Susan Agrawal
@susanagrawal.bsky.social
Medicaid waiver nerd, Kids’ Waivers website, project director at The Arc of Illinois, music theory geek
Reposted by Susan Agrawal
FWIW, last month, I wrote about how dismantling the Department of Education would deprive students with disabilities of the funding for their accommodations and leave them without any organization to protect their rights.
www.msnbc.com/opinion/msnb...
www.msnbc.com/opinion/msnb...
Opinion | Linda McMahon and RFK Jr. could be a one-two punch for disabled students
The Education Department is an irreplaceable lifeline for students with disabilities.
www.msnbc.com
March 20, 2025 at 10:09 PM
FWIW, last month, I wrote about how dismantling the Department of Education would deprive students with disabilities of the funding for their accommodations and leave them without any organization to protect their rights.
www.msnbc.com/opinion/msnb...
www.msnbc.com/opinion/msnb...
Reposted by Susan Agrawal
We are experiencing an assault on science unparalleled by anything I’ve seen in my life. It’s not one issue or another anymore, the entire institution is under attack by the most powerful individuals in the country.
This Friday, where will you be?
standupforscience2025.org
This Friday, where will you be?
standupforscience2025.org
March 2, 2025 at 4:27 PM
We are experiencing an assault on science unparalleled by anything I’ve seen in my life. It’s not one issue or another anymore, the entire institution is under attack by the most powerful individuals in the country.
This Friday, where will you be?
standupforscience2025.org
This Friday, where will you be?
standupforscience2025.org
Reposted by Susan Agrawal
Reposted by Susan Agrawal
Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.
February 2, 2025 at 11:47 PM
Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.
Reposted by Susan Agrawal
An incredibly powerful moment from Senator Maggie Hassan. As the mother of a son with severe cerebral palsy, she understands the search for answers.
Instead of helping families, RFK Jr. pushes long-debunked vaccine lies, making it harder to find real solutions.
He is dangerous and unqualified.
Instead of helping families, RFK Jr. pushes long-debunked vaccine lies, making it harder to find real solutions.
He is dangerous and unqualified.
January 30, 2025 at 4:44 PM
An incredibly powerful moment from Senator Maggie Hassan. As the mother of a son with severe cerebral palsy, she understands the search for answers.
Instead of helping families, RFK Jr. pushes long-debunked vaccine lies, making it harder to find real solutions.
He is dangerous and unqualified.
Instead of helping families, RFK Jr. pushes long-debunked vaccine lies, making it harder to find real solutions.
He is dangerous and unqualified.
Reposted by Susan Agrawal
Reposted by Susan Agrawal
Words are powerful & right now, they’re shaping a world where exclusion & discrimination thrive. That’s why we’re sounding the alarm about the R-word. It’s creeping back into casual conversations, pop culture & even politics. The R-word isn’t a punchline—it’s harmful. Swipe to learn why. #disability
January 14, 2025 at 3:59 PM
Words are powerful & right now, they’re shaping a world where exclusion & discrimination thrive. That’s why we’re sounding the alarm about the R-word. It’s creeping back into casual conversations, pop culture & even politics. The R-word isn’t a punchline—it’s harmful. Swipe to learn why. #disability
Reposted by Susan Agrawal
Medicaid requirements may burden states and lead to coverage loss for many hardworking Americans. By Mara Youdelman, David Machledt, and Emma Parker-Newton healthlaw.org/resource/top...
Top 10 Reasons Why Work Requirements Should Not Be Added to Medicaid
Work requirements in Medicaid risk creating unnecessary administrative burdens and increasing costs for states without achieving their intended goals. Evidence shows that these requirements often resu...
healthlaw.org
January 7, 2025 at 9:33 PM
Medicaid requirements may burden states and lead to coverage loss for many hardworking Americans. By Mara Youdelman, David Machledt, and Emma Parker-Newton healthlaw.org/resource/top...
Reposted by Susan Agrawal
Concrete proof that states would be forced to cut #Medicaid for older adults if federal funding were capped. Over a 4-year period, at least 29 states would have exceeded the cap for people age 65+ in at least one year, and eight would have exceeded the cap in all years. www.cbpp.org/research/hea...
Medicaid Per Capita Cap Would Harm Millions of People by Forcing Deep Cuts and Shifting Costs to States | Center on Budget and Policy Priorities
These proposals would dramatically change Medicaid’s funding structure, deeply cut federal funding, and shift costs and financial risks to states. Faced with large and growing reductions in federal fu...
www.cbpp.org
January 7, 2025 at 9:38 PM
Concrete proof that states would be forced to cut #Medicaid for older adults if federal funding were capped. Over a 4-year period, at least 29 states would have exceeded the cap for people age 65+ in at least one year, and eight would have exceeded the cap in all years. www.cbpp.org/research/hea...
