Simon Etkind
simonnoahetkind.bsky.social
Simon Etkind
@simonnoahetkind.bsky.social
Palliative care clinical-academic. Uncertain about uncertainty
I'm honoured to be speaking at the @stclarehospice.bsky.social Hospice Palliative Care Conference on Friday 10th October.

This year's theme is 'The future of end of life care' & I'll be talking about how we can deliver more equitable #EndOfLifeCare by changing our approach to future uncertainties
September 24, 2025 at 12:21 PM
Reposted by Simon Etkind
Bella Madden, our public research partner, shares a heartfelt poem on anticipatory injectable medications in end-of-life care. The poem accompanies a new research paper exploring family carers experiences with these practices.

youtu.be/fHoAaiPG6C8

Read more:

doi.org/10.1177/1744...
Bella Madden's poem on anticipatory injectable medications in end-of-life care
YouTube video by Primary Care Unit, University of Cambridge
youtu.be
September 3, 2025 at 2:04 PM
Reposted by Simon Etkind
This personal piece by Robbie puts his writings on attachment theory in context of his life n parenting. It is heartbreakingly matter of fact about what he's been through. But the analytic upshot is that attachment theory has clear implications in this more extreme situation too. A pleasure to read.
August 1, 2025 at 4:34 PM
Reposted by Simon Etkind
‘This presents a difficult dilemma for clinicians: should they always provide explicit information, even when it may go against patients’ or families’ wishes?’ This week’s #EAPCblog explores this complex topic eapcnet.wordpress.com/2025/07/15/p...
Page not found | EAPC Blog
The blog of the European Association for Palliative Care
eapcnet.wordpress.com
July 15, 2025 at 9:00 AM
Our prognostic uncertainty communication study is out, see here for details! Please share with colleagues who may find this useful @rcphysicians.bsky.social apmposts.bsky.social @acutemedicine.bsky.social @gerisoc.bsky.social
New guidance helps clinicians talk about uncertain prognoses with older adults facing complex health needs.

Co-designed by researchers & patients, the recommendations aim to improve care of people in uncertain health circumstances.

Read more below:

www.phpc.cam.ac.uk/news/cambrid...
July 5, 2025 at 12:26 PM
Reposted by Simon Etkind
Stephanie Meddick-Dyson (@drstephmeddickd.bsky.social) is inviting people to share their experiences of care in the Intensive Care Unit through focus groups or interviews. Please see the flyer or get in touch with Stephanie for more details
June 3, 2025 at 11:04 AM
What does good look like in situations of uncertainty from serious illness? Rachel Chen presenting her framework of desired outcomes #EAPC2025

Finding security in uncertainty together is the key
May 31, 2025 at 6:45 AM
Reposted by Simon Etkind
Sharing the results of this important study at #EAPC2025:
Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts?

Led by @annefinucane.bsky.social
-with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social

Funded by @mariecurieeolc.bsky.social
May 30, 2025 at 12:08 PM
Multimorbidity drives outpatient service use and is every specialties' business. We need more realistic conversations and better communication. Great presentation
@spbowers.bsky.social #EAPC2025. Any data on acute care use?
May 30, 2025 at 9:01 AM
New and extended roles in end of life care: @drbenbowers.bsky.social presenting his study of UK community nurses post-pandemic experiences @arceastofengland.bsky.social @pcucambridge.bsky.social #EAPC2025
May 30, 2025 at 8:40 AM
Reposted by Simon Etkind
#EAPC2025 kicks off with a plenary on #ILD. #Opioids good for #cough, potentially for exertional dyspnoea and use at the very end-of-life - but not for chronic breathlessness. @eapcvzw.bsky.social
May 29, 2025 at 11:01 AM
We've co-designed practice recommendations for communicating prognostic uncertainties in advanced multimorbidity.

See here for the paper: rdcu.be/enwFr

@pcucambridge.bsky.social
@rcphysicians.bsky.social @gerisoc.bsky.social
@apmposts.bsky.social @arceastofengland.bsky.social
May 27, 2025 at 10:43 AM
Reposted by Simon Etkind
Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...
May 21, 2025 at 6:23 AM
Reposted by Simon Etkind
Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.
May 19, 2025 at 12:58 PM
Reposted by Simon Etkind
Community nurses based in the UK? Please help us evidence how much of your work involves end of life care.

Take part in our 10-min max survey study here:
cambridge.eu.qualtrics.com/jfe/form/SV_...

@theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social
NOTICE Survey
NOTICE Survey
cambridge.eu.qualtrics.com
May 18, 2025 at 6:04 PM
Reposted by Simon Etkind
It's #DyingMattersWeek

We're all going to do it. Shouldn't we get our minds around what to expect?

Here's a 3 min guide. If you like it, please share it.

bit.ly/TheosDFB
Dying for Beginners | Dr Kathryn Mannix
In modern British society, death is out of sight and behind closed doors. Many of us lack direct exposure to the dying process - with all sorts of potential emotional and spiritual consequences for how we grieve our loved ones, as well as how we prepare for our own deaths. What does the dying process actually look like? A short animation by Emily Downe, and voiced by Dr Kathryn Mannix which guides you gently on a step by step journey through the process of dying. Acclaimed author, speaker and former palliative care physician Dr Kathryn Mannix has spent her medical career working with people who have incurable, advanced illnesses. The author of two Sunday Times Bestsellers – With The End in Mind and Listen, Dr Mannix is on a mission to reclaim the public’s understanding of dying. CREDITS Written and voiced by Dr Kathryn Mannix Directed and designed by Emily Downe Animated by Martha Halliday Music and sound by Jan Willem de With Produced by Theos with thanks to The Fetzer institute Find out more about Theos' work in the area of death, dying and the afterlife here: https://www.theosthinktank.co.uk/dying-for-beginners-theos-work-on-death-dying-and-the-afterlife ***** Like what you see? Be sure to sign up to the Theos monthly newsletter to stay up-to-date with all our content, research and events: https://confirmsubscription.com/h/d/E9E17CAB71AC7464 CONNECT WITH THEOS Twitter: https://twitter.com/Theosthinktank Facebook: https://www.facebook.com/theosthinktank LinkedIn: https://www.linkedin.com/company/theos---the-think-tank/ Website: https://www.theosthinktank.co.uk/ CHECK OUT OUR PODCASTS The Sacred: https://podcasts.apple.com/gb/podcast/the-sacred/id1326888108 Reading Our Times: https://podcasts.apple.com/gb/podcast/reading-our-times/id1530952185
bit.ly
May 6, 2025 at 8:34 PM
Reposted by Simon Etkind
Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred?

Please help with our short anonymous survey
& share widely with colleagues 🙂

Take part here:
cambridge.eu.qualtrics.com/jfe/form/SV_...

@crystaloldman.bsky.social @theqicn.bsky.social
May 4, 2025 at 12:28 PM
Reposted by Simon Etkind
Open access paper just out on The social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data. Brilliantly led by @joannamdavies.bsky.social

www.sciencedirect.com/science/arti...
April 9, 2025 at 7:40 PM
Reposted by Simon Etkind
Yup, this is why we need to respond to Sir Chris Whittys survey request about medical training for the future. We must plan for a workforce who can deliver healthcare aligned to needs of patients, the majority of which have MLTC. Similar, of course, for nursing/AHP @gerisoc.bsky.social
April 9, 2025 at 1:20 PM
Reposted by Simon Etkind
🚨Our new BJGP paper - community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue & workforce diversification @bjgp.bsky.social

Pls Share. Our paper: bjgp.org/content/earl...

@theqicn.bsky.social @crystaloldman.bsky.social
March 29, 2025 at 5:51 PM
Reposted by Simon Etkind
Researchers from the University of Cambridge have found that community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue and workforce diversification.

Read more:

www.phpc.cam.ac.uk/news/how-do-...
March 28, 2025 at 2:07 PM
Reposted by Simon Etkind
Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help?

The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇
March 19, 2025 at 12:15 PM
Reposted by Simon Etkind
Well done to @katieflanagan.bsky.social for presenting a great paper in the @mariecurieuk.bsky.social Hospice Liverpool journal club about the role of #VirtualReality in palliative care for hospice patients.

#hapc
#palliativecare
#medsky
#vr
@nicolawhite.bsky.social
@sarah-stan.bsky.social
March 15, 2025 at 9:17 AM
Reposted by Simon Etkind
Terminal illness is already characterised by uncertainty about the future trajectory.

Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social
www.bmj.com/content/388/...
March 13, 2025 at 10:50 AM
Reposted by Simon Etkind
Really important editorial on predicting survival, prognosis and the current #AssistedDying law
Predicting a prognosis of 6 months is fraught with uncertainty and impossible to do accurately

Scott Murray & I summarise the challenges of predicting survival over this timescale in @bmj.com
& what this means for proposed Assisted Dying legislation www.bmj.com/content/388/...
March 12, 2025 at 10:01 PM