@tamamamamara.bsky.social
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Sup? My name's Elie. I have PhD in Psych & I'm a postdoc. I'm new to Bluesky and need to follow. Things I'm into: #neurodivergent/ #MentallyIll / #MadStudies content that is not constructed purely through an anti-psychiatry lens; lived experience research (I'm #AuDHD + #Bipolar); anything #Pokémon
May 11, 2025 at 1:53 AM
Sup? My name's Elie. I have PhD in Psych & I'm a postdoc. I'm new to Bluesky and need to follow. Things I'm into: #neurodivergent/ #MentallyIll / #MadStudies content that is not constructed purely through an anti-psychiatry lens; lived experience research (I'm #AuDHD + #Bipolar); anything #Pokémon
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I wrote this book (it's available on Amazon), and check out this interview I did with Thinking Person's Guide to Autism!
What is it like to be autistic & bipolar? How can we better support ND folks who require supports like medication or inpatient mental health care? We spoke with Elliot Gavin Keenan about all these topics from his personal experience & new book, Luminous Mind:
thinkingautismguide.com/2025/04/writ...
thinkingautismguide.com/2025/04/writ...
May 11, 2025 at 5:50 PM
I wrote this book (it's available on Amazon), and check out this interview I did with Thinking Person's Guide to Autism!
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The House Ag Committee released its breakdown of the spending cuts made under the reconciliation bill (h/t @jamiedupree.bsky.social). It puts work requirements on able-bodied adults between 19 and 64. Reducdes the federal share of administering SNAP from 50% to 25%
docs.house.gov/meetings/AG/...
docs.house.gov/meetings/AG/...
docs.house.gov
May 13, 2025 at 1:31 AM
The House Ag Committee released its breakdown of the spending cuts made under the reconciliation bill (h/t @jamiedupree.bsky.social). It puts work requirements on able-bodied adults between 19 and 64. Reducdes the federal share of administering SNAP from 50% to 25%
docs.house.gov/meetings/AG/...
docs.house.gov/meetings/AG/...
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Coolest couple in the neighborhood. Photo from my collection, 1937.
May 12, 2025 at 5:25 PM
Coolest couple in the neighborhood. Photo from my collection, 1937.
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The Ag Committee's part of the Reconciliation Bill raises the SNAP work requirement age for able-bodied adults without dependents from 54 to 64. It also changes the definition of "dependent child" from under 18 years to under 7 years old to determine "Able-bodied adult without dependents."
May 13, 2025 at 1:38 AM
The Ag Committee's part of the Reconciliation Bill raises the SNAP work requirement age for able-bodied adults without dependents from 54 to 64. It also changes the definition of "dependent child" from under 18 years to under 7 years old to determine "Able-bodied adult without dependents."
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My #INSAR2025 talk - expertly tweeted by @thinkingautism.com & @aimeespeaks.bsky.social - is now available to watch: www.youtube.com/watch?v=9n4c...
Focus: How I share power with lay Autistic people - including those with learning disabilities and who are non-speaking - and what they think of it /1
Focus: How I share power with lay Autistic people - including those with learning disabilities and who are non-speaking - and what they think of it /1
Aimee Grant INSAR high support needs presentation - April 2025
YouTube video by Autism from menstruation to menopause
www.youtube.com
May 7, 2025 at 10:39 AM
My #INSAR2025 talk - expertly tweeted by @thinkingautism.com & @aimeespeaks.bsky.social - is now available to watch: www.youtube.com/watch?v=9n4c...
Focus: How I share power with lay Autistic people - including those with learning disabilities and who are non-speaking - and what they think of it /1
Focus: How I share power with lay Autistic people - including those with learning disabilities and who are non-speaking - and what they think of it /1
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Everyone in the past was neurotypical, which is how we got things like this single-author, eight-volume encyclopedia of ferns
May 6, 2025 at 1:20 PM
Everyone in the past was neurotypical, which is how we got things like this single-author, eight-volume encyclopedia of ferns
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Check out Lavender’s Nonspeaker Library — it is a collection of posts, writing, art, poetry, researcher, and more by and about nonspeaking people and people with communication disabilities. www.tumblr.com/nonspeakerli...
