CCLG: The Children & Young People’s Cancer Association
@cclguk.bsky.social
We are dedicated to creating a brighter future for children and young people with cancer.
www.cclg.org.uk
www.cclg.org.uk
Pinned
Hello, Bluesky! 👋
Something to get you thinking: every year in the UK, around 1,900 children are diagnosed with cancer—this means that 1 in 500 children will be diagnosed by the age of 14. Shocked?
We’re here to change that!
Something to get you thinking: every year in the UK, around 1,900 children are diagnosed with cancer—this means that 1 in 500 children will be diagnosed by the age of 14. Shocked?
We’re here to change that!
How is new technology helping us tackle childhood #lymphoma? 🧬
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
November 14, 2025 at 2:17 PM
How is new technology helping us tackle childhood #lymphoma? 🧬
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
Reposted by CCLG: The Children & Young People’s Cancer Association
Great to be in Glasgow chairing a panel discussion on children & young people’s cancer at #ScotCanConf with with @younglivesvscancer.bsky.social @cclguk.bsky.social & the CYPC MSN for Scotland - lots of engagement from the audience and positive that CYP cancer is a focus at this event
November 10, 2025 at 3:45 PM
Great to be in Glasgow chairing a panel discussion on children & young people’s cancer at #ScotCanConf with with @younglivesvscancer.bsky.social @cclguk.bsky.social & the CYPC MSN for Scotland - lots of engagement from the audience and positive that CYP cancer is a focus at this event
Exciting news! 🤸♂️🧑🍳
Mini Athletics have raised over £27,000 for CCLG! 🌟
In October, coaches hosted special ‘Chef Week’ classes during their annual Charity Week, inspiring over 1,000 mini athletes to get active and support others.
Read more at bit.ly/4p1Biyl
Mini Athletics have raised over £27,000 for CCLG! 🌟
In October, coaches hosted special ‘Chef Week’ classes during their annual Charity Week, inspiring over 1,000 mini athletes to get active and support others.
Read more at bit.ly/4p1Biyl
November 7, 2025 at 1:46 PM
Exciting news! 🤸♂️🧑🍳
Mini Athletics have raised over £27,000 for CCLG! 🌟
In October, coaches hosted special ‘Chef Week’ classes during their annual Charity Week, inspiring over 1,000 mini athletes to get active and support others.
Read more at bit.ly/4p1Biyl
Mini Athletics have raised over £27,000 for CCLG! 🌟
In October, coaches hosted special ‘Chef Week’ classes during their annual Charity Week, inspiring over 1,000 mini athletes to get active and support others.
Read more at bit.ly/4p1Biyl
Showcase your research & be considered for a Research Award 🔬🌟
We’re inviting individuals or groups working in #CYPCancer to submit abstracts for presentation at the 2026 CCLG Annual Conference.
Deadline: 11 Nov 2025
More info & submit at bit.ly/3X00j0G
#CCLG2026
We’re inviting individuals or groups working in #CYPCancer to submit abstracts for presentation at the 2026 CCLG Annual Conference.
Deadline: 11 Nov 2025
More info & submit at bit.ly/3X00j0G
#CCLG2026
November 4, 2025 at 9:02 AM
Showcase your research & be considered for a Research Award 🔬🌟
We’re inviting individuals or groups working in #CYPCancer to submit abstracts for presentation at the 2026 CCLG Annual Conference.
Deadline: 11 Nov 2025
More info & submit at bit.ly/3X00j0G
#CCLG2026
We’re inviting individuals or groups working in #CYPCancer to submit abstracts for presentation at the 2026 CCLG Annual Conference.
Deadline: 11 Nov 2025
More info & submit at bit.ly/3X00j0G
#CCLG2026
We were proud to attend the International Society of Paediatric Oncology Congress 🎗️
Our CEO @ashleyballgamble.bsky.social presented our State of the System research alongside Rosanna Thomasoo and shared a first look at the North Star Cancer Collaborative.
Together, we can achieve more!
