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oncogenecancer.bsky.social
Oncogene Cancer Research
@oncogenecancer.bsky.social
800 followers 690 following 130 posts
🔬 Advancing Research. Empowering Patients. Championing Advocacy.

We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
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oncogenecancer.bsky.social
A decade of progress in #lungcancer treatment shows what’s possible when research, innovation & patient care come together.

Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility.

#StoriesOfLungCancer #LCAM25
Photo of Dr Tom Newsom-Davis of Chelse & Westminster NHS Trust in the UK. Photo of Tom with a quote next to it which says: "A decade of progress in lung cancer treatment gives me real hope. The next wave of targeted and immunotherapies makes the future even brighter." This is for our Lung Cancer Awareness Campaign with Young Lung Cancer Initiative and EGFR Resisters.
November 11, 2025 at 2:28 PM
oncogenecancer.bsky.social
Some battles aren’t visible. Jennifer lives w stage 4 #lungcancer—her body fights every day, from fatigue to painful side effects. Yet she keeps going, finding strength in love, small joys, and determination. No one should face this alone. 💙 #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
November 10, 2025 at 10:49 AM
oncogenecancer.bsky.social
Advances in #lungcancer surgery are promising, but innovation must reach real patients. As Prof Eric Lim says, we need progress in practice, not just trials.

Let’s push for thoughtful access, better outcomes & options for those who could benefit.

#LCAM25 #StoriesOfLungCancer
November 8, 2025 at 10:46 AM
oncogenecancer.bsky.social
Side effects of #lungcancer treatments aren’t always visible, but they’re real & can turn simple tasks into daily battles.

These are just a few from our community. 👇

By talking about the unseen, we build understanding & better care.

#StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
November 7, 2025 at 11:48 AM
oncogenecancer.bsky.social
Fatigue in #lungcancer isn’t just “being tired.” It can feel like your body has turned to stone. It’s invisible to others & overwhelming to live through.

By talking about it, we push for better support, care & understanding.

@younglungcancer.bsky.social

#StoriesOfLungCancer #LCAM25
November 5, 2025 at 10:08 AM
oncogenecancer.bsky.social
Research isn’t separate from care - it is care.

As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope.

Support research. Share stories. Drive change.

#StoriesOfLungCancer #LCAM25 @btog.bsky.social
Photo of Professor Sanjay Popat saying "Research is fundamental to providing state-of-the-art care." All about supporting life saving lung cancer research during LCAM.
November 3, 2025 at 12:12 PM
oncogenecancer.bsky.social
From every corner of the world, #lungcancer knows no borders.

This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer.

These not only connect us across borders, but help us push for better research, care & more time for what matters.
November 1, 2025 at 12:58 PM
oncogenecancer.bsky.social
No symptoms. No warning. Just one seizure.

Duncan was 49 and healthy when he learned he had stage 4 lung cancer.

🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters.
@edmonstone.net

youtu.be/FZsbfkloPyM?...

#lcsm
October 27, 2025 at 12:54 PM
oncogenecancer.bsky.social
Today is the first #CancerCachexiaAwarenessDay

Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will.

Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM
Today, 26 September, is the first Cancer Cachexia Awareness Day Cachexia is a little-known but devastating condition that affects up to 80% of people with advanced cancer. It’s not just weight loss — it robs people of strength, energy, and the will to keep going. That’s why six patient groups are uniting as part of Cancer Grand Challenges’ Team CANCAN to recognise this important day and raise awareness through our new carousel. 👉 Swipe through to learn: ✔️ What cachexia is ✔️ The symptoms to look out for ✔️ Who is at risk ✔️ What can be done to help There is reason for hope. Thanks to the $25m Cancer Grand Challenges award, Team CANCAN and the wider research community are working to unravel the biology of cachexia and develop the treatments people urgently need. The first Cancer Cachexia Awareness Day has been created by the Cancer Cachexia Society — and we’re proud to stand with them to bring cachexia out of the shadows and closer to solutions. 💙 Please save this 🔖 and share to help us drive awareness and help others.
September 26, 2025 at 9:16 AM
oncogenecancer.bsky.social
Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN.

Sign up 👇

reg.eventmobi.com/ilcsc2025/regi…#LCSMSM
September 16, 2025 at 9:44 AM
oncogenecancer.bsky.social
Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer.

Check it out👇📷
static1.squarespace.com/static/65ca0...

#LCSM
Photos of Jan Clark, our co-founder, with her daughter Amy who was diagnosed at age 20 which stage four lung cancer. They’re standing next to BBC radio presenter. John Darvall
September 5, 2025 at 12:54 PM
oncogenecancer.bsky.social
We’ve launched the Patient Voices Podcast: Stories & Hope in Lung Cancer!

Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies.

🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc
#LCSM
August 25, 2025 at 3:01 PM
oncogenecancer.bsky.social
Being diagnosed w #cancer shouldn’t mean losing your rights at work.

This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis.

🎥 Watch here: youtube.com/playlist?lis...
#LCSM
August 21, 2025 at 11:59 AM
oncogenecancer.bsky.social
🏅 Huge thanks to Erin & Chloe for smashing the Bath Two Tunnels 10K in support of Oncogene Cancer Research!

🩵Their dedication, love, and heart behind this run are truly inspiring—and together you’ve raised over £800 for vital lung cancer research! Help us thank them 👏 @janclark1.bsky.social
Photo of Erin and Chloe crossing the finish line of the 10k they ran to fundraise funds for lung cancer research.
August 18, 2025 at 12:08 PM
oncogenecancer.bsky.social
Surgery isn’t usually offered for stage 4 #lungcancer.

Steve, diagnosed w stage 4 ALK+ in 2020, believed it could help prevent resistance. After targeted therapy shrank his tumour, he fought for surgery & got it.

Read his story + our patient info: oncogeneresearch.org/surgery
#LCSM
August 14, 2025 at 8:24 AM
oncogenecancer.bsky.social
This #WorldLungCancerDay, we’re reminding everyone: #lungcancer can hide behind ordinary symptoms.

A lingering cough, fatigue, bone pain — know what to watch for. Early detection saves lives. We need more research for everyone with lung cancer. 🩵 #LCSM
August 1, 2025 at 5:42 PM
oncogenecancer.bsky.social
We’re proud to donate £10,425 to @icr.ac.uk to advance oncogene-driven lung cancer research, supporting the vital work of Dr Paul Huang.

This is just the start — stay tuned for more big research plans. 💙🔬

oncogeneresearch.org/icr-donation

#LCSM
Screen grab of our co-founders Yvonne Diaz and Jan Clark with the OCR’s Dr Paul Huang. We’re thrilled to announce a £10,425 donation to the Institute of Cancer Research (ICR) to support vital work into oncogene-driven lung cancers, including research led by Dr Paul Huang’s team. This donation builds on the £90,000+ already contributed by our co-founders and community to help establish a cross-biomarker biobank and support world-class research at ICR. A huge thank you to our incredible marathoners — 🏃‍♀️ Christina Roberts 🏃‍♀️ Ruth Price 🏃‍♀️ Aude-Aline Eugene — for going the distance and raising these essential funds. You’ve inspired us all. And this is just the beginning. Stay tuned — we’ve got more big plans to support research on the way. 🔬💙 #OncogeneCancerResearch #ICR #LungCancerAwareness #PatientLedResearch #BiomarkerDriven #MarathonForResearch #ThankYou
July 9, 2025 at 9:44 AM
oncogenecancer.bsky.social
Why are so many young women getting #lungcancer?

Our co-founder @janclark1.bsky.social’s daughter Amy was just 20. Jules was 37 and Mel just 52.

Worth reading
👇

dailymail.co.uk/health/article…
June 22, 2025 at 2:59 PM
oncogenecancer.bsky.social
How can rib pain lead to a #lungcancer diagnosis?

For Michael, it was the sign of large cell lung cancer, a rare, aggressive type.
After he passed, his wife Christine learned of his STK11 mutation. She now advocates for answers, testing & research.
Read at 🔗 www.oncogeneresearch.org/michaels-story
Photo of Michael sky diving. How can rib pain lead to a lung cancer diagnosis? For Michael — a retired military skydiver, family man, and jack-of-all-trades — it was the first sign of large cell lung cancer, a rare and aggressive subtype. Early surgery gave hope. But within months, the pain returned. The cancer had spread. Michael passed away in 2022. It was only after his death that his wife, Christine, learned that Michael’s tumour had tested positive for the STK11 mutation — an important finding that had never been communicated to them. No one explained what it meant. No one mentioned the clinical implications. Christine now carries not just grief, but unanswered questions. She’s become a powerful voice in the lung cancer community — advocating for biomarker testing to be explained, for results to be shared with families, and for research that can offer patients not just more time, but better options. Michael’s story is not just about loss — it’s about the need for transparency, trust, and change in cancer care. Photo of a Michael and his wife Photo of Michael skydiving
June 6, 2025 at 3:34 PM
oncogenecancer.bsky.social
📢 Help us understand the emotional toll of #lungcancer.

With @lungcancereurope.bsky.social & 46 orgs, we’re surveying patients & caregivers across Europe to explore the mental health impact of a diagnosis.

🧠 Your voice can shape better support.

