Young Lives vs Cancer
LightNews LightNews
banner
younglivesvscancer.bsky.social
Young Lives vs Cancer
@younglivesvscancer.bsky.social
650 followers 240 following 72 posts
We’re here to make sure children and young people with cancer in the UK get the right support at the right time. Formerly called CLIC Sargent.

https://younglivesvscancer.org.uk
Posts Replies Media Videos
younglivesvscancer.bsky.social
PIP is essential for young people with cancer, both those facing it now and everyone who will face it in the future. The upcoming PIP changes still risk those in the future not receiving this vital support. We cannot let that happen – email your MP now: ow.ly/xxlA50Whmo3
A quote card with a photo of Helen Gravestock, Director of Policy, Communications and Voice. The quote says: "Whilst the UK Government's change in approach to keep PIP in place for those currently claiming is welcomed for young people facing cancer now, the changes still risk young people diagnosed with cancer in the future not receiving this vital financial support. A two-tier benefits system is not right or fair and we cannot let this happen. No young person chooses to get cancer, and be met with the spiralling unavoidable costs that it brings. We encourage everyone to contact their MP and ask them to vote against the changes to PIP to protect young people with cancer."
June 27, 2025 at 10:51 AM
Reposted by Young Lives vs Cancer
melanomafocus.bsky.social
Today we've joined charities supporting people living with cancer across the UK calling on Liz Kendall MP Secretary of State for Work and Pensions, for a rethink on the UK Government’s upcoming changes to PIP.

Read more 👉 buff.ly/xWye1eV

#PIP #melanoma @younglivesvscancer.bsky.social
June 10, 2025 at 1:08 PM
younglivesvscancer.bsky.social
Get involved with Team Young Lives 📢

We have lots of short and flexible micro-volunteering opportunities you can sign-up for in 2025/26, like bucket collections, fundraising research, and marathon cheer squads.
Find out more: ow.ly/mRVo50W4Bte
Two women giving each other a side hug. They both have brown hair and are wearing Young Lives vs Cancer t-shirts that read, 'Volunteer'. They're smiling at the camera.
June 5, 2025 at 8:11 AM
younglivesvscancer.bsky.social
We were pleased to meet with @stevempyemm.bsky.social today to talk about the importance of the National Cancer Plan for England addressing all the needs of children and young people with cancer - including support for psychosocial needs and post-treatment.

Thank you Steve.
Three people stand in a row looking at the camera. In the centre is MP Steve Yemm who is holding a black and pink booklet that says "Cancer Costs". All three are wearing smart clothes and looking at the camera
June 3, 2025 at 2:55 PM
younglivesvscancer.bsky.social
Thank you @clivejonesmp.bsky.social for working with charities like us to call for a robust Cancer Plan for England. We're pleased to be working through the Children and Young People's Cancer Taskforce and hope the Plan will deliver on the areas we've highlighted bit.ly/43QoqTF
clivejonesmp.bsky.social Clive Jones MP @clivejonesmp.bsky.social · May 28
Earlier in May, I sent a letter to the Health Secretary, Wes Streeting, outlining my findings to help shape the National Cancer Plan.

(1/7)
May 29, 2025 at 2:55 PM
younglivesvscancer.bsky.social
“As I distanced myself from the survivor label, I distanced myself from my cancer in its entirety." Kate, 24, reflects on having leukaemia aged nine and how it’s led her to where she is today - about to start work as a junior doctor. Read Kate’s blog: ow.ly/bLzF50W0CaL
My experience going from ‘cancer kid’ to doctor
Kate reflects on her experience of having leukaemia aged nine and how it’s led her to where she is today - starting work as a junior doctor.
ow.ly
May 29, 2025 at 8:18 AM
younglivesvscancer.bsky.social
Yesterday we met with DWP Minister Timms to discuss welfare benefits for the families we support. Support like PIP and DLA is vital for children and young people with cancer and their families and we’re committed to raising their voices so they get all the support they need, when they need it.
Sonia and Rachel from Young Lives vs Cancer take a selfie in front of a sign that says 'Department for Work and Pensions'. It is a sunny day.
May 14, 2025 at 9:10 AM
younglivesvscancer.bsky.social
"There are no words to describe how you feel; your world turns upside down."

