Tom Staniford
@tomstaniford.bsky.social
CMO | Writer | Speaker | Cyborg
Carpe Jugulum. To define is to limit.
www.tomstaniford.com
Carpe Jugulum. To define is to limit.
www.tomstaniford.com
Pinned
26. Wide-Eyed and Legless
Ticking along. Waiting. Plotting.
tomstaniford.substack.com
NEW BLOG: Wide-Eyed and Legless, despite a lamentable dearth of alcohol. Eye and leg(s) healing well - prosthetic limbs and contact lenses imminent.
tomstaniford.substack.com/p/26-wide-ey...
tomstaniford.substack.com/p/26-wide-ey...
It’s cold. It’s grey. You definitely need cheering up. I recommend reading my new blog.
NEW BLOG: Wide-Eyed and Legless, despite a lamentable dearth of alcohol. Eye and leg(s) healing well - prosthetic limbs and contact lenses imminent.
tomstaniford.substack.com/p/26-wide-ey...
tomstaniford.substack.com/p/26-wide-ey...
26. Wide-Eyed and Legless
Ticking along. Waiting. Plotting.
tomstaniford.substack.com
November 26, 2025 at 8:22 AM
It’s cold. It’s grey. You definitely need cheering up. I recommend reading my new blog.
NEW BLOG: Wide-Eyed and Legless, despite a lamentable dearth of alcohol. Eye and leg(s) healing well - prosthetic limbs and contact lenses imminent.
tomstaniford.substack.com/p/26-wide-ey...
tomstaniford.substack.com/p/26-wide-ey...
26. Wide-Eyed and Legless
Ticking along. Waiting. Plotting.
tomstaniford.substack.com
November 25, 2025 at 6:29 PM
NEW BLOG: Wide-Eyed and Legless, despite a lamentable dearth of alcohol. Eye and leg(s) healing well - prosthetic limbs and contact lenses imminent.
tomstaniford.substack.com/p/26-wide-ey...
tomstaniford.substack.com/p/26-wide-ey...
12th Dec appointment for measuring up Roger, if sufficiently healed. Meaning v small chance of prosthetic arriving pre-Xmas but much more likely in New Year. January - learning how to stand and walk again. V exciting.
November 22, 2025 at 8:50 AM
12th Dec appointment for measuring up Roger, if sufficiently healed. Meaning v small chance of prosthetic arriving pre-Xmas but much more likely in New Year. January - learning how to stand and walk again. V exciting.
Day 2 of our impromptu Adventure Weekender- this time back at #HaldonForest with a restorative coffee at #TeignBean afterwards.
Really looking forward to getting leg healed and another prosthetic and then exploring here on foot. One of my favourite places.
Really looking forward to getting leg healed and another prosthetic and then exploring here on foot. One of my favourite places.
November 16, 2025 at 2:44 PM
Day 2 of our impromptu Adventure Weekender- this time back at #HaldonForest with a restorative coffee at #TeignBean afterwards.
Really looking forward to getting leg healed and another prosthetic and then exploring here on foot. One of my favourite places.
Really looking forward to getting leg healed and another prosthetic and then exploring here on foot. One of my favourite places.
Reposted by Tom Staniford
During a decade of Brexit debates, BBC Question Time invited 50 British MEPs from the EU Parliament onto its show. Every single one of them was pro-Brexit. 45 were UKIP, 3 were Tories, 2 were Reform. Farage alone appeared as an MEP 23 times! Not one pro-EU MEP was invited onto the show. Not one!
November 15, 2025 at 1:41 PM
During a decade of Brexit debates, BBC Question Time invited 50 British MEPs from the EU Parliament onto its show. Every single one of them was pro-Brexit. 45 were UKIP, 3 were Tories, 2 were Reform. Farage alone appeared as an MEP 23 times! Not one pro-EU MEP was invited onto the show. Not one!
First #wheelchair adventure for Roger (amputation #2) and Trevor’s leg (prosthetic #1). Dogs are delighted the gang is back together.