Our CEO @ashleyballgamble.bsky.social presented our State of the System research alongside Rosanna Thomasoo and shared a first look at the North Star Cancer Collaborative.
Together, we can achieve more!
October 30, 2025 at 3:55 PM
We were proud to attend the International Society of Paediatric Oncology Congress 🎗️
Our CEO @ashleyballgamble.bsky.social presented our State of the System research alongside Rosanna Thomasoo and shared a first look at the North Star Cancer Collaborative.
Together, we can achieve more!
Our CEO @ashleyballgamble.bsky.social presented our State of the System research alongside Rosanna Thomasoo and shared a first look at the North Star Cancer Collaborative.
Together, we can achieve more!
Last chance to register! ⏰
Don’t miss the CCLG Early Career Researcher Day - deadline to register 12 pm, 7 November 🗓️
Join us to share insights, build networks and hear career advice from four top researchers. All #ECR in #CYPCancer welcome.
Register now at bit.ly/49qTexv
Don’t miss the CCLG Early Career Researcher Day - deadline to register 12 pm, 7 November 🗓️
Join us to share insights, build networks and hear career advice from four top researchers. All #ECR in #CYPCancer welcome.
Register now at bit.ly/49qTexv
October 28, 2025 at 1:10 PM
Last chance to register! ⏰
Don’t miss the CCLG Early Career Researcher Day - deadline to register 12 pm, 7 November 🗓️
Join us to share insights, build networks and hear career advice from four top researchers. All #ECR in #CYPCancer welcome.
Register now at bit.ly/49qTexv
Don’t miss the CCLG Early Career Researcher Day - deadline to register 12 pm, 7 November 🗓️
Join us to share insights, build networks and hear career advice from four top researchers. All #ECR in #CYPCancer welcome.
Register now at bit.ly/49qTexv
Can we improve how brain tumours are diagnosed?
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🔬 @littleprincesses.bsky.social
bit.ly/4mID06b
#CCLG #InternationalBrainTumourAwarenessWeek
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🔬 @littleprincesses.bsky.social
bit.ly/4mID06b
#CCLG #InternationalBrainTumourAwarenessWeek
Can we improve how brain tumours are diagnosed?
Diagnosis is a scary time for families, full of unknowns. So how can we make diagnosis quicker and more accurate? Our researchers have some exciting ideas...
bit.ly
October 27, 2025 at 1:02 PM
Can we improve how brain tumours are diagnosed?
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🔬 @littleprincesses.bsky.social
bit.ly/4mID06b
#CCLG #InternationalBrainTumourAwarenessWeek
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🔬 @littleprincesses.bsky.social
bit.ly/4mID06b
#CCLG #InternationalBrainTumourAwarenessWeek
Reposted by CCLG: The Children & Young People’s Cancer Association
Great to see #REFORMSStudy represented at #SIOPCongress @worldsiop.bsky.social @cclguk.bsky.social #AlicesArc
October 22, 2025 at 9:55 AM
Great to see #REFORMSStudy represented at #SIOPCongress @worldsiop.bsky.social @cclguk.bsky.social #AlicesArc
Reposted by CCLG: The Children & Young People’s Cancer Association
Great to present our State of the System research on behalf of our partners and our North Star Cancer Collaborative plans on behalf of those partners at #SIOPCongress @worldsiop.bsky.social with @rthomasoo.bsky.social today as part of a great psychosocial care session @cclguk.bsky.social
October 21, 2025 at 11:03 AM
Great to present our State of the System research on behalf of our partners and our North Star Cancer Collaborative plans on behalf of those partners at #SIOPCongress @worldsiop.bsky.social with @rthomasoo.bsky.social today as part of a great psychosocial care session @cclguk.bsky.social
£250,000 raised for rhabdomyosarcoma research 📣🌟
A glamourous evening of entertainment has taken a family’s fundraising for childhood cancer research in memory of their four-year-old son above £250,000.
Read more about the event at bit.ly/4otJDu6
A glamourous evening of entertainment has taken a family’s fundraising for childhood cancer research in memory of their four-year-old son above £250,000.
