Anne-Louise aka ALS
@annelouisebme.bsky.social
I used to know all things medical devices in hospitals - Biomedical/Clinical Engineering; infrequent poster; watchful waiting on ME/CFS research since May 1992; watercolour learner; living on Peramangk country
Reposted by Anne-Louise aka ALS
Scoping survey for (Australian) Clinical Practice Guidelines for myalgic encephalomyelitis / chronic fatigue syndrome
consultations.nhmrc.gov.au/clinical-pra...
People from around the world can fill in the survey
#MEcfs #CFS
consultations.nhmrc.gov.au/clinical-pra...
People from around the world can fill in the survey
#MEcfs #CFS
February 24, 2025 at 1:23 PM
Scoping survey for (Australian) Clinical Practice Guidelines for myalgic encephalomyelitis / chronic fatigue syndrome
consultations.nhmrc.gov.au/clinical-pra...
People from around the world can fill in the survey
#MEcfs #CFS
consultations.nhmrc.gov.au/clinical-pra...
People from around the world can fill in the survey
#MEcfs #CFS
Reposted by Anne-Louise aka ALS
Sympathetic 8-minute video on popular YouTube channel, SciShow, already has over 100,000 views in less than 24 hours.
"Exercise Actually Makes Chronic Fatigue Syndrome Worse"
www.youtube.com/watch?v=wxSw...
#MEcfs #CFS
"Exercise Actually Makes Chronic Fatigue Syndrome Worse"
www.youtube.com/watch?v=wxSw...
#MEcfs #CFS
February 21, 2025 at 2:46 PM
Sympathetic 8-minute video on popular YouTube channel, SciShow, already has over 100,000 views in less than 24 hours.
"Exercise Actually Makes Chronic Fatigue Syndrome Worse"
www.youtube.com/watch?v=wxSw...
#MEcfs #CFS
"Exercise Actually Makes Chronic Fatigue Syndrome Worse"
www.youtube.com/watch?v=wxSw...
#MEcfs #CFS
Reposted by Anne-Louise aka ALS
How respirators & filters actually work and which type is best?
I see many claims that masks/filters don't work. This document will explain *how* they block viruses much smaller than the size of the holes in the filter and why you can still smell nasty things while wearing effective masks. 🧪🧵1/
I see many claims that masks/filters don't work. This document will explain *how* they block viruses much smaller than the size of the holes in the filter and why you can still smell nasty things while wearing effective masks. 🧪🧵1/
February 3, 2025 at 1:21 PM
How respirators & filters actually work and which type is best?
I see many claims that masks/filters don't work. This document will explain *how* they block viruses much smaller than the size of the holes in the filter and why you can still smell nasty things while wearing effective masks. 🧪🧵1/
I see many claims that masks/filters don't work. This document will explain *how* they block viruses much smaller than the size of the holes in the filter and why you can still smell nasty things while wearing effective masks. 🧪🧵1/
Reposted by Anne-Louise aka ALS
A thread has been created by Science for ME forum member @forestglip to post summaries of past NIH ME/CFS Research Roadmap Webinars (2023/2024). These summaries may be helpful for people who have trouble watching videos.
www.s4me.info/threads/nih-...
#MEcfs #CFS #PwME
www.s4me.info/threads/nih-...
#MEcfs #CFS #PwME
NIH Research Roadmap Webinar (2023/2024)
YouTube playlist with all of the webinar videos.
Nervous System
10:27 – Trisha Fisher - Lived Experience
19:56 – Gudrun Lange - Cognition
50:54 –...
www.s4me.info
January 26, 2025 at 2:45 PM
A thread has been created by Science for ME forum member @forestglip to post summaries of past NIH ME/CFS Research Roadmap Webinars (2023/2024). These summaries may be helpful for people who have trouble watching videos.
www.s4me.info/threads/nih-...
#MEcfs #CFS #PwME
www.s4me.info/threads/nih-...
#MEcfs #CFS #PwME
Reposted by Anne-Louise aka ALS
As 26 January approaches, an antidote to historical amnesia and ignorance
As 26 January approaches, an antidote to historical amnesia and ignorance
www.croakey.org
January 19, 2025 at 12:05 AM
As 26 January approaches, an antidote to historical amnesia and ignorance
Reposted by Anne-Louise aka ALS
This was shared by @naomidharvey.bsky.social on Twitter (didn't see it posted here yet):
"An off label medication list has been compiled for cover from the Austrian Health Insurance Fund for ME/CFS and Post Covid Syndrome (long Covid)..."
threadreaderapp.com/thread/18799...
