Carrie King
@carrieakingfw.bsky.social
Avid reader and occasional writer. Erstwhile attorney. Music lover and lyric rememberer. Accidental #spinalcsfleak, #hEDS, #MCAS patient and advocate.
Reposted by Carrie King
Reposted by Carrie King
Excellent video discussing the interaction of ME/CFS and Long Covid with EDS, MCAS, cranial instability, and more with Dr. Brayden Yellman at Bateman Horne Center. Unable to see more patients, Bateman is working on educating other medical professionals.
youtu.be/D-I8eRxAeZ4?...
youtu.be/D-I8eRxAeZ4?...
Renegade Research Clinician's Roundtable with Brayden Yellman, MD
YouTube video by RemissionBiome
youtu.be
December 14, 2024 at 1:34 AM
Absolutely amazing.
A male humpback whale has made an extraordinary journey from South America to Africa — traveling more than 13,046 kilometers (8,106 miles) — the longest migration recorded for a single whale, a new study found.
Read more: cnn.it/4ffCsRr
Read more: cnn.it/4ffCsRr
December 12, 2024 at 11:24 PM
Absolutely amazing.
Reposted by Carrie King
Very helpful article by @broadwaybabyto.bsky.social, as always, this time about POTS — treatment options, mobility aids, tips for how you can make management easier at home, and more.
Some spinal CSF leak patients have POTS secondary to a leak, but it's also common w/ EDS & can happen post-covid.
Some spinal CSF leak patients have POTS secondary to a leak, but it's also common w/ EDS & can happen post-covid.
Learning to Live Horizontally - Your Guide to All Things POTS
When you have POTS - being upright is a challenge. We deal with fatigue, tachycardia, dizziness, fainting and more. Adapting to living life horizontally can make symptoms more manageable.
www.disabledginger.com
December 7, 2024 at 4:32 PM
Very helpful article by @broadwaybabyto.bsky.social, as always, this time about POTS — treatment options, mobility aids, tips for how you can make management easier at home, and more.
Some spinal CSF leak patients have POTS secondary to a leak, but it's also common w/ EDS & can happen post-covid.
Some spinal CSF leak patients have POTS secondary to a leak, but it's also common w/ EDS & can happen post-covid.
What is happening? I truly thought Cornyn had more integrity. Where are our leaders in Texas? What a breach of trust.
youtu.be/xzlkrNyAQVw
youtu.be/xzlkrNyAQVw
Sen. John Cornyn gives his opinion on Kash Patel's FBI plans
YouTube video by KVUE
youtu.be
December 12, 2024 at 12:52 AM
What is happening? I truly thought Cornyn had more integrity. Where are our leaders in Texas? What a breach of trust.
youtu.be/xzlkrNyAQVw
youtu.be/xzlkrNyAQVw
The proposed tariffs will be passed on to the consumer. Just ask Walmart. And the mass deportation plan if implemented could quite possibly send us into a recession.
Price growth ticked up in November as inflation progress stalls
Economist believe that #Trump tariffs & deportations plans will prove inflationary and bad for growth in 2025 and beyond. #econsky
www.nbcnews.com/business/eco...
Economist believe that #Trump tariffs & deportations plans will prove inflationary and bad for growth in 2025 and beyond. #econsky
www.nbcnews.com/business/eco...
Price growth ticked up in November as inflation progress stalls
Economists generally believe that Donald Trump’s tariffs and deportations plan will prove inflationary and subsequently bad for growth.
www.nbcnews.com
December 11, 2024 at 2:27 PM
The proposed tariffs will be passed on to the consumer. Just ask Walmart. And the mass deportation plan if implemented could quite possibly send us into a recession.
100%. She is corrupting the cause she purports to represent. Shut her down.
December 11, 2024 at 2:06 PM
100%. She is corrupting the cause she purports to represent. Shut her down.
Wow.
December 11, 2024 at 11:24 AM
Wow.
Reposted by Carrie King
I think it's time for us Book Lovers to change "Have a good day" to "Hope you get to read today!"
