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oncogenecancer.bsky.social
Oncogene Cancer Research
@oncogenecancer.bsky.social
800 followers 690 following 160 posts
🔬 Advancing Research. Empowering Patients. Championing Advocacy.

We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
Posts Replies Media Videos
oncogenecancer.bsky.social
#LungCancer can turn life upside down – fear, questions, a future that looks different.

This #WorldCancerDay @younglungcancer.bsky.social & OCR honour the people who steady the spin: clinicians, researchers, nurses, fellow patients, families.
Who helps you turn your world downside up.

#LCSM
February 4, 2026 at 2:53 PM
Reposted by Oncogene Cancer Research
oncodaily.bsky.social
Staying Connected with Oncogene Cancer Research - Yvonne Diaz

@yvonnediaz.bsky.social @oncogenecancer.bsky.social

oncodaily.com/voices/yvonn...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
Yvonne Diaz: Staying Connected with Oncogene Cancer Research - OncoDaily
Yvonne Diaz: Staying Connected with Oncogene Cancer Research / cancer, OncoDaily, Oncogene Cancer Research, Oncology, Yvonne Diaz
oncodaily.com
January 26, 2026 at 12:51 AM
oncogenecancer.bsky.social
We believe progress happens when patient voices, medical, research & industry come together.

Subscribe to receive patient stories, practical support & updates from us, shared occasionally & with care.

Join our community here: 👇
oncogenecancerresearch.eo.page/rymgx

#LCSM
Photo of lots of people in a grid - often younger people, smiling, travelling, doing exercise, ordinary days and also in scanning clothes. The text says subscribe now: Be part of a community working to change outcomes in lung cancer. Sign up for patient stories, practical resources, and updates from us. We send occasional emails. You can unsubscribe at any time.
January 24, 2026 at 1:33 PM
oncogenecancer.bsky.social
We’re proud to share our first Annual Report.

In our 1st year, we focused on helping our community live longer & better lives, through empowerment, advocacy & research.

Thank you for walking alongside us. This is just the beginning.

👉 oncogeneresearch.org/annual-report

#LCSM
January 21, 2026 at 10:12 AM
Reposted by Oncogene Cancer Research
princess-vimentin.bsky.social
Some good news!

5 yr survival rates for some hard to treat cancers have increased.

Liver cancer, with a 7% relative survival rate in the 1990s rose to 22%

Lung cancer- 15% to 28%

Myeloma- 32% to 62%

This is in part due to early detection & better treatment.

🧪 www.cancer.org/research/acs...
How 5-year Relative Cancer Survival Rates (%) Changed from 1975 to 2021 Relative survival is a measure of life expectancy among people with cancer compared to that among the general population of the same age, race/ethnicity, and sex. This table shows how the 5-year relative survival rate (%) changed for 12 common cancer types all stages combined over three diagnosis periods. All survival rates improved over time except for cancer of the uterine cervix (cervical cancer) and uterine corpus (endometrial cancer). Source: Cancer Statistics 2026 Slideshow
January 16, 2026 at 11:48 PM
Reposted by Oncogene Cancer Research
thecancersurvivorsclub.com
New hope for small-cell lung cancer. UK Markey Cancer Center treated the first U.S. patient with a next-gen trispecific T-cell engager that may work even when standard therapies stop. A big step forward for patients. nkytribune.com/2026/01/univ... #lungcancer #immunotherapy #oncology #TCSC
University of Kentucky's Markey Cancer Center treats first patient in US with new lung cancer therapy - NKyTribune
By Elizabeth Chapin University of Kentucky The University of Kentucky Markey Cancer Center has treated the first patient in the U.S. with a new immunotherapy for small cell lung cancer, offering hope ...
nkytribune.com
January 18, 2026 at 12:04 PM
oncogenecancer.bsky.social
For people living w #lungcancer, biomarker testing is not an abstract system, it is a lifeline. It shapes treatment, quality of life & time. It’s the beginning of hope.

Pleasure to have our Chair @yvonnediaz.bsky.social represent the patient voice at @thermofishersci.bsky.social European meeting
Six people standing together in a formal old room that is wood panels with slides behind them. Speakers at a conference including Yvonne Diaz of OncogeneCancer research and executives from Thermo Fisher. Also medical oncologist and pathologist.
January 18, 2026 at 12:12 PM
Reposted by Oncogene Cancer Research
lcrf.org
LCRF's Sr. Dir. Research & Administration, Dr. Dhru Deb, explains how early funding for NTRK gene fusion research led to the first targeted therapy for this driver. Our commitment to #LungCancer research continues to make an impact. Read more: LCRF.org/connecting3
January 9, 2026 at 5:31 PM
Reposted by Oncogene Cancer Research
edmonstone.net
Part 3, the last part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social

We discuss brain mets, brain surgery, and their implications for driving in the UK. We also talked about returning to work and then adjusting my life so I can stop working.

youtu.be/yIWw0U2yg5c?...
Duncan on brain surgery, work and redefining life with advanced lung #cancer | #podcast
YouTube video by Oncogene Cancer Research
youtu.be
January 4, 2026 at 5:43 PM
oncogenecancer.bsky.social
A must-read for the ALK+ community.

Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs.

