Professor Jonathan Koffman
@jonathankoffman.bsky.social
Interested in equity and equality in end of life care, ethnicity and culture, advance care planning, big data. Works at Wolfson Palliative Care Research Centre, Hull York Medical School
Reposted by Professor Jonathan Koffman
With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala,
@jonathankoffman.bsky.social
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala,
@jonathankoffman.bsky.social
October 7, 2025 at 11:21 AM
With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala,
@jonathankoffman.bsky.social
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala,
@jonathankoffman.bsky.social
Reposted by Professor Jonathan Koffman
Our new study in The British Journal of Cancer shows ethnic inequalities in opioid prescribing for cancer pain at the end of life. www.nature.com/articles/s41...
October 7, 2025 at 11:16 AM
Our new study in The British Journal of Cancer shows ethnic inequalities in opioid prescribing for cancer pain at the end of life. www.nature.com/articles/s41...
Reposted by Professor Jonathan Koffman
Reposted by Professor Jonathan Koffman
With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar,
@gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar,
@gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social
October 7, 2025 at 11:16 AM
With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar,
@gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar,
@gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social
@wolfsonpallcare.bsky.social
Bereaved parents face lasting financial strain—juggling work, delayed benefits, and sudden loss of support like DLA. We need consistent practical help from healthcare, faster benefits, and tailored job support. #BereavementSupport #ChildLoss
Bereaved parents face lasting financial strain—juggling work, delayed benefits, and sudden loss of support like DLA. We need consistent practical help from healthcare, faster benefits, and tailored job support. #BereavementSupport #ChildLoss
Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study - BMC Palliative Care
Background Bereaved parents are at higher risk of poor mental and physical health outcomes than people bereaved under other circumstances. These challenges are exacerbated by the continued effects on ...
bmcpalliatcare.biomedcentral.com
July 2, 2025 at 5:55 PM
@wolfsonpallcare.bsky.social
Bereaved parents face lasting financial strain—juggling work, delayed benefits, and sudden loss of support like DLA. We need consistent practical help from healthcare, faster benefits, and tailored job support. #BereavementSupport #ChildLoss
Bereaved parents face lasting financial strain—juggling work, delayed benefits, and sudden loss of support like DLA. We need consistent practical help from healthcare, faster benefits, and tailored job support. #BereavementSupport #ChildLoss
Reposted by Professor Jonathan Koffman
It still concerns me that the only direct consultation with marginalised groups on the #AssistedDyingBill has been the tiny bits I’ve done
I summarise the key findings here
MPs must not take the silencing of these groups as reassurance
#AssistedDying
@katiewhitemp.bsky.social
I summarise the key findings here
MPs must not take the silencing of these groups as reassurance
#AssistedDying
@katiewhitemp.bsky.social
A colleague has written this, which I think nicely sums up some of the reasons I have mixed feelings about the #AssistedDying bill.
No simple right answers here; just tradeoffs - but hopefully we can recognise and help those who are at risk.
www.politicshome.com/opinion/arti...
No simple right answers here; just tradeoffs - but hopefully we can recognise and help those who are at risk.
www.politicshome.com/opinion/arti...
I consulted marginalised groups on the assisted dying bill – there is fear
The Terminally Ill Adults Bill offers a choice to a small but important group of people who want the option of assisted dying.
www.politicshome.com
June 13, 2025 at 9:03 AM
It still concerns me that the only direct consultation with marginalised groups on the #AssistedDyingBill has been the tiny bits I’ve done
I summarise the key findings here
MPs must not take the silencing of these groups as reassurance
#AssistedDying
@katiewhitemp.bsky.social
I summarise the key findings here
MPs must not take the silencing of these groups as reassurance
#AssistedDying
@katiewhitemp.bsky.social
Reposted by Professor Jonathan Koffman
Community nursing colleagues in the UK - please could you help with our short survey. We have 1300 participants and keen to reach 1400 if we can
Please share too! Survey:
cambridge.eu.qualtrics.com/jfe/form/SV_...
