Chronically Pondering
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chronicleofdays.bsky.social
Chronically Pondering
@chronicleofdays.bsky.social
Spoonie. Neurodivergent. Chihuahua enthusiast. Poet. Enjoys film photography and crafting. ME/CFS. Wheelchair User.
I put together a short video on body confidence and chronic illness — not polished reflections, just some early thoughts. I’d really love to hear how others experience and think about these issues if anyone feels up to sharing. #chronicillness #bodyconfidence #mecfs
September 23, 2025 at 7:51 PM
“Just out here channeling my inner island vibes.” 🏝️🌴🐶 #chihuahua
September 4, 2025 at 7:45 PM
Reposted by Chronically Pondering
"By spending your life, you are buying it...At the end of our lives, the quality of our #memories comes from the meaning we have created out of all the little #moments over the years.": buff.ly/XcMMJDH

#QualityOfLife #MondayBlogs #LifeLesson
September 2, 2025 at 3:33 PM
Has anyone experienced any benefits from using a red light therapy device? I recently purchased a unit (that can be used whilst lying down with googles) and have been using it intermittently. I think it has been helping with my facial pain and stiffness. #chronicillness #redlighttherapy #mecfs
September 2, 2025 at 3:29 PM
Bringing the beach party to the living room. 🐕🌴🌞
August 31, 2025 at 4:22 PM
Making the most of the summer sunshine. ☀️
August 30, 2025 at 3:33 PM
Reposted by Chronically Pondering
can I interest you in the ambience of a woodland pond in summer
August 25, 2025 at 1:15 PM
“Ah, my cooling blanket — proof that burrito life chose me.”
August 25, 2025 at 5:23 PM
All dressed up for a day out… but I’m actually the guest of honour at a blanket burrito convention.

#chihuahua #chronicillness #mecfs
August 25, 2025 at 4:57 PM
“Being hopeful is really just an understanding that you can do a little something good today, and a little something good tomorrow, and the day after, and that, together, these things will accumulate relentlessly. This is do-it-yourself hope” (George). www.theguardian.com/lifeandstyle...
‘My personal lockdown has been much longer’: on chronic illness, before and after Covid
Life before was a little different, but not a lot. Now I feel a new resilience and hope
www.theguardian.com
August 24, 2025 at 7:53 PM
“Those of us with #chronicpain have something unique to offer, not in spite of our pain, but because of it. It's okay to grieve the losses of chronic illness. It's okay to be broken; everyone is in some way. Just because we're unfixable doesn't mean we're worthless.” —
Allison Alexander
August 24, 2025 at 6:40 PM
I live in a universe where coffee pretends to help, and naps are holy rituals. #chronicillnesslife #mecfs #disability
August 24, 2025 at 6:23 PM
Does anyone else with a chronic illness feel that their life experiences are largely shaped by challenges, making it difficult to socialise with non-disabled people? Even when I have the energy for it, maintaining the positivity often expected in these interactions can feel alienating. #spoonie
August 23, 2025 at 8:56 PM
As Rosmarie Garland-Thomson points out, one of the greatest challenges in encounters between disabled and non-disabled people is the assumption that “disability cancels out other qualities, reducing the complex person to a single attribute” (Garland-Thomson, Extraordinary Bodies 12). #disability
August 23, 2025 at 8:22 PM
This hedgehog didn’t choose the onesie life—the onesie life chose them.

[Photographer unknown].
August 23, 2025 at 5:49 PM
It’s tempting to believe we can be exceptions to structural discrimination. In social interactions, I often hope—perhaps vaguely—that others will recognise that disability shapes my experiences and identity without defining my entire life. #chronicillness #disability
August 21, 2025 at 6:54 PM
I think vulnerability is powerful in its own way — it connects us, grounds us, reminds us we’re human. In many ways, recognition of our own vulnerabilities requires a certain strength. But, as disabled people, there are days when life doesn’t let us rest in that softness. #disability #chronicillness
August 21, 2025 at 1:12 PM
Hello and welcome, I’ve lived with ME/CFS for many years and am a wheelchair user. I created this page to share my experiences with chronic illness and, most importantly, to connect with people who have shared experiences. #chronicillness #MECFS #spoonie #chronicillnesscommunity #wheelchairuser
August 20, 2025 at 3:18 PM