Shelley
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shelley55.bsky.social
Shelley
@shelley55.bsky.social
retired teacher, cat and dog lover, patient advocate 💙🐈‍⬛, RA & fibro
When I talk with my doctor, I relate my pain level to what I could or could not do during the week. Just saying it was a 6 and now it’s a 4 is not enough information sometimes to make a decision about next steps.
September 4, 2025 at 3:59 AM
If it’s leg pain, I go for a walk outside. If it’s hand or back pain from RA, I grab my heating pad and a good distraction like a movie.
September 4, 2025 at 3:55 AM
Enbrel, Humira, Actemra, Orencia, Xeljanz, Rituxan, Inflectra (biosimilar for Remicade), and now I’m on Tuxima—biosimilar for Rituximab.
February 11, 2025 at 6:30 AM