It’s unseasonably mild. Mid-Nov and I’m out scooting around in a T-shirt. It’s nice, but I was hoping to wear my snazzy Albion Cycling outers.
#StayOutsideLonger
It’s unseasonably mild. Mid-Nov and I’m out scooting around in a T-shirt. It’s nice, but I was hoping to wear my snazzy Albion Cycling outers.
#StayOutsideLonger
November 15, 2025 at 2:23 PM
First #wheelchair adventure for Roger (amputation #2) and Trevor’s leg (prosthetic #1). Dogs are delighted the gang is back together.
It’s unseasonably mild. Mid-Nov and I’m out scooting around in a T-shirt. It’s nice, but I was hoping to wear my snazzy Albion Cycling outers.
#StayOutsideLonger
It’s unseasonably mild. Mid-Nov and I’m out scooting around in a T-shirt. It’s nice, but I was hoping to wear my snazzy Albion Cycling outers.
#StayOutsideLonger
Wrote lots of stuff today. Sadly all admin, none of it creative. Rewarding with #FishNChips tonight. And tomorrow hope for a return to creativity.
Eye and Roger both doing well, thank you.
Eye and Roger both doing well, thank you.
November 10, 2025 at 2:54 PM
Wrote lots of stuff today. Sadly all admin, none of it creative. Rewarding with #FishNChips tonight. And tomorrow hope for a return to creativity.
Eye and Roger both doing well, thank you.
Eye and Roger both doing well, thank you.
Healing ongoing. Can’t wait to get back to 15hrs a week z1. #SnailClub
November 9, 2025 at 8:09 PM
Healing ongoing. Can’t wait to get back to 15hrs a week z1. #SnailClub
3wks post-amp, speaking at CamRARE’s superb RAREsummit ‘25 tomorrow.
Spoken here previously - always a pleasure. This time: a panel on managing #MentalHealth #Wellbeing and #RareDisease - a topic of equal importance to sufferers, their families, and clinicians
www.camraredisease.org/raresummit25/
Spoken here previously - always a pleasure. This time: a panel on managing #MentalHealth #Wellbeing and #RareDisease - a topic of equal importance to sufferers, their families, and clinicians
www.camraredisease.org/raresummit25/
CamRARE's RAREsummit25 - A decade of impact. A future of possibilities
RAREsummit25 by CamRARE is a leading rare disease innovation event uniting patients, researchers, industry, and policymakers to drive progress in rare disease diagnosis, care, and treatment. Join us i...
www.camraredisease.org
November 5, 2025 at 11:40 AM
3wks post-amp, speaking at CamRARE’s superb RAREsummit ‘25 tomorrow.
Spoken here previously - always a pleasure. This time: a panel on managing #MentalHealth #Wellbeing and #RareDisease - a topic of equal importance to sufferers, their families, and clinicians
www.camraredisease.org/raresummit25/
Spoken here previously - always a pleasure. This time: a panel on managing #MentalHealth #Wellbeing and #RareDisease - a topic of equal importance to sufferers, their families, and clinicians
www.camraredisease.org/raresummit25/
Specialist corneal clinic yesterday. Left house 1430 and with delays/prescriptions home 1830. New anti-inflam drops to go with antib and hydrating. Spending today bingeing Netflix in a darkened room, armed with pastries. Some days you just keep plugging away. Onwards.
November 4, 2025 at 9:33 AM
Specialist corneal clinic yesterday. Left house 1430 and with delays/prescriptions home 1830. New anti-inflam drops to go with antib and hydrating. Spending today bingeing Netflix in a darkened room, armed with pastries. Some days you just keep plugging away. Onwards.
Reposted by Tom Staniford
Taping eye shut at night seems to be working- keeping eye hydrated and letting the antibiotics do their work. It’s a faff, and a minor pain on removal each morning, but better than going blind. 😂
(I know it doesn’t look it, but trust me the eye is fully closed. Long lashes.)
