Young Lives vs Cancer
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younglivesvscancer.bsky.social
Young Lives vs Cancer
@younglivesvscancer.bsky.social
660 followers 240 following 72 posts
We’re here to make sure children and young people with cancer in the UK get the right support at the right time. Formerly called CLIC Sargent.

https://younglivesvscancer.org.uk
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younglivesvscancer.bsky.social
PIP is essential for young people with cancer, both those facing it now and everyone who will face it in the future. The upcoming PIP changes still risk those in the future not receiving this vital support. We cannot let that happen – email your MP now: ow.ly/xxlA50Whmo3
A quote card with a photo of Helen Gravestock, Director of Policy, Communications and Voice. The quote says: "Whilst the UK Government's change in approach to keep PIP in place for those currently claiming is welcomed for young people facing cancer now, the changes still risk young people diagnosed with cancer in the future not receiving this vital financial support. A two-tier benefits system is not right or fair and we cannot let this happen. No young person chooses to get cancer, and be met with the spiralling unavoidable costs that it brings. We encourage everyone to contact their MP and ask them to vote against the changes to PIP to protect young people with cancer."
June 27, 2025 at 10:51 AM
younglivesvscancer.bsky.social
Get involved with Team Young Lives 📢

We have lots of short and flexible micro-volunteering opportunities you can sign-up for in 2025/26, like bucket collections, fundraising research, and marathon cheer squads.
Find out more: ow.ly/mRVo50W4Bte
Two women giving each other a side hug. They both have brown hair and are wearing Young Lives vs Cancer t-shirts that read, 'Volunteer'. They're smiling at the camera.
June 5, 2025 at 8:11 AM
younglivesvscancer.bsky.social
We were pleased to meet with @stevempyemm.bsky.social today to talk about the importance of the National Cancer Plan for England addressing all the needs of children and young people with cancer - including support for psychosocial needs and post-treatment.

Thank you Steve.
Three people stand in a row looking at the camera. In the centre is MP Steve Yemm who is holding a black and pink booklet that says "Cancer Costs". All three are wearing smart clothes and looking at the camera
June 3, 2025 at 2:55 PM
younglivesvscancer.bsky.social
Yesterday we met with DWP Minister Timms to discuss welfare benefits for the families we support. Support like PIP and DLA is vital for children and young people with cancer and their families and we’re committed to raising their voices so they get all the support they need, when they need it.
Sonia and Rachel from Young Lives vs Cancer take a selfie in front of a sign that says 'Department for Work and Pensions'. It is a sunny day.
May 14, 2025 at 9:10 AM
younglivesvscancer.bsky.social
📢 Still time to have your say! Filling in the Under 16 Cancer Patient Experience Survey will help the NHS and cancer charities improve services for children and young people with cancer. Find out more: www.under16cancerexperiencesurvey.co.uk
Image shows text and an image of a young cancer patient. Text reads: Under 16 Cancer Patient Experience Survey. If you receive a survey in the post, have you say. Your feedback will help the NHS to improve cancer services for children and young people. For more information visit: https://www.under16cancerexperiencesurvey.co.uk/
May 7, 2025 at 7:40 AM
younglivesvscancer.bsky.social
Last chance:

Have your say on the Cancer Plan for England before 23:59 tonight.

We’ve written a handy guide to help you

👉 bit.ly/3REVyaa
A message from the Young Lives vs Cancer Voice Board. The backgroud is black and on the right is a polaroid picture of 11 members of the voice board standing in a line and looking at the camera. White text says: The UK Government are listening, so let's not miss our chance. We need as many young people, families and those that support us as possible to raise their voices too. Because it's vital that now is the time that we get it right for all children and young people with cancer, and their families. So please, use your voice and respond to the consultation.
April 29, 2025 at 1:39 PM
younglivesvscancer.bsky.social
THEY DID IT. A huge congratulations to our London Marathon runners for crossing the finish line yesterday. We’re so proud of Team Young Lives for coming together to support children and young people with cancer. 👏
A woman is running the London Marathon wearing a Young Lives vs Cancer vest. She's holding her fist up in the air and is smiling. A man is running the London Marathon in a Young Lives vs Cancer vest. He's holding his left fist up. Behind them there are other people running. A woman is running the London Marathon in a Young Lives vs Cancer vest. She's holding both arms up and is looking straight ahead, smiling. Three people are posing together in a park. They're all wearing Young Lives vs Cancer running vests and are smiling.
April 28, 2025 at 8:52 AM
younglivesvscancer.bsky.social
We’re ready to cheer on Team Young Lives at the #LondonMarathon. Our runners need all the encouragement they can get to complete this challenge.