Read more about the event at bit.ly/4otJDu6
October 21, 2025 at 2:05 PM
£250,000 raised for rhabdomyosarcoma research 📣🌟
A glamourous evening of entertainment has taken a family’s fundraising for childhood cancer research in memory of their four-year-old son above £250,000.
Read more about the event at bit.ly/4otJDu6
A glamourous evening of entertainment has taken a family’s fundraising for childhood cancer research in memory of their four-year-old son above £250,000.
Read more about the event at bit.ly/4otJDu6
Last week, our CEO @ashleyballgamble.bsky.social
and Chair Dr Sara Stoneham spoke at the first All-Island Paediatric Oncology Conference, sharing how CCLG can support this vital step toward creating a joined-up system of care for children and young people with cancer across the island of Ireland 🎗️
and Chair Dr Sara Stoneham spoke at the first All-Island Paediatric Oncology Conference, sharing how CCLG can support this vital step toward creating a joined-up system of care for children and young people with cancer across the island of Ireland 🎗️
October 20, 2025 at 3:56 PM
Last week, our CEO @ashleyballgamble.bsky.social
and Chair Dr Sara Stoneham spoke at the first All-Island Paediatric Oncology Conference, sharing how CCLG can support this vital step toward creating a joined-up system of care for children and young people with cancer across the island of Ireland 🎗️
and Chair Dr Sara Stoneham spoke at the first All-Island Paediatric Oncology Conference, sharing how CCLG can support this vital step toward creating a joined-up system of care for children and young people with cancer across the island of Ireland 🎗️
How is new technology helping us tackle childhood #lymphoma? 🧬
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
October 20, 2025 at 9:30 AM
How is new technology helping us tackle childhood #lymphoma? 🧬
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
Join Professor Vikki Rand for our next #CCLGResearchTalk exploring how discoveries in the lab are shaping future clinical trials.
🗓️ 19 November 2025
⌚ 1:30 – 2:30pm
💻 Free on Zoom
Register at bit.ly/4nWEGtT
Reposted by CCLG: The Children & Young People’s Cancer Association
Half way between Belfast and Dublin and an excellent first day at the inaugural All-Island Paediatric Oncology Conference, exploring how closer collaboration and an all-island network could improve care for children and young people with cancer (and talking how @cclguk.bsky.social can help!)
October 16, 2025 at 5:06 PM
Half way between Belfast and Dublin and an excellent first day at the inaugural All-Island Paediatric Oncology Conference, exploring how closer collaboration and an all-island network could improve care for children and young people with cancer (and talking how @cclguk.bsky.social can help!)
Vicky Robayna’s daughter, Liz, sadly died from a rare form of cancer aged 17.
In Contact magazine, Vicky explains how, with the right support, there’s hope for families that their child can be comfortable during palliative care 🤍
Read more at https://bit.ly/479yfwn
In Contact magazine, Vicky explains how, with the right support, there’s hope for families that their child can be comfortable during palliative care 🤍
Read more at https://bit.ly/479yfwn
October 16, 2025 at 2:03 PM
Vicky Robayna’s daughter, Liz, sadly died from a rare form of cancer aged 17.
In Contact magazine, Vicky explains how, with the right support, there’s hope for families that their child can be comfortable during palliative care 🤍
Read more at https://bit.ly/479yfwn
In Contact magazine, Vicky explains how, with the right support, there’s hope for families that their child can be comfortable during palliative care 🤍
Read more at https://bit.ly/479yfwn
📣 We’re excited to announce four new research projects focused on childhood solid cancers, funded by The Little Princess Trust and supported by our expertise at CCLG - all aimed at improving treatment for children and young people with cancer.
Read more at https://bit.ly/42DhCrJ
Read more at https://bit.ly/42DhCrJ
The Little Princess Trust funds four exciting childhood cancer research projects through CCLG
CCLG: The Children & Young People’s Cancer Association has supported The Little Princess Trust (LPT) in funding four new research projects that aim to develop much-needed new treatments for children with cancer.
bit.ly
October 15, 2025 at 3:01 PM
📣 We’re excited to announce four new research projects focused on childhood solid cancers, funded by The Little Princess Trust and supported by our expertise at CCLG - all aimed at improving treatment for children and young people with cancer.
