@bianca0728.bsky.social
Reposted
Imagine being 34, living with stage IV lung cancer, and raising two little boys who just want to be kids.
Ashley isn’t just navigating her diagnosis.. she’s working every day to protect their sense of normal.
What helps her? Therapy and a shift in perspective.. 🤍
#lcsm #lungcancer #cancervlog
Ashley isn’t just navigating her diagnosis.. she’s working every day to protect their sense of normal.
What helps her? Therapy and a shift in perspective.. 🤍
#lcsm #lungcancer #cancervlog
March 31, 2025 at 4:55 PM
Imagine being 34, living with stage IV lung cancer, and raising two little boys who just want to be kids.
Ashley isn’t just navigating her diagnosis.. she’s working every day to protect their sense of normal.
What helps her? Therapy and a shift in perspective.. 🤍
#lcsm #lungcancer #cancervlog
Ashley isn’t just navigating her diagnosis.. she’s working every day to protect their sense of normal.
What helps her? Therapy and a shift in perspective.. 🤍
#lcsm #lungcancer #cancervlog
Reposted
More tragic news about NIH and NIH science. Grant system is frozen and intramural program is being slashed. All will claw back on treatments and cures for cancer and other human diseases. This can’t be what the public wants. 🧪 www.science.org/content/arti...
NIH ban on renewing senior scientists adds to assaults on its in-house research
Policy follows firings of tenure-track scientists and suspension of training programs
www.science.org
February 27, 2025 at 10:05 AM
More tragic news about NIH and NIH science. Grant system is frozen and intramural program is being slashed. All will claw back on treatments and cures for cancer and other human diseases. This can’t be what the public wants. 🧪 www.science.org/content/arti...
Reposted
📢 New on the YLCI Substack!
One of our incredible community members, Kristen , shares a personal reflection on parenting with lung cancer.
Her words are raw, honest, and filled with wisdom that so many in our community can relate to 🤍
Read here: open.substack.com/pub/younglun...
One of our incredible community members, Kristen , shares a personal reflection on parenting with lung cancer.
Her words are raw, honest, and filled with wisdom that so many in our community can relate to 🤍
Read here: open.substack.com/pub/younglun...
February 18, 2025 at 9:22 PM
📢 New on the YLCI Substack!
One of our incredible community members, Kristen , shares a personal reflection on parenting with lung cancer.
Her words are raw, honest, and filled with wisdom that so many in our community can relate to 🤍
Read here: open.substack.com/pub/younglun...
One of our incredible community members, Kristen , shares a personal reflection on parenting with lung cancer.
Her words are raw, honest, and filled with wisdom that so many in our community can relate to 🤍
Read here: open.substack.com/pub/younglun...
Reposted
Following in the footsteps of our amazing leader @narjustflorezmd.bsky.social , we’re excited to take a deeper dive into our recent #YLC publication: "Understanding Young Lung Cancer – The Time Is Now!" 🔍💡 Its time for our favorite #threadtime @younglungcancer.bsky.social
a man in a suit and tie says oh my god
ALT: a man in a suit and tie says oh my god
media.tenor.com
February 26, 2025 at 8:47 PM
Following in the footsteps of our amazing leader @narjustflorezmd.bsky.social , we’re excited to take a deeper dive into our recent #YLC publication: "Understanding Young Lung Cancer – The Time Is Now!" 🔍💡 Its time for our favorite #threadtime @younglungcancer.bsky.social
Reposted
Our community is mourning the loss of Bernie 💔🤍 Please keep his family in your thoughts.
#lungcancer #lcsm #cancer
#lungcancer #lcsm #cancer
February 19, 2025 at 5:47 PM
Our community is mourning the loss of Bernie 💔🤍 Please keep his family in your thoughts.
#lungcancer #lcsm #cancer
#lungcancer #lcsm #cancer
Reposted
#AI, #wearables & tech are transforming healthcare. How can we embrace these to accelerate #clinicaltrials? How can we make sure these benefit patients?
Hear our Co-founder @yvonnediaz.bsky.social discuss cancer patients hopes and fears on this topic👇
📺 youtu.be/5YwAnCdl4eA?...
#LCSM #lungcancer
Hear our Co-founder @yvonnediaz.bsky.social discuss cancer patients hopes and fears on this topic👇
📺 youtu.be/5YwAnCdl4eA?...