Nancy was diagnosed with brain cancer at only one year old. Her mum Gemma shares their story in this BBC News article: bbc.co.uk/news/article...
Mum shares two year-old daughter's cancer story for TV advert
Nancy was diagnosed with ependymoma, a form of brain cancer, at only a year old in 2023.
bbc.co.uk
May 12, 2025 at 1:14 PM
Reposted by Young Lives vs Cancer
cclguk.bsky.social
This #InternationalNursesDay, we’re celebrating the incredible work of all nurses who are dedicated to creating a brighter future for children and young people with cancer 🫶

Hear from our amazing Chief Nurses: bit.ly/4m6qMVJ @younglivesvscancer.bsky.social #NursesDay
International Nurses' Day 2025 - Chief Nurses
This International Nurses Day, our Chief Nurses Jo Stark and Jeanette Hawkins reflect on how nursing sits at the heart of healthcare. And how it’s the skill, dedication and impact of previous generati...
bit.ly
May 12, 2025 at 8:53 AM
younglivesvscancer.bsky.social
A huge thank you to all the nurses this #InternationalNursesDay. Our Chief Nurses work collaboratively to shape a better future for children and young people with cancer. Read more about what they do: www.cclg.org.uk/news-updates...
#NursesDay @cclguk.bsky.social
International Nurses' Day 2025 - Chief Nurses
This International Nurses Day, our Chief Nurses Jo Stark and Jeanette Hawkins reflect on how nursing sits at the heart of healthcare. And how it’s the skill, dedication and impact of previous generati...
www.cclg.org.uk
May 12, 2025 at 8:10 AM
younglivesvscancer.bsky.social
📢 Still time to have your say! Filling in the Under 16 Cancer Patient Experience Survey will help the NHS and cancer charities improve services for children and young people with cancer. Find out more: www.under16cancerexperiencesurvey.co.uk
Image shows text and an image of a young cancer patient. Text reads: Under 16 Cancer Patient Experience Survey. If you receive a survey in the post, have you say. Your feedback will help the NHS to improve cancer services for children and young people. For more information visit: https://www.under16cancerexperiencesurvey.co.uk/
May 7, 2025 at 7:40 AM
younglivesvscancer.bsky.social
We were pleased to join the Health Minister at this important event recognising collaboration on Adolescent and Young Adult Services in Northern Ireland www.health-ni.gov.uk/news/health-...
Health Minister commends cancer care collaboration for young people
Health Minister Mike Nesbitt has attended a special event to celebrate the collaborative efforts in implementing a best practice and Regional Model of Care and Standards for Adolescents and Young Adul...
www.health-ni.gov.uk
May 6, 2025 at 8:56 AM
younglivesvscancer.bsky.social
Last chance:

Have your say on the Cancer Plan for England before 23:59 tonight.

We’ve written a handy guide to help you

👉 bit.ly/3REVyaa
A message from the Young Lives vs Cancer Voice Board. The backgroud is black and on the right is a polaroid picture of 11 members of the voice board standing in a line and looking at the camera. White text says: The UK Government are listening, so let's not miss our chance. We need as many young people, families and those that support us as possible to raise their voices too. Because it's vital that now is the time that we get it right for all children and young people with cancer, and their families. So please, use your voice and respond to the consultation.
April 29, 2025 at 1:39 PM
younglivesvscancer.bsky.social
THEY DID IT. A huge congratulations to our London Marathon runners for crossing the finish line yesterday. We’re so proud of Team Young Lives for coming together to support children and young people with cancer. 👏
A woman is running the London Marathon wearing a Young Lives vs Cancer vest. She's holding her fist up in the air and is smiling. A man is running the London Marathon in a Young Lives vs Cancer vest. He's holding his left fist up. Behind them there are other people running. A woman is running the London Marathon in a Young Lives vs Cancer vest. She's holding both arms up and is looking straight ahead, smiling. Three people are posing together in a park. They're all wearing Young Lives vs Cancer running vests and are smiling.
April 28, 2025 at 8:52 AM
Reposted by Young Lives vs Cancer
joeburnsmcr.bsky.social
One of the most impressive things about some London Marathon runners is, after putting themselves through it all, they then (somehow) go & do it all again. On which, here's Luke, who is running his 10th (!) marathon today for @younglivesvscancer.bsky.social!

www.huntspost.co.uk/news/2511108...
Huntingdon man set to run his tenth London Marathon
Huntingdon man set to run his tenth London Marathon to raise money for children and young people with cancer.
www.huntspost.co.uk
April 27, 2025 at 10:42 AM
younglivesvscancer.bsky.social
We’re ready to cheer on Team Young Lives at the #LondonMarathon. Our runners need all the encouragement they can get to complete this challenge.

Come join us if you spot one of our cheer points, bring your loudest cheers, and help us celebrate our incredible runners. 🎉
Two Young Lives vs Cancer volunteers are at one of our London Marathon cheer points. They're wearing branded hoodies and vests, and are smiling. Behind them there is a Young Lives vs Cancer banner, and the road. Two Young Lives vs Cancer volunteers at the London Marathon. They're standing on the London Bridge and there's a branded banner behind them. Two Young Lives vs Cancer volunteers at the London Marathon. They're standing on the London Bridge and there's a branded banner behind them.
April 27, 2025 at 8:51 AM
younglivesvscancer.bsky.social
Alex, Jasper, Ben & Jim will be running the London Marathon in a Scooby Doo mystery machine costume, in support of Young Lives vs Cancer. Watch their Sky News interview: youtube.com/watch?v=QUnk...