December 10, 2024 at 8:11 PM
I think it's time for us Book Lovers to change "Have a good day" to "Hope you get to read today!"
Reposted by Carrie King
Reposted by Carrie King
::Sigh:: Once more for the people in the back. If audiobooks don’t count as reading, then braille isn’t reading either. Stop gatekeeping literacy.
December 10, 2024 at 8:38 PM
::Sigh:: Once more for the people in the back. If audiobooks don’t count as reading, then braille isn’t reading either. Stop gatekeeping literacy.
Agree with this 100%.
Yes. Pain causes issues with the diagnosis and treatment of other problems. It elevates your blood sugar, blood pressure, heart rate, cholesterol, temperature, hormones, and more. It makes regulating anything a nightmare as your body is at war with itself.
#NEISvoid #ChronicPain #Disability
#NEISvoid #ChronicPain #Disability
December 10, 2024 at 5:46 AM
Agree with this 100%.
The new phenotype discussed in this article matches my own. Very hopeful that this might lead to a longer term cure.
Fascinating series of articles on CTD in Neurology in #FrontiersinNeurology including #CSFleak and orthostatic HA.
Great discussion and hypotheses- but surprising how little primary data underpins our current understanding. #knownunknowns
www.frontiersin.org/research-top...
Great discussion and hypotheses- but surprising how little primary data underpins our current understanding. #knownunknowns
www.frontiersin.org/research-top...
Neurology and Connective Tissue
Connective tissue compromise, as is seen in the heritable connective tissue disorders collectively called Ehlers-Danlos Syndrome, but also acquired connective tissue disorders as can be seen in autoim...
www.frontiersin.org
December 8, 2024 at 5:25 PM
The new phenotype discussed in this article matches my own. Very hopeful that this might lead to a longer term cure.
Helpful information for a very frustrating, complex condition.
If you have MCAS and are struggling to control flares and reactions - I wrote a lengthy piece about the various lifestyle adjustments and changes I made to reduce symptoms
It’s much more than “just” histamine - many of the tips may surprise you!
www.disabledginger.com/p/mcas-and-h...
It’s much more than “just” histamine - many of the tips may surprise you!
www.disabledginger.com/p/mcas-and-h...
MCAS and Histamine - Diet isn't the ONLY Answer
Mast Cell Activation Syndrome is a beast of a condition that can impact every part of your life. The good news is there are many things you can do on your own to improve symptoms and reduce flares.
www.disabledginger.com
December 2, 2024 at 11:53 AM
Helpful information for a very frustrating, complex condition.
Reposted by Carrie King
Home insurance in areas hit by repetitive disasters is going to be the number one housing affordability issue over the next 4 years. And possibly going into the midterms.
More so than interest rates. Florida in particular is going to have huge problems.
More so than interest rates. Florida in particular is going to have huge problems.
Here in Florida we have a housing crisis of our own - developers are building affordable homes all around, but many are sitting empty because people can't afford the necessary home insurance.
December 1, 2024 at 10:18 PM
Home insurance in areas hit by repetitive disasters is going to be the number one housing affordability issue over the next 4 years. And possibly going into the midterms.
More so than interest rates. Florida in particular is going to have huge problems.
More so than interest rates. Florida in particular is going to have huge problems.
Reposted by Carrie King
Out there, right now, is an indie bookstore and it is FULL OF BOOKS, and full of bibliomancers who know all the old book rites to ensure you get excellent books for you and your loved ones. Seek the indie bookstore! Give them coin in exchange for stories and ideas and art and romance and horror and
November 30, 2024 at 3:46 PM
Out there, right now, is an indie bookstore and it is FULL OF BOOKS, and full of bibliomancers who know all the old book rites to ensure you get excellent books for you and your loved ones. Seek the indie bookstore! Give them coin in exchange for stories and ideas and art and romance and horror and
Reposted by Carrie King
Do you know if there’s any overlap with this and hEDS and/or MCAS?
My PT sent me this ( doi.org/10.26603/001... ) when she got the journal, because with hEDS, and non-COVID-related POTS (secondary to CIDP a long time ago,) and MCAS, rehabbing after anything is a nightmare.