Imagine what the world would have been like if Jimmy Carter had had a second term….
December 30, 2024 at 4:44 PM
Imagine what the world would have been like if Jimmy Carter had had a second term….
Reposted by Susan Agrawal
Greenland has universal healthcare, gender equality, and clean energy.
Can they take over the USA instead?
Can they take over the USA instead?
December 28, 2024 at 7:45 PM
Greenland has universal healthcare, gender equality, and clean energy.
Can they take over the USA instead?
Can they take over the USA instead?
Reposted by Susan Agrawal
In 1964-65 humans created Medicare, Medicaid, food stamps, and Head Start. If you want to 'make America great again,' maybe revisit the era when you actually acted like you cared.
December 26, 2024 at 6:42 PM
In 1964-65 humans created Medicare, Medicaid, food stamps, and Head Start. If you want to 'make America great again,' maybe revisit the era when you actually acted like you cared.
Reposted by Susan Agrawal
This pleases me (gift):
"I had only one advantage: I’m a historian. One of the true gifts of studying the humanities is not the content we learn in school, but that we develop the skills to learn what we need to know when life takes unexpected turns. So like a proper nerd, I made a reading list."
"I had only one advantage: I’m a historian. One of the true gifts of studying the humanities is not the content we learn in school, but that we develop the skills to learn what we need to know when life takes unexpected turns. So like a proper nerd, I made a reading list."
On RFK Jr., vaccines and my son with autism and Down syndrome
Knowledge is the vaccine for ignorance and fear. But RFK Jr. just wants to let the fever burn.
www.startribune.com
December 19, 2024 at 2:06 AM
This pleases me (gift):
"I had only one advantage: I’m a historian. One of the true gifts of studying the humanities is not the content we learn in school, but that we develop the skills to learn what we need to know when life takes unexpected turns. So like a proper nerd, I made a reading list."
"I had only one advantage: I’m a historian. One of the true gifts of studying the humanities is not the content we learn in school, but that we develop the skills to learn what we need to know when life takes unexpected turns. So like a proper nerd, I made a reading list."
Guess why my daughter didn’t die from insurance denials? Because she had secondary Medicaid to fill in the gaps. Things her insurance did deny: oxygen (!), home nursing, feeding tube extensions, gastric drainage bags, her wheelchair, bath chair, and hoyer, to name a few off the top of my head.
December 15, 2024 at 5:18 PM
Guess why my daughter didn’t die from insurance denials? Because she had secondary Medicaid to fill in the gaps. Things her insurance did deny: oxygen (!), home nursing, feeding tube extensions, gastric drainage bags, her wheelchair, bath chair, and hoyer, to name a few off the top of my head.
Reposted by Susan Agrawal
My latest Georgetown CCF blog on how Congressional GOP leaders are starting to be open about their aim to impose draconian cuts on Medicaid next year. #healthpolicy ccf.georgetown.edu/2024/11/18/c...
Congressional Republican Leaders Start to Show Their Hand: Draconian Medicaid Cuts on the Agenda for Next Year
I have been warning for months that Medicaid would be on the chopping block if there is a second term of the Trump Administration and if Congressional Republicans win House and Senate majorities in…
ccf.georgetown.edu
November 18, 2024 at 3:25 PM
My latest Georgetown CCF blog on how Congressional GOP leaders are starting to be open about their aim to impose draconian cuts on Medicaid next year. #healthpolicy ccf.georgetown.edu/2024/11/18/c...
Reposted by Susan Agrawal
Happening NOW – health care funding is on the table in end-of-year congressional budget negotiations.
The CBO estimates 2.2 million Americans stand to lose coverage if #ACA subsidies are allowed to expire. #ProtectOurCare
wapo.st/4iuMlxh
The CBO estimates 2.2 million Americans stand to lose coverage if #ACA subsidies are allowed to expire. #ProtectOurCare
wapo.st/4iuMlxh
Democrats propose deal to GOP extending Affordable Care Act subsidies by a year
The offer, made Thursday night, would prevent 2.2 million people from losing health coverage, according to new Congressional Budget Office estimates.
wapo.st
December 9, 2024 at 1:25 PM
Happening NOW – health care funding is on the table in end-of-year congressional budget negotiations.