They’re attempting to break the world record for the fastest marathon in a four-person costume. 👏
Runners attempting world record in Scooby-Doo's mystery machine
YouTube video by Sky News
youtube.com
April 25, 2025 at 2:39 PM
Reposted by Young Lives vs Cancer
joeburnsmcr.bsky.social
Been at the London Marathon running show today seeing our amazing @younglivesvscancer.bsky.social runners, and also the London Marathon LEGEND that is Yimmy! (If you've run the marathon, there's a decent chance you know the name)
An expo board featuring facts about Young Lives Vs Cancer, the names of all our runners this year, and some Polaroids of runners stuck to the wall A door covered in Polaroid photos of Young Lives Vs Cancer runners The legend that is David Yin (Yimmy) chatting with some runners and showing off his many, many marathon medals The queue forms around the Young Lives Vs Cancer stand for David Yim (Yimmy) as he arrived
April 25, 2025 at 2:20 PM
younglivesvscancer.bsky.social
📢 Have your say! If you received the Under 16 Cancer Patient Experience Survey in the post recently, having your say could help the NHS and cancer charities improve services for children and young people with cancer. For more information please visit: www.under16cancerexperiencesurvey.co.uk
Alt text: Image shows text and an image of a young cancer patient. Text reads: Under 16 Cancer Patient Experience Survey. If you receive a survey in the post, have you say. Your feedback will help the NHS to improve cancer services for children and young people. For more information visit: https://www.under16cancerexperiencesurvey.co.uk/
April 24, 2025 at 3:18 PM
Reposted by Young Lives vs Cancer
rachelkr.bsky.social
Are you a senior Children’s or TYA cancer nurse with significant experience leading services at PTC, Shared Care, Community, Cancer Network or Research setting? @younglivesvscancer.bsky.social is looking for a new Trustee with your expertise. www.younglivesvscancer.org.uk/support-us/g...
Join our Team Young Lives Board of Trustees
As a Trustee you will play a vital role in helping Young Lives vs Cancer to thrive so that failies do not face cancer alone.
www.younglivesvscancer.org.uk
April 22, 2025 at 2:11 PM
younglivesvscancer.bsky.social
"Cancer diagnosis at 19 left me feeling isolated." Jake shares his experience of being diagnosed with brain cancer while at university this Teenage and Young Adult Cancer Awareness Month: www.bbc.co.uk/news/article... #TYACAM
www.bbc.co.uk
April 22, 2025 at 12:06 PM
younglivesvscancer.bsky.social
The cancer impacts wheel is always spinning for children and young people with cancer and there is often no predicting where it will land.

The Cancer Plan for England is an opportunity to address these impacts.

Fill in the cancer plan consultation here: bit.ly/3RUTVFo
A video of a pink and white spinning wheel, like you might see at a fairground. But this one shows some of the non-medical impacts of cancer on children and young people. The background is black and white text at the top says 'The Cancer Impacts Wheel'. Underneath is the wheel which has 12 impact or effects of cancer. They are: Travel costs, mental health, late diagnosis, missing education, financial worries, isolation, multiple GP visits, long term effects, debt, sibling impact, anxiety and benefits delays. The wheel is rotating and when the video is paused, it stops on a random effect.
April 17, 2025 at 2:50 PM
younglivesvscancer.bsky.social
Did you or your child receive the Under 16 Cancer Patient Experience Survey in the post recently? Your feedback could help the NHS and cancer charities improve services for children and young people with cancer. For more information please visit: www.under16cancerexperiencesurvey.co.uk
Image shows text and an image of a young cancer patient. Text reads: Under 16 Cancer Patient Experience Survey. If you receive a survey in the post, have you say. Your feedback will help the NHS to improve cancer services for children and young people. For more information visit: https://www.under16cancerexperiencesurvey.co.uk/
April 16, 2025 at 1:00 PM
younglivesvscancer.bsky.social
We know the best people to tell us what having cancer as a child or young person is like, and how to change the system for the better, are the people who’ve experienced it. If you’re aged 16+ with lived experience of childhood cancer, join our Voice Hub: ow.ly/oNVq50VBrJ8
Members of Young Lives vs Cancer's Voice Board. They are holding up a sign that says 'share your voice' and a Young Lives vs Cancer logo.
April 16, 2025 at 9:00 AM
younglivesvscancer.bsky.social
"Writing this poem helped me find some light in the chaos." Aagoon wrote Tumour Humour, a poem about being diagnosed with stage 3 Hodgkin's Lymphoma when she was 19.
Read it in full here: ow.ly/Yvet50VAHZC
#TYACAM #WorldArtDay
White text on a black background. Title reads: Tumour Humour Text from Aagoon's poem reads: One morning, I’m rushing, ready to face Another long day, another rat race. Late to my calculus class at nine, I pull back my hair and a lump I find. I touch it and frown, unsure of its might, Day after day, it stays there in sight. Small and unbothered, it sits like a chum, Mr. Lump, my companion, a new rule of thumb. Aagoon, 21.
April 15, 2025 at 10:28 AM