Written for patients & clinicians alike.

oncogeneresearch.org/patient-publis…
This card says “Reserach spotlight”snd features a photograph of Professor Elena Kelnova in a white lab coat. She is a PhD, genetics and living with ALK+ lung cancer. The card says: read Elena‘s published paper designed to help patients and families understand ALK+ lung cancer in clear and empowering terms.
January 11, 2026 at 11:04 AM
Reposted by Oncogene Cancer Research
parademag.bsky.social
The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.
'70s Music Icon Posts Hospital Photo Two Weeks After Cancer Diagnosis
The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.
parade.com
January 3, 2026 at 4:50 PM
oncogenecancer.bsky.social
Months for some.
Years for others.
More than one doctor.
More than one misdiagnosis.

Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”.

Help us change the narrative. Help us create more awareness.

#LCSM
January 3, 2026 at 5:13 PM
oncogenecancer.bsky.social
2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress.

Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us.

Happy new year! #HNY2026
December 31, 2025 at 8:17 PM
oncogenecancer.bsky.social
Not all advanced #lungcancer is the same. And neither are patients.

This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer.

Have a read 👇
www.lungcancerstoday.com/post/the-ias...
December 30, 2025 at 11:12 AM
Reposted by Oncogene Cancer Research
oncodaily.bsky.social
Oncogene Cancer Research - The Part of Caregiving People Don’t Talk About

@oncogenecancer.bsky.social

oncodaily.com/voices/careg...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch
The Part of Caregiving People Don’t Talk About - Oncogene Cancer Research - OncoDaily
The Part of Caregiving People Don’t Talk About - Oncogene Cancer Research / cancer, Lung cancer, OncoDaily, Oncogene Cancer Research, Oncology
oncodaily.com
December 28, 2025 at 7:44 PM
oncogenecancer.bsky.social
Cancer does not pause for the holidays.

For those living with cancer, scans and worries do not stop.

We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes.

Wishing you rest, love, and peace.

#LCSM
December 22, 2025 at 4:56 PM
oncogenecancer.bsky.social
Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM
December 9, 2025 at 12:00 AM
Reposted by Oncogene Cancer Research
edmonstone.net
The 2nd part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social

In this part, I discuss my advocacy work, especially my work with Greater Manchester Cancer Alliance.

We also talk about who inspired me to become a patient advocate, Cameron Millar

youtu.be/8wRLznxVN0U

1/2
Duncan never saw lung #cancer coming. Now he's fighting to change the system. | #podcast
YouTube video by Oncogene Cancer Research
youtu.be
December 7, 2025 at 7:27 PM
oncogenecancer.bsky.social
Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment.

Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others.

🎙️youtube.com/playlist?list=…

#LCSM
December 6, 2025 at 3:23 PM
oncogenecancer.bsky.social
#BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment.

It's why @thermofishersci.bsky.social José Luis Costa believes in continued innovation.

#StoriesOfLungCancer #LCAM25
Photograph of Dr Jose Luis Costa, of Thermo Fisher Scientific. He provides a quote for our lung cancer awareness campaign. He says: We want to see every patient receive the diagnostic that can guide the most precise treatment.
November 30, 2025 at 12:09 PM
Reposted by Oncogene Cancer Research
oncodaily.bsky.social
New Evidence Highlights the Power of the Patient Voice in Oncology - Yan Leyfman

@yleyfman.bsky.social

oncodaily.com/voices/yan-l...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
Yan Leyfman: New Evidence Highlights the Power of the Patient Voice in Oncology - OncoDaily
Yan Leyfman: New Evidence Highlights the Power of the Patient Voice in Oncology / Ali Benour, Andrea Bezjak, Andrew Mihalache, cancer, Carlton Johnny, David
oncodaily.com
November 29, 2025 at 10:48 PM
oncogenecancer.bsky.social
Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality.

As Nuvalent’s Dr Henry Pelish reminds us — let’s keep pushing science’s limits.

#StoriesOfLungCancer #LCAM25
November 29, 2025 at 2:14 PM
Reposted by Oncogene Cancer Research
uclaradiology.bsky.social
Lung cancer causes more deaths than colon, breast & prostate cancers combined. Early detection saves lives.

If you're 50–80 with a smoking history, ask your doctor about a low-dose CT lung screening. bit.ly/487gjDn
November 28, 2025 at 4:42 PM
oncogenecancer.bsky.social
#Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out.

This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed.

Help share to empower & inform more people👇
www.oncogeneresearch.org/biomarker-te...
The image shows a drawing of two women - one a journalist called Sofia and a doctor known as Dr Ana. It says: Biomarker Testing: Watch this new education video. It's all you need to know about lung cancer and biomarker testing. Produced by Thermo Fisher with support from Oncogene Cancer Research.
November 28, 2025 at 4:56 PM
Reposted by Oncogene Cancer Research
ktmuse.bsky.social
Sorry for both of your losses, words cannot replace what was lost😔
This troubling news came out.

www.nbcnews.com/nightly-news...
Troubling rise in young women getting lung cancer
Doctors from around the country say they are seeing more cases of young women with no history of smoking being diagnosed with lung cancer. What’s behind the trend is unclear but the authors of a new s...
www.nbcnews.com
November 26, 2025 at 10:49 AM