Come join us if you spot one of our cheer points, bring your loudest cheers, and help us celebrate our incredible runners. 🎉
Two Young Lives vs Cancer volunteers are at one of our London Marathon cheer points. They're wearing branded hoodies and vests, and are smiling. Behind them there is a Young Lives vs Cancer banner, and the road. Two Young Lives vs Cancer volunteers at the London Marathon. They're standing on the London Bridge and there's a branded banner behind them. Two Young Lives vs Cancer volunteers at the London Marathon. They're standing on the London Bridge and there's a branded banner behind them.
April 27, 2025 at 8:51 AM
younglivesvscancer.bsky.social
📢 Have your say! If you received the Under 16 Cancer Patient Experience Survey in the post recently, having your say could help the NHS and cancer charities improve services for children and young people with cancer. For more information please visit: www.under16cancerexperiencesurvey.co.uk
Alt text: Image shows text and an image of a young cancer patient. Text reads: Under 16 Cancer Patient Experience Survey. If you receive a survey in the post, have you say. Your feedback will help the NHS to improve cancer services for children and young people. For more information visit: https://www.under16cancerexperiencesurvey.co.uk/
April 24, 2025 at 3:18 PM
younglivesvscancer.bsky.social
The cancer impacts wheel is always spinning for children and young people with cancer and there is often no predicting where it will land.

The Cancer Plan for England is an opportunity to address these impacts.

Fill in the cancer plan consultation here: bit.ly/3RUTVFo
A video of a pink and white spinning wheel, like you might see at a fairground. But this one shows some of the non-medical impacts of cancer on children and young people. The background is black and white text at the top says 'The Cancer Impacts Wheel'. Underneath is the wheel which has 12 impact or effects of cancer. They are: Travel costs, mental health, late diagnosis, missing education, financial worries, isolation, multiple GP visits, long term effects, debt, sibling impact, anxiety and benefits delays. The wheel is rotating and when the video is paused, it stops on a random effect.
April 17, 2025 at 2:50 PM
younglivesvscancer.bsky.social
Did you or your child receive the Under 16 Cancer Patient Experience Survey in the post recently? Your feedback could help the NHS and cancer charities improve services for children and young people with cancer. For more information please visit: www.under16cancerexperiencesurvey.co.uk
Image shows text and an image of a young cancer patient. Text reads: Under 16 Cancer Patient Experience Survey. If you receive a survey in the post, have you say. Your feedback will help the NHS to improve cancer services for children and young people. For more information visit: https://www.under16cancerexperiencesurvey.co.uk/
April 16, 2025 at 1:00 PM
younglivesvscancer.bsky.social
We know the best people to tell us what having cancer as a child or young person is like, and how to change the system for the better, are the people who’ve experienced it. If you’re aged 16+ with lived experience of childhood cancer, join our Voice Hub: ow.ly/oNVq50VBrJ8
Members of Young Lives vs Cancer's Voice Board. They are holding up a sign that says 'share your voice' and a Young Lives vs Cancer logo.
April 16, 2025 at 9:00 AM
younglivesvscancer.bsky.social
"Writing this poem helped me find some light in the chaos." Aagoon wrote Tumour Humour, a poem about being diagnosed with stage 3 Hodgkin's Lymphoma when she was 19.
Read it in full here: ow.ly/Yvet50VAHZC
#TYACAM #WorldArtDay
White text on a black background. Title reads: Tumour Humour Text from Aagoon's poem reads: One morning, I’m rushing, ready to face Another long day, another rat race. Late to my calculus class at nine, I pull back my hair and a lump I find. I touch it and frown, unsure of its might, Day after day, it stays there in sight. Small and unbothered, it sits like a chum, Mr. Lump, my companion, a new rule of thumb. Aagoon, 21.
April 15, 2025 at 10:28 AM
younglivesvscancer.bsky.social
Our friends at It's Never You are campaigning for better financial support for parents of seriously ill children. Sign their petition today to show your support for #HughsLaw

👉 bit.ly/3QZmbXb
The It's Never You logo. The words 'it's never' are in black and 'you' is in orange. An orange line drawing of a butterfly flies above the words
April 4, 2025 at 10:21 AM
younglivesvscancer.bsky.social
This April, we're joining other cancer charities to raise awareness of the unique set of challenges facing young people with cancer during Teenage and Young Adult Cancer Awareness Month. Help us amplify their voices this #TYACAM. Read more 👉 ow.ly/Q5SQ50Vs5MS
Black and plum graphic. Text reads: Over 50% of those diagnosed with cancer as a teenager or young adult say they need help dealing with their sadness, anger and frustration. Young Lives vs Cancer logo in top right corner.
April 1, 2025 at 8:06 AM
younglivesvscancer.bsky.social
We're redesigning the top navigation of our website to make sure that everyone who visits it can find the information they need with ease.

Want to get involved by testing our prototype and sharing your thoughts? Email digital.change@younglivesvscancer.org.uk and we'll be in touch.
A screenshot of the Young Lives vs Cancer website navigation bar. On the right there is a Young Lives vs Cancer logo, and a search button with a list of headings below. They read: 'What we do - Cancer info and support - Support us - Work for us - About us - Shop - Accessibility tools'. On the right there is a menu button with a donate button above it.
March 28, 2025 at 3:29 PM
younglivesvscancer.bsky.social
Do you have lived experience of cancer? We’re created a short survey to find out more about how you use social media, so that we can share relevant content on the channels that work for you.

