Valwen 😷🏳️🌈
@valwen.bsky.social
♿️ Naval Architect & Marine Engineer. I’ll never shut up if I think something is unfair or deeply wrong. I’m annoying, I know!
#pwME #MECFS #EDS #Endometriosis #Dysautonomia & long #NEISVoid etc. #COVIDisAirborne!
Twitter immigrant. Also on Mastodon.
#pwME #MECFS #EDS #Endometriosis #Dysautonomia & long #NEISVoid etc. #COVIDisAirborne!
Twitter immigrant. Also on Mastodon.
Reposted by Valwen 😷🏳️🌈
The final part of Avyn and Larian's path can now be read through catofrederiks.substack.com/p/table-of-c.... If you loved reading it or would like to support my personal journey to a cervical fusion, you can make a donation through gofund.me/07342fe1
November 4, 2025 at 8:41 AM
The final part of Avyn and Larian's path can now be read through catofrederiks.substack.com/p/table-of-c.... If you loved reading it or would like to support my personal journey to a cervical fusion, you can make a donation through gofund.me/07342fe1
Reposted by Valwen 😷🏳️🌈
This is my neck in extension.
Friday January 16th I will finally be receiving my cervical fusion. I won't be able to make these kinds of movements, but in exchange, I'll be able to sit up. Live my life.
Help me with one last big push for my crowdfunding through gofund.me/07342fe1
Friday January 16th I will finally be receiving my cervical fusion. I won't be able to make these kinds of movements, but in exchange, I'll be able to sit up. Live my life.
Help me with one last big push for my crowdfunding through gofund.me/07342fe1
November 18, 2025 at 4:42 PM
This is my neck in extension.
Friday January 16th I will finally be receiving my cervical fusion. I won't be able to make these kinds of movements, but in exchange, I'll be able to sit up. Live my life.
Help me with one last big push for my crowdfunding through gofund.me/07342fe1
Friday January 16th I will finally be receiving my cervical fusion. I won't be able to make these kinds of movements, but in exchange, I'll be able to sit up. Live my life.
Help me with one last big push for my crowdfunding through gofund.me/07342fe1
Reposted by Valwen 😷🏳️🌈
🇩🇪🚨Leak: Viele Länder, die noch 2024 die #Chatkontrolle gestoppt haben, sind jetzt unentschieden - darunter Deutschland! https://netzpolitik.org/2025/internes-protokoll-eu-juristen-kritisieren-daenischen-vorschlag-zur-chatkontrolle/
Die Bundesregierung […]
[Original post on digitalcourage.social]
Die Bundesregierung […]
[Original post on digitalcourage.social]
July 31, 2025 at 7:01 AM
🇩🇪🚨Leak: Viele Länder, die noch 2024 die #Chatkontrolle gestoppt haben, sind jetzt unentschieden - darunter Deutschland! https://netzpolitik.org/2025/internes-protokoll-eu-juristen-kritisieren-daenischen-vorschlag-zur-chatkontrolle/
Die Bundesregierung […]
[Original post on digitalcourage.social]
Die Bundesregierung […]
[Original post on digitalcourage.social]
Reposted by Valwen 😷🏳️🌈
You would help me and my crowdfunding (gofund.me/07342fe1) immensly by buying this for a few bucks, leave a review, or share this with your network! Hopefully, with all of y'alls help, my skeleton will be as sturdy as Atlas' helper skeletons are
#DnD #TTRPG #CCI #AAI #EDS #crowdfunding
#DnD #TTRPG #CCI #AAI #EDS #crowdfunding
August 8, 2025 at 11:50 AM
You would help me and my crowdfunding (gofund.me/07342fe1) immensly by buying this for a few bucks, leave a review, or share this with your network! Hopefully, with all of y'alls help, my skeleton will be as sturdy as Atlas' helper skeletons are
#DnD #TTRPG #CCI #AAI #EDS #crowdfunding
#DnD #TTRPG #CCI #AAI #EDS #crowdfunding
Reposted by Valwen 😷🏳️🌈
It only took me about six months to write, but here is my (hopefully) pretty amazing one-shot. Your players too can help the dwarf Atlas Vertilibraedius when his experiment... didn't work out quite as well as he liked! Incl. a short and longer version!
legacy.drivethrurpg.com/product/5314...
legacy.drivethrurpg.com/product/5314...