#LCSM #lungcancer
January 15, 2025 at 7:26 PM
#AI, #wearables & tech are transforming healthcare. How can we embrace these to accelerate #clinicaltrials? How can we make sure these benefit patients?
Hear our Co-founder @yvonnediaz.bsky.social discuss cancer patients hopes and fears on this topic👇
📺 youtu.be/5YwAnCdl4eA?...
#LCSM #lungcancer
Hear our Co-founder @yvonnediaz.bsky.social discuss cancer patients hopes and fears on this topic👇
📺 youtu.be/5YwAnCdl4eA?...
#LCSM #lungcancer
Reposted
An easy way to share some important facts about lung cancer in young adults (part 1)! Learn even more about our community of young patients & our initiative at YlCI.org #LCSM #younglungcancer
January 24, 2025 at 2:38 PM
An easy way to share some important facts about lung cancer in young adults (part 1)! Learn even more about our community of young patients & our initiative at YlCI.org #LCSM #younglungcancer
Reposted
One of the hazards of having stage 4 #cancer (in my case lung cancer) is you get a lot of well-intentioned, unsolicited advice. My best advice has come from other patients & books. Here are some words that have stayed with me.
What about our @thankscancer.bsky.social fam? Which words have stayed?
What about our @thankscancer.bsky.social fam? Which words have stayed?
January 25, 2025 at 1:47 PM
One of the hazards of having stage 4 #cancer (in my case lung cancer) is you get a lot of well-intentioned, unsolicited advice. My best advice has come from other patients & books. Here are some words that have stayed with me.
What about our @thankscancer.bsky.social fam? Which words have stayed?
What about our @thankscancer.bsky.social fam? Which words have stayed?
Reposted
Haley was diagnosed with stage 4 EGFR lung cancer at 37 yrs old. In this episode, Haley opens up about her diagnosis journey, undergoing surgery as a stage 4 patient at MD Anderson, her mental health struggles, and more.
Watch the episode here: youtu.be/4cf9nh6M1Nc?...
#lcsm #cancer #cancersucks
Watch the episode here: youtu.be/4cf9nh6M1Nc?...
#lcsm #cancer #cancersucks
Diagnosed with lung cancer: the LAST THING Haley expected!
YouTube video by Young Lung Cancer Initiative
youtu.be
December 17, 2024 at 3:33 PM
Haley was diagnosed with stage 4 EGFR lung cancer at 37 yrs old. In this episode, Haley opens up about her diagnosis journey, undergoing surgery as a stage 4 patient at MD Anderson, her mental health struggles, and more.
Watch the episode here: youtu.be/4cf9nh6M1Nc?...
#lcsm #cancer #cancersucks
Watch the episode here: youtu.be/4cf9nh6M1Nc?...
#lcsm #cancer #cancersucks
Reposted
Can gender & genetics impact alectinib tox? @jtoonline.bsky.social
- 215pts with ALK+ NSCLC
- women had ⬆️g3+ tox (f v m: 56% v 34% p=0.001), 35% had ⬆️trough levels p<0.001
- Pts with SNP affecting alectinib metabolism (PPAR-α 209G>A) had ⬆️g3+ tox
#Medsky #Oncsky #LCSM
www.jto.org/article/S155...
- 215pts with ALK+ NSCLC
- women had ⬆️g3+ tox (f v m: 56% v 34% p=0.001), 35% had ⬆️trough levels p<0.001
- Pts with SNP affecting alectinib metabolism (PPAR-α 209G>A) had ⬆️g3+ tox
#Medsky #Oncsky #LCSM
www.jto.org/article/S155...
Sex and common germline variants impact the toxicity profile and pharmacokinetics of alectinib: a nation-wide cohort study in patients with ALK-positive non-small cell lung cancer
Alectinib, a small-molecule kinase inhibitor, is used as first-line treatment for anaplastic lymphoma kinase–positive (ALK+) non-small cell lung cancer (NSCLC). Albeit generally well-tolerated, a considerable subset of patients requires dose adjustments due to drug-related toxicity. Single-nucleotide polymorphisms (SNPs) in genes related to the metabolism of alectinib may upfront identify patients at risk for toxicity.
www.jto.org
December 9, 2024 at 8:46 PM
Can gender & genetics impact alectinib tox? @jtoonline.bsky.social
- 215pts with ALK+ NSCLC
- women had ⬆️g3+ tox (f v m: 56% v 34% p=0.001), 35% had ⬆️trough levels p<0.001
- Pts with SNP affecting alectinib metabolism (PPAR-α 209G>A) had ⬆️g3+ tox
#Medsky #Oncsky #LCSM
www.jto.org/article/S155...