Answer our short survey. It will only take 3 minutes: ow.ly/EbAy50VneqT
A graphic image with white text on a plum background. It reads: 'Do you have lived experience of cancer? Take our social media survey'. The Young Lives vs Cancer logo is sitting above the text, and the Bluesky logo below.
March 27, 2025 at 9:14 AM
younglivesvscancer.bsky.social
Today's Spring Statement was a chance for UK Government to support children and young people with cancer with the extra costs that come with a diagnosis.

Our CEO @rachelkirby.bsky.social shares her reflections on how the statement missed the mark for the families we support.

👉 bit.ly/4hP8PYr
March 26, 2025 at 4:38 PM
younglivesvscancer.bsky.social
Over the weekend, children and young people’s cancer specialists signed our wall, sharing the psychosocial issues they think are most important to children and young people with cancer
A section of our conference stand. A white background with the title: Cancer is more than medical: what psychosocial challenges are children and young people with cancer facing? Write your thoughts below. Cancer professionals have written their answers in different coloured pens. Examples include anxiety, being behind at school, fitting in, additional costs, cost of living, feeling different to friends/peers and vulnerability
March 25, 2025 at 4:52 PM
younglivesvscancer.bsky.social
Today, we were pleased to present our sector North Star Vision with
@cclguk.bsky.social, @teenagecancertrust.bsky.social and Ellen MacArthur Cancer Trust and shared our joint research into the long term wellbeing of children and young people with cancer #CCLG2025
A group watches a presentation led by two people who are standing at a podium. On the screen is a presentation with a yellow background that says 'North star vision and collective impact initiative'
March 25, 2025 at 4:52 PM
younglivesvscancer.bsky.social
What an amazing two days we’ve had at #CCLG2025! A huge thank you to everyone who has spoken to us about our work, working together, and the psychosocial needs of children and young people with cancer.
Our Young Lives vs Cancer stand at the conference. There is a table with tote bags, storybooks and other goods, and there are two staff members standing behind it, smiling. Behind them there are posters with information about Young Lives vs Cancer's mission.
March 25, 2025 at 4:50 PM
younglivesvscancer.bsky.social
Our reminder to Rachel Reeves ahead of the UK Government #SpringStatement tomorrow 👇

71% of children and young people with cancer struggle with the cost of travelling to treatment, and one in 10 miss or delay treatment because they can't afford to get there.
A black background. A phone notification reminder says: Reminder Young cancer patients need a travel fund. Accept or Accept. Underneath it says #RunningOnEmpty and on the right hand side are three icons which are an orange train ticket, a blue petrol pump and a yellow bus. The Young Lives vs Cancer Logo is at the top left of the image.
March 25, 2025 at 3:36 PM
younglivesvscancer.bsky.social
We’re excited to present our sector research at #CCLG2025. Starting at 1.15pm in hall 8, we’ll be sharing our North Star Vision and Collective Impact Initiative, followed by our oral abstract exploring the long term wellbeing of young cancer survivors at 1.45pm 👇
A presentation cover slide with a lilac background. Text says Exploring the long-term wellbeing of young cancer survivors. Rich Hughes - Policy, Evidence & Research Manager, Young Lives vs Cancer. March 2025. A presentation cover slide with a yellow background. Text says 'North star vision and collective impact initiative. CCLG conference 2025 lunch time showcase. Roseanna Thomasoo - Associate Director: Leaning & Systemic Design, Young Lives vs Cancer. Rich Hughes - Policy, Evidence & Research Manager, Young Lives vs Cancer
March 25, 2025 at 1:05 PM
younglivesvscancer.bsky.social
We'll be hosting a range of sessions today at #CCLG2025 including our spotlight talk at 1.15 in hall 8. Come along to hear more about our work, including our North Star Vision and Collective Impact Initiative.
A graphic image of our conference schedule. The text reads: 'Find us during the conference: All day - exhibition stand 12. Monday 5.30-7 - Poster showcase (Hall 3) Tuesday 11.30-12.45 - Introduction to our online bereavement group (Hall 4). Tuesday 1.15-1.30 - Spotlight Talk: North Star Vision & Collective Impact Initiative (Hall 8). Tuesday 1.45 - Oral abstract: Exploring the long-term wellbeing of young cancer survivors (Hall 8).
March 25, 2025 at 10:59 AM
younglivesvscancer.bsky.social
It’s day two of #CCLG2025! We were blown away by how many people stopped to see us yesterday. Thank you to everyone who chatted about the psychosocial challenges faced by the families we support. If you’re here and haven’t had chance to see us yet, we’re at stand 12 👋
A section of our conference stand. A white background with the title: Cancer is more than medical: what psychosocial challenges are children and young people with cancer facing? Write your thoughts below. Cancer professionals have written their answers in different coloured pens. Examples include anxiety, being behind at school, fitting in, additional costs, cost of living, feeling different to friends/peers and vulnerability Our stand at CCLG conference. The background is mainly plum coloured with orange, blue and green accents. There is a white rectangle with handwriting on one of the panels. At the front is a table with a Young Lives vs Cancer table cloth. Sonia, a woman, is sat at the table smiling at the camera. On the table are leaflets and books.
March 25, 2025 at 10:55 AM