"An off label medication list has been compiled for cover from the Austrian Health Insurance Fund for ME/CFS and Post Covid Syndrome (long Covid)..."
threadreaderapp.com/thread/18799...
Thread by @Naomi_D_Harvey on Thread Reader App
@Naomi_D_Harvey: An off label medication list has been compiled for cover from the Austrian Health Insurance Fund for ME/CFS and Post Covid Sydrome (long Covid). I’ve used ChatGPT to translate them in...
threadreaderapp.com
January 17, 2025 at 8:52 PM
This was shared by @naomidharvey.bsky.social on Twitter (didn't see it posted here yet):
"An off label medication list has been compiled for cover from the Austrian Health Insurance Fund for ME/CFS and Post Covid Syndrome (long Covid)..."
threadreaderapp.com/thread/18799...
"An off label medication list has been compiled for cover from the Austrian Health Insurance Fund for ME/CFS and Post Covid Syndrome (long Covid)..."
threadreaderapp.com/thread/18799...
Reposted by Anne-Louise aka ALS
Reposted by Anne-Louise aka ALS
Since my episode with the wonderful @longcovidanswer has been released highlighting viral persistence as a major driver of some #LongCOVID pathology, I’ve been asked repeatedly, “what should we do about it?” - totally fair question. Here is my proposed roadmap: 1/
January 16, 2025 at 10:26 PM
Since my episode with the wonderful @longcovidanswer has been released highlighting viral persistence as a major driver of some #LongCOVID pathology, I’ve been asked repeatedly, “what should we do about it?” - totally fair question. Here is my proposed roadmap: 1/
Reposted by Anne-Louise aka ALS
some ways to generate electricity
A) use sunlight to drive photosynthesis in plants, let plants die, wait ~100 million years, dig up fossilized plants, burn plants, use heat to boil water, use steam to drive a rotating turbine, use generator to make electrons
B) use sunlight to make electrons
A) use sunlight to drive photosynthesis in plants, let plants die, wait ~100 million years, dig up fossilized plants, burn plants, use heat to boil water, use steam to drive a rotating turbine, use generator to make electrons
B) use sunlight to make electrons
January 17, 2025 at 9:55 PM
some ways to generate electricity
A) use sunlight to drive photosynthesis in plants, let plants die, wait ~100 million years, dig up fossilized plants, burn plants, use heat to boil water, use steam to drive a rotating turbine, use generator to make electrons
B) use sunlight to make electrons
A) use sunlight to drive photosynthesis in plants, let plants die, wait ~100 million years, dig up fossilized plants, burn plants, use heat to boil water, use steam to drive a rotating turbine, use generator to make electrons
B) use sunlight to make electrons
Reposted by Anne-Louise aka ALS
Science girl
@gunsnrosesgirl3
Escaped from the paper world
@gunsnrosesgirl3
Escaped from the paper world
January 13, 2025 at 10:35 PM
Science girl
@gunsnrosesgirl3
Escaped from the paper world
@gunsnrosesgirl3
Escaped from the paper world
Reposted by Anne-Louise aka ALS
Reposted by Anne-Louise aka ALS
Herpes virus might drive Alzheimer's pathology www.sciencedaily.com/releases/202...
January 6, 2025 at 8:57 PM
Herpes virus might drive Alzheimer's pathology www.sciencedaily.com/releases/202...
Reposted by Anne-Louise aka ALS
Possibly the best clap back against ignorant antivaxxers.
January 5, 2025 at 4:04 PM
Possibly the best clap back against ignorant antivaxxers.
Reposted by Anne-Louise aka ALS
Seriously?!
You’re telling me that a government is arguing against providing clean drinking water, a basic human right and the absolute minimum expectation of any government.
How our public values and debate have degenerated!
You’re telling me that a government is arguing against providing clean drinking water, a basic human right and the absolute minimum expectation of any government.
How our public values and debate have degenerated!
January 4, 2025 at 2:45 AM
Seriously?!