- 215pts with ALK+ NSCLC
- women had ⬆️g3+ tox (f v m: 56% v 34% p=0.001), 35% had ⬆️trough levels p<0.001
- Pts with SNP affecting alectinib metabolism (PPAR-α 209G>A) had ⬆️g3+ tox
#Medsky #Oncsky #LCSM
www.jto.org/article/S155...
Reposted
Thanks, Dr. Eric Singhi @lungoncdoc.bsky.social, for putting together this compilation of all the 2024 FDA #lungcancer approvals! Progress is real! #LCSM
December 10, 2024 at 11:30 PM
Thanks, Dr. Eric Singhi @lungoncdoc.bsky.social, for putting together this compilation of all the 2024 FDA #lungcancer approvals! Progress is real! #LCSM
Reposted
Link to the webinar: youtu.be/TAwAvl5so1M?...
The Shifting Paradigm in Metastatic Oncogene Driven NonSmall Cell Lung Cancer: Is Surgery an Option?
YouTube video by Young Lung Cancer Initiative
youtu.be
December 12, 2024 at 2:46 AM
Link to the webinar: youtu.be/TAwAvl5so1M?...
Reposted
Leah moderated a webinar for YLCI &EGFR Resisters with surgeon Dr Antonoff and oncologist Dr Gay.. this lead to the opportunity to have surgery with stage IV lung cancer. Since this webinar, many patients have gone to see Dr Antonoff for a second opinion 🤍
www.mdanderson.org/cancerwise/s...
www.mdanderson.org/cancerwise/s...
December 12, 2024 at 2:45 AM
Leah moderated a webinar for YLCI &EGFR Resisters with surgeon Dr Antonoff and oncologist Dr Gay.. this lead to the opportunity to have surgery with stage IV lung cancer. Since this webinar, many patients have gone to see Dr Antonoff for a second opinion 🤍
www.mdanderson.org/cancerwise/s...
www.mdanderson.org/cancerwise/s...
Reposted
Living with lung cancer isn’t just about battling a disease; it’s about navigating an entirely different reality. These quotes are a glimpse into the struggles, fears, and uncertainties faced by those living with young lung cancer every day. 💔
#LivingWithLungCancer #CancerAdvocacy #lcsm
#LivingWithLungCancer #CancerAdvocacy #lcsm
December 10, 2024 at 11:12 PM
Living with lung cancer isn’t just about battling a disease; it’s about navigating an entirely different reality. These quotes are a glimpse into the struggles, fears, and uncertainties faced by those living with young lung cancer every day. 💔
#LivingWithLungCancer #CancerAdvocacy #lcsm
#LivingWithLungCancer #CancerAdvocacy #lcsm
Reposted
Linda (35), diagnosed with stage 4 EGFR lung cancer ~16 mnths ago, shares a devastating update. For months before her diagnosis, she went to drs multiple times with worsening symptoms but was dismissed. Earlier detection might have changed her prognosis. WE NEED TO DO BETTER!
#lungcancer #lcsm
#lungcancer #lcsm
December 4, 2024 at 5:59 PM
Linda (35), diagnosed with stage 4 EGFR lung cancer ~16 mnths ago, shares a devastating update. For months before her diagnosis, she went to drs multiple times with worsening symptoms but was dismissed. Earlier detection might have changed her prognosis. WE NEED TO DO BETTER!
#lungcancer #lcsm
#lungcancer #lcsm
Reposted
December 3, 2024 at 2:06 PM
Reposted
This #GivingTuesday, your support helps fund YLCI’s projects:
1️⃣ Advocacy gifts for patients sharing their stories
2️⃣ Care packages for the newly diagnosed
3️⃣ Quality of life support
4️⃣Financial assistance for unexpected hardships
5️⃣ Bereavement outreach
Donate here: givebutter.com/YLCIGT24
1️⃣ Advocacy gifts for patients sharing their stories
2️⃣ Care packages for the newly diagnosed
3️⃣ Quality of life support
4️⃣Financial assistance for unexpected hardships
5️⃣ Bereavement outreach
Donate here: givebutter.com/YLCIGT24
December 2, 2024 at 3:24 PM
This #GivingTuesday, your support helps fund YLCI’s projects:
1️⃣ Advocacy gifts for patients sharing their stories
2️⃣ Care packages for the newly diagnosed
3️⃣ Quality of life support
4️⃣Financial assistance for unexpected hardships
5️⃣ Bereavement outreach
Donate here: givebutter.com/YLCIGT24
1️⃣ Advocacy gifts for patients sharing their stories
2️⃣ Care packages for the newly diagnosed
3️⃣ Quality of life support
4️⃣Financial assistance for unexpected hardships
5️⃣ Bereavement outreach
Donate here: givebutter.com/YLCIGT24
Reposted
Today’s the last day of #LCAM But for those of us living w #lungcancer, everyday is a day to create more awareness & advocate for more research.