🔗 surveymonkey.com/r/LuCESurvey20…#LCSMSM
💬 Help us understand the emotional toll of lung cancer. Have you or a loved one been impacted by lung cancer? We’re running a survey across Europe to explore the psychological impact of a lung cancer diagnosis—on both patients and caregivers. 🧠 We want to hear directly from you. What’s been hardest to cope with? What support (if any) have you received? What’s missing? 📢 Your voice matters. By sharing your experience, you can help improve mental health services for others affected by this disease. 👉 Open to people diagnosed with lung cancer and their caregivers (excluding healthcare professionals) living in Europe. Take the survey here
June 5, 2025 at 11:27 AM
oncogenecancer.bsky.social
Young people get #cancer.
Amy was just 20 when she was diagnosed w stage 4 #lungcancer.

Her story & others show why we must act now. Amy’s what’s inspired @janclark1.bsky.social to co-found our charity.

Thanks @thesun.co.uk for covering: thesun.co.uk/health/3502801… 🩵
These cards show case The Aun’s news coverage on the rising incidents of cancer in young people. It features the story of a young lady called Amy, who was diagnosed with stage four lung cancer at the age of 20. It also mentions her mother, Jan who co-founded our charity and campaigns for patient empowerment, advocacy and more lung cancer research funding
May 25, 2025 at 11:59 AM
oncogenecancer.bsky.social
Understanding cultural norms in cancer care is key.

Aurora Lucas, an advocate living w EGFR #lungcancer, shares how she went from staying silent—out of fear of being disrespectful — to speaking up in this editorial with Dr @lungoncdoc.bsky.social.

👇 openworks.mdanderson.org/aceqi/vol1/i...
#LCSM
Summary of an article: This editorial emphasizes that patient education is a vital, not optional, part of lung cancer care. It argues that when patients are equipped with clear, culturally responsive, and accessible information, they are better prepared to engage in their treatment, make informed decisions, and adhere to care plans. Key insights include: Understanding the disease: Lung cancer is complex, and patients benefit from education tailored to different learning styles—visual aids, plain language, and culturally sensitive approaches are critical. Shared decision-making: Empowering patients to speak up and collaborate with providers leads to better care alignment with personal values, especially when patients overcome cultural norms that may discourage questioning authority. Treatment adherence: Clear explanations, ongoing support, and access to peer-driven resources like social media groups and journals improve patients’ ability to follow through with treatments and manage side effects. Collaborative education: Interdisciplinary teams—including oncologists, nurses, pharmacists, social workers, and patient advocates—enhance the education process. Technology, like apps and videos, makes information more accessible and engaging. Family involvement & cultural nuance: In many communities, decision-making is collective. Patient education must account for family involvement and be adaptable to cultural norms. Measuring impact: While anecdotal benefits are strong, more structured research is needed to measure the effectiveness of educational interventions and guide best practices. Conclusion: Patient education must be embedded into cancer care, supported by trained teams and infrastructure. As one patient co-author highlights, being informed and empowered transforms the experience from passive care to active partnership.
May 15, 2025 at 4:32 PM
oncogenecancer.bsky.social
Breaking news: @abbvie.bsky.social Teliso-V, an ADC targeting c-MET overexpression, has received accelerated approval by @fda.gov.

"People w c-Met overexpressing #NSCLC have poor prognosis & limited options, and EMRELIS can address a critical unmet need."

news.abbvie.com/2025-05-14-U-S…#LCSMSM
May 14, 2025 at 10:10 PM
oncogenecancer.bsky.social
Sadly cancer knows no bounds & is common around the world.

That’s why Christina, Ruth & Aude, from US, Mexico & France, will take on the @londonmarathon.bsky.social next Sunday.

All funds raised will support @icr.ac.uk’s life-saving research.

Let’s cheer them on 👇

#lcsm #LondonMarathon2025
April 21, 2025 at 10:22 AM
oncogenecancer.bsky.social
​To mark #WorldHealthDay, which is focusing on women's health this year, we shed light on the alarming rise of #lungcancer among women globally.​

Let’s work together to safeguard and make progress on lung cancer early detection and medical research. #LCSM #WHD @who.int
Cards showing statistics in lung cancer. ide 1: Title: "World Health Day: Spotlight on Women's Lung Health"​ Slide 2: Statistic: "Lung cancer is the leading cause of cancer death among women globally."​ Slide 3: Statistic: "In the past 40 years, lung cancer diagnoses in women have increased by 84%."​ News-Medical Slide 4: Statistic: "1 in 17 women will develop lung cancer in their lifetime."​ Lung Cancer Research Foundation Slide 5: Statistic: "20% of women diagnosed with lung cancer are non-smokers."​ Slide 6: Call to Action: "This World Health Day, let's raise awareness and support research for women's lung health."
April 7, 2025 at 4:50 PM