We. Cannot. Fail.
SAVE
OUR
MEDICAID
MAGA Republicans already planned to strip healthcare from millions of Americans-cutting the program by $715 billion
But that wasn’t good enough for ultra conservatives
So now they’re looking to cut even more
We. Cannot. Fail.
SAVE
OUR
MEDICAID
May 18, 2025 at 9:26 PM
The fight to protect Medicaid is getting dire
MAGA Republicans already planned to strip healthcare from millions of Americans-cutting the program by $715 billion
But that wasn’t good enough for ultra conservatives
So now they’re looking to cut even more
We. Cannot. Fail.
SAVE
OUR
MEDICAID
MAGA Republicans already planned to strip healthcare from millions of Americans-cutting the program by $715 billion
But that wasn’t good enough for ultra conservatives
So now they’re looking to cut even more
We. Cannot. Fail.
SAVE
OUR
MEDICAID
Reposted by Ray Dehghan-Paz
Hello, new followers! Past time I did an intro thread. 👋
I'm Jaime Seltzer, Scientific Director at #MEAction, a nonprofit for people with infection-associated chronic illnesses like #MECFS & #LongCOVID. I maintain research affiliations w/Stanford U & Université de Montréal. 🧵
I'm Jaime Seltzer, Scientific Director at #MEAction, a nonprofit for people with infection-associated chronic illnesses like #MECFS & #LongCOVID. I maintain research affiliations w/Stanford U & Université de Montréal. 🧵
March 30, 2025 at 9:01 PM
Hello, new followers! Past time I did an intro thread. 👋
I'm Jaime Seltzer, Scientific Director at #MEAction, a nonprofit for people with infection-associated chronic illnesses like #MECFS & #LongCOVID. I maintain research affiliations w/Stanford U & Université de Montréal. 🧵
I'm Jaime Seltzer, Scientific Director at #MEAction, a nonprofit for people with infection-associated chronic illnesses like #MECFS & #LongCOVID. I maintain research affiliations w/Stanford U & Université de Montréal. 🧵
Reposted by Ray Dehghan-Paz
Today @thesicktimes.bsky.social: some people with ME also have a rare, debilitating condition called cranio-cervical instability, in which their heads are not properly aligned with their spines. Colleen de Bellefonds explains how a surgery to address CCI can help alleviate symptoms for some.
This surgeon fuses people’s skulls to their spines to treat a rare complication of myalgic encephalomyelitis - The Sick Times
A growing number of doctors agree that a minority of people with severe ME are like Brea: Some of their symptoms are caused by cranio-cervical instability linked to connective tissue disorders. Viruse...
thesicktimes.org
April 22, 2025 at 5:00 PM
Today @thesicktimes.bsky.social: some people with ME also have a rare, debilitating condition called cranio-cervical instability, in which their heads are not properly aligned with their spines. Colleen de Bellefonds explains how a surgery to address CCI can help alleviate symptoms for some.