Oncogene Cancer Research
@oncogenecancer.bsky.social
🔬 Advancing Research. Empowering Patients. Championing Advocacy.
We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
A decade of progress in #lungcancer treatment shows what’s possible when research, innovation & patient care come together.
Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility.
#StoriesOfLungCancer #LCAM25
Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility.
#StoriesOfLungCancer #LCAM25
November 11, 2025 at 2:28 PM
A decade of progress in #lungcancer treatment shows what’s possible when research, innovation & patient care come together.
Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility.
#StoriesOfLungCancer #LCAM25
Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility.
#StoriesOfLungCancer #LCAM25
Some battles aren’t visible. Jennifer lives w stage 4 #lungcancer—her body fights every day, from fatigue to painful side effects. Yet she keeps going, finding strength in love, small joys, and determination. No one should face this alone. 💙 #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
November 10, 2025 at 10:49 AM
Some battles aren’t visible. Jennifer lives w stage 4 #lungcancer—her body fights every day, from fatigue to painful side effects. Yet she keeps going, finding strength in love, small joys, and determination. No one should face this alone. 💙 #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
Advances in #lungcancer surgery are promising, but innovation must reach real patients. As Prof Eric Lim says, we need progress in practice, not just trials.
Let’s push for thoughtful access, better outcomes & options for those who could benefit.
#LCAM25 #StoriesOfLungCancer
Let’s push for thoughtful access, better outcomes & options for those who could benefit.
#LCAM25 #StoriesOfLungCancer
November 8, 2025 at 10:46 AM
Advances in #lungcancer surgery are promising, but innovation must reach real patients. As Prof Eric Lim says, we need progress in practice, not just trials.
Let’s push for thoughtful access, better outcomes & options for those who could benefit.
#LCAM25 #StoriesOfLungCancer
Let’s push for thoughtful access, better outcomes & options for those who could benefit.
#LCAM25 #StoriesOfLungCancer
Side effects of #lungcancer treatments aren’t always visible, but they’re real & can turn simple tasks into daily battles.
These are just a few from our community. 👇
By talking about the unseen, we build understanding & better care.
#StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
These are just a few from our community. 👇
By talking about the unseen, we build understanding & better care.
#StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
November 7, 2025 at 11:48 AM
Side effects of #lungcancer treatments aren’t always visible, but they’re real & can turn simple tasks into daily battles.
These are just a few from our community. 👇
By talking about the unseen, we build understanding & better care.
#StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
These are just a few from our community. 👇
By talking about the unseen, we build understanding & better care.
#StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
Without clinical trials there will be be no new cancer treatments.
Clinical trials are also not necessarily for when you run out of treatment lines. It’s worth asking questions if a clinical trial may be your best option now. Thank you, Laura for demystifying what goes on. Wishing you the best.
Clinical trials are also not necessarily for when you run out of treatment lines. It’s worth asking questions if a clinical trial may be your best option now. Thank you, Laura for demystifying what goes on. Wishing you the best.
Laura joined a clinical trial — and it completely changed her life.
For her, it wasn’t just about treatment, but living better and feeling like herself again.
Learn more: www.alkpositive.org/clinical-tri...
#MoreResearchMoreTime #HelpFundResearch
For her, it wasn’t just about treatment, but living better and feeling like herself again.
Learn more: www.alkpositive.org/clinical-tri...
#MoreResearchMoreTime #HelpFundResearch
November 5, 2025 at 10:13 AM
Without clinical trials there will be be no new cancer treatments.
Clinical trials are also not necessarily for when you run out of treatment lines. It’s worth asking questions if a clinical trial may be your best option now. Thank you, Laura for demystifying what goes on. Wishing you the best.
Clinical trials are also not necessarily for when you run out of treatment lines. It’s worth asking questions if a clinical trial may be your best option now. Thank you, Laura for demystifying what goes on. Wishing you the best.
Reposted by Oncogene Cancer Research
For Summer, more time means more chances to cheer for her family—under the Friday night lights and beyond. Your support of ALK Positive helps make moments like these possible.
Donate today and fund tomorrow's breakthroughs: secure.qgiv.com/event/lcam25...
