Anne-Louise aka ALS
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annelouisebme.bsky.social
Anne-Louise aka ALS
@annelouisebme.bsky.social
I used to know all things medical devices in hospitals - Biomedical/Clinical Engineering; infrequent poster; watchful waiting on ME/CFS research since May 1992; watercolour learner; living on Peramangk country
Nice to see more of these simple ME/CFS explainer videos out
April 13, 2025 at 1:15 AM
"...(mis)diagnosis of health anxiety for patients presenting with a multitude of initially unexplained symptoms may be better explained as an often persisting health system anxiety."
A new Dr or specialist fills me with dread, but now I can identify naive time wasting experts who can't help me.
April 8, 2025 at 2:45 AM
This aligns with my experiences over decades
April 6, 2025 at 1:42 AM
📌
March 13, 2025 at 3:45 AM
"...feeling weak, when sitting- or standing up, leading to difficulty tolerating an upright posture" hence why lying on the couch with feet up on top of the couches so comfortable.
January 27, 2025 at 8:37 PM
Reposted by Anne-Louise aka ALS
Can we please, please get trending topics for Australians?

Please 🙏🏽

Xitter has it, which doesn't help because the place is a toxic hellhole. But all we many, many Australians here on Bluesky see is American stuff - we have our own topics

t.i.a @bsky.app
January 17, 2025 at 10:34 PM
This will be interesting. Abrocitinib is a selective oral Janus kinase 1 (JAK 1) inhibitor used for the treatment of moderate-to-severe atopic dermatitis (eczema). It is a modulator of the immune system as is Baricitinib, also being trialled for long Covid. www.reversinglongcovid.org
REVERSE-LC
People living with Long COVID are looking for answers. REVERSE-LC is a study to see if a drug called Baricitinib can help.
www.reversinglongcovid.org
January 16, 2025 at 10:59 PM
It has an "Emporers new clothes" vibe... we can all see it except the investigators
January 15, 2025 at 6:53 PM
Great summary of the ME/CFS research in context of the ubiquitous "failure to respond"
January 15, 2025 at 6:25 AM