You’re telling me that a government is arguing against providing clean drinking water, a basic human right and the absolute minimum expectation of any government.
How our public values and debate have degenerated!
You’re telling me that a government is arguing against providing clean drinking water, a basic human right and the absolute minimum expectation of any government.
How our public values and debate have degenerated!
Reposted by Anne-Louise aka ALS
BE
WORRIED
BE VERY
WORRIED.
#ClimateCrisis means more droughts, bushfires & extreme weather events.
Stop subsidising & burning fossil fuels ASAP. You too, AUS !! #auspol #AusVotes25
WORRIED
BE VERY
WORRIED.
#ClimateCrisis means more droughts, bushfires & extreme weather events.
Stop subsidising & burning fossil fuels ASAP. You too, AUS !! #auspol #AusVotes25
January 3, 2025 at 8:32 AM
BE
WORRIED
BE VERY
WORRIED.
#ClimateCrisis means more droughts, bushfires & extreme weather events.
Stop subsidising & burning fossil fuels ASAP. You too, AUS !! #auspol #AusVotes25
WORRIED
BE VERY
WORRIED.
#ClimateCrisis means more droughts, bushfires & extreme weather events.
Stop subsidising & burning fossil fuels ASAP. You too, AUS !! #auspol #AusVotes25
Reposted by Anne-Louise aka ALS
Yes. Yes. Yes. An Australian trends section please!! Retweet if you agree. #aussietrends
So, how are you all finding Bluesky?
I am mostly enjoying it, just finding it a little lacking in the hard edge breaking news aspect of twitter?
It really needs an Australian Trends section.
I am mostly enjoying it, just finding it a little lacking in the hard edge breaking news aspect of twitter?
It really needs an Australian Trends section.
January 2, 2025 at 6:45 AM
Yes. Yes. Yes. An Australian trends section please!! Retweet if you agree. #aussietrends
Reposted by Anne-Louise aka ALS
THIS IS HUGE! Researchers at Stanford Medicine have devised an influenza vaccine that prompts immunity to ALL four major flu subtypes AND shows potential against bird flu, indicating a significant advancement in flu prevention and a potential increase in vaccine efficacy. Let’s talk about that! 🧪🧵⬇️
January 2, 2025 at 5:00 PM
THIS IS HUGE! Researchers at Stanford Medicine have devised an influenza vaccine that prompts immunity to ALL four major flu subtypes AND shows potential against bird flu, indicating a significant advancement in flu prevention and a potential increase in vaccine efficacy. Let’s talk about that! 🧪🧵⬇️
Reposted by Anne-Louise aka ALS
I encourage folks to move away from New Year's resolutions and instead focus on intentions.
Rather than treat yourself like a machine with production value, think about your dreams. What makes you feel good? Aim for those things. Don't guilt yourself all year. Let yourself grow.
Rather than treat yourself like a machine with production value, think about your dreams. What makes you feel good? Aim for those things. Don't guilt yourself all year. Let yourself grow.
December 29, 2024 at 2:48 PM
I encourage folks to move away from New Year's resolutions and instead focus on intentions.
Rather than treat yourself like a machine with production value, think about your dreams. What makes you feel good? Aim for those things. Don't guilt yourself all year. Let yourself grow.
Rather than treat yourself like a machine with production value, think about your dreams. What makes you feel good? Aim for those things. Don't guilt yourself all year. Let yourself grow.
Reposted by Anne-Louise aka ALS
Reposted by Anne-Louise aka ALS
December 31, 2024 at 2:59 AM
Reposted by Anne-Louise aka ALS
Interesting 🧵to bookmark & read 👇
"COVID may interfere with transportation safety..."
"COVID may interfere with transportation safety..."
Parts of this may look familiar to some of you, but this is what I was working on when I came across that other data today.
icemsg.org/2024/12/29/c...
icemsg.org/2024/12/29/c...
COVID and Transportation Risks
I made a statement yesterday on Twitter in response to the plane crash yesterday in South Korea. While it is possible that a bird strike was the root cause and destroyed avionics, there are a few r…
icemsg.org
December 31, 2024 at 3:01 AM
Interesting 🧵to bookmark & read 👇
"COVID may interfere with transportation safety..."
"COVID may interfere with transportation safety..."