@theqicn.bsky.social @arc-southlondon.bsky.social @arceastofengland.bsky.social
Please share too! Survey:
cambridge.eu.qualtrics.com/jfe/form/SV_...
@theqicn.bsky.social @arc-southlondon.bsky.social @arceastofengland.bsky.social
June 15, 2025 at 1:38 PM
Community nursing colleagues in the UK - please could you help with our short survey. We have 1300 participants and keen to reach 1400 if we can
Please share too! Survey:
cambridge.eu.qualtrics.com/jfe/form/SV_...
@theqicn.bsky.social @arc-southlondon.bsky.social @arceastofengland.bsky.social
Please share too! Survey:
cambridge.eu.qualtrics.com/jfe/form/SV_...
@theqicn.bsky.social @arc-southlondon.bsky.social @arceastofengland.bsky.social
Reposted by Professor Jonathan Koffman
When you were considering being offended at being called a nerd last week
……but you’ve spent the weekend at a #Lego fayre & find yourself excited to take your Dr Hibbert (& his little x-ray! 🩻) to the hospital to show your friends 🏥 🩺
…..& realise its true 🤓😆
#NerdsAreCool 😎
……but you’ve spent the weekend at a #Lego fayre & find yourself excited to take your Dr Hibbert (& his little x-ray! 🩻) to the hospital to show your friends 🏥 🩺
…..& realise its true 🤓😆
#NerdsAreCool 😎
June 16, 2025 at 7:54 AM
When you were considering being offended at being called a nerd last week
……but you’ve spent the weekend at a #Lego fayre & find yourself excited to take your Dr Hibbert (& his little x-ray! 🩻) to the hospital to show your friends 🏥 🩺
…..& realise its true 🤓😆
#NerdsAreCool 😎
……but you’ve spent the weekend at a #Lego fayre & find yourself excited to take your Dr Hibbert (& his little x-ray! 🩻) to the hospital to show your friends 🏥 🩺
…..& realise its true 🤓😆
#NerdsAreCool 😎
Reposted by Professor Jonathan Koffman
Well done Tara 👏👏👏
Presenting her #PhD #Research
- with a poster at #EAPC2025 on Patient-centred education for assessing & managing cancer #pain for patients from ethnic minority groups
With supervisor @jonathankoffman.bsky.social
Team
@wolfsonpallcare.bsky.social 🙌
#Ethnicity #Inequalities
Presenting her #PhD #Research
- with a poster at #EAPC2025 on Patient-centred education for assessing & managing cancer #pain for patients from ethnic minority groups
With supervisor @jonathankoffman.bsky.social
Team
@wolfsonpallcare.bsky.social 🙌
#Ethnicity #Inequalities
May 30, 2025 at 11:50 AM
Well done Tara 👏👏👏
Presenting her #PhD #Research
- with a poster at #EAPC2025 on Patient-centred education for assessing & managing cancer #pain for patients from ethnic minority groups
With supervisor @jonathankoffman.bsky.social
Team
@wolfsonpallcare.bsky.social 🙌
#Ethnicity #Inequalities
Presenting her #PhD #Research
- with a poster at #EAPC2025 on Patient-centred education for assessing & managing cancer #pain for patients from ethnic minority groups
With supervisor @jonathankoffman.bsky.social
Team
@wolfsonpallcare.bsky.social 🙌
#Ethnicity #Inequalities
Reposted by Professor Jonathan Koffman
Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮
We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social
We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social
May 30, 2025 at 11:29 AM
Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮
We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social
We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social
Reposted by Professor Jonathan Koffman
Really looking forward to this!
📢 You're Invited!
Join us for the Launch of the EAPC European Atlas of Palliative Care 2025 at the upcoming EAPC World Congress in Helsinki!
🗓 Date: Thursday, 29th May 2025
🕐 Time: 13:00 – 14:00 CET
📍 Location: Hall 1, Helsinki (EAPC Congress Venue)
More info: eapccongress.eu/2025/...
Join us for the Launch of the EAPC European Atlas of Palliative Care 2025 at the upcoming EAPC World Congress in Helsinki!