(I know it doesn’t look it, but trust me the eye is fully closed. Long lashes.)
November 2, 2025 at 9:09 AM
Taping eye shut at night seems to be working- keeping eye hydrated and letting the antibiotics do their work. It’s a faff, and a minor pain on removal each morning, but better than going blind. 😂
(I know it doesn’t look it, but trust me the eye is fully closed. Long lashes.)
(I know it doesn’t look it, but trust me the eye is fully closed. Long lashes.)
Was really good to visit #HaldonForest today, albeit from the seat of an off-road powerchair. Can’t wait for sometime in January when I hope to be there with new legs and healed eyes enjoying the trails. Something to look forward to. Onwards.
November 1, 2025 at 6:55 PM
Was really good to visit #HaldonForest today, albeit from the seat of an off-road powerchair. Can’t wait for sometime in January when I hope to be there with new legs and healed eyes enjoying the trails. Something to look forward to. Onwards.
How’s this for an album cover?
November 1, 2025 at 2:37 PM
How’s this for an album cover?
An adventure happened. Great to get up to #HalfonForest to borrow a ‘tramper’ off-road power chair and test some lovely @albion_cycling threads. I’m not cycling. I’m not running. I’m not even walking. But, as they say, #StayOutsideLonger. Good for your head. Good for your health. Onwards.
November 1, 2025 at 2:37 PM
An adventure happened. Great to get up to #HalfonForest to borrow a ‘tramper’ off-road power chair and test some lovely @albion_cycling threads. I’m not cycling. I’m not running. I’m not even walking. But, as they say, #StayOutsideLonger. Good for your head. Good for your health. Onwards.
Yesterday, with repeated digging about removing stitches, was very much a ‘fuck it, I’m having another coffee’ day.
Today feels like adventure. Now to try to convince Alice we need to go on one.
Today feels like adventure. Now to try to convince Alice we need to go on one.
November 1, 2025 at 8:25 AM
Yesterday, with repeated digging about removing stitches, was very much a ‘fuck it, I’m having another coffee’ day.
Today feels like adventure. Now to try to convince Alice we need to go on one.
Today feels like adventure. Now to try to convince Alice we need to go on one.
Had to go back in and see 3rd nurse in 3 days for last few problematic stitches- but at last all done now.
Amputation site is looking incredible just 2 weeks and 2 days post-op. Amazing how much is already sealed/sealing. At this rate pre-Xmas prosthetic fitting might even be possible.
Onwards.
Amputation site is looking incredible just 2 weeks and 2 days post-op. Amazing how much is already sealed/sealing. At this rate pre-Xmas prosthetic fitting might even be possible.
Onwards.
October 31, 2025 at 6:19 PM
Had to go back in and see 3rd nurse in 3 days for last few problematic stitches- but at last all done now.
Amputation site is looking incredible just 2 weeks and 2 days post-op. Amazing how much is already sealed/sealing. At this rate pre-Xmas prosthetic fitting might even be possible.
Onwards.
Amputation site is looking incredible just 2 weeks and 2 days post-op. Amazing how much is already sealed/sealing. At this rate pre-Xmas prosthetic fitting might even be possible.
Onwards.
Silver linings: in town and needed a post-hospital refresh, so back to #ChandosDeli Exeter. Cortado, pistachio cannoli, and pastel de nata. Magic. And an unexpected but welcome catch-up with @andrewbutlerphoto.bsky.social
October 30, 2025 at 4:13 PM
Silver linings: in town and needed a post-hospital refresh, so back to #ChandosDeli Exeter. Cortado, pistachio cannoli, and pastel de nata. Magic. And an unexpected but welcome catch-up with @andrewbutlerphoto.bsky.social
Checking up on Roger in pharmacy after 3rd eye appt this wk.
Confirmed suspicions: keep up antibiotic eyedrops for infection, then keep up hydrating eyedrops (8xdaily) and taping eye at night for 2-3 months until Botox dissipates, Not ideal but could be worse. Onwards.