Read more at https://bit.ly/42DhCrJ
Read more at https://bit.ly/42DhCrJ
Reposted by CCLG: The Children & Young People’s Cancer Association
🌟 @cclguk.bsky.social is now PIF TICK re-certified.
This means their health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
See our PIF TICK Directory here: piftick.org.uk/health-topics/
#HealthInfo
This means their health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
See our PIF TICK Directory here: piftick.org.uk/health-topics/
#HealthInfo
October 10, 2025 at 10:25 AM
🌟 @cclguk.bsky.social is now PIF TICK re-certified.
This means their health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
See our PIF TICK Directory here: piftick.org.uk/health-topics/
#HealthInfo
This means their health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
See our PIF TICK Directory here: piftick.org.uk/health-topics/
#HealthInfo
"Get to know the person and not just the patient or their diagnosis.”
We spoke with Helen Trower, a dedicated research nurse, about the importance of supporting teenagers and young adults with cancer through research 🔬
Read more at https://bit.ly/4nH77Mo
We spoke with Helen Trower, a dedicated research nurse, about the importance of supporting teenagers and young adults with cancer through research 🔬
Read more at https://bit.ly/4nH77Mo
October 13, 2025 at 2:02 PM
"Get to know the person and not just the patient or their diagnosis.”
We spoke with Helen Trower, a dedicated research nurse, about the importance of supporting teenagers and young adults with cancer through research 🔬
Read more at https://bit.ly/4nH77Mo
We spoke with Helen Trower, a dedicated research nurse, about the importance of supporting teenagers and young adults with cancer through research 🔬
Read more at https://bit.ly/4nH77Mo
📣 New research shows that only 50% of CYP with a #BoneTumour are diagnosed within 12.5 weeks.
We're proud to launch new evidence-based support to help doctors recognise and diagnose bone tumours in patients under 18 sooner: https://bit.ly/42wguWV
#ChildCancerSmart
We're proud to launch new evidence-based support to help doctors recognise and diagnose bone tumours in patients under 18 sooner: https://bit.ly/42wguWV
#ChildCancerSmart
Bone Tumours
The Child Cancer Smart bone tumour decision support tool provides guidance for healthcare professionals on the management of child or young person aged 0-18 years presenting with symptoms that may prompt the clinician to consider further investigation to diagnose or rule out a bone tumour.
bit.ly
October 8, 2025 at 1:30 PM
📣 New research shows that only 50% of CYP with a #BoneTumour are diagnosed within 12.5 weeks.
We're proud to launch new evidence-based support to help doctors recognise and diagnose bone tumours in patients under 18 sooner: https://bit.ly/42wguWV
#ChildCancerSmart
We're proud to launch new evidence-based support to help doctors recognise and diagnose bone tumours in patients under 18 sooner: https://bit.ly/42wguWV
#ChildCancerSmart
Earlier this year we proudly invested £800,000 into vital #EwingSarcoma research in partnership with the @bcrt-uk.bsky.social and @greatormondst.bsky.social, collectively funding four groundbreaking new bone cancer research projects.
Find out more at https://bit.ly/4kqXOxS
#BoneCancerAwarenessWeek
Find out more at https://bit.ly/4kqXOxS
#BoneCancerAwarenessWeek
October 6, 2025 at 8:00 AM
Earlier this year we proudly invested £800,000 into vital #EwingSarcoma research in partnership with the @bcrt-uk.bsky.social and @greatormondst.bsky.social, collectively funding four groundbreaking new bone cancer research projects.
Find out more at https://bit.ly/4kqXOxS
#BoneCancerAwarenessWeek
Find out more at https://bit.ly/4kqXOxS
#BoneCancerAwarenessWeek
As a proud member of @walescanceralliance.org, we are pleased to share the Alliance’s manifesto to improve cancer care in Wales. Published today, this outlines our four key recommendations, and we are calling on all parties to commit to delivering these should they form the next Welsh Government 👇
📢 We've launched our 2025 manifesto!