@nonspeakerlibrary · Lavender’s Nonspeaker Library
Welcome! This is my collection of posts, writing, art, poetry, research and everything else by and about nonspeaking people, and others with communication disabilities. Because our work and our lives…
www.tumblr.com
May 5, 2025 at 11:00 PM
Check out Lavender’s Nonspeaker Library — it is a collection of posts, writing, art, poetry, researcher, and more by and about nonspeaking people and people with communication disabilities. www.tumblr.com/nonspeakerli...
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Writing on the back of this photo from my collection says “General Nuisance. Summer 1954”.
May 6, 2025 at 12:41 AM
Writing on the back of this photo from my collection says “General Nuisance. Summer 1954”.
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I honestly don’t eat a lot of seafood, but I *love* looking at the art on tinned seafood.
May 5, 2025 at 12:54 PM
I honestly don’t eat a lot of seafood, but I *love* looking at the art on tinned seafood.
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It's no coincidence that someone who argues that autistic people lack epistemic authority feels the need to warn about this too.
May 5, 2025 at 3:40 PM
It's no coincidence that someone who argues that autistic people lack epistemic authority feels the need to warn about this too.
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The goal of this project is to put that important and actionable information in a cute-as-hell delivery system, so people feel excited and empowered to take those first steps. We don’t drown them in details, just give them an action plan, emphasizing that doing anything is better than nothing.
May 3, 2025 at 2:27 AM
The goal of this project is to put that important and actionable information in a cute-as-hell delivery system, so people feel excited and empowered to take those first steps. We don’t drown them in details, just give them an action plan, emphasizing that doing anything is better than nothing.
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The zine gives an overview of ACTIONS people can take to support biodiversity here in Philly. It includes information specific to the region, from plant species to city stormwater management programs.
It can be overwhelming to know you’re supposed to do SOMETHING but not know where to start.
It can be overwhelming to know you’re supposed to do SOMETHING but not know where to start.
May 3, 2025 at 2:25 AM
The zine gives an overview of ACTIONS people can take to support biodiversity here in Philly. It includes information specific to the region, from plant species to city stormwater management programs.
It can be overwhelming to know you’re supposed to do SOMETHING but not know where to start.
It can be overwhelming to know you’re supposed to do SOMETHING but not know where to start.
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This project is ~$2k over budget, bc... well, I paid artists & printed 3000 copies. "MY BAD" (not bad, good actually).
I've distributed ~10% of the zines. I want to have a broader footprint in the city!
Want to help get zines to more neighborhoods? 🫣
Donate here: givebutter.com/phillybiodiv...
I've distributed ~10% of the zines. I want to have a broader footprint in the city!
Want to help get zines to more neighborhoods? 🫣
Donate here: givebutter.com/phillybiodiv...
May 3, 2025 at 1:30 AM
This project is ~$2k over budget, bc... well, I paid artists & printed 3000 copies. "MY BAD" (not bad, good actually).
I've distributed ~10% of the zines. I want to have a broader footprint in the city!
Want to help get zines to more neighborhoods? 🫣
Donate here: givebutter.com/phillybiodiv...
I've distributed ~10% of the zines. I want to have a broader footprint in the city!
Want to help get zines to more neighborhoods? 🫣
Donate here: givebutter.com/phillybiodiv...
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One important avenue for discussing autistic people’s autonomy in depth is exploring the Supported Decision Making Movement. Autistic Self Advocacy Network offers some helpful material on this subject, including some material in an Easy Reading format.
May 5, 2025 at 1:36 AM
One important avenue for discussing autistic people’s autonomy in depth is exploring the Supported Decision Making Movement. Autistic Self Advocacy Network offers some helpful material on this subject, including some material in an Easy Reading format.
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Blasko: We talked for a long time about the barriers to inclusion for autistics with HSNs. Researchers need to develop the skills to do it. We need less gatekeeping, and to dismantle that power imbalance. Researchers needs to provide better access. I hope we are patient with each other.
#INSAR2025
#INSAR2025
May 3, 2025 at 7:17 PM
Blasko: We talked for a long time about the barriers to inclusion for autistics with HSNs. Researchers need to develop the skills to do it. We need less gatekeeping, and to dismantle that power imbalance. Researchers needs to provide better access. I hope we are patient with each other.