Fey or Fiend - Cato Frederiks | DriveThruRPG.com
Welcome to "Fey or Fiend", a bone-rattling adventure where adventurers will assist Atlas Vertilibraedius after an experi
legacy.drivethrurpg.com
August 8, 2025 at 11:47 AM
It only took me about six months to write, but here is my (hopefully) pretty amazing one-shot. Your players too can help the dwarf Atlas Vertilibraedius when his experiment... didn't work out quite as well as he liked! Incl. a short and longer version!
legacy.drivethrurpg.com/product/5314...
legacy.drivethrurpg.com/product/5314...
Reposted by Valwen 😷🏳️🌈
As soon as DriveThruRPG is done with reviewing, something very nice is coming up...
#DnD #TTRPG #CCI #crowdfunding #patience
#DnD #TTRPG #CCI #crowdfunding #patience
August 5, 2025 at 1:53 PM
As soon as DriveThruRPG is done with reviewing, something very nice is coming up...
#DnD #TTRPG #CCI #crowdfunding #patience
#DnD #TTRPG #CCI #crowdfunding #patience
Reposted by Valwen 😷🏳️🌈
1) This factsheet is one of the best resources for explaining what post-exertional malaise (PEM) is.
The vague name ‘malaise’ isn’t very clear.
The vague name ‘malaise’ isn’t very clear.
5-page @scienceforme.bsky.social post-exertional malaise ( #PEM ) fact sheet
www.s4me.info/docs/PEM_Fac...
Headings:
-Characteristics of PEM
-Symptoms of PEM
-Exertion and other PEM triggers
-Effects of exertion that are not PEM
-Living with PEM
-Examples of PEM
-Research on PEM
#MEcfs #CFS #PwME
www.s4me.info/docs/PEM_Fac...
Headings:
-Characteristics of PEM
-Symptoms of PEM
-Exertion and other PEM triggers
-Effects of exertion that are not PEM
-Living with PEM
-Examples of PEM
-Research on PEM
#MEcfs #CFS #PwME
July 31, 2025 at 8:14 AM
1) This factsheet is one of the best resources for explaining what post-exertional malaise (PEM) is.
The vague name ‘malaise’ isn’t very clear.
The vague name ‘malaise’ isn’t very clear.
Reposted by Valwen 😷🏳️🌈
Reposted by Valwen 😷🏳️🌈
Yeah, a lot of the time I feel like AI boosters are people who think they loved Hitchhikers Guide but didn’t get the joke
July 14, 2025 at 3:20 PM
Yeah, a lot of the time I feel like AI boosters are people who think they loved Hitchhikers Guide but didn’t get the joke
Reposted by Valwen 😷🏳️🌈
That's basically how Douglas Adams arrived at 42
July 14, 2025 at 3:16 PM
That's basically how Douglas Adams arrived at 42
Reposted by Valwen 😷🏳️🌈
"Bluesky will perform age verification through Kid Web Services (KWS), an Epic Games-owned tool that developers can use to implement age verification and parental controls on their platforms." Surely this will go very well. Epic Games is known for having no breaches whatsoever.
July 10, 2025 at 7:24 PM
"Bluesky will perform age verification through Kid Web Services (KWS), an Epic Games-owned tool that developers can use to implement age verification and parental controls on their platforms." Surely this will go very well. Epic Games is known for having no breaches whatsoever.
Reposted by Valwen 😷🏳️🌈
Starting July 25, Bluesky will require users in the UK to scan their face, upload an ID or verify their identity with a bankcard.
I realize that platforms feel they have no choice but to comply with the government surveillance schemes, but shocking nonetheless.
I realize that platforms feel they have no choice but to comply with the government surveillance schemes, but shocking nonetheless.
Bluesky is rolling out age verification in the UK
Bluesky users in the UK can verify their age using their face, ID, or payment card.
www.theverge.com
July 10, 2025 at 6:16 PM
Starting July 25, Bluesky will require users in the UK to scan their face, upload an ID or verify their identity with a bankcard.
I realize that platforms feel they have no choice but to comply with the government surveillance schemes, but shocking nonetheless.
I realize that platforms feel they have no choice but to comply with the government surveillance schemes, but shocking nonetheless.
