Young Lung Cancer Initiative
younglungcancer.bsky.social
Young Lung Cancer Initiative
@younglungcancer.bsky.social
A division of a 501(c)(3) organization aimed at creating visibility, empowerment, and hope for young adults diagnosed with lung cancer before the age of 50. YLCI.org
Our community mourns the loss of Chad, who lived with RET+ lung cancer for 2.5 years. He loved deeply, lifted others and faced every setback with courage. His passing is a heartbreaking reminder: we still have a long way to go. Chad deserved more time. #LungCancerAwareness
June 30, 2025 at 3:15 PM
Reposted by Young Lung Cancer Initiative
Insightful discussion of targeting HER3 by @lilliansiu.bsky.social at #ASCO25
May 30, 2025 at 8:43 PM
Our 3-part KRAS patient education series is here!
Dr. Negrao from MD Anderson breaks down KRAS in lung cancer:
1.What KRAS is & why it matters
2.Current treatments
3.What’s next: clinical trials & hope

Watch all 3 episodes here 🔗 youtu.be/yrseF-CxTVw?si…#lcsms#krasa#lungcancerer
PT 1 LUNG CANCER AND KRAS MUTATIONS: WHAT PATIENTS NEED TO KNOW | DR NEGRAO, THORACIC ONCOLOGIST
YouTube video by Young Lung Cancer Initiative
https://youtu.be/yrseF-CxTVw?si…
April 21, 2025 at 4:36 PM
Reposted by Young Lung Cancer Initiative
Telling people you have cancer is one of the worst parts. It makes it real in those early days when you are only coming to terms yourself.

Probably telling the kids is the worst convo of all. Appreciate this conversation w/ @younglungcancer.bsky.social as part of @oncogenecancer.bsky.social #LCSM
April 6, 2025 at 11:52 AM
Imagine being 34, living with stage IV lung cancer, and raising two little boys who just want to be kids.
Ashley isn’t just navigating her diagnosis.. she’s working every day to protect their sense of normal.
What helps her? Therapy and a shift in perspective.. 🤍

#lcsm #lungcancer #cancervlog
March 31, 2025 at 4:55 PM
Reposted by Young Lung Cancer Initiative
In 2021 I assumed my cough was from allergies & my chest pressure was work stress.

It was stage 4 #lungcancer. An x-ray & biomarker testing saved my life. Had no idea that anyone can get lung cancer.

📺 interview from @younglungcancer.bsky.social 👉https://youtu.be/S50UEv81kS0?si=rixipm5FYbvOmpNx 🤍
March 14, 2025 at 8:19 AM
Reposted by Young Lung Cancer Initiative
We need to organize--let’s help each other.

NIH is cancelling grants, but it's not clear exactly what they're cancelling and why. Without this information, we can't respond.

I've started a Google Sheet to track grant cancellations.

Please add any canceled grants you know of and spread the word!
March 7, 2025 at 8:25 PM
Reposted by Young Lung Cancer Initiative
‪Scott Delaney‬‬ ‪@scott-delaney.bsky.social‬‬
NIH is cancelling grants, but it's not clear exactly what they're cancelling and why. I've started a Google Sheet to track grant cancellations. Add any canceled grants you know of and spread the word!
docs.google.com/spreadsheets...
Rescinded NIH & NSF Grants
docs.google.com
March 12, 2025 at 1:16 AM
📢 What's new on the YLCI Substack? Teri, one of our amazing community members, shares her story of facing a lung cancer diagnosis and redefining YOLO.

Read here ➡️ open.substack.com/pub/younglun...
March 6, 2025 at 4:32 PM
Reposted by Young Lung Cancer Initiative
Look what just arrived! 📬🎉 Our copy of the Boston Business Journal is here, and guess who’s front and center in the Up Front section? 👀✨
March 6, 2025 at 4:19 PM
Reposted by Young Lung Cancer Initiative
Studying Young Lung Cancer Since 2018