🗓 Date: Thursday, 29th May 2025
🕐 Time: 13:00 – 14:00 CET
📍 Location: Hall 1, Helsinki (EAPC Congress Venue)
More info: eapccongress.eu/2025/...
May 23, 2025 at 10:01 AM
Really looking forward to this!
Reposted by Professor Jonathan Koffman
🎉 Delighted to see Fuse Senior Investigator @profbambra.bsky.social elected as a Fellow @acmedsci.bsky.social! A prestigious and well-deserved recognition of her outstanding contribution to public health research understanding and reducing health inequalities, both in the North East and beyond. 👏
I am delighted to have been elected as a Fellow of The Academy of Medical Sciences @acmedsci.bsky.social
www.ncl.ac.uk/press/articl...
www.ncl.ac.uk/press/articl...
Prestigious academy elects leading scientists to its Fellowship
The Academy of Medical Sciences has elected two prominent Newcastle University academics to its Fellowship.
www.ncl.ac.uk
May 22, 2025 at 3:53 PM
🎉 Delighted to see Fuse Senior Investigator @profbambra.bsky.social elected as a Fellow @acmedsci.bsky.social! A prestigious and well-deserved recognition of her outstanding contribution to public health research understanding and reducing health inequalities, both in the North East and beyond. 👏
Reposted by Professor Jonathan Koffman
Family/friend caregivers are an important source of support- but who cares for the #carers?
We #CoProduced a family diary to support carers in making their voices heard when someone is dying
We report the process over the past few years here
#PalliativeCare
journals.sagepub.com/doi/10.1177/...
We #CoProduced a family diary to support carers in making their voices heard when someone is dying
We report the process over the past few years here
#PalliativeCare
journals.sagepub.com/doi/10.1177/...
How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivat...
Background: Family caregivers play a vital role in supporting patients at the end of life, a role that can impact their own well-being. Healthcare professionals...
journals.sagepub.com
May 23, 2025 at 3:49 PM
Family/friend caregivers are an important source of support- but who cares for the #carers?
We #CoProduced a family diary to support carers in making their voices heard when someone is dying
We report the process over the past few years here
#PalliativeCare
journals.sagepub.com/doi/10.1177/...
We #CoProduced a family diary to support carers in making their voices heard when someone is dying
We report the process over the past few years here
#PalliativeCare
journals.sagepub.com/doi/10.1177/...
Reposted by Professor Jonathan Koffman
📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓
“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
May 23, 2025 at 3:40 PM
📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓
“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
Reposted by Professor Jonathan Koffman
One of the (many) take home messages being that people struggle to communicate about death and dying - even healthcare professionals
As a society we need to normalise talking about dying (since we all will)
#PalliativeCare #EndOfLifeCare
#HaPC #HPC #MedSky
As a society we need to normalise talking about dying (since we all will)
#PalliativeCare #EndOfLifeCare
#HaPC #HPC #MedSky
📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓
“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
May 23, 2025 at 4:17 PM
One of the (many) take home messages being that people struggle to communicate about death and dying - even healthcare professionals
As a society we need to normalise talking about dying (since we all will)
#PalliativeCare #EndOfLifeCare
#HaPC #HPC #MedSky
As a society we need to normalise talking about dying (since we all will)
#PalliativeCare #EndOfLifeCare
#HaPC #HPC #MedSky
Reposted by Professor Jonathan Koffman
Are you a community nurse in the UK?
Our researchers are seeking to understand how much of your work supports people in their last year of life and how often care is deferred or cancelled.
Share your input below:
cambridge.eu.qualtrics.com/jfe/form/SV_...
#CommunityNursing #EndOfLifeCare
Our researchers are seeking to understand how much of your work supports people in their last year of life and how often care is deferred or cancelled.
Share your input below:
cambridge.eu.qualtrics.com/jfe/form/SV_...
#CommunityNursing #EndOfLifeCare
May 23, 2025 at 11:47 AM
Are you a community nurse in the UK?
Our researchers are seeking to understand how much of your work supports people in their last year of life and how often care is deferred or cancelled.
Share your input below:
cambridge.eu.qualtrics.com/jfe/form/SV_...