#MoreResearchMoreTime
Donate today and fund tomorrow's breakthroughs: secure.qgiv.com/event/lcam25...
#MoreResearchMoreTime
November 4, 2025 at 10:00 PM
For Summer, more time means more chances to cheer for her family—under the Friday night lights and beyond. Your support of ALK Positive helps make moments like these possible.
Donate today and fund tomorrow's breakthroughs: secure.qgiv.com/event/lcam25...
#MoreResearchMoreTime
Donate today and fund tomorrow's breakthroughs: secure.qgiv.com/event/lcam25...
#MoreResearchMoreTime
Fatigue in #lungcancer isn’t just “being tired.” It can feel like your body has turned to stone. It’s invisible to others & overwhelming to live through.
By talking about it, we push for better support, care & understanding.
@younglungcancer.bsky.social
#StoriesOfLungCancer #LCAM25
By talking about it, we push for better support, care & understanding.
@younglungcancer.bsky.social
#StoriesOfLungCancer #LCAM25
November 5, 2025 at 10:08 AM
Fatigue in #lungcancer isn’t just “being tired.” It can feel like your body has turned to stone. It’s invisible to others & overwhelming to live through.
By talking about it, we push for better support, care & understanding.
@younglungcancer.bsky.social
#StoriesOfLungCancer #LCAM25
By talking about it, we push for better support, care & understanding.
@younglungcancer.bsky.social
#StoriesOfLungCancer #LCAM25
Research isn’t separate from care - it is care.
As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope.
Support research. Share stories. Drive change.
#StoriesOfLungCancer #LCAM25 @btog.bsky.social
As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope.
Support research. Share stories. Drive change.
#StoriesOfLungCancer #LCAM25 @btog.bsky.social
November 3, 2025 at 12:12 PM
Research isn’t separate from care - it is care.
As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope.
Support research. Share stories. Drive change.
#StoriesOfLungCancer #LCAM25 @btog.bsky.social
As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope.
Support research. Share stories. Drive change.
#StoriesOfLungCancer #LCAM25 @btog.bsky.social
Reposted by Oncogene Cancer Research
From every corner of the world, #lungcancer knows no borders.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
November 1, 2025 at 12:58 PM
From every corner of the world, #lungcancer knows no borders.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
From every corner of the world, #lungcancer knows no borders.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
November 1, 2025 at 12:58 PM
From every corner of the world, #lungcancer knows no borders.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.
These not only connect us across borders, but help us push for better research, care & more time for what matters.
No symptoms. No warning. Just one seizure.
Duncan was 49 and healthy when he learned he had stage 4 lung cancer.
🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters.
@edmonstone.net
youtu.be/FZsbfkloPyM?...
#lcsm
Duncan was 49 and healthy when he learned he had stage 4 lung cancer.
🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters.
@edmonstone.net
youtu.be/FZsbfkloPyM?...
#lcsm
October 27, 2025 at 12:54 PM
No symptoms. No warning. Just one seizure.
Duncan was 49 and healthy when he learned he had stage 4 lung cancer.
🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters.
@edmonstone.net
youtu.be/FZsbfkloPyM?...
#lcsm
Duncan was 49 and healthy when he learned he had stage 4 lung cancer.
🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters.
@edmonstone.net
youtu.be/FZsbfkloPyM?...
#lcsm
Reposted by Oncogene Cancer Research
In the hours after my lobectomy for stage 4 #lungcancer in Apr 2023, I'd never heard of the #NorthStar clinical trial. So, I'm feeling, 'hey, that's just like me,' as I try to decipher the findings just released at #ESMO25. Here's what they found....
October 18, 2025 at 12:40 PM
In the hours after my lobectomy for stage 4 #lungcancer in Apr 2023, I'd never heard of the #NorthStar clinical trial. So, I'm feeling, 'hey, that's just like me,' as I try to decipher the findings just released at #ESMO25. Here's what they found....
Reposted by Oncogene Cancer Research
This morning’s DeLLphi presentation @myesmo.bsky.social brings so much hope to our #lungcancer community. Love seeing fresh hope for those with small cell lung cancer. #ESMO25
October 18, 2025 at 7:49 AM
This morning’s DeLLphi presentation @myesmo.bsky.social brings so much hope to our #lungcancer community. Love seeing fresh hope for those with small cell lung cancer. #ESMO25
Real people. Real diagnoses. Real impact.