@younglungcancer.bsky.social
February 27, 2025 at 11:12 PM
Comprehensive characterization of early-onset lung cancer, in Chinese young adults

www.nature.com/articles/s41...
February 27, 2025 at 1:53 PM
Reposted by Young Lung Cancer Initiative
Following in the footsteps of our amazing leader @narjustflorezmd.bsky.social , we’re excited to take a deeper dive into our recent #YLC publication: "Understanding Young Lung Cancer – The Time Is Now!" 🔍💡 Its time for our favorite #threadtime @younglungcancer.bsky.social
a man in a suit and tie says oh my god
ALT: a man in a suit and tie says oh my god
media.tenor.com
February 26, 2025 at 8:47 PM
Sometimes you really don’t know what you’ve got until it’s gone 🫁🤍🎗️
#cancer #lungcancer #lcsm
February 22, 2025 at 7:17 PM
Reposted by Young Lung Cancer Initiative
At the Florez Lab, we don’t just study YLC—we make sure the world hears about it. Through academic papers, media articles, conference interviews, and social media, we are constantly pushing to make
@younglungcancer.bsky.social
known. 📢
February 21, 2025 at 10:02 PM
Our community is mourning the loss of Bernie 💔🤍 Please keep his family in your thoughts.

#lungcancer #lcsm #cancer
February 19, 2025 at 5:47 PM
📢 New on the YLCI Substack!

One of our incredible community members, Kristen , shares a personal reflection on parenting with lung cancer.

Her words are raw, honest, and filled with wisdom that so many in our community can relate to 🤍

Read here: open.substack.com/pub/younglun...
February 18, 2025 at 9:22 PM
Check out this video about traveling while living with lung cancer. Incredible insights and tips on how to make traveling easier while on treatment. Target therapy, chemo, immunotherapy, ADCs, and surgery are all covered.

#lungcancer #cancer #travel

youtu.be/pbw5ZkedQQI
Tips for Traveling with Lung Cancer (full video)-YLCI Patient Education
YouTube video by Young Lung Cancer Initiative
youtu.be
February 6, 2025 at 2:24 PM
Case Report: Thoracic SMARCA4-Deficient Undifferentiated Tumor in a 40-Year-Old Male Welder With No Smoking History

www.cureus.com/articles/328...
Thoracic SMARCA4-Deficient Undifferentiated Tumor in a 40-Year-Old Male Welder With No Smoking History
Thoracic SMARCA4-deficient undifferentiated tumor (TSDUT) is a rare and quite new classification of primary pulmonary malignancy. It is classified as a non-small cell lung cancer, typically associated...
www.cureus.com
February 4, 2025 at 9:31 PM
Reposted by Young Lung Cancer Initiative
Behind every #lungcancer diagnosis is a person-unique in their hopes, dreams & fears. Yet we are united in the fight for more research, better care & stronger outcomes.

On #WorldCancerDay, together with @younglungcancer.bsky.social & all we raise our voices together. 🤍

#UnitedByUnique #LCSM
February 4, 2025 at 9:52 AM
Reposted by Young Lung Cancer Initiative
Brain Penetration of ADCs and the Role of Radiation to the Brain in SCLC - 2024 Lung Cancer OncTalk youtu.be/uv34cQ7zCbU?...

In this video, the panel discusses brain penetration of antibody-drug conjugates (ADCs) and the role of radiation to the brain in small cell lung cancer (SCLC).
Brain Penetration of ADCs and the Role of Radiation to the Brain in SCLC - 2024 Lung Cancer OncTalk
YouTube video by GRACE - Global Resource for Advancing Cancer Education
youtu.be
January 30, 2025 at 12:04 AM
Reposted by Young Lung Cancer Initiative
How can we tackle TP53 mutations which are detected in ~ 52% of #NSCLC & are associated with a worse prognosis?

This study suggests that chemo agent gemcitabine could be an effective regimen for treating NSCLC patients with TP53 hotspot mutations.

www.nature.com/articles/s41... #LCSM
Utilizing TP53 hotspot mutations as effective predictors of gemcitabine treatment outcome in non-small-cell lung cancer - Cell Death Discovery
Cell Death Discovery - Utilizing TP53 hotspot mutations as effective predictors of gemcitabine treatment outcome in non-small-cell lung cancer
www.nature.com
January 29, 2025 at 9:44 AM