#CommunityNursing #EndOfLifeCare
Our researchers are seeking to understand how much of your work supports people in their last year of life and how often care is deferred or cancelled.
Share your input below:
cambridge.eu.qualtrics.com/jfe/form/SV_...
#CommunityNursing #EndOfLifeCare
Reposted by Professor Jonathan Koffman
Just out - letter in @JAMAInternalMed led by @joannamdavies.bsky.social
“Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”
“Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”
May 21, 2025 at 4:21 PM
Just out - letter in @JAMAInternalMed led by @joannamdavies.bsky.social
“Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”
“Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”
Quite the legend. An extraordinary clinician.
Sad news, but what a legacy she left for hospice and palliative care. 💔
ehospice.com/africa_posts...
ehospice.com/africa_posts...
May 21, 2025 at 12:38 PM
Quite the legend. An extraordinary clinician.
Reposted by Professor Jonathan Koffman
Our EAPC webinar on Family Caregiving in Palliative Care is now available and FREE to view.
Hosted by the #EAPC Reference Group for Family Caregivers. Updates on recent research and state of the science in interventions.
www.youtube.com/watch?v=GuSu...
Hosted by the #EAPC Reference Group for Family Caregivers. Updates on recent research and state of the science in interventions.
www.youtube.com/watch?v=GuSu...
EAPC Webinar: Family caregiver research in palliative care
YouTube video by European Association for Palliative Care EAPCvzw
www.youtube.com
April 1, 2025 at 11:40 AM
Our EAPC webinar on Family Caregiving in Palliative Care is now available and FREE to view.
Hosted by the #EAPC Reference Group for Family Caregivers. Updates on recent research and state of the science in interventions.
www.youtube.com/watch?v=GuSu...
Hosted by the #EAPC Reference Group for Family Caregivers. Updates on recent research and state of the science in interventions.
www.youtube.com/watch?v=GuSu...
Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...
May 21, 2025 at 6:23 AM
Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...
Reposted by Professor Jonathan Koffman
First bluesky post! My new editorial with Catherine Evans and @proflizsampson.bsky.social calls out the misuse of 'person-centred care' in policy and outcome measurement as vague and oversimplified, especially for those with dementia. Full article on request!
onlinelibrary.wiley.com/doi/abs/10.1...
onlinelibrary.wiley.com/doi/abs/10.1...
The Janus Face of Person‐Centred Care
Click on the article title to read more.
onlinelibrary.wiley.com
December 10, 2024 at 3:58 PM
First bluesky post! My new editorial with Catherine Evans and @proflizsampson.bsky.social calls out the misuse of 'person-centred care' in policy and outcome measurement as vague and oversimplified, especially for those with dementia. Full article on request!
onlinelibrary.wiley.com/doi/abs/10.1...
onlinelibrary.wiley.com/doi/abs/10.1...
Reposted by Professor Jonathan Koffman
How do you say "I don't know" whilst maintaining trust?
Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out.
Register here: www.mariecurie.org.uk/research-and...
#MCResearch2025
Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out.
Register here: www.mariecurie.org.uk/research-and...
#MCResearch2025
Research Conference 2025
We're delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Tuesday 11 February 2025.
www.mariecurie.org.uk
February 4, 2025 at 1:34 PM
How do you say "I don't know" whilst maintaining trust?
Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out.
Register here: www.mariecurie.org.uk/research-and...
#MCResearch2025
Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out.
Register here: www.mariecurie.org.uk/research-and...
#MCResearch2025
Reposted by Professor Jonathan Koffman
Terminal illness is already characterised by uncertainty about the future trajectory.
Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social
www.bmj.com/content/388/...
Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social
www.bmj.com/content/388/...
March 13, 2025 at 10:50 AM
Terminal illness is already characterised by uncertainty about the future trajectory.
Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social
www.bmj.com/content/388/...
Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social
www.bmj.com/content/388/...
Citing the correct evidence in relation to the assisted dying discussion is critical. Letter in the @thetimes.com yesterday
May 19, 2025 at 1:00 PM
Citing the correct evidence in relation to the assisted dying discussion is critical. Letter in the @thetimes.com yesterday
Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.
May 19, 2025 at 12:58 PM
Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.