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
September 30, 2025 at 8:57 AM
As a proud member of @walescanceralliance.org, we are pleased to share the Alliance’s manifesto to improve cancer care in Wales. Published today, this outlines our four key recommendations, and we are calling on all parties to commit to delivering these should they form the next Welsh Government 👇
Reposted by CCLG: The Children & Young People’s Cancer Association
📢 We've launched our 2025 manifesto!
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
September 30, 2025 at 8:15 AM
📢 We've launched our 2025 manifesto!
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
Can we improve how brain tumours are diagnosed?
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🎗️🔬 @littleprincesses.bsky.social
Read more at bit.ly/4mID06b
#CCAM #BrainTumourResearch #CCLG
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🎗️🔬 @littleprincesses.bsky.social
Read more at bit.ly/4mID06b
#CCAM #BrainTumourResearch #CCLG
Can we improve how brain tumours are diagnosed?
Diagnosis is a scary time for families, full of unknowns. So how can we make diagnosis quicker and more accurate? Our researchers have some exciting ideas...
bit.ly
September 29, 2025 at 10:49 AM
Can we improve how brain tumours are diagnosed?
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🎗️🔬 @littleprincesses.bsky.social
Read more at bit.ly/4mID06b
#CCAM #BrainTumourResearch #CCLG
Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🎗️🔬 @littleprincesses.bsky.social
Read more at bit.ly/4mID06b
#CCAM #BrainTumourResearch #CCLG
Lewis Paget was diagnosed with two different leukaemias at the same time as a teenager in 2016.
In Contact magazine, he describes the impact of this and how it influenced him to become a cancer researcher himself 🎗️🔬
Read Lewis' full article at https://bit.ly/3VC0fne
In Contact magazine, he describes the impact of this and how it influenced him to become a cancer researcher himself 🎗️🔬
Read Lewis' full article at https://bit.ly/3VC0fne
September 28, 2025 at 8:00 AM
Lewis Paget was diagnosed with two different leukaemias at the same time as a teenager in 2016.
In Contact magazine, he describes the impact of this and how it influenced him to become a cancer researcher himself 🎗️🔬
Read Lewis' full article at https://bit.ly/3VC0fne
In Contact magazine, he describes the impact of this and how it influenced him to become a cancer researcher himself 🎗️🔬
Read Lewis' full article at https://bit.ly/3VC0fne
Teenagers finishing cancer treatment face many challenges as they adjust to life afterward. Our free guide, 'What happens next?', offers valuable support for this transition. Share this resource with teens completing their treatment! 🌟
Order or download bit.ly/42IUV5l
Order or download bit.ly/42IUV5l
September 26, 2025 at 8:25 AM
Teenagers finishing cancer treatment face many challenges as they adjust to life afterward. Our free guide, 'What happens next?', offers valuable support for this transition. Share this resource with teens completing their treatment! 🌟
Order or download bit.ly/42IUV5l
Order or download bit.ly/42IUV5l
In 1977, less than 30% of children survived cancer; now it's over 80%. But we can do more!
Our new research strategy aims for a future where every child and young person receives the best treatment and care.
#WorldCancerResearchDay
Read more at bit.ly/4njxfwA
Our new research strategy aims for a future where every child and young person receives the best treatment and care.
#WorldCancerResearchDay
Read more at bit.ly/4njxfwA
The future of children and young people’s cancer research
Earlier this year, CCLG launched its new research strategy. Ashley Ball-Gamble, CEO of CCLG, explains what this means for children and young people’s cancer.
bit.ly
September 24, 2025 at 8:30 AM
In 1977, less than 30% of children survived cancer; now it's over 80%. But we can do more!
Our new research strategy aims for a future where every child and young person receives the best treatment and care.
#WorldCancerResearchDay
Read more at bit.ly/4njxfwA
Our new research strategy aims for a future where every child and young person receives the best treatment and care.
#WorldCancerResearchDay
Read more at bit.ly/4njxfwA