These faces inspire us to advocate for research. It brings us hope. Thanks for being a part of that hope. Tx for the collab @younglungcancer.bsky.social
These faces inspire us to advocate for research. It brings us hope. Thanks for being a part of that hope. Tx for the collab @younglungcancer.bsky.social
For these faces.. #lungcancer awareness doesn’t end at the flip of the calendar- it is their daily lives.
#lcam #lcsm @oncogenecancer.bsky.social
#lcam #lcsm @oncogenecancer.bsky.social
November 30, 2024 at 5:09 PM
Today’s the last day of #LCAM But for those of us living w #lungcancer, everyday is a day to create more awareness & advocate for more research.
These faces inspire us to advocate for research. It brings us hope. Thanks for being a part of that hope. Tx for the collab @younglungcancer.bsky.social
These faces inspire us to advocate for research. It brings us hope. Thanks for being a part of that hope. Tx for the collab @younglungcancer.bsky.social
Reposted
For these faces.. #lungcancer awareness doesn’t end at the flip of the calendar- it is their daily lives.
#lcam #lcsm @oncogenecancer.bsky.social
#lcam #lcsm @oncogenecancer.bsky.social
November 30, 2024 at 2:53 PM
For these faces.. #lungcancer awareness doesn’t end at the flip of the calendar- it is their daily lives.
#lcam #lcsm @oncogenecancer.bsky.social
#lcam #lcsm @oncogenecancer.bsky.social
Reposted
Hannah never imagined she’d be campaigning for #lungcancer research. This changed four yrs ago when her sister Amy was diagnosed w stage 4 ALK+ at just 20.
“Amy’s fight isn’t just hers, it’s ours.” Hannah feels that way about the entire LC community.
#LCAM #research @younglungcancer.bsky.social
“Amy’s fight isn’t just hers, it’s ours.” Hannah feels that way about the entire LC community.
#LCAM #research @younglungcancer.bsky.social
November 24, 2024 at 11:42 AM
Hannah never imagined she’d be campaigning for #lungcancer research. This changed four yrs ago when her sister Amy was diagnosed w stage 4 ALK+ at just 20.
“Amy’s fight isn’t just hers, it’s ours.” Hannah feels that way about the entire LC community.
#LCAM #research @younglungcancer.bsky.social
“Amy’s fight isn’t just hers, it’s ours.” Hannah feels that way about the entire LC community.
#LCAM #research @younglungcancer.bsky.social
Reposted
The Faces of Young Lung Cancer section on our website (YLCI.org) is very powerful. Please take a moment to check out some of the faces of young lung cancer.
#lcam #lcsm #cancerfighter
ylci.org/faces-of-ylc...
@narjustflorezmd.bsky.social @oncogenecancer.bsky.social
#lcam #lcsm #cancerfighter
ylci.org/faces-of-ylc...
@narjustflorezmd.bsky.social @oncogenecancer.bsky.social
Faces of YLC - Young Lung Cancer Initiative
the many faces of young lung cancer Submit Your Own Amanda Diagnosed at 36 California AMY Diagnosed at 42 TEXAS Amy Diagnosed at 48 North Carolina Amy Diagnosed at 46 Pennsylvania Andrea Diagnosed at ...
ylci.org
November 24, 2024 at 6:27 PM
The Faces of Young Lung Cancer section on our website (YLCI.org) is very powerful. Please take a moment to check out some of the faces of young lung cancer.
#lcam #lcsm #cancerfighter
ylci.org/faces-of-ylc...
@narjustflorezmd.bsky.social @oncogenecancer.bsky.social
#lcam #lcsm #cancerfighter
ylci.org/faces-of-ylc...
@narjustflorezmd.bsky.social @oncogenecancer.bsky.social