christina4hope
christina4hope.bsky.social
christina4hope
@christina4hope.bsky.social
👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German.
Bavaria ,Germany
Reposted by christina4hope
🫩
May 6, 2025 at 7:10 PM
March 31, 2025 at 5:20 PM
March 31, 2025 at 5:16 PM
March 31, 2025 at 5:15 PM
Reposted by christina4hope
#FiveYears ago this week, my life changed beyond recognition.
And I’m still piecing together what’s left.
5yrs since a virus tore through my life and left me trying to build a new version of “normal” that feels anything but. 5yrs of living with #LongCovid, as a patient, as a mother supporting a
March 29, 2025 at 6:02 PM
Reposted by christina4hope
🎥#Trailer #ChronischKrank #ChronischIgnoriert
Bitte reichlich streuen - Sendetermin 25.02.2025, um 22.35 Uhr, auf arte, ab 24.02.2025 in der arte Mediathek online abrufbar.

"Der größte Skandal ist eigentlich die schiere Menge an Patienten"

youtu.be/s_TrZVuqi-k
CHRONISCH KRANK - CHRONISCH IGNORIERT - TRAILER arte Doku
YouTube video by Sibylle Dahrendorf
youtu.be
February 5, 2025 at 6:37 PM
Reposted by christina4hope
📍Filmempfehlung: “Chronisch krank - Chronisch ignoriert” ab 24.02. in der ARTE.de Mediathek + am 25.02., 22.35 Uhr auf #ARTE📍

Eine eindrucksvolle Doku von @sibylledahrendorf.bsky.social, selbst schwer an #MECFS, #PoTS, #SFN, #CCI und Fluorchinolon-Vergiftung erkrankt.

1/5
February 20, 2025 at 6:00 PM
Reposted by christina4hope
Rising star Perricard, 21 (like Rune and Alcaraz), withdrew last week from the same Rotterdam tournament with illness and has now withdrawn from Marseille with "the flu".
February 14, 2025 at 8:53 PM
Reposted by christina4hope
Be the kindness you want to see in the world.
If someone isn't smiling, offer them yours.
January 19, 2025 at 5:44 AM
Reposted by christina4hope
GdB:

"Psychische Störung mit funktionellen Organbeschwerden (30)"

Ähm ja ne.
🙄

#MEcfs
January 17, 2025 at 12:04 PM
Reposted by christina4hope
🔗 Il est temps d’abandonner le modèle CB et de développer des recherches centrées sur les causes biologiques.

#Apresj20
Frontiers | CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that
The cognitive behavioral model (CBmodel) (1,2) has dominated the world of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since the 1990s. Accord...
www.frontiersin.org
January 17, 2025 at 3:36 PM
Reposted by christina4hope
Finally, there is a good practice statement.

On the face of it, Just Fine, but patients say CBT for chronic illness sucks in Canada. Can be demeaning, esp. if symptoms are severe.

There is also a research statement urging ongoing analysis of new services, systems, and social supports. (5/6)
January 17, 2025 at 3:39 PM
January 16, 2025 at 9:58 PM
Reposted by christina4hope
🔎 Eine neue Studie von Lotte Habermann-Horstmeier und Lukas Horstmeier analysiert die Erfahrungen von ME/CFS-Betroffenen im deutschen Gesundheitssystem. Dabei berichten etwa 90 % der Befragten von überwiegend oder ausschließlich negativen Erfahrungen und es zeigt sich,

(1/2)
December 16, 2024 at 2:10 PM
Reposted by christina4hope
In unserem Jahresrückblick ziehen wir eine Bilanz über die Highlights aus 2024 und informieren euch über unsere aktuellen Projekte.

Auch in diesem Jahr hat sich viel rund um ME/CFS bewegt: Zum ersten Mal stellt das BMBF 15 Millionen € für die Forschung an den Grundlagen von ME/CFS bereit.

(1/3)
December 20, 2024 at 5:25 PM
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My granddaughter has a cough that has been going on for months
December 31, 2024 at 10:42 PM
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I love the first hour of New Year's day. It's the relief, the hope, the renewal. Anything and everything is possible.

2025. It's here 🎉💕✨
January 1, 2025 at 12:23 AM
Reposted by christina4hope
This is really, really important.
December 26, 2024 at 5:34 PM