Our Patient Voices Podcast shares powerful first-hand stories from people living with oncogene-driven lung cancer — from misdiagnosis and treatment to fear, resilience & hope.
🎧 Subscribe and listen to voices you won’t forget.
🔗 youtube.com/playlist?lis...
Our Patient Voices Podcast shares powerful first-hand stories from people living with oncogene-driven lung cancer — from misdiagnosis and treatment to fear, resilience & hope.
🎧 Subscribe and listen to voices you won’t forget.
🔗 youtube.com/playlist?lis...
October 18, 2025 at 7:40 AM
Real people. Real diagnoses. Real impact.
Our Patient Voices Podcast shares powerful first-hand stories from people living with oncogene-driven lung cancer — from misdiagnosis and treatment to fear, resilience & hope.
🎧 Subscribe and listen to voices you won’t forget.
🔗 youtube.com/playlist?lis...
Our Patient Voices Podcast shares powerful first-hand stories from people living with oncogene-driven lung cancer — from misdiagnosis and treatment to fear, resilience & hope.
🎧 Subscribe and listen to voices you won’t forget.
🔗 youtube.com/playlist?lis...
Reposted by Oncogene Cancer Research
Oncogene Cancer Research Launched the Patient Voices Podcast: Stories and Hope in Lung Cancer
@oncogenecancer.bsky.social
oncodaily.com/insight/onco...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch #LungCancer
@oncogenecancer.bsky.social
oncodaily.com/insight/onco...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch #LungCancer
Oncogene Cancer Research Launched the Patient Voices Podcast: Stories and Hope in Lung Cancer - OncoDaily
Oncogene Cancer Research Launched the Patient Voices Podcast: Stories and Hope in Lung Cancer / cancer, OncoDaily, Oncogene Cancer Research, Oncology
oncodaily.com
August 26, 2025 at 9:35 PM
Oncogene Cancer Research Launched the Patient Voices Podcast: Stories and Hope in Lung Cancer
@oncogenecancer.bsky.social
oncodaily.com/insight/onco...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch #LungCancer
@oncogenecancer.bsky.social
oncodaily.com/insight/onco...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch #LungCancer
Proud to be part of this important conversation on cancer-related cachexia on today - the first ever Cancer Cachexia Awareness Day. Be sure to tune in today at 13.30 ET/1830 UK.
Not too late to register: reg.eventmobi.com/ilcsc2025
@lungevity.bsky.social @cancercachexia.bsky.social 👇
Not too late to register: reg.eventmobi.com/ilcsc2025
@lungevity.bsky.social @cancercachexia.bsky.social 👇
September 26, 2025 at 9:18 AM
Proud to be part of this important conversation on cancer-related cachexia on today - the first ever Cancer Cachexia Awareness Day. Be sure to tune in today at 13.30 ET/1830 UK.
Not too late to register: reg.eventmobi.com/ilcsc2025
@lungevity.bsky.social @cancercachexia.bsky.social 👇
Not too late to register: reg.eventmobi.com/ilcsc2025
@lungevity.bsky.social @cancercachexia.bsky.social 👇
Today is the first #CancerCachexiaAwarenessDay
Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will.
Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM
Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will.
Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM
September 26, 2025 at 9:16 AM
Today is the first #CancerCachexiaAwarenessDay
Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will.
Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM
Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will.
Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM
Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN.
Sign up 👇
reg.eventmobi.com/ilcsc2025/regi…#LCSMSM
Sign up 👇
reg.eventmobi.com/ilcsc2025/regi…#LCSMSM
September 16, 2025 at 9:44 AM
Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN.
Sign up 👇
reg.eventmobi.com/ilcsc2025/regi…#LCSMSM
Sign up 👇
reg.eventmobi.com/ilcsc2025/regi…#LCSMSM
Reposted by Oncogene Cancer Research
After three years I feel ready to enter a new phase of patient empowerment by publicly disclosing my own disgnosis. This went live today and all good. news.cuanschutz.edu/cancer-cente...