The CBO estimates 2.2 million Americans stand to lose coverage if #ACA subsidies are allowed to expire. #ProtectOurCare
wapo.st/4iuMlxh
The CBO estimates 2.2 million Americans stand to lose coverage if #ACA subsidies are allowed to expire. #ProtectOurCare
wapo.st/4iuMlxh
Reposted by Susan Agrawal
#Medicaid #Medicare #ACA #MedSky #DisabilityRights #ChronicIllness #MentalHealth #UniversalHealthcare #HHS #MedicareForAll #FDA #NIH
December 7, 2024 at 10:26 PM
Reposted by Susan Agrawal
You know who everyone trusted as kids? Smokey Bear. We need a Smokey Bear but for preventing fascism.
December 7, 2024 at 10:31 PM
You know who everyone trusted as kids? Smokey Bear. We need a Smokey Bear but for preventing fascism.
Reposted by Susan Agrawal
Proposed Republican #Medicaid cuts could impact 72 million Americans, including children, seniors, and people with disabilities. These cuts risk worsening chronic illnesses, delaying cancer care, and increasing medical debt, leading to widespread harm. www.cbpp.org/research/hea...
December 3, 2024 at 5:20 PM
Proposed Republican #Medicaid cuts could impact 72 million Americans, including children, seniors, and people with disabilities. These cuts risk worsening chronic illnesses, delaying cancer care, and increasing medical debt, leading to widespread harm. www.cbpp.org/research/hea...
“Oz’s nomination paired with Robert Kennedy’s nomination to lead HHS and renewed congressional interest in slashing Medicaid funding through block grants and per capita caps signals a dangerous agenda.” healthlaw.org/news/nationa...
National Health Law Program Opposes Nomination of Dr. Mehmet Oz to Lead CMS - National Health Law Program
Washington, D.C. – The National Health Law Program (NHeLP) strongly opposes the nomination of Dr. Mehmet Oz to serve as Administrator of the Centers for Medicare & Medicaid Services (CMS). Dr. Oz’s tr...
healthlaw.org
December 6, 2024 at 2:16 AM
“Oz’s nomination paired with Robert Kennedy’s nomination to lead HHS and renewed congressional interest in slashing Medicaid funding through block grants and per capita caps signals a dangerous agenda.” healthlaw.org/news/nationa...
Reposted by Susan Agrawal
New from the Congressional Budget Office: Not extending enhanced ACA premium assistance beyond 2025 would ultimately lead to 3.8 million more people uninsured.
www.cbo.gov/system/files...
www.cbo.gov/system/files...
December 5, 2024 at 9:17 PM
New from the Congressional Budget Office: Not extending enhanced ACA premium assistance beyond 2025 would ultimately lead to 3.8 million more people uninsured.
www.cbo.gov/system/files...
www.cbo.gov/system/files...
Reposted by Susan Agrawal
Some of the most prominent voices in #Congress for home and community-based services, #SSI reform, competitive integrated employment and other disability issues are heading for the exits. #disabilities
On Capitol Hill, Key Disability Champions Set To Depart
Some of the most prominent voices in Congress for home and community-based services, SSI reform, competitive integrated employment and other disability issues are heading for the exits.
www.disabilityscoop.com
December 2, 2024 at 4:02 AM
Some of the most prominent voices in #Congress for home and community-based services, #SSI reform, competitive integrated employment and other disability issues are heading for the exits. #disabilities
Reposted by Susan Agrawal
“Get in losers. We’re getting polio.”
November 29, 2024 at 2:07 AM
“Get in losers. We’re getting polio.”
Reposted by Susan Agrawal
*States do not have to cover HCBS, meaning they can cut these programs when budgets get tight—an inevitable result if Congress cuts #Medicaid funding. ~8 million people with disabilities of all ages could lose access to the support they need to live with their spouses & families in their communities
Medicaid Facts: #Medicaid is the primary funder of long-term services and supports (LTSS). In 2022, Medicaid covered home- and community-based services (HCBS) for 7.8 million people and institutional care for 1.5 million people (1.3 million in nursing homes).
www.medicaid.gov/medicaid/lon...
www.medicaid.gov/medicaid/lon...
November 27, 2024 at 2:13 AM
*States do not have to cover HCBS, meaning they can cut these programs when budgets get tight—an inevitable result if Congress cuts #Medicaid funding. ~8 million people with disabilities of all ages could lose access to the support they need to live with their spouses & families in their communities
Reposted by Susan Agrawal
Republicans, remember to thank Jesus, who you voted to deport soon for your Thanksgiving Day meal!
November 28, 2024 at 5:55 AM
Republicans, remember to thank Jesus, who you voted to deport soon for your Thanksgiving Day meal!