Ben Hughes
benbo2013.bsky.social
Ben Hughes
@benbo2013.bsky.social
Husband, Dad, and academic #PhD in #advancecareplanning. Interested in #social engagement, #social history, #socialjustice, #cake, #death, and #crime marginalised groups and giving people a voice. Moved from Twitter
Reposted by Ben Hughes
A recent US study showed one simple intervention - giving 1700 people $400 a month to spend on what they wished - resulted in 27% fewer visits to emergency services. Julia Cream explores whether this could work in the UK and places where similar ideas are being tested. https://bit.ly/3M6v2qI
November 28, 2025 at 9:36 AM
Reposted by Ben Hughes
"We would never tolerate a government that chose to defund 70% of neonatal services, gambling that charities would fill the gap. Yet this is exactly the situation for end-of-life care."

Please read my piece on the travesty of NHS palliative care underfunding 🙏

www.theguardian.com/commentisfre...
As a palliative care specialist, I’ve witnessed the human tragedy of our end-of-life care crisis | Rachel Clarke
While the government debates assisted dying, palliative care is an afterthought. And many more people face death without the care and support they need, says Rachel Clarke
www.theguardian.com
November 10, 2025 at 7:07 PM
Reposted by Ben Hughes
A 75-year-old man from Gower has regained his mobility after taking part in a pioneering trial using wearable technology to help people with Parkinson’s walk more easily
Parkinson’s patient regains confidence to walk again thanks to innovative treatment
A 75-year-old man from Gower has regained his mobility after taking part in a pioneering trial using wearable technology to help people with Parkinson’s walk more easily. Malcolm Sims, from Kittle, is...
wp.me
November 10, 2025 at 7:00 AM
Reposted by Ben Hughes
Hospices are on the brink. Surging costs have led to many services being cut back – just as demand is rising, fast, because of our ageing population.

The situation is not sustainable – and time is running out.

[1/2]
October 9, 2025 at 10:22 AM
Reposted by Ben Hughes
Having a disabled person and a carer in the family is associated with a £3,300 hit to household income.

This rises to £7,600 if disability benefits are excluded.

Read more ➡️ buff.ly/u26GnmA
September 12, 2025 at 1:15 PM
Reposted by Ben Hughes
🚨Calling UK health and care practitioners!

Please help us shape the work of the new Impact Centre for palliative and end-of-life care.

Survey takes 15 mins to complete.

We especially want to hear from people from Wales, Scotland and Northern Ireland 🙏

Survey 👇
📣 Are you a UK-based professional working in palliative or end of life care?

💥 Help shape priorities for the new Impact Centre for Palliative and End-of-Life Care.

We’re inviting health & care professionals & commissioners to complete our Stakeholder Survey

👉 qualtrics.kcl.ac.uk/jfe/form/SV_...
The Impact Centre for Palliative and End-of-Life Care Stakeholder Survey
By completing this survey, you will help shape the priorities for the Impact Centre.
qualtrics.kcl.ac.uk
September 4, 2025 at 3:24 PM
Reposted by Ben Hughes
🤬 Thames Water has paid nearly £2.5m in bonuses to senior managers from an emergency loan that was supposed to be used to help keep the failing company afloat.

💸 No more evidence is needed. Privatised water is a scam.

🤝 Water needs to be brought back into public hands.
July 10, 2025 at 11:10 AM
Please donate to help a worthy cause, to carry on bringing music into the lives of those living with #dementia, no matter how big or small, every little helps www.justgiving.com/page/lucy-ke...
Lucy's fundraiser for Music for my Mind
Help Lucy Kerry raise money to support Music for my Mind
www.justgiving.com
May 11, 2025 at 8:30 PM
Reposted by Ben Hughes
The government is reportedly planning at least £6 billion a year in cuts to benefits for people with a disability or long-term health condition.

These cuts risk pushing people already experiencing hardship and ill health even closer to the brink. 🔽 1/2
March 11, 2025 at 3:53 PM
Reposted by Ben Hughes
Why tackle child poverty now? asks @mikebrewerecon.bsky.social
Britain is a rich country that can afford to defend itself and ensure children dont grow up in poverty.
If we can't defend ourselves we won't be rich for much longer, and if we can't support our children what's the point of being rich?
February 26, 2025 at 9:40 AM
Reposted by Ben Hughes
By 2050, the global cost of dementia is projected to be $1.6 trillion.

To lift that many bills into geosynchronous orbit, it would take 192,771 @SpaceX Falcon 9 launches. With #Starship? -- 76,190 launches . 🚀

The financial toll will be astronomical—and it falls on families. Repost 💜
January 7, 2025 at 12:00 PM
Have you ever known the confusion and fear from potential drink spiking? You are not alone. Here's an article outlining one young man's experience www.emerald.com/insight/cont... #drinkspiking #BritishLaw
Drink spiking? A case study of a university student and the impact of uncertainty and personal safety when drinking alcohol on THAT Friday night | Emerald Insight
1
www.emerald.com
January 1, 2025 at 2:13 PM
Reposted by Ben Hughes
Can we get 50 reposts?

Our Mission: (1) to communicate dementia risk lowering findings to the public and (2) to support researchers.

Our posts will be of interest to anyone who wants good brain and body health, and would like to live a long and healthy life.

Follow us today!
December 13, 2024 at 3:46 AM
Reposted by Ben Hughes
Shocking 14% rise in homelessness in England.

354,000 people homeless, includes 161,500 children - equivalent to city the size of Coventry.

Result of austerity, real wage/benefit cuts, unchecked profiteering.

Govts make slogans do nothing to end inequities.
www.theguardian.com/society/2024...
Shelter condemns ‘shocking’ 14% rise in homelessness across England
Charity says soaring private rents, rising evictions and lack of affordable social housing are to blame
www.theguardian.com
December 11, 2024 at 9:00 AM
There's still time to take part in our study and share you're experiences of a pet dying. If you live in the UK, are aged 12 or over, and have ever had any pet that has died, we’d love to hear from you: forms.gle/qvcPFx9ek6XhBf…#pete#copingn#petdeatht#griefe#lovev#losss#GriefAwarenesssWeekek
December 6, 2024 at 11:47 AM
Reposted by Ben Hughes
My direct appeal to @rthonwesstreeting.bsky.social
& Keir_Starmer in the light of yesterday's vote on AD.

If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care?

www.theguardian.com/society/2024...
Good palliative care can alleviate the pain of dying – this bill means Labour must fund it | Rachel Clarke
Making dying easier is not the solution when NHS, social and palliative care are simply not there for patients
www.theguardian.com
November 30, 2024 at 8:32 AM
We've had an amazing response to our pet bereavement study and there's still time to take part. If you live in the UK and are aged 12 or over, we’d love to hear your experiences about any pet you’ve had which has died: forms.gle/qvcPFx9ek6XhBf…#pete#copingn#petdeatht#griefe#lovev#lossss
November 23, 2024 at 9:26 AM