Reposted by Valwen 😷🏳️🌈
Please, I beg you, DO NOT USE AN AI INSTEAD OF A LAWYER. Please. I see this every day and it never ends well.
June 30, 2025 at 6:49 PM
Please, I beg you, DO NOT USE AN AI INSTEAD OF A LAWYER. Please. I see this every day and it never ends well.
Reposted by Valwen 😷🏳️🌈
I have three hearings at three different courthouses today. At the second, someone was sobbing outside the courtroom. They'd asked ChatGPT what to say in Court. They believed what it told them.
They lost because it hallucinated, and they didn't know there were no do-overs.
They lost because it hallucinated, and they didn't know there were no do-overs.
June 30, 2025 at 6:49 PM
I have three hearings at three different courthouses today. At the second, someone was sobbing outside the courtroom. They'd asked ChatGPT what to say in Court. They believed what it told them.
They lost because it hallucinated, and they didn't know there were no do-overs.
They lost because it hallucinated, and they didn't know there were no do-overs.
Reposted by Valwen 😷🏳️🌈
“The study found that 14% of infected infants and toddlers and 15% of infected preschoolers had probable long COVID, similar to rates in teens and school-aged children.”
Apparently toddlers aren’t 🦄. Who knew?
Apparently toddlers aren’t 🦄. Who knew?
June 29, 2025 at 11:34 PM
“The study found that 14% of infected infants and toddlers and 15% of infected preschoolers had probable long COVID, similar to rates in teens and school-aged children.”
Apparently toddlers aren’t 🦄. Who knew?
Apparently toddlers aren’t 🦄. Who knew?
Reposted by Valwen 😷🏳️🌈
Oral health and head and neck examinations still need to be done on vulnerable patients, and infectious patients.
It’s up to us to do them safely.
It’s up to us to do them safely.
June 29, 2025 at 9:40 PM
Oral health and head and neck examinations still need to be done on vulnerable patients, and infectious patients.
It’s up to us to do them safely.
It’s up to us to do them safely.
Reposted by Valwen 😷🏳️🌈
@broadwaybabyto.bsky.social wrote over there that a diagnosis of lymphoma under the jaw was missed because a patient wore a mask and therefore could not be examined.
*Important case.*
#Medsky
*Important case.*
#Medsky
June 29, 2025 at 9:40 PM
@broadwaybabyto.bsky.social wrote over there that a diagnosis of lymphoma under the jaw was missed because a patient wore a mask and therefore could not be examined.
*Important case.*
#Medsky
*Important case.*
#Medsky
Reposted by Valwen 😷🏳️🌈
Imagine if when wastewater levels are low, we all committed to keeping them that way?
We could stamp Covid out once and for all.
If we adopted regular masking (with N95s or better), clean air, paid time off and better access to tests and vaccines, it could be done.
We could stamp Covid out once and for all.
If we adopted regular masking (with N95s or better), clean air, paid time off and better access to tests and vaccines, it could be done.
🧵
I can well imagine if you're currently able that people not finding these 'low current levels' as good news, might appear negative. When you've spent 5 years actively being ridiculed for masking & trying to avoid being sick at all costs, the 'low current levels' aren't actually a good thing.
I can well imagine if you're currently able that people not finding these 'low current levels' as good news, might appear negative. When you've spent 5 years actively being ridiculed for masking & trying to avoid being sick at all costs, the 'low current levels' aren't actually a good thing.
Good news: the very low current levels of SARS-CoV-2 in wastewater, even in places where the new variants are prevalent (XFG, NB.1.8.1), suggest that any summer wave will be limited, not like previous ones
www.cdc.gov/nwss/rv/COVI...
www.cdc.gov/nwss/rv/COVI...
June 29, 2025 at 11:40 PM
Imagine if when wastewater levels are low, we all committed to keeping them that way?
We could stamp Covid out once and for all.
If we adopted regular masking (with N95s or better), clean air, paid time off and better access to tests and vaccines, it could be done.
We could stamp Covid out once and for all.
If we adopted regular masking (with N95s or better), clean air, paid time off and better access to tests and vaccines, it could be done.
Reposted by Valwen 😷🏳️🌈
Pretty sure “we want to use the output of content creators to power our machine that will spit out janky copies to replace those creators, without compensating them for the content that made our machine possible, violating the social contract with content creators…also it kills the planet” is bad.