#INSAR2025
#INSAR2025
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Blasko and Jaswal: Why is this panel happening? Well, some people here don't understand how autistic with HSNs can participate, and don't understand the #neurodiversity paradigm.
Previous panelists talked about how to include autistic people with HSNs successfully in research.
#INSAR2025
Previous panelists talked about how to include autistic people with HSNs successfully in research.
#INSAR2025
May 3, 2025 at 7:11 PM
Blasko and Jaswal: Why is this panel happening? Well, some people here don't understand how autistic with HSNs can participate, and don't understand the #neurodiversity paradigm.
Previous panelists talked about how to include autistic people with HSNs successfully in research.
#INSAR2025
Previous panelists talked about how to include autistic people with HSNs successfully in research.
#INSAR2025
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Sutherland: Sometimes communication difficulties were due to staff's normative assumptions about communication. So if someone could speak a bit they assumed they should be able to speak more, instead of trying to use AAC or other communication methods.
#INSAR2025
#INSAR2025
May 3, 2025 at 7:00 PM
Sutherland: Sometimes communication difficulties were due to staff's normative assumptions about communication. So if someone could speak a bit they assumed they should be able to speak more, instead of trying to use AAC or other communication methods.
#INSAR2025
#INSAR2025
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Sutherland: On Fear and Control: Some staff would lose their curiosity about appropriate support techniques and ended up "running through the motions."
#INSAR2025
#INSAR2025
May 3, 2025 at 6:59 PM
Sutherland: On Fear and Control: Some staff would lose their curiosity about appropriate support techniques and ended up "running through the motions."
#INSAR2025
#INSAR2025
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Ryan: Always be kind and respectful. Allow autistic people to say yes, and also to say no. Be mindful of deficit-based and dehumanizing language that contributes to stigma.
#INSAR2025
#INSAR2025
May 3, 2025 at 6:44 PM
Ryan: Always be kind and respectful. Allow autistic people to say yes, and also to say no. Be mindful of deficit-based and dehumanizing language that contributes to stigma.
#INSAR2025
#INSAR2025
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Ryan: There is currently not a tool for helping staff/caregivers to clearly communicate with autistic people with high support needs. So Ryan's team created a toolkit/tip sheet.
#INSAR2025
#INSAR2025
May 3, 2025 at 6:47 PM
Ryan: There is currently not a tool for helping staff/caregivers to clearly communicate with autistic people with high support needs. So Ryan's team created a toolkit/tip sheet.
#INSAR2025
#INSAR2025
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Ryan: A crucial component is creating in-the-moment choice-making tools that support immediate decisions for autistic people with HSNs.
#INSAR2025
#INSAR2025
May 3, 2025 at 6:38 PM
Ryan: A crucial component is creating in-the-moment choice-making tools that support immediate decisions for autistic people with HSNs.
#INSAR2025
#INSAR2025
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Ryan: How do we design a toolkit of practical resources that staff/caregivers can use to promote autonomy for autistic people with high support needs?
#INSAR2025
#INSAR2025
May 3, 2025 at 6:37 PM
Ryan: How do we design a toolkit of practical resources that staff/caregivers can use to promote autonomy for autistic people with high support needs?
#INSAR2025
#INSAR2025
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Ryan: The #neurodiversity movement advocates for all autistic people to exert autonomy, meaning feeling in control of your life. It's a fundamental human right, and key component of well-being. Autistic people overall experience decrease autonomy, per research.
#INSAR2025
#INSAR2025
May 3, 2025 at 6:36 PM
Ryan: The #neurodiversity movement advocates for all autistic people to exert autonomy, meaning feeling in control of your life. It's a fundamental human right, and key component of well-being. Autistic people overall experience decrease autonomy, per research.
#INSAR2025
#INSAR2025
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And please remember that most autistics have a history of being shamed 4 dysregulation. I suspect many of us, particularly elders, know on some level when we r becoming dysregulated, but go into denial or push through anyway b/c of the shame we have internalized over our dysregulation. #INSAR2025
May 5, 2025 at 1:43 AM
And please remember that most autistics have a history of being shamed 4 dysregulation. I suspect many of us, particularly elders, know on some level when we r becoming dysregulated, but go into denial or push through anyway b/c of the shame we have internalized over our dysregulation. #INSAR2025