Shelley
@shelley55.bsky.social
retired teacher, cat and dog lover, patient advocate 💙🐈⬛, RA & fibro
Reposted by Shelley
GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
October 23, 2025 at 6:27 AM
GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
I’m doing a trial of YouTube TV and there is Moments of Zen channel. ☮️✌️😌
October 12, 2025 at 5:08 AM
I’m doing a trial of YouTube TV and there is Moments of Zen channel. ☮️✌️😌
If you have psoriatic arthritis, please complete this survey from @creakyjoints.bsky.social #psa #psoriaticarthritis
Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife
September 28, 2025 at 4:50 PM
If you have psoriatic arthritis, please complete this survey from @creakyjoints.bsky.social #psa #psoriaticarthritis
POV: Your dogs swore they were gardening, but came back lookin’ like they just did the Hot Cheeto Challenge.
#dogsofbluesky
#dogsofbluesky
July 21, 2025 at 2:10 AM
POV: Your dogs swore they were gardening, but came back lookin’ like they just did the Hot Cheeto Challenge.
#dogsofbluesky
#dogsofbluesky
Reposted by Shelley
Today is Chronic Disease Day — a reminder that 1 in 3 adults worldwide lives with a chronic illness.
For many, these conditions are invisible, lifelong, and misunderstood.
They deserve care that listens, systems that work, and a world that doesn’t ask them to prove their pain.
We see you.
For many, these conditions are invisible, lifelong, and misunderstood.
They deserve care that listens, systems that work, and a world that doesn’t ask them to prove their pain.
We see you.
July 10, 2025 at 7:33 PM
Today is Chronic Disease Day — a reminder that 1 in 3 adults worldwide lives with a chronic illness.
For many, these conditions are invisible, lifelong, and misunderstood.
They deserve care that listens, systems that work, and a world that doesn’t ask them to prove their pain.
We see you.
For many, these conditions are invisible, lifelong, and misunderstood.
They deserve care that listens, systems that work, and a world that doesn’t ask them to prove their pain.
We see you.
Such a pleasure to talk with Dr. Ted Mikuls about the Rheumatoid Factor (RF) test
Let’s Get Personal is back!
Ep 1: Dr. Ted Mikuls & Shelley Fritz break down the Rheumatoid Factor test in RA — what it means for diagnosis and disease severity, and how patients can feel more empowered.
Listen: creakyjoints.org/lets-get-per...
#RheumatoidArthritis #RA #LetsGetPersonal
Ep 1: Dr. Ted Mikuls & Shelley Fritz break down the Rheumatoid Factor test in RA — what it means for diagnosis and disease severity, and how patients can feel more empowered.
Listen: creakyjoints.org/lets-get-per...
#RheumatoidArthritis #RA #LetsGetPersonal
July 13, 2025 at 10:18 PM
Such a pleasure to talk with Dr. Ted Mikuls about the Rheumatoid Factor (RF) test
Let the new neighbors know who’s in charge. Meow
#catsofbluesky
#catsofbluesky
July 2, 2025 at 5:00 AM
Let the new neighbors know who’s in charge. Meow
#catsofbluesky
#catsofbluesky
Happy 2nd birthday to Miss Elaine Benes! #catsofbluesky #cats
June 14, 2025 at 6:35 PM
Happy 2nd birthday to Miss Elaine Benes! #catsofbluesky #cats
Reposted by Shelley
LGBTQ+ patients living with chronic illness deserve to see themselves represented—in advocacy, in media, and in medicine.
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
Why LGBTQ+ Representation Matters to Me: Celebrating Diversity and Inclusion in Health Care
In honor of LGBTQ+ Pride Month, members of our chronic illness community share why representation of the LGBTQ+ community is crucial for achieving health equity.
ghlf.org
June 10, 2025 at 7:52 PM
LGBTQ+ patients living with chronic illness deserve to see themselves represented—in advocacy, in media, and in medicine.
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
May 17, 2025 at 6:01 PM
Reposted by Shelley
🧑⚕️ We're recruiting patients for a paid advisory board!
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
April 24, 2025 at 6:58 PM
🧑⚕️ We're recruiting patients for a paid advisory board!
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
Reposted by Shelley
Clinical trials could offer new hope for lupus patients — but we know they can feel overwhelming.
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
Lupus Help Center
Ready to explore clinical trials, ask questions, or hear patient stories? The Lupus Help Center has the support and info you need.
www.lupushelpcenter.org
April 23, 2025 at 6:33 PM
Clinical trials could offer new hope for lupus patients — but we know they can feel overwhelming.
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
Reposted by Shelley
Today is IgG4-Related Disease Awareness Day 🧬
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
April 4, 2025 at 7:51 PM
Today is IgG4-Related Disease Awareness Day 🧬
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
Reposted by Shelley
No one should feel alone in their health journey, and every patient deserves care that is both effective and affirming.
Michael’s journey with PsO and PsA as an LGBTQ+ person here:
creakyjoints.org/psoriasis/li...