June 29, 2025 at 11:40 PM
Pretty sure “we want to use the output of content creators to power our machine that will spit out janky copies to replace those creators, without compensating them for the content that made our machine possible, violating the social contract with content creators…also it kills the planet” is bad.
Reposted by Valwen 😷🏳️🌈
Sad that we need to even say it though. Imagine starting a conference with reassuring people none of your research is plagiarized. Something’s (ideally) should go without saying.
June 27, 2025 at 2:03 PM
Sad that we need to even say it though. Imagine starting a conference with reassuring people none of your research is plagiarized. Something’s (ideally) should go without saying.
Reposted by Valwen 😷🏳️🌈
One reason I'm doing this is bc no real mechanisms exist yet to compel ppl to disclose their use of AI. We need such protocols in place. But in the meantime, I have the freedom to disclose my refusal to use AI, as doing so is a way to resist and weaken the (false) narrative of AI inevitability.
Yesterday I used this "AI -Free Statement" in a conference talk for the first time. Still trying to figure out the exact language.
Feel free to borrow, modify, etc.
Feel free to borrow, modify, etc.
June 28, 2025 at 1:04 PM
One reason I'm doing this is bc no real mechanisms exist yet to compel ppl to disclose their use of AI. We need such protocols in place. But in the meantime, I have the freedom to disclose my refusal to use AI, as doing so is a way to resist and weaken the (false) narrative of AI inevitability.
Reposted by Valwen 😷🏳️🌈
Yesterday I used this "AI -Free Statement" in a conference talk for the first time. Still trying to figure out the exact language.
Feel free to borrow, modify, etc.
Feel free to borrow, modify, etc.
June 27, 2025 at 12:12 PM
Yesterday I used this "AI -Free Statement" in a conference talk for the first time. Still trying to figure out the exact language.
Feel free to borrow, modify, etc.
Feel free to borrow, modify, etc.
Reposted by Valwen 😷🏳️🌈
EBV is a leading cause of Multiple Sclerosis. Still, some people say, oh, if it is a virus that 90% of the population has, there is nothing we can do about it.
Wrong, we can do a lot to prevent the virus from damaging the brain. But all under development *while virology research is under attack*
Wrong, we can do a lot to prevent the virus from damaging the brain. But all under development *while virology research is under attack*
June 25, 2025 at 1:07 AM
EBV is a leading cause of Multiple Sclerosis. Still, some people say, oh, if it is a virus that 90% of the population has, there is nothing we can do about it.
Wrong, we can do a lot to prevent the virus from damaging the brain. But all under development *while virology research is under attack*
Wrong, we can do a lot to prevent the virus from damaging the brain. But all under development *while virology research is under attack*
Reposted by Valwen 😷🏳️🌈
Today marks the third anniversary of the Supreme Court's decision to overturn Roe v. Wade.
What's happened since?
A record number of women have been prosecuted. Pregnancy loss is now considered extremely suspicious, even when it has nothing to do with abortion.
What's happened since?
A record number of women have been prosecuted. Pregnancy loss is now considered extremely suspicious, even when it has nothing to do with abortion.
Criminalizing pregnancy: A record number of women were prosecuted the year after Dobbs
They were targeted for substance use, miscarriages, and stillbirths, largely driven by fetal personhood laws.
www.motherjones.com
June 24, 2025 at 2:11 PM
Today marks the third anniversary of the Supreme Court's decision to overturn Roe v. Wade.
What's happened since?
A record number of women have been prosecuted. Pregnancy loss is now considered extremely suspicious, even when it has nothing to do with abortion.
What's happened since?
A record number of women have been prosecuted. Pregnancy loss is now considered extremely suspicious, even when it has nothing to do with abortion.
Reposted by Valwen 😷🏳️🌈
It hasn't become law yet but passed a house of commons vote. We now need the Lords to do their jobs and reintroduce all of the safeguards the committee decided not to include. But it is *very* clear what Keir Starmer and Kendall have in mind for us. 🤬
June 22, 2025 at 8:47 PM
It hasn't become law yet but passed a house of commons vote. We now need the Lords to do their jobs and reintroduce all of the safeguards the committee decided not to include. But it is *very* clear what Keir Starmer and Kendall have in mind for us. 🤬