The2Margarets
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the2margarets.bsky.social
The2Margarets
@the2margarets.bsky.social
Retired RN. ME/LC.
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Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
July 31, 2025 at 6:45 AM
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Leading George Monbiot to call this the greatest medical scandal of the 21st century, and he is not wrong.

And NHS staff are still forced to undergo 'training' on FII but none of them received any training on ME.
bsky.app/profile/bini...

Which is how you end up with systemic abuse like this.
July 31, 2025 at 1:34 PM
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Here is three straight minutes of Donald Trump saying things will be happening “in two weeks” (spoiler alert: none of them ever happened)
June 19, 2025 at 11:07 PM
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I can’t recommend this enough.

UNBREAKING, a new project from @lizneeley.bsky.social & co, documents & explains our many concurrent institutional collapses.

It’s beautifully executed work, full of intellectual & moral clarity. 3 pages are live, more will come. It’s SO GOOD, & I learned so much.
👋 Hi, we’re Unbreaking, a volunteer-run collective working to document our current moment of institutional collapse and its human costs—as well as the pushback and resilience work already underway. We believe this is critical work for building and retaining political agency.
May 19, 2025 at 10:42 PM
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EVERY ACCUSATION A CONFESSION

At the U.S./Mexico border, Republicans are defending their right to make themselves feel safe by murdering refugee men, women, and children, using as rationale a once-fringe Nazi conspiracy theory they are promoting.

www.the-reframe.com/one-must-ima...
Every Accusation a Confession
False equivalence is fascism's engine. Treating bad faith as if it is good faith fuels that engine. Exploring DARVO tactics of narcissist bullies. 2 of 2
www.the-reframe.com
February 19, 2024 at 2:07 PM
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i’m sure there’ll be something official in beth’s memory but if you want to make a donation to the foundation she co-founded: meaction.net
I was lucky to share the last couple of weeks of #BethMazur's life with her. I want you to know: She felt loved when she died. She died because her ME was unbearable. There's nothing more any of us could have done. Effective treatment is the only thing that could have saved her.
December 24, 2023 at 3:33 PM
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Register for the Early Investigator's Workshop on ME/CFS at NIH until November 15, 2023! It will be held in-person and virtually on December 11, 2023. I will be speaking. Sign up here, and send to other early-career investigators you know. event.roseliassociates.com/me-cfs-sympo...
SPARK ME Registration
Registration OMB#: 0925-0740 Exp Date: 09/30/2025 Public reporting burden for this collection of information is estimated to average 3 minutes per response, including the time for reviewing instru...
event.roseliassociates.com
November 13, 2023 at 10:24 PM
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Chlorophyll is nature’s own abstract expressionist artist 🌱
November 4, 2023 at 4:18 PM
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Brown pelican, waterbending. 🪶
November 4, 2023 at 3:34 PM
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🚨 Please donate and share! I need neurosurgeries for untreated issues I’ve had since I was a baby, kid, young adult

It’s taken years to be taken seriously and get to the global expert surgeon who is ready to help! Medicare covers 80% but Medicaid covers nothing as it’s out-of-state t.co/E5MRE5ixeX
We've got your back! Help Emily get spinal care, organized by Jessica Smolinski
*PLEASE SHARE even if you can't donate* Hello everyone! This f… Jessica Smolinski needs your support for We've got your back! Help Emily get spinal care
t.co
October 2, 2023 at 6:35 AM
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Hello new followers! Shall we start a thread of tips for this site? E.g. I recently learnt that if you put #academicsky in your profile, other academics can find you more easily.
October 10, 2023 at 8:20 PM
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fr i mistook this row of tits for a caterpillar
October 6, 2023 at 11:38 AM
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Article on what Long Covid is like, and why you should rest as much as possible during a covid infection www.webmd.com/covid/news/2...
October 6, 2023 at 6:28 PM
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After getting infected, I started digging into covid research and I’ve been horrified to find that there is so much known about both the dangers of infections for everyone and infection prevention that is being ignored. And so much was known at the time of my infection!
3/?
October 5, 2023 at 6:03 PM
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Feeds that may interest the ♿️ community include:

#Disability Feed
bsky.app/profile/did:...

#ChronicIllness
bsky.app/profile/did:...

#MECFS
bsky.app/profile/did:...

LongCovid
bsky.app/profile/did:...

Covid Cautious
bsky.app/profile/did:...

Disability Justice
bsky.app/profile/did:...
October 2, 2023 at 4:52 AM
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Health Rising's first AI-aided ME/CFS recovery story

www.healthrising.org/blog/2023/10...

#MECFS #FM
October 3, 2023 at 9:31 PM