#lgbtqhealth
Michael’s journey with PsO and PsA as an LGBTQ+ person here:
creakyjoints.org/psoriasis/li...
#lgbtqhealth
Living with Psoriasis and Psoriatic Arthritis as an LGBTQ+ Person: Michael’s Story
The Right Doctor Can Make All the Difference in Your Psoriasis and PsA Journey
creakyjoints.org
March 23, 2025 at 7:29 PM
No one should feel alone in their health journey, and every patient deserves care that is both effective and affirming.
Michael’s journey with PsO and PsA as an LGBTQ+ person here:
creakyjoints.org/psoriasis/li...
#lgbtqhealth
Michael’s journey with PsO and PsA as an LGBTQ+ person here:
creakyjoints.org/psoriasis/li...
#lgbtqhealth
Reposted by Shelley
T.G.I.S. Thank God it’s Severance day #Severance
a man in a white turtleneck with a lanyard around his neck is dancing
ALT: a man in a white turtleneck with a lanyard around his neck is dancing
media.tenor.com
February 13, 2025 at 5:23 PM
T.G.I.S. Thank God it’s Severance day #Severance
I hope Elaine is making me cookies.
March 18, 2025 at 10:24 PM
I hope Elaine is making me cookies.
Reposted by Shelley
Busting #PsoriaticArthritis and #Psoriasis Myths with Jody Quinn and our host @shelley55.bsky.social
Whether you're living with PsA or supporting someone who is, this episode offers valuable insights to help you navigate the condition with confidence.
Tune in now: creakyjoints.org/psoriatic-ar...
Whether you're living with PsA or supporting someone who is, this episode offers valuable insights to help you navigate the condition with confidence.
Tune in now: creakyjoints.org/psoriatic-ar...
The Psoriatic Arthritis Club
Through personal chats with psoriatic arthritis experts and PsA patients, the Psoriatic Arthritis Club podcast explores the ups & downs of navigating PsA.
creakyjoints.org
March 5, 2025 at 9:04 AM
Busting #PsoriaticArthritis and #Psoriasis Myths with Jody Quinn and our host @shelley55.bsky.social
Whether you're living with PsA or supporting someone who is, this episode offers valuable insights to help you navigate the condition with confidence.
Tune in now: creakyjoints.org/psoriatic-ar...
Whether you're living with PsA or supporting someone who is, this episode offers valuable insights to help you navigate the condition with confidence.
Tune in now: creakyjoints.org/psoriatic-ar...
Reposted by Shelley
They're not ashamed, they also stole money from a children's cancer charity.
They are barbarians, downright evil barbarians....
They are barbarians, downright evil barbarians....
February 19, 2025 at 2:25 PM
They're not ashamed, they also stole money from a children's cancer charity.
They are barbarians, downright evil barbarians....
They are barbarians, downright evil barbarians....
Reposted by Shelley
Thank goodness for the American Medical Association. Here is their YouTube page. Please share far and wide. Right now bird flu is spreading throughout our country and most people have no clue. Please stay updated and bookmark this page for your health and well-being.
www.youtube.com/@americanmed...
www.youtube.com/@americanmed...
February 12, 2025 at 8:45 PM
Thank goodness for the American Medical Association. Here is their YouTube page. Please share far and wide. Right now bird flu is spreading throughout our country and most people have no clue. Please stay updated and bookmark this page for your health and well-being.
www.youtube.com/@americanmed...
www.youtube.com/@americanmed...
T.G.I.S. Thank God it’s Severance day #Severance
a man in a white turtleneck with a lanyard around his neck is dancing
ALT: a man in a white turtleneck with a lanyard around his neck is dancing
media.tenor.com
February 13, 2025 at 5:23 PM
T.G.I.S. Thank God it’s Severance day #Severance
Hoping this round of Rituxan (Truxima—biosimilar) gets me moving faster and with less pain. #rheumatoidarthritis
February 6, 2025 at 1:00 AM
Hoping this round of Rituxan (Truxima—biosimilar) gets me moving faster and with less pain. #rheumatoidarthritis
Question for physicians out there—
How often do you update your education about the medical field after receiving your medical license? Do you choose what you want to learn more about or is a particular program that you have to go through for updates in medicines?
How often do you update your education about the medical field after receiving your medical license? Do you choose what you want to learn more about or is a particular program that you have to go through for updates in medicines?
February 3, 2025 at 7:57 PM
Question for physicians out there—
How often do you update your education about the medical field after receiving your medical license? Do you choose what you want to learn more about or is a particular program that you have to go through for updates in medicines?
How often do you update your education about the medical field after receiving your medical license? Do you choose what you want to learn more about or is a particular program that you have to go through for updates in medicines?
Is this the new kitchen cabinet trend? Child locks won’t stop Elaine from trying to break into cabinets all through the night. I thought tape would keep them shut but she’s a master burglar
January 25, 2025 at 6:29 PM
Is this the new kitchen cabinet trend? Child locks won’t stop Elaine from trying to break into cabinets all through the night. I thought tape would keep them shut but she’s a master burglar