Confirmed suspicions: keep up antibiotic eyedrops for infection, then keep up hydrating eyedrops (8xdaily) and taping eye at night for 2-3 months until Botox dissipates, Not ideal but could be worse. Onwards.
October 30, 2025 at 4:06 PM
Checking up on Roger in pharmacy after 3rd eye appt this wk.
Confirmed suspicions: keep up antibiotic eyedrops for infection, then keep up hydrating eyedrops (8xdaily) and taping eye at night for 2-3 months until Botox dissipates, Not ideal but could be worse. Onwards.
Confirmed suspicions: keep up antibiotic eyedrops for infection, then keep up hydrating eyedrops (8xdaily) and taping eye at night for 2-3 months until Botox dissipates, Not ideal but could be worse. Onwards.
A @dexinst.bsky.social board meeting tonight - an honour and a privilege to be voted Hon Sec for another year. Huge progress over the last 12 months; much more planned. Thank you to fellow trustees, the top-class staff, wonderful volunteers, and engaged members that make it what it is.
October 29, 2025 at 6:35 PM
A @dexinst.bsky.social board meeting tonight - an honour and a privilege to be voted Hon Sec for another year. Huge progress over the last 12 months; much more planned. Thank you to fellow trustees, the top-class staff, wonderful volunteers, and engaged members that make it what it is.
Dressing changed, stitches out. I’m not going to share a pic as still in gruesome mode. Everybody happy, really. Just more weeks/months of rest, clean, good food, sleep. Eye mostly behaving. Also back doing more work than I probably should, but there we go. Onwards.
October 29, 2025 at 4:45 PM
Dressing changed, stitches out. I’m not going to share a pic as still in gruesome mode. Everybody happy, really. Just more weeks/months of rest, clean, good food, sleep. Eye mostly behaving. Also back doing more work than I probably should, but there we go. Onwards.
So taping my eye shut last night rendered pleasing moisture dividends. We’ll be continuing that, albeit probably need to for the next 3 months. In other news Rog doing spectacularly. Stitches out tomorrow, 2 weeks post-op. Managed some emails over last few days, so energy also returning. Onwards.
October 28, 2025 at 2:37 PM
So taping my eye shut last night rendered pleasing moisture dividends. We’ll be continuing that, albeit probably need to for the next 3 months. In other news Rog doing spectacularly. Stitches out tomorrow, 2 weeks post-op. Managed some emails over last few days, so energy also returning. Onwards.
For the benefit of Int’l/US viewers (esp @edwardgivens.bsky.social), here’s a #FishNChips supper with essentially mandatory pot of ‘curry’ sauce. Delicious, but apologies in advance to basically all of Indian cuisine.
October 27, 2025 at 6:30 PM
For the benefit of Int’l/US viewers (esp @edwardgivens.bsky.social), here’s a #FishNChips supper with essentially mandatory pot of ‘curry’ sauce. Delicious, but apologies in advance to basically all of Indian cuisine.
FINAL NUDGE: last klaxon that I have written a new blog. Say hello to Roger (amputation #2), a happy weaning off heroin derivatives, and a Michelin-appreciation for custard.
As usual, likes, comments, shares most welcome.
I'll be quiet now.
tomstaniford.substack.com/p/25-third-t...
As usual, likes, comments, shares most welcome.
I'll be quiet now.
tomstaniford.substack.com/p/25-third-t...
25. Third Time Lucky
'Double Amputee' sounds much more impressive, dunnit?
tomstaniford.substack.com
October 27, 2025 at 4:27 PM
FINAL NUDGE: last klaxon that I have written a new blog. Say hello to Roger (amputation #2), a happy weaning off heroin derivatives, and a Michelin-appreciation for custard.
As usual, likes, comments, shares most welcome.
I'll be quiet now.
tomstaniford.substack.com/p/25-third-t...
As usual, likes, comments, shares most welcome.
I'll be quiet now.
tomstaniford.substack.com/p/25-third-t...