World Lung Cancer Expert Diagnosed with Advanced Lung Cancer
D. Ross Camidge, MD, PhD, has spent his career fighting lung cancer. In 2022, that fight turned personal when he received a diagnosis of his own.
news.cuanschutz.edu
September 8, 2025 at 4:01 PM
After three years I feel ready to enter a new phase of patient empowerment by publicly disclosing my own disgnosis. This went live today and all good. news.cuanschutz.edu/cancer-cente...
Reposted by Oncogene Cancer Research
Congratulations to friends at Nuvalent on the exciting and pivotal #ARROS1 data released @iaslc.bsky.social #WCLC25. Proud to continue to collaborate on outcomes for our patient community globally. 💙
#LCSM
#LCSM
September 10, 2025 at 8:40 PM
Congratulations to friends at Nuvalent on the exciting and pivotal #ARROS1 data released @iaslc.bsky.social #WCLC25. Proud to continue to collaborate on outcomes for our patient community globally. 💙
#LCSM
#LCSM
Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer.
Check it out👇📷
static1.squarespace.com/static/65ca0...
#LCSM
Check it out👇📷
static1.squarespace.com/static/65ca0...
#LCSM
September 5, 2025 at 12:54 PM
Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer.
Check it out👇📷
static1.squarespace.com/static/65ca0...
#LCSM
Check it out👇📷
static1.squarespace.com/static/65ca0...
#LCSM
Reposted by Oncogene Cancer Research
FDA Begins Real-Time Reporting of Adverse Event Data
@fda.gov
oncodaily.com/voices/adver...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #FDA #AdverseEvents #AEs #FAERS
@fda.gov
oncodaily.com/voices/adver...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #FDA #AdverseEvents #AEs #FAERS
FDA Begins Real-Time Reporting of Adverse Event Data - OncoDaily
FDA Begins Real-Time Reporting of Adverse Event Data / cancer, FAERS, FDA, FDA Adverse Event Reporting System, OncoDaily, Oncology, public health
oncodaily.com
August 24, 2025 at 10:06 PM
FDA Begins Real-Time Reporting of Adverse Event Data
@fda.gov
oncodaily.com/voices/adver...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #FDA #AdverseEvents #AEs #FAERS
@fda.gov
oncodaily.com/voices/adver...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #FDA #AdverseEvents #AEs #FAERS
We’ve launched the Patient Voices Podcast: Stories & Hope in Lung Cancer!
Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies.
🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc
#LCSM
Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies.
🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc
#LCSM
August 25, 2025 at 3:01 PM
We’ve launched the Patient Voices Podcast: Stories & Hope in Lung Cancer!
Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies.
🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc
#LCSM
Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies.
🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc
#LCSM
Reposted by Oncogene Cancer Research
Oncogene Cancer Research - Erin and Chloe Raise £800 for Lung Cancer Research
@oncogenecancer.bsky.social
oncodaily.com/positive/eri...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer
@oncogenecancer.bsky.social
oncodaily.com/positive/eri...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer
Erin and Chloe Raise £800 for Lung Cancer Research - Oncogene Cancer Research - OncoDaily
Erin and Chloe Raise £800 for Lung Cancer Research - Oncogene Cancer Research / Bath Two Tunnels 10K, cancer, Lung cancer, OncoDaily, Oncogene Cancer
oncodaily.com
August 19, 2025 at 1:12 AM
Oncogene Cancer Research - Erin and Chloe Raise £800 for Lung Cancer Research
@oncogenecancer.bsky.social
oncodaily.com/positive/eri...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer
@oncogenecancer.bsky.social
oncodaily.com/positive/eri...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer
Being diagnosed w #cancer shouldn’t mean losing your rights at work.
This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis.
🎥 Watch here: youtube.com/playlist?lis...
#LCSM
This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis.
🎥 Watch here: youtube.com/playlist?lis...
#LCSM
August 21, 2025 at 11:59 AM
Being diagnosed w #cancer shouldn’t mean losing your rights at work.
This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis.
🎥 Watch here: youtube.com/playlist?lis...
#LCSM
This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis.
🎥 Watch here: youtube.com/playlist?lis...
#LCSM