My PT sent me this ( doi.org/10.26603/001... ) when she got the journal, because with hEDS, and non-COVID-related POTS (secondary to CIDP a long time ago,) and MCAS, rehabbing after anything is a nightmare.
The Effect of Joint Hypermobility Syndrome on DOMS and Recovery Time | Published in International Journal of Sports Physical Therapy
By Nicole F Ostuni, Charles A Marinello & 5 more. This study aims to investigate JHS and its effects on DOMS and recovery time; subsequently, bringing awareness of factors to consider while treating/e...
doi.org
November 29, 2024 at 4:03 AM
Do you know if there’s any overlap with this and hEDS and/or MCAS?
My PT sent me this ( doi.org/10.26603/001... ) when she got the journal, because with hEDS, and non-COVID-related POTS (secondary to CIDP a long time ago,) and MCAS, rehabbing after anything is a nightmare.
My PT sent me this ( doi.org/10.26603/001... ) when she got the journal, because with hEDS, and non-COVID-related POTS (secondary to CIDP a long time ago,) and MCAS, rehabbing after anything is a nightmare.
Reposted by Carrie King
“Woman Murdered By Pro Life Movement”
November 26, 2024 at 2:33 AM
“Woman Murdered By Pro Life Movement”
Reposted by Carrie King
You’re not violating a reading rule if you opt not to finish a book that's not resonating with you. Life is finite and we thus have a finite number of books to read. Reading shouldn’t be a chore. You needn’t feel guilty for ensuring that your time reading is spent reading things that you love.
November 27, 2024 at 3:32 AM
You’re not violating a reading rule if you opt not to finish a book that's not resonating with you. Life is finite and we thus have a finite number of books to read. Reading shouldn’t be a chore. You needn’t feel guilty for ensuring that your time reading is spent reading things that you love.
Reposted by Carrie King
I'm definitely using this move 🤣
When your relatives start arguing at Thanksgiving, calmly grab your favorite serving bowl of food like you're going to the kitchen to refill it, and just don't come back. Quietly escape with your favorite food.
This has been survival tips with Jen.
This has been survival tips with Jen.
November 27, 2024 at 7:38 AM
I'm definitely using this move 🤣
This looks promising!
Find Answers Faster via The New EDS411 Living Library - here to help you wade through the vast sea of EDS information to be found on the internet and social media:
https://buff.ly/3XzMcQF
#EDS #EhlersDanlosSyndrome #hEDS #HSD #Hypermobility #MedEd #NEISvoid #Zebras
https://buff.ly/3XzMcQF
#EDS #EhlersDanlosSyndrome #hEDS #HSD #Hypermobility #MedEd #NEISvoid #Zebras
Find Answers Faster: The EDS411 Living Library – EDSAwareness.com
The new hyperlink hub of resources enables Ehlers-Danlos syndrome (EDS) patients to take control of their health with access to searchable, credible insights by keyword or category. Knowledge is a…
buff.ly
November 28, 2024 at 4:43 PM
This looks promising!
This is so important. Recognizing these connections in young patients can hopefully allow for proactive treatment and ensure better long term outcomes.
New Research Study Finds Everything is Connected, As Many Patients Suspected
https://buff.ly/3YLItPq
#EDS #hEDS #Hypermobility #HSD #Fibromyalgia #POTS #Dysautonomia #IBS #MCAS #MCD #MedEd #MedTwitter #Doctors #Nurses #NEISvoid #Chiari #CCI #Zebras
https://buff.ly/3YLItPq
#EDS #hEDS #Hypermobility #HSD #Fibromyalgia #POTS #Dysautonomia #IBS #MCAS #MCD #MedEd #MedTwitter #Doctors #Nurses #NEISvoid #Chiari #CCI #Zebras
New Research Study Finds Everything is Connected, As Many Patients Suspected – EDSAwareness.com
New hypermobile EDS research shows insurers the costly data behind unrecognized patient care.
buff.ly
November 25, 2024 at 5:28 AM
This is so important. Recognizing these connections in young patients can hopefully allow for proactive treatment and ensure better long term outcomes.